tall cell papillary carcinoma

Hello,

Thought I posted last night, but can't find my post. I know how this website can be as I am NED for a completely different cancer and am part of another discussion group.

Okay, I have just been diagnosed with tall cell papillary carcinoma, a more aggressive variant of papillary carcinoma. I searched on this discussion board to find out more information on it, and am having no luck. Has anyone been diagnosed with this form of thyroid cancer And if so, can you share your story with me?

MinnieJan
«13

Comments

  • rcsieg
    rcsieg Member Posts: 6 Member
    same situation
    Hi - I was just diagnosed with tall cell papillary carcinoma as well. Just had my thyroid removed last week (along with some lymph nodes). Have endocrinologist appt. next week. My surgeon said I will need the radioactive iodine treatment. What is your situation?
  • minniejan
    minniejan Member Posts: 88
    rcsieg said:

    same situation
    Hi - I was just diagnosed with tall cell papillary carcinoma as well. Just had my thyroid removed last week (along with some lymph nodes). Have endocrinologist appt. next week. My surgeon said I will need the radioactive iodine treatment. What is your situation?

    Hello,
    I had surgery on

    Hello,

    I had surgery on 1/18. Received pathology report on 1/31 during a followup with the surgeon. Just waiting for my endocrinologist appointment on Friday to map out a plan. I too had lymph nodes, 3, removed. None had an indication of tumor spread although there was some indication it was "on the move" within the thyroid. My surgeon told me that RAI tends to be less effective on tall cell and tall cell is more aggressive and rare overall. But still indicated I would probably undergo the RAI therapy after doing on the low iodine diet. Will need more blood work and ultrasounds too. I do not have a staging, which I find odd after undergoing staging for UPSC uterine cancer just a year ago. These two cancers I am battling are totally unrelated. Where in the country are you being treated? There is little information online about this variation of papillary carcinoma.

    Minniejan
  • rcsieg
    rcsieg Member Posts: 6 Member
    minniejan said:

    Hello,
    I had surgery on

    Hello,

    I had surgery on 1/18. Received pathology report on 1/31 during a followup with the surgeon. Just waiting for my endocrinologist appointment on Friday to map out a plan. I too had lymph nodes, 3, removed. None had an indication of tumor spread although there was some indication it was "on the move" within the thyroid. My surgeon told me that RAI tends to be less effective on tall cell and tall cell is more aggressive and rare overall. But still indicated I would probably undergo the RAI therapy after doing on the low iodine diet. Will need more blood work and ultrasounds too. I do not have a staging, which I find odd after undergoing staging for UPSC uterine cancer just a year ago. These two cancers I am battling are totally unrelated. Where in the country are you being treated? There is little information online about this variation of papillary carcinoma.

    Minniejan

    I am on Long Island (New
    I am on Long Island (New York). Where are you? I am still trying to find more info about it. I have my endo appointment next week and will see what my dr. says.
  • minniejan
    minniejan Member Posts: 88
    rcsieg said:

    I am on Long Island (New
    I am on Long Island (New York). Where are you? I am still trying to find more info about it. I have my endo appointment next week and will see what my dr. says.

    PA
    Hello, I live in a suburb outside of Philadelphia, and am being treated at Hospital of the University of Pennsylvania. I am fortunate I do not have to go too far. Keep me posted please. I keep researching this but am not having too much success.

    MinnieJan
  • csm2007
    csm2007 Member Posts: 25
    minniejan said:

    PA
    Hello, I live in a suburb outside of Philadelphia, and am being treated at Hospital of the University of Pennsylvania. I am fortunate I do not have to go too far. Keep me posted please. I keep researching this but am not having too much success.

