1st Taxol last Friday - Update

McMarty
McMarty Member Posts: 212 Member

I had my first Taxol last Friday.  It went pretty well.  Friday was good, Saturday was OK then Sunday!  EEOUCH!  I couldn't move off the couch.  Lots of back and neck pain, like the flu i recon.  Today is about half better.  YIKES! 

Did I hear them right when they said these side effects ease some after the 2 treatment?  This is rough! 

 

 

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Comments

  • smalldoggroomer
    smalldoggroomer Member Posts: 1,184
    It always hit me a couple of

    It always hit me a couple of day later too. Wishing all the best. It will get better. Some times they do a loading dose in the beginning. And that hits you harder. My loading dose this time around hit me hard too. But now that I'm just getting regular amounts it is better.

  • Ritzy
    Ritzy Member Posts: 4,381 Member

    It always hit me a couple of

    It always hit me a couple of day later too. Wishing all the best. It will get better. Some times they do a loading dose in the beginning. And that hits you harder. My loading dose this time around hit me hard too. But now that I'm just getting regular amounts it is better.

    I'm sorry Marty.  I sure hope

    I'm sorry Marty.  I sure hope it gets easier and better for you.

     

    Sue :(

  • McMarty
    McMarty Member Posts: 212 Member

    It always hit me a couple of

    It always hit me a couple of day later too. Wishing all the best. It will get better. Some times they do a loading dose in the beginning. And that hits you harder. My loading dose this time around hit me hard too. But now that I'm just getting regular amounts it is better.

    Well,  I hope it was a

    Well,  I hope it was a loading dose.  Probably so.  That gives me some hope!  I'm supposed to do this for quite some time I SURE want it to be easier than this.  And yet, I know I'm whining.  It was so much harder for those who went before us. 

    I'm trying to keep my chin up !

  • Noel
    Noel Member Posts: 3,095 Member
    McMarty said:

    Well,  I hope it was a

    Well,  I hope it was a loading dose.  Probably so.  That gives me some hope!  I'm supposed to do this for quite some time I SURE want it to be easier than this.  And yet, I know I'm whining.  It was so much harder for those who went before us. 

    I'm trying to keep my chin up !

    Whine away!  You deserve to! 

    Whine away!  You deserve to!  You are going thru chemo and that is not easy Marty!  You come here and vent or whatever you want to do whenever you want.

    We're on this journey with you, to support and encourage you.

     

    Feel better,

    Noel

  • McMarty
    McMarty Member Posts: 212 Member
    Noel said:

    Whine away!  You deserve to! 

    Whine away!  You deserve to!  You are going thru chemo and that is not easy Marty!  You come here and vent or whatever you want to do whenever you want.

    We're on this journey with you, to support and encourage you.

     

    Feel better,

    Noel

      Thank you!  This is a great

    Kiss  Thank you!  This is a great place!

     

  • burcu123
    burcu123 Member Posts: 66
    typical for pain and fatigue

    Taxol side effects hit me the second day also. Bone pain at pelvis and fatigue. It gets slightly better

    Neuropathy does not start until the 3rd or more sessions. Again I highly recommend MetaNx twice a day while on Taxol.

    It prevented neuropathy in several people I know including me. You have to ask your oncologist as it is prescribtion

  • Ritzy
    Ritzy Member Posts: 4,381 Member
    McMarty said:

    Well,  I hope it was a

    Well,  I hope it was a loading dose.  Probably so.  That gives me some hope!  I'm supposed to do this for quite some time I SURE want it to be easier than this.  And yet, I know I'm whining.  It was so much harder for those who went before us. 

    I'm trying to keep my chin up !

    Hoping it was a loading dose

    Hoping it was a loading dose too!  Keep your chin up!

  • jessiesmom1
    jessiesmom1 Member Posts: 915 Member
    Your Taxol Journey

    Hi Marty,

    I am glad you posted an update about beginning your Taxol. I had 12 rounds of Taxotere which is in the same class of drugs (the taxanes) as Taxol. I don't know who told you that side effects "ease some after the 2nd treatment" but that was most definitely not my personal experience. Sorry. For me they only seemed to get worse. I hope your experience is different. On the positive side, I did not have any bone or muscle pain nor did I have any neuropathy or mouth sores. I had numerous other side effects though. I did, however, get through all 12 rounds of the Taxotere chemo without missing a single one. It was in no way an easy thing to do but I had so much to live for t hat I was determined to do everything I could.

    You CAN do this.

