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Bump
Hi Lori

Saw your post and wanted to bump it back up...

Perhaps, you could copy and paste that info over here - there may be a few folks like myself who do not visit over there...we'd like to know what's going on with you:)

I'll remain hopeful with you:)

-Craig

Maxiecat said:

I am so sorry... Hopefully
I am so sorry... Hopefully the dr will have a new plan for you next week.

Alex

Well it's back to reality
Well it's back to reality from what sounded like a very fun time in Vegas. Glad you could take that trip, Lori. You've got to do those things once in a while.

Keep us posted on what the plan is. I'm on standard regimen, for now.
Looking at what else I could add to it. Someone mentioned to me at the clinic today....Envita in Scottsdale, AZ. I plan to call there, maybe talk to CC survivor. Who knows?? They also give a vaccine at their mexico clinic, because they can't at the Scottsdale location, because it is not FDA approved. The reason i am checking this out is because one of the Stage 4 CC survivors had been to Mayo and Sloan-Kettering. Her tumors were rapidly doubling (so she says), and they said they couldn't do anymore than the standard. That was more than 10 years ago.
I don't like to raise false hope.....i am just looking at all options. It's hard to make the "break" to something so different, but at some point for me, that is what I will have to decide.

Glad you are back!