    MinnieJan

    Papillary TCV Survivor
    Hello,

    Greetings, I can hopefully be a success story for you. I was 34 when DX in Dec 2010 with Hurthle Cell Carcinoma 4.5 cm 33 grams first in the left lobe, then during the second surgery in Jan 2011 to remove the other lobe Papillary Tall Cell Variant 1.1 cm 9 grams was found in the right side and had spread to the tissues and cervical(head/neck) nodes. They also found small but manageable nodules in my lungs, most likely from the Hurthle Cell. I was on the LID for just over two weeks then had 150 mci's of RAI on April 15th 2011. Currently I take 137/150 mcgs (alternating days) of Synthroid and Sorafenib (tumor suppressor.) Although it took many months to get my TG and TSH levels down, I am just over a year out from the last surgery and have no reoccurrence yet. So far, so good! I am treated here in Jacksonville, Florida by 21st Century Oncology / North Florida Endocrine, and have regular 8 week bloodwork to check my progress. If you have any questions I did not cover please feel free to message me. Best of luck to you in your cancer journey....
  • rydleigh
    rydleigh Member Posts: 1
    Tall cell variant
    Hi, I'm also looking for someone who is dealing with the diagnosis of tall cell variant papillary thyroid cancer. I had a TT on Feb 1/12 and got the pathology report from my GP on Wed. It showed that I have a tumour on both the right and left lobes. The right tumour is 1 cm and extrathyroid extension is present. The cytomorphology discription is classical, tall cell and oncocytic. The left nodule is 0.7 cm with focal extrathyroidal extension and cytomorphology states tall cell variant. I've been searching for more info as well and have only managed to find stats that are really depressing. I'm sorry to see that you are also dealing with a similar situation. It's sometimes comforting to know you are not alone. I have an appointment on Feb 16 with my oncologist to go over the report and decide on the next step. I will post any information that I find helpful.
    Take care,
    Rydleigh
  • Yangela
    Yangela Member Posts: 1
    I was diagnosed with the
    I was diagnosed with the tall cell variant of papillary thyroid cancer February of 2011. Complete thyroidectomy in March where they also took out 12 lymph nodes and the cancer had spread to 6 out of the 12. So far I have had a RAI treatment and a follow up full neck scan and no news is good news. Currently, on the LID for another full body scan. My doctor is just keeping a better eye on things it seems and it did take about 7 months to have my levels at a place where he wanted them, that level is 200 mcg's of synthroid 6 days a week and 400 mcg's one day a week.
  • rcsieg
    rcsieg Member Posts: 6 Member
    minniejan said:

    PA
    Hello, I live in a suburb outside of Philadelphia, and am being treated at Hospital of the University of Pennsylvania. I am fortunate I do not have to go too far. Keep me posted please. I keep researching this but am not having too much success.

    MinnieJan

    just did the rai pill
    just did the rai pill yesterday. so far no side effects. wondering how u r making out?
  • david_nwpa
    david_nwpa Member Posts: 1
    Tall Cell Variant PTC
    Minniejan, I too have the Tall Cell Variant of Papillary Thyroid Cancer (TCV). I was diagnosed with thyroid cancer in July, 2008. I had a total thyroidectomy in September 2008. At that time, I had a total of 6 lymph nodes removed during the biopsy and another 6 mediastinal lymph nodes removed in the surgery, combined with a 2.5 cm tumor removed from my thyroid bed. Six weeks after the surgery, I had RAI at 132 microcuries of I-131. A year later, more lymph nodes led to more RAI. My doctor has ordered PET scans and indicated in my records that my cancer is not RAI uptaking. In October 2010, after a summer in which all seemed to be going better, I was diagnosed with a recurrence. A second TT surgery came in December 2010 at which point the surgeon removed a 3.5 cm tumor from my thyroid bed, and 9 lymph nodes, many from the mediastinum. All 9 lymph nodes and the tumor were TCV and all with extrathyroidal extension. My ENT surgeon in Cleveland told me not to worry, and that based on my age, I would probably be cured. Along comes January, 2012, and my local endocrinologist discovered 2 more lymph nodes on ultrasound. I have my 4th WBS coming in June. None of the research I have investigated indicate anything about a cure. Instead it all points to poorer prognosis and a higher mortality rate. I would check with your endocrinologist about your particular case. Good luck, and stay alive! You can do it!
  • Lspil4
    Lspil4 Member Posts: 3
    Yangela said:

