Beer or Wine Never Again?

Me - Stage IV HPV neck, unknown primary. Neck Dissection, 7 weeks radiation and chemo. One of my doctors said never to drink anything with alcohol and another said one or two beers or glasses of wine every once in a while is just fine. I am still without much ability to taste so neither have been a temptation. When (notice that confidence?) my taste comes back an occasional glass of wine with dinner or an occasional beer after working in the yard just seems great, but don't want to do anything that would give the C a foothold. Anyone else's doctors give them similar instructions? Seems like a minor problem I know, but some days a minor problem would be nice to discuss.

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Comments

  • phrannie51
    phrannie51 Member Posts: 4,716
    From what I've read on here...

    many people have a couple of beers when they feel like it....there might be a few that can do wine, but if my memory serves me right, it retains a nasty taste for many...and that's the reason they don't imbibe.  Maybe the one Dr. is a teetotaler?  I know that they say heavy drinking and smoking can cause throat cancer....but if having a beer or two is all a person needs, then I can't see what harm that could cause.

    I drank my lifetime allotment of 40 million gallons by the time I was 35, so I am in the teetotaler catagory....if I could pull off "moderation" in the booze department, I can't think of anything tastier than an ice cold beer on a hot day.  Laughing

    p

  • staceya
    staceya Member Posts: 720

    From what I've read on here...

    many people have a couple of beers when they feel like it....there might be a few that can do wine, but if my memory serves me right, it retains a nasty taste for many...and that's the reason they don't imbibe.  Maybe the one Dr. is a teetotaler?  I know that they say heavy drinking and smoking can cause throat cancer....but if having a beer or two is all a person needs, then I can't see what harm that could cause.

    I drank my lifetime allotment of 40 million gallons by the time I was 35, so I am in the teetotaler catagory....if I could pull off "moderation" in the booze department, I can't think of anything tastier than an ice cold beer on a hot day.  Laughing

    p

    Have not heard one way or the other

    To the best of my memory (which is terrible) I don't remember anyone saying anything in particular about drinks.

    I had a a half of a glass of margarita in December and it was delicious.

  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    Decide what works for you

    I am battling the beast for a second time since 2010. I do drink when I feel like it. The docs all seem to follow the American Cancer Society guidelines. I just finished a 24 week clinical trial a month ago and have been in remission for 18-20 weeks. 

  • fishmanpa
    fishmanpa Member Posts: 1,227 Member
    King Solomon Said....

    "Eat. Drink. Enjoy the work you do. Be thankful for the Blessings God gives you in this life. Live, LOVE and seek out the things that bring your heart joy. The rest is meaningless, like chasing the wind."

    That being said, I've been told by my doctors that hard alchohol is a no no. I was a smoker for 35 years. I quit cigarettes in '95 but continued cigars up until last year. No doubt on my mind where the cancer came from. One of my favorite pleasures/pastimes was a good cigar (can you say Partegas?) and a snifter of cognac, especially on a crisp cool Sunday afternoon during football season. 

    I've also been told by my doctors that a cold beer or a glass of red wine every once in a while is Ok. Just no finishing off a bottle or a 6 pak. So I, like yourself, am looking forward to the day when I can pour a rich dark meal in a glass beer or a tasty glass of Red (love S American Malbecs) and watch the game :) 

    "T"

     

  • hlrowe
    hlrowe Member Posts: 80
    no alcohol since April 2012

    l`ve decided to forget alcohol since I started treatment April of last year. I was a light beer and wine drinker for the last dozen years or so. I finished cisplatin and 35 rads June 12. It would probably burn and taste bad anyway. Plus, I figure why introduce another risk factor for reoccurence?  I gotta admit, I do miss my weekly Friday night draft.  I told my MO and RO I no longer drink but I don`t remember them saying I couldn`t?

  • D Lewis
    D Lewis Member Posts: 1,581 Member
    Stanford

    Had this discussion with my Stanford Doc.  He said 'everything in moderation' and noted that my HPV-derived base-of-tongue SCC was not caused by alcohol, and did not believe it would be negatively affected by alcohol. 

    That being said, I'm not a drinker, and never was.  I don't imbibe hard liquior, never did.  I've always enjoyed a glass of wine (part of a glass of wine) with a fine meal, and I've enjoyed a beer (part of a beer) on a hot day.  The taste of beer came back within short months of completing treatment.  2 1/2 years out, and wine still mostly tastes too acidic and sour, because I can't fully taste the sugars, so drinking really isn't a big part of my life. 

