cysts on my liver

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Comments

  • jnl
    jnl Member Posts: 3,869 Member
    Megan M said:

    Good luck today Marianne! 

    Good luck today Marianne!  Praying for good news!

    Hugs, Megan

    Marianne, be sure and post

    Marianne, be sure and post when you get back! 

     

  • Kristin N
    Kristin N Member Posts: 1,968 Member
    jnl said:

    Marianne, be sure and post

    Marianne, be sure and post when you get back! 

     

    You're in my thoughts today

    You're in my thoughts today Marianne!

  • Noel
    Noel Member Posts: 3,095 Member
    Kristin N said:

    You're in my thoughts today

    You're in my thoughts today Marianne!

    Wishing you good results!

    Wishing you good results!

  • Kristin N
    Kristin N Member Posts: 1,968 Member
    Noel said:

    Wishing you good results!

    Wishing you good results!

    Results Marianne?

  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    SIROD said:

    Seek Out A Second Opinion Oncologist

    Perhaps have your PCP do the ordering of MRI, PET scans for the bones and Ct scan for the cysts.  Ultra sound work good on cyst too.   If it is a cyst the sound will go through and if it isn't it won't.  

    This way you can have your PCP find you and oncologist for a second opinion.  Since you don't have a lot of trust in your present one, you should find another one or at least see how you might go better with another oncologist.  My PCP found  the oncollogist I have now and have been with her for 13 years.  The other one had 3 strikes against him:  he forgot to order raditation at my initial diagnose and admitted it.  2), couldn't think why I was bleeding (Tamoxifen and thickening endometrium lining) and kept ordering endometrial biopsy though they were all negative.    I kept bleeding (turns out all I needed was a D&C but the cells were changing by the time I located a proper gynecologist).  3)  Ignored the pain I was having which were lesions in the ribs.  Was I ever upset with him.  Don't wait like I did, find a new oncologist that you can see eye to eye on serious issues.

    Sending positive thoughts your way,

    Doris

    Thought there might be a new

    Thought there might be a new update.  Marianne?  Where are you and how are you?  Test results?

    Jan

  • Mariannemm
    Mariannemm Member Posts: 136

    Thought there might be a new

    Thought there might be a new update.  Marianne?  Where are you and how are you?  Test results?

    Jan

    Not much of an update

    When I saw my rad dr she was really sick, so it was a half hearted appt.  I was disappointed!  So I went and saw my onc this last week.  He told me that they can't tell if the cycts are cancerous or not.  But when he feels my liver it feels normal.  The next step would be to have an ultra-sound, which sounds simple and I said then can we do one.  He doesn't fell I need one, he thinks all is okay.  So I need to decide if I am "okay" with his decision.  I have obtained all my scans both films and written reports.  I have begun resreaching a new onc in a larger city then were I live.  There is only one clinic in my town to go to for onc.  I am going to make sure I pick a dr who will be aggressive and will listen to me.  I have spoken to a few people in the medical world that I know really well and they all say it is time for me to switch.  Why is it so hard to do?  I have made these steps, I have narrowed done the doctors and now I need to make a plan!  Thank you all for your thoughts, I will keep you posted on what I will do next.  All my best, Marianne

  • SIROD
    SIROD Member Posts: 2,194 Member

    Not much of an update

    When I saw my rad dr she was really sick, so it was a half hearted appt.  I was disappointed!  So I went and saw my onc this last week.  He told me that they can't tell if the cycts are cancerous or not.  But when he feels my liver it feels normal.  The next step would be to have an ultra-sound, which sounds simple and I said then can we do one.  He doesn't fell I need one, he thinks all is okay.  So I need to decide if I am "okay" with his decision.  I have obtained all my scans both films and written reports.  I have begun resreaching a new onc in a larger city then were I live.  There is only one clinic in my town to go to for onc.  I am going to make sure I pick a dr who will be aggressive and will listen to me.  I have spoken to a few people in the medical world that I know really well and they all say it is time for me to switch.  Why is it so hard to do?  I have made these steps, I have narrowed done the doctors and now I need to make a plan!  Thank you all for your thoughts, I will keep you posted on what I will do next.  All my best, Marianne

    To Change or Not To Change

    Marianne,

    For my 2 cents worth.   I would go with your new plan to settle on a new oncologist or even a 2nd opinion is worth seeing another.   I would rather know if the cysts are cysts or if they are tumors.  You don't want to be sorry later but wishing you did.  

    One thing about an ultra sound, though it is good to discover if sound travels through a spot, and it does if it is a cysts.  What if the rib bone is blocking the area which might be a consideration of doing or asking for a ct scan instead.