    IRENE

  • desertgirl947
    desertgirl947 Member Posts: 653 Member
    Taxol and me

    My taxol days were Mondays.  I really didn't feel it in my joints/bones until Fridays, although I was told it was more likely the neulasta shots (which I had also taken while doing A/C).  By Sunday evening, the discomfort was gone.  About as much as I could do was take Ibuprofen.

    Oddly, what makes me wonder if it actually was the neulasta shot, not the taxol, was that after my last taxol infusion, I did not have to return the next day for the neulasta shot.  (My numbers had been good throughout chemo.)  When Friday/Saturday/Sunday came, I did not have the bone/joint pain.  Weird, I know.

    We all seem to react differently to our chemo drugs.  I think I already told you on an earlier posting, different board, what my issues were with taxol.

    Hang in there.  Look ahead to being done.

     

  • Alexis F
    Alexis F Member Posts: 3,598
    burcu123 said:

    typical for pain and fatigue

    Taxol side effects hit me the second day also. Bone pain at pelvis and fatigue. It gets slightly better

    Neuropathy does not start until the 3rd or more sessions. Again I highly recommend MetaNx twice a day while on Taxol.

    It prevented neuropathy in several people I know including me. You have to ask your oncologist as it is prescribtion

    Thanks for updating us as we

    Thanks for updating us as we worry.  I'm sorry that you're having a rough time.  Be sure and let your onco know how you are doing.  Hopefully, he can prescribe something to help you to get thru this.

    Hugs, Lex

  • Rague
    Rague Member Posts: 3,653 Member
    We are each unique!

    I did 4 DD A/C every 2 weeks before I did 12 weekly Taxol.  For me - A/C was not bad at all but I existed on the couch or in bed for those 12 weeks on Taxol.  I had no pain or neuropathy - just complete and utter exhaustion the entire time.  The 'good' thing - I started rads a week after last Taxol and felt better daily.

    Winyan - The Power Within

    Susan

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    Rague said:

    We are each unique!

    I did 4 DD A/C every 2 weeks before I did 12 weekly Taxol.  For me - A/C was not bad at all but I existed on the couch or in bed for those 12 weeks on Taxol.  I had no pain or neuropathy - just complete and utter exhaustion the entire time.  The 'good' thing - I started rads a week after last Taxol and felt better daily.

    Winyan - The Power Within

    Susan

    .. been there, done that .. and boy, it was not fun

    I describe my pain as being hit by a tractor trailer -- and left in the street as road kill.  What helped was taking claritan or benedrly that day I had my taxol chemo therapy infusion.  Please .. check with your Oncologist == to see what he/she recommends for you.

    I am a huge advocate in getting help with side efforts from Chemo.  Please do just suffer  ...   this is the most difficult journey of you LIFE --- there is HELP.

    Exhaustion, Insomnia, neuropathy in my hands and feet, watery eyes for months long after chemo treatments completed --- nose sores --.  I lost several toe nails, and finger nails -- which took forever to regrow after chemo (appx. 8 to 10 months).

    Prayers and gentle hugs for you.

    Vicki Sam

     

     

     

     

     

     

     

     

     

     

  • Angie2U
    Angie2U Member Posts: 2,991

    Taxol and me

    My taxol days were Mondays.  I really didn't feel it in my joints/bones until Fridays, although I was told it was more likely the neulasta shots (which I had also taken while doing A/C).  By Sunday evening, the discomfort was gone.  About as much as I could do was take Ibuprofen.

    Oddly, what makes me wonder if it actually was the neulasta shot, not the taxol, was that after my last taxol infusion, I did not have to return the next day for the neulasta shot.  (My numbers had been good throughout chemo.)  When Friday/Saturday/Sunday came, I did not have the bone/joint pain.  Weird, I know.

    We all seem to react differently to our chemo drugs.  I think I already told you on an earlier posting, different board, what my issues were with taxol.

    Hang in there.  Look ahead to being done.

     

    I wish no one ever had to do

    I wish no one ever had to do chemo.  Try to think positive and remember that the chemo is killing the cancer and there will be an end to it.  How many more treatments do you have?

    Hugs and lots of positive thoughts,

     

    Angie

  • McMarty
    McMarty Member Posts: 212 Member
    Angie2U said:

    I wish no one ever had to do

    I wish no one ever had to do chemo.  Try to think positive and remember that the chemo is killing the cancer and there will be an end to it.  How many more treatments do you have?