    I was diagnosed with the
    I was diagnosed with the tall cell variant of papillary thyroid cancer February of 2011. Complete thyroidectomy in March where they also took out 12 lymph nodes and the cancer had spread to 6 out of the 12. So far I have had a RAI treatment and a follow up full neck scan and no news is good news. Currently, on the LID for another full body scan. My doctor is just keeping a better eye on things it seems and it did take about 7 months to have my levels at a place where he wanted them, that level is 200 mcg's of synthroid 6 days a week and 400 mcg's one day a week.

    Hi tcv
    Im also from LI. Was diagnosed with pap Thyca 8 months ago and decided to go to MSK jus for second opinion and got thrown for a loop. They said tall cell was present in 2/7 metastatic nodes with a total of 38 nodes taken. Can anyone share how they are doing , what follow ups are like. This is a little scary. I'm. 37 year old female with 2 young children. Thank I in advance and hope everyone is doing well
  • vanderbilt
    vanderbilt Member Posts: 4
    Lspil4 said:

    Hi tcv
    Im also from LI. Was diagnosed with pap Thyca 8 months ago and decided to go to MSK jus for second opinion and got thrown for a loop. They said tall cell was present in 2/7 metastatic nodes with a total of 38 nodes taken. Can anyone share how they are doing , what follow ups are like. This is a little scary. I'm. 37 year old female with 2 young children. Thank I in advance and hope everyone is doing well

    Tall cell thyroid cancer
    There are a couple of good books about thyroid cancer. (Both cited on my website, www.myrnacatharsis.com Kenneth Ain (from the University of Kentucky) also has a very informative website.

    So far, for me, in spite of the delay of Vanderbilt, I seem to be lucky.

    What perplexes me is how my enlarged thyroid was brushed aside by my physician for over five months. I wonder if it is "special" treatment for people who work at Vanderbilt and have their health care through vanderbilt. I was even referred by another physician.

    In addition, during my interactions with Vanderbilt Med Center aobut my thyroid cancer, I was *not* referred to anyone listed as a specialist. Again, it makes me wonder if Vanderbilt employees are treated differently. Here, the problem is not one of health insurance. I have health insurance but it is through Vanderbilt.
  • Baldy
    Baldy Member Posts: 243

    Tall cell thyroid cancer
    There are a couple of good books about thyroid cancer. (Both cited on my website, www.myrnacatharsis.com Kenneth Ain (from the University of Kentucky) also has a very informative website.

    So far, for me, in spite of the delay of Vanderbilt, I seem to be lucky.

    What perplexes me is how my enlarged thyroid was brushed aside by my physician for over five months. I wonder if it is "special" treatment for people who work at Vanderbilt and have their health care through vanderbilt. I was even referred by another physician.

    In addition, during my interactions with Vanderbilt Med Center aobut my thyroid cancer, I was *not* referred to anyone listed as a specialist. Again, it makes me wonder if Vanderbilt employees are treated differently. Here, the problem is not one of health insurance. I have health insurance but it is through Vanderbilt.

    Doctors
    Hi Myrna,

    I just read your web site, in some ways, my experience was similar to yours.

    Driving home one night in Sept 2010 I was rubbing my neck and found a lump sort of beside my adams apple. I immeadiately called my Primary Care and saw her very shortly. She palpated the lump told me that it was a lymph node and that lymph nodes will swell up for various reasons and not to be worried. She thought it best to wait and see and that most likely it would go down on its own in a month or two. In a moment of clairvoyance, I asked if it could be thyroid related, she palpated my thyroid, found it to be normal and said it was very unlikely.

