First Folfox treatment

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Comments

  • YoVita
    YoVita Member Posts: 590 Member
    #22
    Congratulations!

    Just anted to second the suggestion to keep a diary.  It really helped me (bad memory).  I kept track of the food I ate, (what worked, what didn't), my mood, sleep patterns, etc.  It helped me to remember what worked during each two week cycle. 

    Best, Vita

  • gizzyluv
    gizzyluv Member Posts: 143
    #23
    Coloncancerblows said:

    Ana,
    I'm a big water drink

    Ana,

    I'm a big water drink anyway so have been chugging that down.  Don't want to get dehydrated.  I ended up buying a Brita water bottle and have been filling it with lukewarm tap water so that's helping a lot.

    ALKALINE Water

    Hey! This is to all of you, I'm still trying to learn my way around the site, but I just wanted to chime in on the water topic....You all probably already know (I didn't, as I don't know A LOT of things, still learning) that "Alkaline Water" is suppose to be the best thing to drink. I had never even heard of it, but I've been reading "The PH Miracle" by Robert O. Young, & it talks about how important having the right PH amount in the water you drink is. It recommends having a PH of 9.5. I found some jugs of water at Kroger, it's called "Hydrate" (how appropriate Laughing),it has a high PH of 9+, it says it hydrates 6 times faster, says it's "Alkaline Ionized Water", it acts as an effective antioxidant, reduces acid buildup in the body, & increases the body's alkalinity. A friend of mine told me about the PH Miracle book & it really is amazing. I'm not gonna try to push it on anyone, obviously you can use your own judgement, but "I" feel that it's something worth looking into. Anyway, I just wanted to share the thing about the water. Hope this helps. Kris

  • swordranch
    swordranch Member Posts: 35
    #24
    New to Site

    Hi all, I am new to the site so if I am not following etiquette please let me know.  I was diagnosed March 1 2012, rectal.  Lymph node involvement.  7 week pre surgery chemo/radiation.  Big, bad surgery in July.  Petscan showed lymph nodes were clear at the time so they only took out part of them...petscan wrong 100% removed were still involved when the path came back so they assume what was left was also still involved.  The surgeon found pelvic wall involvement as well that had grown while I was having the first round of chemo/rad.  So not a very good prognosis.  Started chemo again in August, 12 treatments, down to one left.  Handled pretty well (some tiredness, some narly pain for a few days each time) until the last month, neuropathy exploded, hands and feet, much more tired, much more pain etc.   Ready to be done!!! Last treatment scheduled the 26th through the 28th of this month.  CT March 11th, results the 15th...wish me luck!  My infusions are 200 miles away, my surgeon 400 miles away, so done a bit of traveling in the last year.  Husband is also dealing with stage 4 prostate cancer diagnosed at 55. The same age that I was diagnosed... Bummer.  Looking for people that have had radical APR, permanent colostomy that nothing fits, very sunken and retracted, as well as  herniated.

    I remain positive!!! and confident!!!

    Laura

     

  • wawaju04976
    wawaju04976 Member Posts: 316 Member
    #25
    gizzyluv said:

    ALKALINE Water

    Hey! This is to all of you, I'm still trying to learn my way around the site, but I just wanted to chime in on the water topic....You all probably already know (I didn't, as I don't know A LOT of things, still learning) that "Alkaline Water" is suppose to be the best thing to drink. I had never even heard of it, but I've been reading "The PH Miracle" by Robert O. Young, & it talks about how important having the right PH amount in the water you drink is. It recommends having a PH of 9.5. I found some jugs of water at Kroger, it's called "Hydrate" (how appropriate Laughing),it has a high PH of 9+, it says it hydrates 6 times faster, says it's "Alkaline Ionized Water", it acts as an effective antioxidant, reduces acid buildup in the body, & increases the body's alkalinity. A friend of mine told me about the PH Miracle book & it really is amazing. I'm not gonna try to push it on anyone, obviously you can use your own judgement, but "I" feel that it's something worth looking into. Anyway, I just wanted to share the thing about the water. Hope this helps. Kris

    Any idea how to find it in

    Any idea how to find it in Maine?

    Judy

  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #26
    Cyn

    I'm glad it's going we'll for you.  I was one of the lucky ones too, just the cold and jaw pain, and oh, in case you get them sometimes a twitching of an eye, or cramping of hands or legs, not a painful cramping, but they would sometimes draw in (my hands) and my legs would not quite behave right but it does go away after a few minutes.

    may the force remain strong in you, LOL.

