Peg tube Bleeding

Hi everyone, tonight I had bleeding at my peg tube site. I removed gauze I put under the plastic thingy to hold it because it has these raised square disks on it that push into my skin and hurt. So every morning and night I change it and clean it and replace gauze it always has dried blood on it and never thought anything of it because its been a pain in tush sine it went in Dec. 24, 2012, but tonight I took it off and started to clean it and it bled. It was dripping with the water. And filled 2 qtips, I replaced my gauze and let my family know incase it didn't stop and needed to go to hospital. It seems to have stopped, I read on line(not here) that it was normal from irritation to the Stoma, has anyone else had issues? If it does it tomorrow I will be in Dr. Waiting room all day if I must! Lol

Any advice or experience would be welcome,


Rachel
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Comments

  • D Lewis
    D Lewis Member Posts: 1,581 Member
    Mine did a little

    Seems like it was always pink and irritated, I often had to clean off dried blood, but I don't recall any dripping.  In your case, it probably appeared to be more blood than was actually there, because you had also applied some water.  It doesn't sound like a medical emergency, but let some others chime in here too.

    Deb

  • rachel12yrsuv
    rachel12yrsuv Member Posts: 435
    D Lewis said:

    Mine did a little

    Seems like it was always pink and irritated, I often had to clean off dried blood, but I don't recall any dripping.  In your case, it probably appeared to be more blood than was actually there, because you had also applied some water.  It doesn't sound like a medical emergency, but let some others chime in here too.

    Deb

    Deb,
    Thank you, this is my

    Deb,
    Thank you, this is my second tube. I was treated for stage 3 NPC in 2000, I had one put in then during exploritory surgery. It was an every loving nightmare. 9 months in and couldn't wait to get it out, then of course that was another nightmare and I passout from shock when they wrapped it around there hand and pulled like removing a bandaid. Now in my 13th yr of surving my "Slim Quick" (apparently we all have names for it) I developed Dysphagia and needed this one. I was as you can guess just from that. Brief bio that I was terrified, they told me they would go lower than last one(the first one was right where my bra would sit) and they never have complaints. So what did they do, put it right next to the org. Bullet hole just as close to bra with this God awful disk.
    I am not that concerned, but I didn't have it the first time so I wanted to put it out there and hear if anyone else did.

    Take care,

    Rachel
  • Ingrid K
    Ingrid K Member Posts: 813
    some bleeding is normal

    Rachel

    did it stop bleeding yet ?   I had some bleeding once in a while, but one of the nurses told me it was mainly from the constant irritation by the feeding tube..... i.e., the weight of the tube was constantly pulling down on the stoma (gravity), so it was getting aggravated.....I finally took the end of the feeding tube and tied it to a length of soft shoelace (actually 2) and tied it around my neck.  that ended up being an easy way to carry the tube and it lessened the pressure on the stoma, so it stopped bleeding.

    Also, you can try to GENTLY move the disc a little bit higher up the tube to get it a little bit away from the stoma and give you some breathing room....it shouldn't be so tight that it is leaving marks.

    hope that helps.  If you can't get the bleeding to stop, go to the ER.

     

  • rachel12yrsuv
    rachel12yrsuv Member Posts: 435
    Ingrid K said:

    some bleeding is normal

    Rachel

    did it stop bleeding yet ?   I had some bleeding once in a while, but one of the nurses told me it was mainly from the constant irritation by the feeding tube..... i.e., the weight of the tube was constantly pulling down on the stoma (gravity), so it was getting aggravated.....I finally took the end of the feeding tube and tied it to a length of soft shoelace (actually 2) and tied it around my neck.  that ended up being an easy way to carry the tube and it lessened the pressure on the stoma, so it stopped bleeding.

    Also, you can try to GENTLY move the disc a little bit higher up the tube to get it a little bit away from the stoma and give you some breathing room....it shouldn't be so tight that it is leaving marks.

    hope that helps.  If you can't get the bleeding to stop, go to the ER.

     

    Ingrid, thank u. I feel
    Ingrid, thank u. I feel better hearing someone else has had it happen on here. It does seem to have stopped and was never gushing, like Deb said it might have been exaggreated by the water I was cleaning with.
    I did not know u could move disk up, knew I could turn to not get same marks everyday, but to get it off my skin would be a blessing, I look at tomorrow. Again thank you!

    Take care,

    Rachel
  • Billie67
    Billie67 Member Posts: 898

    Ingrid, thank u. I feel
    Ingrid, thank u. I feel better hearing someone else has had it happen on here. It does seem to have stopped and was never gushing, like Deb said it might have been exaggreated by the water I was cleaning with.
    I did not know u could move disk up, knew I could turn to not get same marks everyday, but to get it off my skin would be a blessing, I look at tomorrow. Again thank you!