    Come the begining of November, it was still there and I asked for another appt only to find my doctor would be away for some weeks and I could go to the doctor who was covering for her. I made the appt and also called my old Primary Care who I had been forces to leave for insurance reasons about three years previously to see if he would take me back and also how quickly he could see me if he did, he had changed practices by then. He took me back and was able to see me almost as quickly as I would have been seen otherwise. He also palpated the lump and said that since there hadn't been any discernable change in 2 months I should see a general surgeon. I saw the general surgeon in early Dec and he also palpated and said, "It doesn't feel like any Lymphoma to me." I think this comment by him is telling in that each of the doctors I had seen up to that point were probably looking for Lymphoma and not finding it. He then suggested a fine needle aspiration but, in a moment of clairvoyance for him, decided it would be better for me to go to a head and neck surgeon instead. The end of Dec I saw the head and neck surgeon who scheduled a lymphadenectomy for 1/18/11. He took it out, put it under a microscope and found papillary thyroid cancer cells. To speed things up, I had a total thyroidectomy and right side neck disection {50+ nodes} on 2/8/11, RAI on 4/14/11 and good follow ups since.

    Before the neck surgeon performed the surgery, he had a sonogram done to see what it could find. Since the four cancer foci found were all under 2.6 mm, it found nothing, a sonogram can't resolve things smaller than 5 mm.

    At the time, I was angry about my experience with the Primary Care doctor I saw in Sept 2010, but after what subsequently occurred, I don't see how she did anything wrong. If 100 patients exhibit with exactly the same symptoms as I, her diagnosis would probably be right 99 times. I just had the bad luck of being the 100th patient.

    Alan
  • vanderbilt
    vanderbilt Member Posts: 4
    Baldy said:

    Doctors
    Hi Myrna,

    I just read your web site, in some ways, my experience was similar to yours.

    Driving home one night in Sept 2010 I was rubbing my neck and found a lump sort of beside my adams apple. I immeadiately called my Primary Care and saw her very shortly. She palpated the lump told me that it was a lymph node and that lymph nodes will swell up for various reasons and not to be worried. She thought it best to wait and see and that most likely it would go down on its own in a month or two. In a moment of clairvoyance, I asked if it could be thyroid related, she palpated my thyroid, found it to be normal and said it was very unlikely.

    Come the begining of November, it was still there and I asked for another appt only to find my doctor would be away for some weeks and I could go to the doctor who was covering for her. I made the appt and also called my old Primary Care who I had been forces to leave for insurance reasons about three years previously to see if he would take me back and also how quickly he could see me if he did, he had changed practices by then. He took me back and was able to see me almost as quickly as I would have been seen otherwise. He also palpated the lump and said that since there hadn't been any discernable change in 2 months I should see a general surgeon. I saw the general surgeon in early Dec and he also palpated and said, "It doesn't feel like any Lymphoma to me." I think this comment by him is telling in that each of the doctors I had seen up to that point were probably looking for Lymphoma and not finding it. He then suggested a fine needle aspiration but, in a moment of clairvoyance for him, decided it would be better for me to go to a head and neck surgeon instead. The end of Dec I saw the head and neck surgeon who scheduled a lymphadenectomy for 1/18/11. He took it out, put it under a microscope and found papillary thyroid cancer cells. To speed things up, I had a total thyroidectomy and right side neck disection {50+ nodes} on 2/8/11, RAI on 4/14/11 and good follow ups since.

    Before the neck surgeon performed the surgery, he had a sonogram done to see what it could find. Since the four cancer foci found were all under 2.6 mm, it found nothing, a sonogram can't resolve things smaller than 5 mm.

    At the time, I was angry about my experience with the Primary Care doctor I saw in Sept 2010, but after what subsequently occurred, I don't see how she did anything wrong. If 100 patients exhibit with exactly the same symptoms as I, her diagnosis would probably be right 99 times. I just had the bad luck of being the 100th patient.

