Anal Cancer Color Survey

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Comments

  • Marynb
    Marynb Member Posts: 1,118
    LaCh said:

    marynm mxperry

    My point was that I don't identify with my injuries or diseases.

    LaCh
    I got your point. I don't think anybody identifies with their disease. By the way, how are you feeling these days? Seems the good weather is on its way! I hope each day gets a little bit better than the day before!
  • LaCh
    LaCh Member Posts: 557
    Marynb said:

    LaCh
    I got your point. I don't think anybody identifies with their disease. By the way, how are you feeling these days? Seems the good weather is on its way! I hope each day gets a little bit better than the day before!

    marynb

    Thanks Marynb. You know, I'm feeling ok. My main issue right now is the fatigue but that seems a tad better. I'm having accupuncture to treat it and it seems to help. The thing is that the fatigue comes and goes and there's never a reason that I can identify for either. It seems to be independent of what I do (or don't do) but as I said, it seems a bit better.  The weather here is cold, 30 degrees when I woke up and 40 right now, overcast, grey...  But it's heading in the right direction. They're predicting rain for almost the entire week next week, but nexrt week is the official arrival of spring, and mentally, that's very  welcome. My goal is to be able to take my dog to Central Park when the cherry trees are in bloom.  The other "issue" isn't really an issue but a return to my normal state of being; I have a slow gut, slow digestion, I've had it for a long while. So it was almost a welcome change when I was "going" 4 or 5 times a day. Now I always feel full and bloated and I'm back to my normal once a day (or maybe twice).  My diet isn't normal but close to what it used to be, but I've always eaten a pretty healthy diet.  So that's not new. I'm just re-introducing foods a little at a time. Thanks for asking.  How are you doing? 

  • Marynb
    Marynb Member Posts: 1,118
    LaCh said:

    marynb

    Thanks Marynb. You know, I'm feeling ok. My main issue right now is the fatigue but that seems a tad better. I'm having accupuncture to treat it and it seems to help. The thing is that the fatigue comes and goes and there's never a reason that I can identify for either. It seems to be independent of what I do (or don't do) but as I said, it seems a bit better.  The weather here is cold, 30 degrees when I woke up and 40 right now, overcast, grey...  But it's heading in the right direction. They're predicting rain for almost the entire week next week, but nexrt week is the official arrival of spring, and mentally, that's very  welcome. My goal is to be able to take my dog to Central Park when the cherry trees are in bloom.  The other "issue" isn't really an issue but a return to my normal state of being; I have a slow gut, slow digestion, I've had it for a long while. So it was almost a welcome change when I was "going" 4 or 5 times a day. Now I always feel full and bloated and I'm back to my normal once a day (or maybe twice).  My diet isn't normal but close to what it used to be, but I've always eaten a pretty healthy diet.  So that's not new. I'm just re-introducing foods a little at a time. Thanks for asking.  How are you doing? 

    LaCh
    I am glad you are on the road to recovery. This is the first year that my daughter is no longer living in NY so If I see the cherry trees it will be on a leisure weekend. I am very much looking forward to Spring this year!

    I am doing better also. I had a couple of bad weeks, but I am feeling more positive this week. My challenge is to keep the faith despite never ending trips to the doctors.

    Life, with all its ups and downs, is good!
  • LaCh
    LaCh Member Posts: 557
    Marynb said:

    LaCh
    I am glad you are on the road to recovery. This is the first year that my daughter is no longer living in NY so If I see the cherry trees it will be on a leisure weekend. I am very much looking forward to Spring this year!

    I am doing better also. I had a couple of bad weeks, but I am feeling more positive this week. My challenge is to keep the faith despite never ending trips to the doctors.

    Life, with all its ups and downs, is good!

    marynb

    Yes, I really feel for you.  I avoid doctors whenever I can and get depressed if I even have to think of going to see one. It's difficult to have to go over and over and over and.... 

    And yes, life, despite all its vicissitudes, or maybe because of them, is good.  I know that conventional thinking (eastern, western, practical and esoteric) is to live in the moment, but when I'm in a difficult situation I mentally leave it and go somewhere else.  It's been a long, dark winter. Think of spring that's just around the corner or whatever else carries you to happy places.

  • eihtak
    eihtak Member Posts: 1,473 Member
    LaCh said:

    marynb

    Yes, I really feel for you.  I avoid doctors whenever I can and get depressed if I even have to think of going to see one. It's difficult to have to go over and over and over and.... 

    And yes, life, despite all its vicissitudes, or maybe because of them, is good.  I know that conventional thinking (eastern, western, practical and esoteric) is to live in the moment, but when I'm in a difficult situation I mentally leave it and go somewhere else.  It's been a long, dark winter. Think of spring that's just around the corner or whatever else carries you to happy places.

    Happy Place.....