    I don't worry about it though, and drink when I want to, albeit rarely more than a half glass of anything.

    Deb

  • boardwalkgirl
    boardwalkgirl Member Posts: 269
    I asked my radiation

    I asked my radiation oncologist about this and he said an occasional drink or two was no problem if I could tolerate it. So far I have not been able to drink wine, I have done a couple of mixed drinks. My taste buds have taken a vacation again this week so until they come back I won't be tempted, lol. He said it is heavy drinking that puts you at risk.

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Cheers...

    Nuff said on my part...

  • HobbsDoggy
    HobbsDoggy Member Posts: 276
    Makes Sense

    My plan is when it seems like the taste might be there is to try a beer or a half glass of wine. I don't see me drinking more that two or three a week maybe not that much. It would be nice if and when the taste comes back to enjoy a glass of wine with dinner. I was not a drinker more than that normally so no big deal. Just would be nice to get the taste back. Maybe its coming very very slowly, just a little over two months out from my last radiation.

  • cureitall66
    cureitall66 Member Posts: 913
    We were told NO alcohol.....

    We are 11 wks out of tx and were just told last month NO alcohol for the rest of his life in any way, shape or form. It was a bit of a shock to us as he's a mild drinker anyways and the culprit seemed to be from the HPV, but they said to stay away from it completely. Their reason was this type of cancer tends to cause recurrence from the alcohol. Was enough to scare the "S**t out of us, so we're staying away as requested. He asked them if he could just have one beer once in awhile, they still strongly pressed against it. We didn't ask to many questions. They're the doctors. We just want to keep this cancer as far away as possible. 

    Right now, we're just concentrating on healing and have a scan at the end of the month and praying we are cleared. We would drink Kool-Aid the rest of our lives if that's what they told us Laughing

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member

    We were told NO alcohol.....

    We are 11 wks out of tx and were just told last month NO alcohol for the rest of his life in any way, shape or form. It was a bit of a shock to us as he's a mild drinker anyways and the culprit seemed to be from the HPV, but they said to stay away from it completely. Their reason was this type of cancer tends to cause recurrence from the alcohol. Was enough to scare the "S**t out of us, so we're staying away as requested. He asked them if he could just have one beer once in awhile, they still strongly pressed against it. We didn't ask to many questions. They're the doctors. We just want to keep this cancer as far away as possible. 

    Right now, we're just concentrating on healing and have a scan at the end of the month and praying we are cleared. We would drink Kool-Aid the rest of our lives if that's what they told us Laughing

    I'm No MD...

    But I have never heard anywhere or have seen any mention, let a lone specifics, study, reports, etc... Tying HPV derived or actually any cancer recurrence to alcohol post Tx.

    Actually several of the top medical facilities even state there is no evidense...

    I am in no way trying to endorse, convience, or change anybody's opinion... these are purely my observations from a little non-professional research.

    I have seen a lot of mention of moderation..., but nothing really on abstinence.

    JG

  • cureitall66
    cureitall66 Member Posts: 913
    Skiffin16 said:

    I'm No MD...

    But I have never heard anywhere or have seen any mention, let a lone specifics, study, reports, etc... Tying HPV derived or actually any cancer recurrence to alcohol post Tx.

    Actually several of the top medical facilities even state there is no evidense...

    I am in no way trying to endorse, convience, or change anybody's opinion... these are purely my observations from a little non-professional research.

    I have seen a lot of mention of moderation..., but nothing really on abstinence.

    JG

    I agree with you John.....

    I agree with you John. I have no idea where/how this hospital is pulling their evidence from either. As I said, we were shocked that was the instruction and from more than one doctor. But, maybe that's what they are telling all their patients whether HPV or not because they really don't know, so why not be cautious?  As you know, even though Kreg has just been a moderate drinker, he's not thrilled with it. But early in this stage he's at of whether they got all of this beast and waiting patiently for a scan, he is at their mercy and will do anything they tell him at this point.  

    ~C

  • George_Baltimore
    George_Baltimore Member Posts: 303

    I agree with you John.....

    I agree with you John. I have no idea where/how this hospital is pulling their evidence from either. As I said, we were shocked that was the instruction and from more than one doctor. But, maybe that's what they are telling all their patients whether HPV or not because they really don't know, so why not be cautious?  As you know, even though Kreg has just been a moderate drinker, he's not thrilled with it. But early in this stage he's at of whether they got all of this beast and waiting patiently for a scan, he is at their mercy and will do anything they tell him at this point.  