    Alan

    Doctors
    Hi Alan

    Thanks for your response. It was interesting and informative. While there are some similarities – we were both angry, for example -- your experience is quite different than mine. When alerted to your lump, your PCP saw you almost immediately. Your old doctor saw you fairly quickly also and then sent you to a surgeon. Within only 4 months, you had seen your PCP, had a follow up on her advice (since the lump did not go down) and had surgery scheduled. That was speedy!
    My Vanderbilt University Medical Center PCP delayed for 5 and a half months after being notified by both myself and my gynecologist that I had an enlarged thyroid. Five and a half months of brushing aside my requests for an appointment.

    Besides being angry when I found out that there was possibly a serious problem, I lost trust in VUMC. I had had somewhat disturbing experiences in the past with VUMC. It is scary to feel that you cannot trust your physician.

    Myrna
  • Baldy
    Baldy Member Posts: 243

    Doctors
    Hi Alan

    Thanks for your response. It was interesting and informative. While there are some similarities – we were both angry, for example -- your experience is quite different than mine. When alerted to your lump, your PCP saw you almost immediately. Your old doctor saw you fairly quickly also and then sent you to a surgeon. Within only 4 months, you had seen your PCP, had a follow up on her advice (since the lump did not go down) and had surgery scheduled. That was speedy!
    My Vanderbilt University Medical Center PCP delayed for 5 and a half months after being notified by both myself and my gynecologist that I had an enlarged thyroid. Five and a half months of brushing aside my requests for an appointment.

    Besides being angry when I found out that there was possibly a serious problem, I lost trust in VUMC. I had had somewhat disturbing experiences in the past with VUMC. It is scary to feel that you cannot trust your physician.

    Myrna

    Doctors
    Hi Myrna,

    I agree 100%, he should have seen you when you asked. I just wonder if he may, like my original PCP, have thought the chances were very good there was nothing to worry about and you should "wait and see". If this were the case, he should have made it clear to you that is what he was thinking.

    Yes, I would've dropped this guy too, maybe even faster than you did.

    Alan
  • Baldy
    Baldy Member Posts: 243
    Baldy said:

    Doctors
    Hi Myrna,

    I agree 100%, he should have seen you when you asked. I just wonder if he may, like my original PCP, have thought the chances were very good there was nothing to worry about and you should "wait and see". If this were the case, he should have made it clear to you that is what he was thinking.

    Yes, I would've dropped this guy too, maybe even faster than you did.

    Alan

    Doctors
    Hi all,

    I think I should explain further my reasons for switching PCPs when I did. The PCP I saw on 9/2010 isn't a full time patient seeing doctor. She's a member of the faculty of a medical school that has set up a practice so that faculty members can do clinical work one day a week. The thought was, if a patient had an emergency problem, he or she could see one of the other participating faculty members ASAP. I originally chose her because she specializes in diabetes which runs in my fathers family and because my blood sugar numbers have always been border line. At the time, I thought this one day a week business wouldn't be a problem, probably because I've always been healthy and rather blithely expected the trend to continue. But after the lump showed up, I didn't like the thought of hopping from one doctor to another having to explain from the beginning and possibly pursuing different courses depending on which doctor I saw. {Not to mention having a doctor reading another doctor's notes and possibly misunderstanding the details implied or not implied therein.} I had received a letter from my old PCP when he switched practices about a year before, so I guessed he would likely take me back if I asked and he did.

    Sorry to be so long winded again, but I thought a better explanation of why I chose to switch when I did was in order.

    I think the morale to Myrna's and my story is, if you aren't confident in your doctor, then find a new one as soon as possible. In Myrna's case, the lack of confidence was well founded. In my case, maybe not so much, but I still had what seem like good reasons to me.

    Alan
  • utahgirl1970
    utahgirl1970 Member Posts: 2 Member
    Baldy said:

    Doctors
    Hi Myrna,

    I just read your web site, in some ways, my experience was similar to yours.