    Take care,

    Rachel

    A little
    Mine would bleed a little bit now and then. It wasn't a constant thing but it did happen. I know whenever it would hang for too long, like before I was able to tape it back up after my shower, I would find blood there later when I changed out the gauze.
    Billie
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    PEG, what's new

    Rachel,

     

    I went through 2 PEGs, I loved my first one so much I said “give me another” and they did.

     

    Mine did the same as yours, marks on the skin and (dried) blood all around.  It wasn’t a constant issue, but it seems each week I would clean all around with peroxide and a Q-tip.

     

    Today you can still see the marks left by that flange do-hickey.

     

    Unless the bleeding is constant it probably is just irritation.

     

    PEG on,

     

    Matt

  • rachel12yrsuv
    rachel12yrsuv Member Posts: 435
    CivilMatt said:

    PEG, what's new

    Rachel,

     

    I went through 2 PEGs, I loved my first one so much I said “give me another” and they did.

     

    Mine did the same as yours, marks on the skin and (dried) blood all around.  It wasn’t a constant issue, but it seems each week I would clean all around with peroxide and a Q-tip.

     

    Today you can still see the marks left by that flange do-hickey.

     

    Unless the bleeding is constant it probably is just irritation.

     

    PEG on,

     

    Matt

    Matt,
    I think they all have

    Matt,

    I think they all have an ax to grind or mad at someone and take it out on us with those damn disks. They are very irritating to say the least. It is so uncomfortable as a woman to wear needed things, and then to put two tubes in same spot 13 years apart...give me a break, especially when I discussed how uncomfortable that spot had been. I may have lost some weight over the years, but my gosh I know my internal stomach is bigger then just that spot. I think he saw easy in an out and went through same spot rather than heed org. Request. Oh well, nothing I can do, don't want another surgery so deal with it.

    Thanks for telling me its normal, like I told ingrid it stopped, ill be alittle nervous to pull gauze tomorrow, but I am sure God will be looking out for me. Good night friends, don't know where everyone is, but 1130 on the east coast and tired!

    God Bless you all on our site,

    Rachel
  • phrannie51
    phrannie51 Member Posts: 4,716

    Ingrid, thank u. I feel
    Ingrid, thank u. I feel better hearing someone else has had it happen on here. It does seem to have stopped and was never gushing, like Deb said it might have been exaggreated by the water I was cleaning with.
    I did not know u could move disk up, knew I could turn to not get same marks everyday, but to get it off my skin would be a blessing, I look at tomorrow. Again thank you!

    Take care,

    Rachel

    It took me about three months before I

    discovered that the disk moved...and when I found that out, I immediately gave myself breathing room....LOL.

    Depending on how big busted a person is.....I'm never was, and the girls are even smaller now.....but I found stretchy camasols on Amazon, that come with a build in shelf bra.  They kept the tube stable and held it close to my body....then just tuck the end into the bra part.   Pretty much eliminating irritation to the stoma.

    p

  • wolfen
    wolfen Member Posts: 1,324 Member

    Matt,
    I think they all have

    Matt,

    I think they all have an ax to grind or mad at someone and take it out on us with those damn disks. They are very irritating to say the least. It is so uncomfortable as a woman to wear needed things, and then to put two tubes in same spot 13 years apart...give me a break, especially when I discussed how uncomfortable that spot had been. I may have lost some weight over the years, but my gosh I know my internal stomach is bigger then just that spot. I think he saw easy in an out and went through same spot rather than heed org. Request. Oh well, nothing I can do, don't want another surgery so deal with it.

    Thanks for telling me its normal, like I told ingrid it stopped, ill be alittle nervous to pull gauze tomorrow, but I am sure God will be looking out for me. Good night friends, don't know where everyone is, but 1130 on the east coast and tired!

    God Bless you all on our site,

    Rachel

    Rachel, Funny You Should Ask

    I was just getting ready to ask the same question when I saw your post. Hubby had his put in a week ago and I noticed on Fri. morning that it was bleeding. It seems to be each morning. I am still cleaning and changing the gauze each morning. It's not dripping, just sort of oozing. Hubby coughs very hard a lot at night and though it's a no-no, pushes himself up with that arm.

    I, of couse, freaked at 2:00 Fri. morning and called Home Health.  The nurse just suggested a larger gauze. Hubby showed it to the nurse who visited on Sat. and she was not alarmed.

    Ingrid, thanks for the shoelace suggestion. Now, if he just doesn't hang himself on the shoelace.  LOL

    Luv,

    Wolfen

  • rachel12yrsuv
    rachel12yrsuv Member Posts: 435

    It took me about three months before I

    discovered that the disk moved...and when I found that out, I immediately gave myself breathing room....LOL.

    Depending on how big busted a person is.....I'm never was, and the girls are even smaller now.....but I found stretchy camasols on Amazon, that come with a build in shelf bra.  They kept the tube stable and held it close to my body....then just tuck the end into the bra part.   Pretty much eliminating irritation to the stoma.

    p

    Phrannie,
    I know how to spin

    Phrannie,

    I know how to spin disk, but how do you pull it out a little, I don't have enough room to hold tube under disk, and afraid that if I move up holding tube above disk, I could pull it out at slightest tug?