    ~C

    NONE

    of my doctors have ever said never to have alcohol again.  Since I can't swallow right now though, my alcohol consumption is down to maybe once a month during our poker game, I might pour some down my feeding tube strictly to keep it cleaned out (wink, wink).  Hard alcohol warms ya up pretty quickly while a beer gives you that little "poof" at the end of putting it in that lets you taste the malt and hops.

  • Greg53
    Greg53 Member Posts: 849

    NONE

    of my doctors have ever said never to have alcohol again.  Since I can't swallow right now though, my alcohol consumption is down to maybe once a month during our poker game, I might pour some down my feeding tube strictly to keep it cleaned out (wink, wink).  Hard alcohol warms ya up pretty quickly while a beer gives you that little "poof" at the end of putting it in that lets you taste the malt and hops.

    HobbsDoggy

    Hobbs,

     

    Have you got on Skiff's "how did you get your name" post .  Curious about yours??

     

    To quote a great intellectual  "I fish............therefore I drink beer"

     

    I didn't drink for 1 year after end of tx.  I will have an occasional beer.  Maybe 3-4 a week, tops (unless I see Mike). However,   I love a good single barrel bourbon, but I do abstain (ok, maybe one a year). 

     

    I did a survey with my 4 docs.  ENT - occasional beer or wine ok; RAD - same as ENT; GP - same as ENT and RAD;  ONC - NO alcohol at all.  3 out of 4 wins.  Seriously, my opinion (for what that matters), keeping in good physical shape and eating good and having a good positive attitude will do much more good than what little harm a beer or a glass of wine will do.

     

    Greg

  • Greg53
    Greg53 Member Posts: 849
    fishmanpa said:

    King Solomon Said....

    "Eat. Drink. Enjoy the work you do. Be thankful for the Blessings God gives you in this life. Live, LOVE and seek out the things that bring your heart joy. The rest is meaningless, like chasing the wind."

    That being said, I've been told by my doctors that hard alchohol is a no no. I was a smoker for 35 years. I quit cigarettes in '95 but continued cigars up until last year. No doubt on my mind where the cancer came from. One of my favorite pleasures/pastimes was a good cigar (can you say Partegas?) and a snifter of cognac, especially on a crisp cool Sunday afternoon during football season. 

    I've also been told by my doctors that a cold beer or a glass of red wine every once in a while is Ok. Just no finishing off a bottle or a 6 pak. So I, like yourself, am looking forward to the day when I can pour a rich dark meal in a glass beer or a tasty glass of Red (love S American Malbecs) and watch the game :) 

    "T"

     

    "T"

    T

     

    As I said before, we could be twins.  Except of course, you're better lookin', have talent, write very well..........Ok, maybe we aren't alike. 

     

    Anyways, you brought up my only sore subject.  Since TX ended, I try to be the best person I can be; try to eat as healthy as I can, don't eat sugar or soda; work out like a mad-man, volunteer whenever I can, BUT...................I MISS MY CIGARS!!!!  (personal choice - cohiba)

     

    Thanks for reminding me :)

     

    Greg

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Greg53 said:

    HobbsDoggy

    Hobbs,

     

    Have you got on Skiff's "how did you get your name" post .  Curious about yours??

     

    To quote a great intellectual  "I fish............therefore I drink beer"

     

    I didn't drink for 1 year after end of tx.  I will have an occasional beer.  Maybe 3-4 a week, tops (unless I see Mike). However,   I love a good single barrel bourbon, but I do abstain (ok, maybe one a year). 

     

    I did a survey with my 4 docs.  ENT - occasional beer or wine ok; RAD - same as ENT; GP - same as ENT and RAD;  ONC - NO alcohol at all.  3 out of 4 wins.  Seriously, my opinion (for what that matters), keeping in good physical shape and eating good and having a good positive attitude will do much more good than what little harm a beer or a glass of wine will do.

     

    Greg

    First Year or So..

    I agree with Greg, moderation, and live and eat healthy...

    I did want to mention though I have nothing to back anything... I'd probably wait or be very limited the first year or so so as to give the body a goo chance to recover and heal up...

    LOL, no scientific backing there at all, just my thoughts...

    I thought that phrase was something from IBM..., LOL Although I know that IBM probably applies more to Kreg right now, or his wishes anyways...

    JG

  • cureitall66
    cureitall66 Member Posts: 913
    Skiffin16 said:

    First Year or So..

    I agree with Greg, moderation, and live and eat healthy...

    I did want to mention though I have nothing to back anything... I'd probably wait or be very limited the first year or so so as to give the body a goo chance to recover and heal up...

