Cisplatin Fears

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  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #42
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    acedamama said:

    Thanks for the info about Carboplatin

    Thank you for the info. May God continue to bless you with great results. I haven't noticed any changes in the nodes or tumor (it is visible on his neck), but we are only 3 weeks into treatment. After the first week with cisplatin (1 every 3weeks) he noticed the "chirping". His ONC changed to Carboplatin weekly dosage for the next 6 weeks. Praying it is going to be the best combination for him. God Bless!

    Tumor..

    In addition to the tonsils, I also had a visible lump going into treatment... After seven weeks or so it was barely even noticed by touch, couldn't see it at all. After the nine weeks (three week cycles of Cisplatin, Taxotere and weekly 5FU (all before weekly Carboplatin), the tumor dissolved away...

    They even had me do a CT, no signs of it since, and it did show up on the original PET Scans...

    If I remember correctly, there were a few others here with similar results...

    So hang in there, you never know what good things might turn out...

    Best,

    John

  • Jennfer39
    Jennfer39 Member Posts: 23 Member
    #43
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    Skiffin16 said:

    Tumor..

    In addition to the tonsils, I also had a visible lump going into treatment... After seven weeks or so it was barely even noticed by touch, couldn't see it at all. After the nine weeks (three week cycles of Cisplatin, Taxotere and weekly 5FU (all before weekly Carboplatin), the tumor dissolved away...

    They even had me do a CT, no signs of it since, and it did show up on the original PET Scans...

    If I remember correctly, there were a few others here with similar results...

    So hang in there, you never know what good things might turn out...

    Best,

    John

    So similar to your case, Skiffin!

    I recall feeling the dent on the lump about week two of radiation.  Mine too simply melted away and had been VERY visible and palpable going into treatment.  I knew, and could physically feel the tumor shrinking in my lymph nodes.  Many don't have that  "in the moment" confirmation that the treatment is working. 

    Without being redundant, I would hope you have had no recurrences? 

    I certainly hope that to be the case! 

    Jen

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