I am newly diagnosed with UPSC.

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  • DoonyL7
    DoonyL7 Member Posts: 33
    #62
    debrajo said:

    Radiation
    So sorry youu are having such a rough time with the radiation. I didn't have the external type but did have five of the internal type, and I didn't have any side affects except the tiredness but even that was minor. Are they giving you nausea meds?You are going to MD Anderson,right?They gave me Zofram amd Comprazine that I took for a few days, but didn't need so I stopped taking them. Call those dr.s and tell them you need something stronger. Do not suffer. They will call you in something probably local so you don't have to go in. Hope you feel better soon! Best, Debrajo

    Thanks Deb for your input. I am not doing Anderson but am comfortable with my doctors. My radiation treatments have been changed. I will stop external radiation next week and then be off for week 1/2. I will then do 3 internal treatments and finish with targeting external beem. Doc thought this was better for me since I have no appetite and am loosing weight. She assured me this would not compromise my treatments. I am also scheduled for chemo again after radiation and she had some concerns that I would be too depleted hense the change.
    I should also tell you I have IBS so my bowel was already somewhat compromised before my radiation started. I am looking forward to the break.
    Thanks again...L
  • DoonyL7
    DoonyL7 Member Posts: 33
    #63
    jazzy1 said:

    Doony
    I can relate to external radiation and bowel issues...gee!! I had 33 of these little devils and by the 3rd week I felt like the toilet was beside me all day. Never had these issues prior, but surely knew to watch what I ate, too. Cramps in stomach was part of the side affects.

    After treatments ended, I was so much better a month later. Today some 3+ yrs since treatments ended, still have "fast" bowels, generally when I eat lots of roughage. Part of the deal as quite used to it.

    Be patient with your body as it will recover and you'll feel so much better very soon....

    Jan

    Thanks Jan...Lol the toilet and I are quite chummy. I kinda feel like I am am goin stir crazy though. Am terrified to leave the house except when a necessity.
    Anyway its true most of this will stop when treatment is over. If you see my note to Deb I am getting a break. I can't wait....Lorna

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