    After my husbands bone marrow transplant as I was also recovering from anal cancer treatment, I took a "yoga for cancer recovery" class at Froedtert Hospital in Milwaukee. One of the first exercises was to meditate on a "happy place". I found myself going there ALL the time, think I should have bought a house!

  • LaCh
    LaCh Member Posts: 557
    eihtak said:

    Happy Place.....

    After my husbands bone marrow transplant as I was also recovering from anal cancer treatment, I took a "yoga for cancer recovery" class at Froedtert Hospital in Milwaukee. One of the first exercises was to meditate on a "happy place". I found myself going there ALL the time, think I should have bought a house!

    I'm all for

    whatever keeps one happy and grounded.  That's the rule: no rules. Stay present or fly away, whichever best serves.

  • Lorikat
    Lorikat Member Posts: 681 Member
    Angela_K said:

    Yay!

    I got my first tattoo last December with my best Austin friend who is treatment for recurring lymphoma and bone cancer. My tat is on the back of my neck and simply states 'sing.'  My husband has yet to see it and my kids think I've lost my mind.  Jenny got her first tat on her foot and she said it hurt like crazy.  Your tat sounds sooo cool.  Must send me a pic . . .2half@wcc.net.  I'm leaving this Board. Please keep in touch!

     

    Angela, tried to email you.

    Angela, tried to email you.  Did you receive it?  Lorie

     

  • Marynb
    Marynb Member Posts: 1,118
    LaCh said:

    I'm all for

    whatever keeps one happy and grounded.  That's the rule: no rules. Stay present or fly away, whichever best serves.

    LaCh and eihtak
    Oh, I do fly away! I am blessed to have had so many, many happy moments in my life in so many beautiful places! I have a great visual memory and when I close my eyes, I can bring myself back to those places in time, like they were photographs in an album. I used it a lot during radiation. I also escape pain that way. I find myself flying away a lot these days!
  • eihtak
    eihtak Member Posts: 1,473 Member
    Marynb said:

    LaCh and eihtak
    Oh, I do fly away! I am blessed to have had so many, many happy moments in my life in so many beautiful places! I have a great visual memory and when I close my eyes, I can bring myself back to those places in time, like they were photographs in an album. I used it a lot during radiation. I also escape pain that way. I find myself flying away a lot these days!

    Minds eye....

    The minds eye is a wonderful thing. I think that even if my body should ever fail me I could survive in my "minds eye". I too feel like I have my life recorded in happy photos in my mind, funny how in time many of the unpleasant photos seem to fade.

  • pializ
    pializ Member Posts: 508 Member
    eihtak said:

    Minds eye....

    The minds eye is a wonderful thing. I think that even if my body should ever fail me I could survive in my "minds eye". I too feel like I have my life recorded in happy photos in my mind, funny how in time many of the unpleasant photos seem to fade.

    colour

    For me, the ribbon is about raising awareness and preventing people getting past stage 1 or 2 of this cancer. How many of us were previously mistakenly diagnosed with haemorroids? So I think a poster (with ribbon) on the back of toilet doors and on haemorroid treatment packs would be a good place to start. That along with HPV vaccination for males & females, should kick this cancer in the butt.

  • mp327
    mp327 Member Posts: 4,440 Member
    pializ said:

    colour

    For me, the ribbon is about raising awareness and preventing people getting past stage 1 or 2 of this cancer. How many of us were previously mistakenly diagnosed with haemorroids? So I think a poster (with ribbon) on the back of toilet doors and on haemorroid treatment packs would be a good place to start. That along with HPV vaccination for males & females, should kick this cancer in the butt.

    pializ

    I really like your idea of putting a poster in restroom stall doors to bring awareness to anal cancer.  Have you thought of contacting the Anal Cancer Foundation with that idea?  www.analcancerfoundation.org

     

  • Marynb
    Marynb Member Posts: 1,118
    mp327 said:

    pializ

    I really like your idea of putting a poster in restroom stall doors to bring awareness to anal cancer.  Have you thought of contacting the Anal Cancer Foundation with that idea?  www.analcancerfoundation.org

     

    Awareness
    Martha, about a year ago, I sent an email to that foundation with sone ideas. I got an email back asking me if I had any proof that Prep H CAUSED anal cancer. What the heck??? I don't know what their mission is, but raising awareness doesn't seem to be one of their goals. Otherwise, they would have done it by now.
  • mp327
    mp327 Member Posts: 4,440 Member
    Marynb said:

    Awareness
    Martha, about a year ago, I sent an email to that foundation with sone ideas. I got an email back asking me if I had any proof that Prep H CAUSED anal cancer. What the heck??? I don't know what their mission is, but raising awareness doesn't seem to be one of their goals. Otherwise, they would have done it by now.

    Marynb

    I'm sorry to hear of this.  I would guess, regarding the Prep H comment from them, it had something to do with possible legal issues, but that's just my laymen's guess.  I haven't visited their site in quite awhile, so I don't know what they are up to these days.  I guess I should take a look.