    Driving home one night in Sept 2010 I was rubbing my neck and found a lump sort of beside my adams apple. I immeadiately called my Primary Care and saw her very shortly. She palpated the lump told me that it was a lymph node and that lymph nodes will swell up for various reasons and not to be worried. She thought it best to wait and see and that most likely it would go down on its own in a month or two. In a moment of clairvoyance, I asked if it could be thyroid related, she palpated my thyroid, found it to be normal and said it was very unlikely.

    Come the begining of November, it was still there and I asked for another appt only to find my doctor would be away for some weeks and I could go to the doctor who was covering for her. I made the appt and also called my old Primary Care who I had been forces to leave for insurance reasons about three years previously to see if he would take me back and also how quickly he could see me if he did, he had changed practices by then. He took me back and was able to see me almost as quickly as I would have been seen otherwise. He also palpated the lump and said that since there hadn't been any discernable change in 2 months I should see a general surgeon. I saw the general surgeon in early Dec and he also palpated and said, "It doesn't feel like any Lymphoma to me." I think this comment by him is telling in that each of the doctors I had seen up to that point were probably looking for Lymphoma and not finding it. He then suggested a fine needle aspiration but, in a moment of clairvoyance for him, decided it would be better for me to go to a head and neck surgeon instead. The end of Dec I saw the head and neck surgeon who scheduled a lymphadenectomy for 1/18/11. He took it out, put it under a microscope and found papillary thyroid cancer cells. To speed things up, I had a total thyroidectomy and right side neck disection {50+ nodes} on 2/8/11, RAI on 4/14/11 and good follow ups since.

    Before the neck surgeon performed the surgery, he had a sonogram done to see what it could find. Since the four cancer foci found were all under 2.6 mm, it found nothing, a sonogram can't resolve things smaller than 5 mm.

    At the time, I was angry about my experience with the Primary Care doctor I saw in Sept 2010, but after what subsequently occurred, I don't see how she did anything wrong. If 100 patients exhibit with exactly the same symptoms as I, her diagnosis would probably be right 99 times. I just had the bad luck of being the 100th patient.

    Alan

    Doctors
    I'm new here, and am recovering from a total front compartment thyroidectormy with partial left side lateral node dissection. While in the surgery, the doctor found my vocal cord was wrapped around a tumor and had to peel back the vocal cords to reach the tumor, thus i am experiencing some paralzying of the vocal cords which I was told will take time to go away, which is fine but then was told the tumor showed Tall Cell Cancer which has freaked me out a little...However, I wish to talk about doctors....For years I had trouble swallowing and my primary did absolutely nothing. I then had a cough that lasted almost 4 months, again nothing. One day, a few weeks after coming back from vacation, I noticed a swelling in my neck area above my clavicle, closer to my throat. I called my NEW primary doctor and demanded to see an MD - not a P.A., not a resident, an MD!! My doctor was not in so I had an emergency visit with the older head of the practice - I thank my lucky stars because it was he that ordered a sonogram of the area and thus put me on the long road i am following today - a road to life. Turned out I had a node that was laying against my carotid and jugular. I was put in for a CT with contrast and a petscan and everyone (doctors/nurses) started getting panicky around me, no one would tell me what was going in - not a good situation. AFter the Petscan I went to my local oncologist who suggested I see a local ENT doctor (I only knew his reputation as an allergy doctor!!) for a needle biopsy. I told my oncologist if I did that I would bleed out and die on the table and DEMANDED he give me the name of an ENT surgeon who was qualified to do surgery without killing me! I ended up at Sloan, with chief ENT performing surgery. I still have a long way to go however, if I had listened to all the primary doctors and even my local oncologist (who told me, oh, even if there is a malignancy in there it is slow growing - you can wait, and then to be told by my Sloan surgeon that I had one month before I probably would have lost my ability to speak (and this is not even taking into consideration the Tall Cell Cancer which I will see an endocrinologist about in 6 weeks)...kind of blows my mind...That initial swelling in my neck was only there a short time - my other primary probably would have said, oh, you have an infection, here's some antibiotics, the swelling would have gone down, which it did anyway, and my cancer would have probably metastisized through my whole body. DON'T LISTEN TO DOCTORS IF YOU HAVE ANY "FEELING" THAT SOMETHING IS NOT RIGHT!!! LISTEN TO YOUR BODY AND JUST KEEP GOING TO DOCTORS UNTIL YOU FIND SOMEONE WHO WILL LISTEN - IT MIGHT SAVE YOUR LIFE LIKE IT DID ME...
  • utahgirl1970
    utahgirl1970 Member Posts: 2 Member
    rcsieg said:

