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Trying to enjoy the "luck" while we have it.

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Comments

  • tanstaafl
    tanstaafl Member Posts: 1,299

    I actually agree with you...

    I let my emotions get the better of me yesterday and I've apologized to Tony for that.  AA

    Thanks.

    Thanks.

  • tanstaafl
    tanstaafl Member Posts: 1,299

    Tans

    Every single one of us here, caregiver or cancer patient are pretty [email protected] serious about this, please don't feel alone in that.  Each one of us wants to live longer, I haven't met anyone that hasn't.

    Winter Marie

    serious is relative

    The difference is someone wanting and doing in the face of uncertainty, doubt and even opposition, with limited time and resources. 

    It is one thing to sign a charge card and an insurance form for some shake and bake medical procedure.  Wading through several thousand research papers and a myriad of abstracts to spend 100% self paid cash is something different.  

    It is one thing to sign waivers for a doctor doing routine standard of care or even a phase II - III trial,  vs being one of the few, or perhaps the first, to do something really different, even pointedly against standard medical advice.  

    MWNN was that rare member with a degree of motivation, research and experience that could extend cancer treatments into new options with an independent technical view most people simply do not have.  Each option is precious.

  • wolfen
    wolfen Member Posts: 1,324

    Thank you for your post Ann. 

    Thank you for your post Ann.  I know I am lucky because I had flex card money left in my account to make me get my colonsocopy in November.  If I didn't, no telling how worse off I would be.  I am a loving family, friends who care about me and thank God my cancer was caught when it was. 

    Oh No, Bright Sparks!

    Love your positive post, Ann.

    As for bright sparks, around my house I'd be looking for where the fire is burning. LOL  Seriously though, as life has many ups and downs, all you can do is to thrive on the ups and manage to get through the downs. I did like Tony's post. It just shows that for every positive, there is a negative. Is that Zen? I'm afraid I have never looked to see what it is.

    I'm not grateful that JBG has cancer, but I'm grateful that her spleenectomy was successful and has given her the ability to add ammunition for the battle. I'm not grateful that my hubby has cancer and was bleeding out around his feeding tube yesterday. I am grateful for the paramedics who arrived and got him to the hospital. I'm not grateful for all of us having to endure the illness and stress. I am grateful that we have the tenacity to fight, absorb the stress and continue on. So, I guess it's all relative.

    Is it luck? Is it Karma? Is it now, or has it always been completely out of our hands?

    Luv,

    Wolfen

  • annalexandria
    annalexandria Member Posts: 2,571
    wolfen said:

    Oh No, Bright Sparks!

    Love your positive post, Ann.

    As for bright sparks, around my house I'd be looking for where the fire is burning. LOL  Seriously though, as life has many ups and downs, all you can do is to thrive on the ups and manage to get through the downs. I did like Tony's post. It just shows that for every positive, there is a negative. Is that Zen? I'm afraid I have never looked to see what it is.

    I'm not grateful that JBG has cancer, but I'm grateful that her spleenectomy was successful and has given her the ability to add ammunition for the battle. I'm not grateful that my hubby has cancer and was bleeding out around his feeding tube yesterday. I am grateful for the paramedics who arrived and got him to the hospital. I'm not grateful for all of us having to endure the illness and stress. I am grateful that we have the tenacity to fight, absorb the stress and continue on. So, I guess it's all relative.

    Is it luck? Is it Karma? Is it now, or has it always been completely out of our hands?

    Luv,

    Wolfen

    That's pretty funny...

    the house burning down thing.  I've definitely had times where that would have been the case.  I think I needed to have titled this something else, as my use of the word "luck" kind of got everything started.  Actually used those parantheses on purpose, as I wasn't really talking about the concept of luck at all, rather the concept of appreciation for the times when things are going well.  Sigh...that's online communication for ya!  AA

  • renw
    renw Member Posts: 282

    Tony is upset about the situation with Pete...

    of course, he forgets (or just doesn't know) that a lot of people here actually care about Pete, and have had some really good interactions with him, long before TMWNN ever showed up.  It has been upsetting to see how Pete has changed over the last 6 months or so.  Personally, I hope Pete can hear what people were trying to tell him, and rejoin us with a slightly different approach.  Tony, on the other hand, would be better off communicating directly with Pete on his blog or via FB.  There's no reason whatsoever for him to be on this site.

    What a nice way to tell
    What a nice way to tell someone to f$$$ off the board. Didn't you flame pete for the same? Tony is one of the most valuable members on this board colorectal or not. Shame you can't see it.
  • annalexandria
    annalexandria Member Posts: 2,571
    renw said:

    What a nice way to tell
    What a nice way to tell someone to f$$$ off the board. Didn't you flame pete for the same? Tony is one of the most valuable members on this board colorectal or not. Shame you can't see it.

    this is all already resolved.  Tony and I have talked via PM and sorted things out.  You can also read his "OK" post to get further clarification.  AA

  • wawaju04976
    wawaju04976 Member Posts: 316
    AnnLouise said:

    Bright sparks.....

    Ann, thank you for your post and sharing...a reminder to emphasize the bright sparks in our lives is so important. A loving husband, five children,two daughter-in-laws and three precious grandchildren are certainly my brights sparks. I actually got to dance with my son at his wedding...I am blessed! I got to see two children graduate from college....how proud! My High School junior won the football state championship, and two boys got new teaching jobs....English and English dept. head. All things I wasn't sure I would be able to share with them. My granddaughter is 18 months old and I have been able to see her walk and talk...How adorable! And the grandsons are my precious boys!  Thing are not always good as my cancer has recently progressed but we are taking each step as a family.  Our daffodils are also coming up through the snow.....can't wait to plant flowers!   ~Ann

    I feel very lucky. In

    I feel very lucky. In December, after getting the stage 4 diagnosis, I felt defeated. Since then I feel better than I have in years (having my 8th tx of Folfox this coming Friday). My son just got engaged last weekend, and I intend to be at his wedding next summer (and feeling as good as I do right now). Again, I am thankful my children are healthy, and I can make sure they know to get screened earlier than age 50 for colon cancer. Yes, it's the little things...I look at things very differently now.

    Judy

  • wawaju04976
    wawaju04976 Member Posts: 316
    AnnLouise said:

    Bright sparks.....

    Ann, thank you for your post and sharing...a reminder to emphasize the bright sparks in our lives is so important. A loving husband, five children,two daughter-in-laws and three precious grandchildren are certainly my brights sparks. I actually got to dance with my son at his wedding...I am blessed! I got to see two children graduate from college....how proud! My High School junior won the football state championship, and two boys got new teaching jobs....English and English dept. head. All things I wasn't sure I would be able to share with them. My granddaughter is 18 months old and I have been able to see her walk and talk...How adorable! And the grandsons are my precious boys!  Thing are not always good as my cancer has recently progressed but we are taking each step as a family.  Our daffodils are also coming up through the snow.....can't wait to plant flowers!   ~Ann

    I feel very lucky. In

    I feel very lucky. In December, after getting the stage 4 diagnosis, I felt defeated. Since then I feel better than I have in years (having my 8th tx of Folfox this coming Friday). My son just got engaged last weekend, and I intend to be at his wedding next summer (and feeling as good as I do right now). Again, I am thankful my children are healthy, and I can make sure they know to get screened earlier than age 50 for colon cancer. Yes, it's the little things...I look at things very differently now.

    Judy