    While we have a certain rapport with our doctors, after we leave they go to the next patient.  The person who has the most invested and most interest in your situation is YOU.

    Wishing you well,

    Doris

     

  • cathyp
    cathyp Member Posts: 376 Member

    Not much of an update

    When I saw my rad dr she was really sick, so it was a half hearted appt.  I was disappointed!  So I went and saw my onc this last week.  He told me that they can't tell if the cycts are cancerous or not.  But when he feels my liver it feels normal.  The next step would be to have an ultra-sound, which sounds simple and I said then can we do one.  He doesn't fell I need one, he thinks all is okay.  So I need to decide if I am "okay" with his decision.  I have obtained all my scans both films and written reports.  I have begun resreaching a new onc in a larger city then were I live.  There is only one clinic in my town to go to for onc.  I am going to make sure I pick a dr who will be aggressive and will listen to me.  I have spoken to a few people in the medical world that I know really well and they all say it is time for me to switch.  Why is it so hard to do?  I have made these steps, I have narrowed done the doctors and now I need to make a plan!  Thank you all for your thoughts, I will keep you posted on what I will do next.  All my best, Marianne

    Marianne,
    Have you had blood

    Marianne,

    Have you had blood work lately that most likely included a liver panel?  Where there any abnormalities in it and did your doctors review the results with you?  It is understandable that you want to know for sure if the cysts are cysts but I do have to urge you to read my original post! Sometimes these findings lead to unnecessary anxiety and additional testing that subjects you body to radiation it can do without.  Have you discussed this with your PCP?  Often times they could gather the results, sit down with you and determine the next step.

    Good luck getting to the bottom of it. 

    Cathy

  • Mariannemm
    Mariannemm Member Posts: 136
    SIROD said:

    To Change or Not To Change

    Marianne,

    For my 2 cents worth.   I would go with your new plan to settle on a new oncologist or even a 2nd opinion is worth seeing another.   I would rather know if the cysts are cysts or if they are tumors.  You don't want to be sorry later but wishing you did.  

    One thing about an ultra sound, though it is good to discover if sound travels through a spot, and it does if it is a cysts.  What if the rib bone is blocking the area which might be a consideration of doing or asking for a ct scan instead.

    While we have a certain rapport with our doctors, after we leave they go to the next patient.  The person who has the most invested and most interest in your situation is YOU.

    Wishing you well,

    Doris

     

    YES

    You are so right, I am the one who have the most vested!!  I have an appointment with my PCP and it has been a year since we have done any blood work.  I was going to ask him to do some blood work and talk to him about the ultra-sound too. I don't want to do more than I need to do but it all seems so easy to do and to find out why don't I?!  Marianne

  • Pink Rose
    Pink Rose Member Posts: 493

    YES

    You are so right, I am the one who have the most vested!!  I have an appointment with my PCP and it has been a year since we have done any blood work.  I was going to ask him to do some blood work and talk to him about the ultra-sound too. I don't want to do more than I need to do but it all seems so easy to do and to find out why don't I?!  Marianne

    Do the ultra sound Marianne. 

    Do the ultra sound Marianne.  You really need to know, don't you?  It might be time to seek a 2nd opinion with another onco also.  You have to find out.

    Hugs, Rose

  • DebbyM
    DebbyM Member Posts: 3,289 Member

    Not much of an update

    When I saw my rad dr she was really sick, so it was a half hearted appt.  I was disappointed!  So I went and saw my onc this last week.  He told me that they can't tell if the cycts are cancerous or not.  But when he feels my liver it feels normal.  The next step would be to have an ultra-sound, which sounds simple and I said then can we do one.  He doesn't fell I need one, he thinks all is okay.  So I need to decide if I am "okay" with his decision.  I have obtained all my scans both films and written reports.  I have begun resreaching a new onc in a larger city then were I live.  There is only one clinic in my town to go to for onc.  I am going to make sure I pick a dr who will be aggressive and will listen to me.  I have spoken to a few people in the medical world that I know really well and they all say it is time for me to switch.  Why is it so hard to do?  I have made these steps, I have narrowed done the doctors and now I need to make a plan!  Thank you all for your thoughts, I will keep you posted on what I will do next.  All my best, Marianne

    It's always hard to change

    It's always hard to change doctors Marianne as we just settle in with the one that we have and are used to them.  I guess it brings us some comfort or safety knowing we've been treated by them for awhile.  Something or someone new is always scary.

    I hope you do get a new onco and get the ultrasound. 