    LOL, no scientific backing there at all, just my thoughts...

    I thought that phrase was something from IBM..., LOL Although I know that IBM probably applies more to Kreg right now, or his wishes anyways...

    JG

    IBM....

    LOL....John. It's funny I'm on this forum reading about all of this and Kreg was at a meeting and calls to say, "Hey, I'm feeling pretty good right now, gonna stop and have a beer with the guys afterwards"!....I'm like , "OMG! You know you aren't , but you won't believe what discussion I'm reading right now"...LOL. He can't wait to read everyone's comments....I know he wants to sneak one in when this is all over with : )

     

    ~C

  • fishmanpa
    fishmanpa Member Posts: 1,227 Member
    Greg53 said:

    "T"

    T

     

    As I said before, we could be twins.  Except of course, you're better lookin', have talent, write very well..........Ok, maybe we aren't alike. 

     

    Anyways, you brought up my only sore subject.  Since TX ended, I try to be the best person I can be; try to eat as healthy as I can, don't eat sugar or soda; work out like a mad-man, volunteer whenever I can, BUT...................I MISS MY CIGARS!!!!  (personal choice - cohiba)

     

    Thanks for reminding me :)

     

    Greg

    I know it's crazy!

    Greg,

    ~lol~ Didn't mean to jog your tobacco memories. I still have a humidor upstairs with a dozen or so cigars. My fav "was" a Partegas Cifuentes Febrero. I have a few ohers including an Ashton and a Macanudo or two. They all went well with Courvoisier XO Imperial ;) Equally as enjoyable was Rouge Chocolate Stout, slightly chilled. 

    The irony of it all was last August when all of this started, I had caught a cold/sinus infection. On the way home from a gig I was enjoying a cigar and I started coughing bad. I made up my mind that night to give up tobacco. I purchased an electronic cigarette kit (wish they made an electronic cigar kit!) to wean myself off of nicotine and surprisingly, they worked great. The vapor was way less irritating and I still got my nicotine fix. I told my primary physician and while he wasn't thrilled about it, he agreed it was better than all the crap that's in tobacco.... and it worked! 

    The rest is history... persistant swollen lymph node, several series of antibiotics, the "Hmmm/Uh Oh" moment, diagnosis blah blah blah. Bottom line is that I had SCC for some time even prior to noticing the symptoms and quitting tobacco. Knowing that the likelihood of me getting cancer was from tobacco makes it an open and closed case but like you... as crazy as it sounds, I do miss it too! I have to go ahead and give them away to some cigar smoking buddies and make sure I go through my tackle boxes so I don't accidently discover one down the line Fishing and get tempted (a fine cigar and fishing go hand in hand quite nicely). 

    So here's to eating healthy, being healthy and reminiscing :) 

    "T"

     

     

     

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    belly up to the H&N bar

    HobbsDoggy,

     

    Well, after  reading these posts I am even more confused.  According to Phrannie’s equation I should be able to drink up to 69.6 millon gallons (and no more), but if Cris is correct any alcohol can cause a reoccurrence (if you were HPV+).  Then Skiff pipes in since he already has violated Cris’s truth and nobody told him and Greg and T are drinking wine and cognac and puffing cigars (which can’t be good) and Stacey shows up without a goat story (what is happening).  Additionally, luv4lacrosse, hlrowe, and Deb mention moderation (what moderation) and George gives fairly believable story about PEG maintenance.  You know, I feel at home you are all my kind of people.

     

    The drinks are on me,

     

    Matt

  • George_Baltimore
    George_Baltimore Member Posts: 303
    CivilMatt said:

    belly up to the H&N bar

    HobbsDoggy,

     

    Well, after  reading these posts I am even more confused.  According to Phrannie’s equation I should be able to drink up to 69.6 millon gallons (and no more), but if Cris is correct any alcohol can cause a reoccurrence (if you were HPV+).  Then Skiff pipes in since he already has violated Cris’s truth and nobody told him and Greg and T are drinking wine and cognac and puffing cigars (which can’t be good) and Stacey shows up without a goat story (what is happening).  Additionally, luv4lacrosse, hlrowe, and Deb mention moderation (what moderation) and George gives fairly believable story about PEG maintenance.  You know, I feel at home you are all my kind of people.

     

    The drinks are on me,

     

    Matt

    Not sure

    my feeding tube will reach all the way cross country but, it sounds good to me Matt.  Gotta get my gastroenterologist to put on a few extensions.