    Rachel
  • Ingrid K
    Ingrid K Member Posts: 813

    Phrannie,
    I know how to spin

    Phrannie,

    I know how to spin disk, but how do you pull it out a little, I don't have enough room to hold tube under disk, and afraid that if I move up holding tube above disk, I could pull it out at slightest tug?

    Rachel

    does your tube look like this one ?

    My PEG 2

  • Ingrid K
    Ingrid K Member Posts: 813

    Phrannie,
    I know how to spin

    Phrannie,

    I know how to spin disk, but how do you pull it out a little, I don't have enough room to hold tube under disk, and afraid that if I move up holding tube above disk, I could pull it out at slightest tug?

    Rachel

    does your tube look like this one ?

    My PEG 2

  • Ingrid K
    Ingrid K Member Posts: 813
    Ingrid K said:

    does your tube look like this one ?

    My PEG 2

    just a gentle tug...don't force it

    Sorry for double post.....

    This is a bad picture, but does your feeding tube look like this one ?   (I stole this from Kent Cass's page).

    you should be able to move the disc away from your body a tad.....just so the disk is not embedded into your skin so that it leaves a mark.....if you can't do it easily, don't tug on it.....(it may be stuck due to gunk sticking to it)....but don't try to force it.

    Just ask them when you see your doctor next....or call and ask them over the phone.

     

  • Ingrid K
    Ingrid K Member Posts: 813
    Ingrid K said:

    does your tube look like this one ?

    My PEG 2

    little bit better picture.

    image

  • rachel12yrsuv
    rachel12yrsuv Member Posts: 435
    Ingrid K said:

    little bit better picture.

    image

    Ingrid,
    It looks like this

    Ingrid,

    It looks like this one, I will try if no go on "gentle" tug ill ask primary on 3/12

    Thank you, although they should ban this, they are INHUMAN.lol

    Rachel
  • phrannie51
    phrannie51 Member Posts: 4,716

    Phrannie,
    I know how to spin

    Phrannie,

    I know how to spin disk, but how do you pull it out a little, I don't have enough room to hold tube under disk, and afraid that if I move up holding tube above disk, I could pull it out at slightest tug?

    Rachel

    I might have had a little more room

    to manage it....I was also using neosporan on the skin around the stoma, because I was having so much problem with granulation....neosporan made the tube more slippery....I put some on the other side of the disk to slick it up too....then started working it....moving it only a tiny bit at a time....I worked on it over a couple days. 

  • corleone
    corleone Member Posts: 312 Member
    I had a different tube.

    Mine had a small hemisphere (mushroom shaped) end inside, but outside was nothing to hold it in place, except for the dressing. Therefore, it moved a lot (with the respiratory movements, and any type of movement actually) and created a bit of granulation tissue around the stoma. The granulation was painful and very fragile, and it was bleeding easily.

  • donfoo
    donfoo Member Posts: 1,771 Member
    Ingrid K said:

    little bit better picture.

    image

    Oh hell no.

    Is THAT what they look like? It looks huge. HOw the hell do you cover that thing up? I'm thinking maybe there is a small stub that stays and all the rrest of that crap comes off. If that is what is stuck on my stomach all the time I just erased the PEG item from my dinner order.

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    donfoo said:

    Oh hell no.

    Is THAT what they look like? It looks huge. HOw the hell do you cover that thing up? I'm thinking maybe there is a small stub that stays and all the rrest of that crap comes off. If that is what is stuck on my stomach all the time I just erased the PEG item from my dinner order.

    HE (double hockey stick) maybe

    Don,

     

    They make a flush mount model for those inclined.  Someone on here had one installed recently (and it looked real good).

     

    You might miss out on the threads where everybody describes their method of “tie-up”.

     

    Oh the good old days of sleeping on my back and discovering the PEG wasn’t closed or was dangling to my knees.

     

    Best of luck,

     

    Matt

  • wolfen
    wolfen Member Posts: 1,324 Member
    corleone said:

    I had a different tube.

    Mine had a small hemisphere (mushroom shaped) end inside, but outside was nothing to hold it in place, except for the dressing. Therefore, it moved a lot (with the respiratory movements, and any type of movement actually) and created a bit of granulation tissue around the stoma. The granulation was painful and very fragile, and it was bleeding easily.

    Don

    Hubby's is like the one in the above picture. It all stays together. He has a closet full of pullover shirts which are temporarily useless, so I went to Goodwill on Saturday to pick up several nice, clean button up shirts which will cover it appropriately without causing discomfort. We're using Ingrid's shoestring method or Hypafix tape to keep it out of the way when not in use.

    Luv,

    Wolfen