Happy, happy,happy!!!

Hi all,

Just got home from oncologist follow up visit. NO Maintenance Chemo!!! Just watchful waiting for now. Calling it partial Remission. I don't see her until January!! She originally thought maintenance Ofatumumab was the way to go, but my numbers are looking SO GOOD she is more comfortable with waiting. It's a bit hard- not doing anything and knowing it's not a full remission but the Ofatumumab stays in your system and keeps working for months. Very happy to not have to have more infusions!!

SO we're having a great day here in Jersey!!! Thanks for the prayers, good vibes and love. Now on to the business of just enjoying life with fewer interuptions!! :)

Hugs,
Donna

Comments

  • jimwins
    jimwins Member Posts: 2,107
    Yay!!!
    It's been a week of inspiring and good news!
    I'm so happy for you - you'll get to enjoy the holidays
    without the "chemo-ruptions".

    Enjoy yourself!

    Hugs,

    Jim
  • allmost60
    allmost60 Member Posts: 3,178 Member
    Way to go Donna!!!
    "YEAH"! Now just enjoy every single day! So very happy for you! Love...Sue
    (FNHL-2-3a-6/10)
  • vinny59
    vinny59 Member Posts: 1,036 Member
    yeah!
    great news Donna!!!! So happy for you... awesome not having to be in that chair! Vinny
  • miss maggie
    miss maggie Member Posts: 929
    Happy happy happy
    Dear sweet Donna,

    I couldn't be happier for you. It's been too long of a road for you. Finally good news.
    God bless and yes, enjoy the up and coming holidays.

    hugs and love. xooxoxoxo Maggie
  • fullyloved
    fullyloved Member Posts: 39
    Yes!!!
    We love good news!
  • DadysGirl
    DadysGirl Member Posts: 346
    Wishing you continued good
    Wishing you continued good news ...
    Take care of yourself... Lots of luv...
  • anliperez915
    anliperez915 Member Posts: 770
    That's great news
    That's great news Donna, hope you won't need more treatment for a long time! Take care of yourself and sending you a Huge HUG.

    Sincerely,
    Liz
  • po18guy
    po18guy Member Posts: 1,461 Member
    No hurricane and no chemo!
    That can only be good news. Time to enjoy each day, although I do agree that it feels odd when your treatment is reduced. Ah, but you will soon be used to it. Thanks for letting us know!
  • onlytoday
    onlytoday Member Posts: 609 Member
    po18guy said:

    No hurricane and no chemo!
    That can only be good news. Time to enjoy each day, although I do agree that it feels odd when your treatment is reduced. Ah, but you will soon be used to it. Thanks for letting us know!

    Thank you all!
    Thank you for all of your good wishes. The news even got better today when my oncologist called me and was very excited that for the first time since my diagnosis my IGM level is withing normal range at 228. It is usually around 2000 for me when the cancer is active. So this was great news (again) that the beast is resting right now.

    So while it gives me a break I am going to get on with LIVING!!! It's snowing here in NJ tonight- very beautiful but not for those that are still without power, etc. But I think I will get my cross country skis out in the morning just because I am lucky and I can.

    So prayers for those that are still suffering- with weather, with pain and disease. I am blessed and I know it. I thank God for this reprieve.

    Love and hugs to all,
    Donna