    Winter Marie

  • gizzyluv
    gizzyluv Member Posts: 143
    #27
    wawaju04976 said:

    Any idea how to find it in

    Any idea how to find it in Maine?

    Judy

    No, sorry....

    No, I don't....I just happened to run across it at the grocery store. I'd say they sell it at the health food stores though. You can also buy PH Drops to add to your water to make it have the right amount of PH. I've only seen those online, but again I bet the health food stores sell them. I'm gonna be checking around here to see if I can find the drops, because the gallon of water I bought was almost $4.00. (can't afford that!) Good luck & please let me know if you find it! Kris

  • janie1
    janie1 Member Posts: 753 Member
    #28
    swordranch said:

    New to Site

    Hi all, I am new to the site so if I am not following etiquette please let me know.  I was diagnosed March 1 2012, rectal.  Lymph node involvement.  7 week pre surgery chemo/radiation.  Big, bad surgery in July.  Petscan showed lymph nodes were clear at the time so they only took out part of them...petscan wrong 100% removed were still involved when the path came back so they assume what was left was also still involved.  The surgeon found pelvic wall involvement as well that had grown while I was having the first round of chemo/rad.  So not a very good prognosis.  Started chemo again in August, 12 treatments, down to one left.  Handled pretty well (some tiredness, some narly pain for a few days each time) until the last month, neuropathy exploded, hands and feet, much more tired, much more pain etc.   Ready to be done!!! Last treatment scheduled the 26th through the 28th of this month.  CT March 11th, results the 15th...wish me luck!  My infusions are 200 miles away, my surgeon 400 miles away, so done a bit of traveling in the last year.  Husband is also dealing with stage 4 prostate cancer diagnosed at 55. The same age that I was diagnosed... Bummer.  Looking for people that have had radical APR, permanent colostomy that nothing fits, very sunken and retracted, as well as  herniated.

    I remain positive!!! and confident!!!

    Laura

     

    To: Laura (swordranch)
    I see that you have specific questions about APR and colostomy.
    Please don't hesitate to start a new topic so that you get answers to your questions. There are very experienced people here that can help. Just put in your topic line something to draw their attention to, like "questions on APR and colostomy".
    Not everyone here has those, so you want to catch the attention of those who do, so that they can jump in and help you.
    You are very far away from your doctors so you will benefit from an internet forum like this.
  • Varmint5
    Varmint5 Member Posts: 384 Member
    #29
    Hi Cyn...

    I love your attitude and happy, smiling face! Glad Folfox is going well for you so far. My daughter said it was like her teeth and mouth were "wearing sweaters." She wore gloves all the time, even in the house. Best wishes!

    Sandy

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #30
    swordranch said:

    New to Site

    Hi all, I am new to the site so if I am not following etiquette please let me know.  I was diagnosed March 1 2012, rectal.  Lymph node involvement.  7 week pre surgery chemo/radiation.  Big, bad surgery in July.  Petscan showed lymph nodes were clear at the time so they only took out part of them...petscan wrong 100% removed were still involved when the path came back so they assume what was left was also still involved.  The surgeon found pelvic wall involvement as well that had grown while I was having the first round of chemo/rad.  So not a very good prognosis.  Started chemo again in August, 12 treatments, down to one left.  Handled pretty well (some tiredness, some narly pain for a few days each time) until the last month, neuropathy exploded, hands and feet, much more tired, much more pain etc.   Ready to be done!!! Last treatment scheduled the 26th through the 28th of this month.  CT March 11th, results the 15th...wish me luck!  My infusions are 200 miles away, my surgeon 400 miles away, so done a bit of traveling in the last year.  Husband is also dealing with stage 4 prostate cancer diagnosed at 55. The same age that I was diagnosed... Bummer.  Looking for people that have had radical APR, permanent colostomy that nothing fits, very sunken and retracted, as well as  herniated.

    I remain positive!!! and confident!!!

    Laura

     

    Double blow

    I am so sorry to hear that both you and your husband are suffereing this journey. That has to be so hard. 

    "Ready to be done" Oh, I hear you, but i'm only on treatment #3.

    I also have to travel 300 miles round trip. All of my Doctor's are in the big city. I'm so glad that I am on a two week schedule (until the raditation).

    Good luck.

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