    Hugs and lots of positive thoughts,

     

    Angie

    Hi Angie!
    I have asked them

    Hi Angie!

    I have asked them several times how many rounds of Taxol and they keep telling me 'as long as it is working, we'll keep you on it.  Or until neuropathy gets too bad'  Thank you for your hugs and positive thoughts!  I am pushing forward :)  It will indeed have an end even if I don't know when that is !

    Marty

  • McMarty
    McMarty Member Posts: 212 Member
    VickiSam said:

    .. been there, done that .. and boy, it was not fun

    I describe my pain as being hit by a tractor trailer -- and left in the street as road kill.  What helped was taking claritan or benedrly that day I had my taxol chemo therapy infusion.  Please .. check with your Oncologist == to see what he/she recommends for you.

    I am a huge advocate in getting help with side efforts from Chemo.  Please do just suffer  ...   this is the most difficult journey of you LIFE --- there is HELP.

    Exhaustion, Insomnia, neuropathy in my hands and feet, watery eyes for months long after chemo treatments completed --- nose sores --.  I lost several toe nails, and finger nails -- which took forever to regrow after chemo (appx. 8 to 10 months).

    Prayers and gentle hugs for you.

    Vicki Sam

     

     

     

     

     

     

     

     

     

     

    Hit by a tractor and left for

    Hit by a tractor and left for road kill is a perfect description!  And asking for help is not my specialty so thank you for reminding me!  I need to ask them about your Claritin/Benadryl idea before next time for sure! 

    I'm feeling almost better today and holding hope for tomorrow!  Talking myself into going back for another dose on Friday will be a challenge - but you are right they can probably help if I just ask!

     

    THANK YOU!

    Marty

  • Alexis F
    Alexis F Member Posts: 3,598
    McMarty said:

    Hit by a tractor and left for

    Hit by a tractor and left for road kill is a perfect description!  And asking for help is not my specialty so thank you for reminding me!  I need to ask them about your Claritin/Benadryl idea before next time for sure! 

    I'm feeling almost better today and holding hope for tomorrow!  Talking myself into going back for another dose on Friday will be a challenge - but you are right they can probably help if I just ask!

     

    THANK YOU!

    Marty

    Please ask for help Marty.  I

    Please ask for help Marty.  I am so sorry for the side effects but I am really hoping that your onco can prescribe something to help you.

    Let us know,

    Lex

  • Ritzy
    Ritzy Member Posts: 4,381 Member
    Rague said:

    We are each unique!

    I did 4 DD A/C every 2 weeks before I did 12 weekly Taxol.  For me - A/C was not bad at all but I existed on the couch or in bed for those 12 weeks on Taxol.  I had no pain or neuropathy - just complete and utter exhaustion the entire time.  The 'good' thing - I started rads a week after last Taxol and felt better daily.

    Winyan - The Power Within

    Susan

    I'm so hoping that you start

    I'm so hoping that you start to feel better Marty.

     

    Really gentle hugs,

     

    Sue

  • Angie2U
    Angie2U Member Posts: 2,991
    Ritzy said:

    I'm so hoping that you start

    I'm so hoping that you start to feel better Marty.

     

    Really gentle hugs,

     

    Sue

    Thinking about you Marty and

    Thinking about you Marty and hoping you are doing well.  

  • McMarty
    McMarty Member Posts: 212 Member
    Angie2U said:

    Thinking about you Marty and

    Thinking about you Marty and hoping you are doing well.  

    Thank you Angie2U

    Thank you Angie2U for checking back in!  I have had 3 rounds now and so far it is getting better.  I had some neuropathy show up in my feet after just 2 rounds.  THAT was dissapointing.  Some of the people on here recommended MetaNX and I asked my Dr for some.  I just got it Friday, but I think it's helping already!  I sure hope so!  I'd hate to flunk Taxol!

     

    Good to hear from you!

    Marty

  • McMarty
    McMarty Member Posts: 212 Member
    burcu123 said:

    typical for pain and fatigue

    Taxol side effects hit me the second day also. Bone pain at pelvis and fatigue. It gets slightly better

    Neuropathy does not start until the 3rd or more sessions. Again I highly recommend MetaNx twice a day while on Taxol.

    It prevented neuropathy in several people I know including me. You have to ask your oncologist as it is prescribtion

    MetaNX

    My Dr finally prescribed the MetaNX yesterday!  I had a little neuropathy after just the 2nd round and I was bummed!  They gave me a generic, but I think my feet feel better already!  Thank you for the tip!!