Balancing Act

ToBeGolden
ToBeGolden Member Posts: 695
in Head and Neck Cancer #1

I'm performing a balancing act. With the "right amount" of pain medication and the "right amount" of anti-nausea medication, life can be pleasant. Too much medication wipes me out. Some medication seems to wipe me out a little anyway.

I am also having a little trouble with the eyes (focusing). I have recurrent iritis (a painful swelling within the eyes). I've had this condition on and off for 50 years. The upshot is that reading is very fatiguing, and I can only work on the computer for short intervals.

I started the process of having the voice prosthesis removed. I don't use it; I use esophageal speech instead. The process is to place smaller diameter devices in the TEP (Treacheal - Esophageal Puncture) and let the hole between the food tube and the air tube close down.

Fatigue is big time. I rest (and often snooze) after even the shortest tasks. But I will attempt to keep you informed. Rick.

Comments

  • D Lewis
    D Lewis Member Posts: 1,581 Member
    #2
    Rick, as always

    Thanks for keeping us all informed. Hang in there.

    Deb

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #3
    Tight Wire...

    Hang in there Rick..., hoping you find the right mix... We'll be here for you, get rest and rebuilt as needed.

    Best ~ John

  • ditto1
    ditto1 Member Posts: 660
    #4
    Skiffin16 said:

    Tight Wire...

    Hang in there Rick..., hoping you find the right mix... We'll be here for you, get rest and rebuilt as needed.

    Best ~ John

    JUST REMEMBER

    TAKE CARE OF YOU FIRST AND UPDATE US SECOND.   WE WILL BE PRAYING FOR YOU

  • NJShore
    NJShore Member Posts: 429 Member
    #5
    Pleasant..

    Rick,

    glad you are able to balance things out and find some pleasant times, and glad to here from you.

    i'll say my prayers for you, and you take care of yourself!

    Kari

  • cureitall66
    cureitall66 Member Posts: 913
    #6
    Take it easy.....

     

    I know the fatigue is tough. The meds are certainly a difficult task. Still not sure how anyone can get them where they should be at all times. But, it sounds like your doing your best to keep up with it. When our body needs rest, it certainly knows how to tell us. We don't have a choice but to react to it. I hope you can get it figured out and get some relaxation soon from all of this.

    Hang tight,

    ~Cureitall 

     

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #7
    cureitall66 said:

    Take it easy.....

     

    I know the fatigue is tough. The meds are certainly a difficult task. Still not sure how anyone can get them where they should be at all times. But, it sounds like your doing your best to keep up with it. When our body needs rest, it certainly knows how to tell us. We don't have a choice but to react to it. I hope you can get it figured out and get some relaxation soon from all of this.

    Hang tight,

    ~Cureitall 

     

    eye problems are exhausting, too

    Add that to the medications and I'm sure it more than wearing.

    Good to see your posts, though.

  • josh r.
    josh r. Member Posts: 264 Member
    #8
    Rick

    Rick,

    You have been strong and seem to be very strong still under very difficult conditions. Keep it up, you have a lot support out here. josh r.

  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #9
    Keep fighting the good fight

    I truly admire your strength and intestinal fortitude. Sounds like you are balancing your quality of life.

    prayers and positive thoughts headed your way.

    Best, Mike

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #10
    right combo

    Rick,

     

    Hang in there and good luck with the meds and treatments.

     

    Matt

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