Good news -- and differing treatments

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  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #22
    smokeyjoe said:

    I've been on xeloda for
    I've been on xeloda for three months now.....get scan results on Friday at onc. appt. so don't know if it's working or not. I absolutely have no hand or foot issues at all, went hiking for miles in a gorge....have been using jet ski a lot, where hand and feet get wet...no issues. The only thing I have is fatigue will hit from time to time...no major tummy issues....the odd time a slight "off" feeling ..... has me worried that I'm not having major side effects wondering if that's an indicator as to efficacy. If this stuff was effective and effective for a long time I have no issues staying on it.....

    I got sick as a dog when on FOLFOX....
    and that chemo did absolutely nothing to my tumors, so I kind of wonder if this is something of an oncological wive's tale. I also wonder why we say "sick as a dog"...most of the dogs I know are relatively healthy. Will be keeping you in my thoughts on Friday, Smokeyjoe. Ann Alexandria
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #23
    Great
    Sounds like you have gotten some good news and the doctors concur. As far the difference in the doctors and their direction on how they want to proceed you should ask them each the effectivness of why rad/no rad or pump no pump or whatever. Its ultimately going to be your decision but that is going to be a hard one to make. Hope all continues to go well for you and you get the answers you are seeking.

    Kim
  • joemetz
    joemetz Member Posts: 493
    #24
    JayhawkDan said:

    Ron and Jeff...
    Thanks for the comments, and for your personal experience with Xeloda, Jeff. I had my regular infusion today and saw my local onc. He's on board with whatever the NCI onc recommends, which is nice. And they pulled the vectibix today, so hopefuly I can start healing up these cracked fingers soon! Dan

    xeloda
    I had six months of folfox6 w/ erbitux. It totally kicked my butt, but it also kick the crap out of cancer. I went from nearly 100 spots on the liver with a large tumor in the colon. to about 5 spots in the liver and after surgery... NO tumor in the colon.

    had two months off around surgery, and now am in week 4 of Xeloda and have had 2 treatments of Avastin. like others have said... no side effects to these new drugs, yet.

    my tignling in the hands and feet is worse than it was, but manageable.
    no cracking hands and feet yet, but i lotion regularly... and I'm not a "lotion guy".

    but overall... its going well and haven't had any of the listed side effects.

    i actually feel better than I have felt in over 4 years.
  • Heart76
    Heart76 Member Posts: 26
    #25
    joemetz said:

    xeloda
    I had six months of folfox6 w/ erbitux. It totally kicked my butt, but it also kick the crap out of cancer. I went from nearly 100 spots on the liver with a large tumor in the colon. to about 5 spots in the liver and after surgery... NO tumor in the colon.

    had two months off around surgery, and now am in week 4 of Xeloda and have had 2 treatments of Avastin. like others have said... no side effects to these new drugs, yet.

    my tignling in the hands and feet is worse than it was, but manageable.
    no cracking hands and feet yet, but i lotion regularly... and I'm not a "lotion guy".

    but overall... its going well and haven't had any of the listed side effects.

    i actually feel better than I have felt in over 4 years.

    :) @ Joe
    That's awesome, Joe!
  • Varmint5
    Varmint5 Member Posts: 384 Member
    #26
    Wonderful news, Dan
    And that grandson is adorable! So glad your results are so good. That's great! As far as the "terminal" thing, we are all terminal. Try to think of yourself having a chronic disease that you just might be able to get rid of or live with. I didn't know that was possible until I came on here and met these people who are beating or living with colon cancer. Great news! So happy for you.

    Sandy

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