    same situation
    Hi - I was just diagnosed with tall cell papillary carcinoma as well. Just had my thyroid removed last week (along with some lymph nodes). Have endocrinologist appt. next week. My surgeon said I will need the radioactive iodine treatment. What is your situation?

    Tall Cell Cancer treatment
    How did your visit with endocrinologist go? My appt is in 6 weeks, so I'm interested in knowing what to expect. i was also told by my surgeon that I would need the radioiodine treatment, but as I read some things on line, I see that Tall Cell Cancer is not too receptive to it....Please let me know how you are doing :)
  • ILDenlou58
    ILDenlou58 Member Posts: 8
    hi i was told i have tall
    hi i was told i have tall cell thyroid cancer went for 5 hour surgery caner was 5mm 1mm from the thyroid margin had i131 6 figer turned blue tongue feel like its burnt bubbles on it taste bud lumps all over the place can u tell me how your cancer did cant find too much on tall cell thank u denlou
  • ILDenlou58
    ILDenlou58 Member Posts: 8
    rydleigh said:

    Tall cell variant
    Hi, I'm also looking for someone who is dealing with the diagnosis of tall cell variant papillary thyroid cancer. I had a TT on Feb 1/12 and got the pathology report from my GP on Wed. It showed that I have a tumour on both the right and left lobes. The right tumour is 1 cm and extrathyroid extension is present. The cytomorphology discription is classical, tall cell and oncocytic. The left nodule is 0.7 cm with focal extrathyroidal extension and cytomorphology states tall cell variant. I've been searching for more info as well and have only managed to find stats that are really depressing. I'm sorry to see that you are also dealing with a similar situation. It's sometimes comforting to know you are not alone. I have an appointment on Feb 16 with my oncologist to go over the report and decide on the next step. I will post any information that I find helpful.
    Take care,
    Rydleigh

    hi i also have tall cell
    hi i also have tall cell thyrod cancer i have been tol i131 doesnt rfesond very good to iti had i131 in aug 1st 2012 waiting to find out what my blood test says it has to get to 0 before i am in remission i am very tired latly i want this to be over cancer stinks please write and tell me how your doing Happy thankgiving to you and your family
  • ILDenlou58
    ILDenlou58 Member Posts: 8
    rydleigh said:

    Tall cell variant
    Hi, I'm also looking for someone who is dealing with the diagnosis of tall cell variant papillary thyroid cancer. I had a TT on Feb 1/12 and got the pathology report from my GP on Wed. It showed that I have a tumour on both the right and left lobes. The right tumour is 1 cm and extrathyroid extension is present. The cytomorphology discription is classical, tall cell and oncocytic. The left nodule is 0.7 cm with focal extrathyroidal extension and cytomorphology states tall cell variant. I've been searching for more info as well and have only managed to find stats that are really depressing. I'm sorry to see that you are also dealing with a similar situation. It's sometimes comforting to know you are not alone. I have an appointment on Feb 16 with my oncologist to go over the report and decide on the next step. I will post any information that I find helpful.
    Take care,
    Rydleigh

    hi i also have tall cell
    hi i also have tall cell thyrod cancer i have been tol i131 doesnt rfesond very good to iti had i131 in aug 1st 2012 waiting to find out what my blood test says it has to get to 0 before i am in remission i am very tired latly i want this to be over cancer stinks please write and tell me how your doing Happy thankgiving to you and your family