I need the pink bus monday sorry short notice

jerseygirl231
jerseygirl231 Member Posts: 178
in Breast Cancer #1

New onco. I hope to get listen to about the side effects I have from femara.The pain I deal with from the drug and the nerve pain I have from Taxol. Funny thing If I had told the old to email my records correctly parts of it I would not be able to bring anything with me to this doc. I had called them over 2 weeks ago to fax it to my new doc they never did. The denist I want to tell dont tell me the pain in my mouth is all in my mind it is not . I hope to get my dentures by next week I cant go any longer not eating I have low blood sugar . Funny part I am no longer on medcaid but got treated like i was still on medicaid this denist is paid for .

Comments

  • mommaellen
    mommaellen Member Posts: 195
    #2
    I will be there..

    Sending prayers and good thoughts to you.

    Ellen

  • SIROD
    SIROD Member Posts: 2,194 Member
    #3
    Dentist.... Find a new one!

    Jerseygirl,

    Your dentist doesn't sound like a very nice person.  Find another kinder dentist.  It doesn't matter if you are on medicaid, private insurance or whatever,  he should give you the proper respect.  

    How dare he tell you where you are experiencing pain.  He isn't you and only you can inform him where the source of the pain is.

    I hope you like your new oncologist.  Do you use neurotin (Gabapetin)?  It's for nerve pain and it works fairly well.  It didn't touch the pain I experience on Femara though.  It did help with the neuropathy I had from my second lymph node dissection.

    Let us know how things went with the new doc.

     

    Doris

  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #4
    mommaellen said:

    I will be there..

    Sending prayers and good thoughts to you.

    Ellen

    Praying for you!
     
    Jan

    Praying for you!

     

    Jan

  • lintx
    lintx Member Posts: 697
    #5
    I'm on the bus w/you!

    Isn't it a pain to have to deal with your records getting to the new DR?  These offices must think we don't have enough on our minds.  I have a new onco, too.  She's a breath of fresh air.  My last one retired and was very old school.  Like the new one much better. Let us know how everything turns out.  Linda

  • aysemari
    aysemari Member Posts: 1,596 Member
    #6
    Oh wait one more stop

    We are a loud rowdy bunch and we will make them hear you. Isn't it frustrating how

    sometimes concerns and insight falls on deaf ears with some doctors? I am so sorry

    to hear about your side effects, they can be painful and get in the way of every day

    life. I am hoping that we will find you a caring and understanding oncologist.

     

    Hugs,

    Ayse

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #7
    sorry just read this...I

    sorry just read this...I missed the bus

     

    Denise

  • Amelia7
    Amelia7 Member Posts: 3
    #8
    Side effects from Femara/Letrozole.

    Dear jerseygirl231.  I do think you are the Girl I've been looking for?  I just signed on today, 

    but read what I think was Your words on Femara (now letrozole) in 2010?  I was diagnosed in 2009,

    had a lumpectomy and partial breast radiation.  They then put me on Femara.   I have tried THREE times 

    to take this drug since 2009, with the last 2 months being my last try!   I am so "totally OFF BALANCE" in 

    taking this drug...not dizzy...just "off balance" ...likely to loose my footing!  Also, really I Feel really like 

    my entire body is "off balance"  .....I feel like I am taking something like prednisone.  I "know" I am thinking 

    correctly, but my "words" are occasionally coming out funny and part of my head feels like it is in the clouds. 

    I have to hold onto things when I walk.   I have had NONE of the typical things they said I might get...just this, 

    and it got worse with each attempt!   I quit after my third attempt ..quit now about a month ago, and pray it is 

    out of my system!   (The third day I stopped it this time, I started feeling somewhat better) but..I still am having 

    problems and my primary care is doing a thorough work-up on me.   I cannot LIVE like this...holding onto walks, 

    words messed up!  I come from a family that has strokes and heart problems and THIS is really scary!  Yes, it 

    is very frightening.  If two of my four daughters did not have their arms in mine the last time we went out...I would 

    have fallen multiple times!  Have you or anyone else ever heard of this?  Amelia7

     

     

Discussion Boards