    Big hugs,

    Debby

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    DebbyM said:

    It's always hard to change

    It's always hard to change doctors Marianne as we just settle in with the one that we have and are used to them.  I guess it brings us some comfort or safety knowing we've been treated by them for awhile.  Something or someone new is always scary.

    I hope you do get a new onco and get the ultrasound. 

    Big hugs,

    Debby

    I tend to agree with Cathy about undue anxiety

    Because (drumroll), I've put myself through it many many times and probably will continue to do so.  I'm currently obsessing about "several areas of enhancement" on my December MRI.  The bottom line was no evidence of malignant disease, but gee whiz, they mentioned something else . . . My current philosophy (today) is if the cancer comes back, it will, and whether it is treated today or next month probably isn't going to make a hill of difference unless it's something really really impressive and that would be obvious.  But wait - remember I had 2 cancers so I have twice as many follow-ups as most so things like my nodes are checked more often and I'm asked similar questions by everyone.  I know it's awful to feel your concerns have been dismissed, but your oncologist probably truly believes they're just cysts.

    Having said all that, we each know our bodies best and each have established a comfort level with our health care team.  If you're uncomfortable with the feedback you've received, by all means follow up with someone else.   Many of us (me included) had no symptoms of breast cancer (i.e., palpable lump) but we still had it.  "They" watched a small mass in my beast for several years - and then it changed.  You've grown another "cyst" in your liver, so this is a change, and that would be what concerned me - the change.  

    I hope you can put your mind at ease about this and get that second opinion or switch oncs.  While I feel my oncs have very intact egos, I don't think they would take the least bit of offense to me either getting a second opinion or switching.  Good luck and let us know.

    Suzanne

  • Pink Rose
    Pink Rose Member Posts: 493

    I tend to agree with Cathy about undue anxiety

    Because (drumroll), I've put myself through it many many times and probably will continue to do so.  I'm currently obsessing about "several areas of enhancement" on my December MRI.  The bottom line was no evidence of malignant disease, but gee whiz, they mentioned something else . . . My current philosophy (today) is if the cancer comes back, it will, and whether it is treated today or next month probably isn't going to make a hill of difference unless it's something really really impressive and that would be obvious.  But wait - remember I had 2 cancers so I have twice as many follow-ups as most so things like my nodes are checked more often and I'm asked similar questions by everyone.  I know it's awful to feel your concerns have been dismissed, but your oncologist probably truly believes they're just cysts.

    Having said all that, we each know our bodies best and each have established a comfort level with our health care team.  If you're uncomfortable with the feedback you've received, by all means follow up with someone else.   Many of us (me included) had no symptoms of breast cancer (i.e., palpable lump) but we still had it.  "They" watched a small mass in my beast for several years - and then it changed.  You've grown another "cyst" in your liver, so this is a change, and that would be what concerned me - the change.  

    I hope you can put your mind at ease about this and get that second opinion or switch oncs.  While I feel my oncs have very intact egos, I don't think they would take the least bit of offense to me either getting a second opinion or switching.  Good luck and let us know.

    Suzanne

    I hope you get a 2nd opinion

    I hope you get a 2nd opinion too.  I don't think any doctor would mind that you would do that, and if they do, too bad.  You need to find out what's going on.

    Good luck, Rose

  • jnl
    jnl Member Posts: 3,869 Member
    Pink Rose said:

    I hope you get a 2nd opinion

    I hope you get a 2nd opinion too.  I don't think any doctor would mind that you would do that, and if they do, too bad.  You need to find out what's going on.

    Good luck, Rose

    Marianne, did  you see your

    Marianne, did  you see your PCP yet?  What did they say? 

    Leeza

  • Alexis F
    Alexis F Member Posts: 3,598
    jnl said:

    Marianne, did  you see your

    Marianne, did  you see your PCP yet?  What did they say? 

    Leeza

    Looking to see if you've

    Looking to see if you've posted anything new inre to seeing your doctor or seeking a 2nd opinion.  Wishing you the best!

    Lex

  • Lynn Smith
    Lynn Smith Member Posts: 1,264 Member
    I'm late

    I'm late with this but I had a breast cyst for years.Also benign tumors since 20.The breast cyst was watched. I never missed but one appt in all the years since 20.BUT one year I missed. When I went to the doctor he found the cyst was bigger after quite a few years and from my 2 year check up.He went around the room as to Pray.He said he had to take  a sample and have it tested.It came back non cancerous.The cyst was no longer there after the aspiration.

    Cysts are fluid filled and not solid from what I was told and only if they grow do they check them.This was my case for the breast.

    With the liver and harder to detect I see your concerns.Hope you have good news.Please let us know.

    Lynn Smith