My new plan

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Comments

  • ConnieSW
    ConnieSW Member Posts: 1,678 Member
    #22
    daisy366 said:

    insurance
    Abraxene is "off label" for uterine cancer. We will appeal but nurse said it may take months. In meantime I will start Doxil which should be effective also.

    Why does cancer treatment have to be more difficult with these issues? Seems cruel to me.
    I'm sure this has logic for others but not for me right now.

    Tx
    Me neither. When will you start?

    Connie
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #23
    daisy366 said:

    insurance
    Abraxene is "off label" for uterine cancer. We will appeal but nurse said it may take months. In meantime I will start Doxil which should be effective also.

    Why does cancer treatment have to be more difficult with these issues? Seems cruel to me.
    I'm sure this has logic for others but not for me right now.

    Mary Ann sorry the Abraxene was not approved
    I looked up Abraxene and it looks so similar to Taxol. I wonder why you don't go back on Taxol since it has been so long since you had the Taxol?

    I hope you do okay with the Doxil. I am sure it will be effective for you. Will you start it soon. As always you remain in my prayers. In peace and caring.
  • Pat51
    Pat51 Member Posts: 130
    #24
    Mary Ann
    I am sorry to hear your disappointing news. You are right, you should not have to fight the insurance company too! It is bad enough to have cancer and have to fight this disease without fighting the insurance company to approve treatments!! It should be the job of the insurance company to help and support you, not make things even harder!!!

    I will be praying for your complete response to the chemo.

    You are in my prayers,

    Pat
  • ConnieSW
    ConnieSW Member Posts: 1,678 Member
    #25
    Pat51 said:

    Mary Ann
    I am sorry to hear your disappointing news. You are right, you should not have to fight the insurance company too! It is bad enough to have cancer and have to fight this disease without fighting the insurance company to approve treatments!! It should be the job of the insurance company to help and support you, not make things even harder!!!

    I will be praying for your complete response to the chemo.

    You are in my prayers,

    Pat

    Mary Ann, I know you are
    Mary Ann, I know you are using all your energy to fight Chester. Not a day goes by that I don't think about you.
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #26
    ConnieSW said:

    Mary Ann, I know you are
    Mary Ann, I know you are using all your energy to fight Chester. Not a day goes by that I don't think about you.

    Thanks Connie, Ro, Pat and all for support and concern
    The plan is to start Doxil on Thursday. I have to start "cooling" my hands and feet on Wed every 4 hours in preparation for chemo. Doxil really ravages the skin apparently and it has me a bit freaked out. I tolerated carboplatin and taxol well so hopefully this will go well too.

    We've had company so I have been busy with that up till now. Now it's back to me and trying to calm myself down.

    Today I resorted to calling medicare again about denial of abraxene. I also called the manufacturer and they said they would appeal for me. I could also apply for patient assistance for free meds but I know we would not qualify. We have discussed paying for this ourselves but I costs $1000 per vial and I may need 6 for each round.

    I decided to let the doctor decide tomorrow - which drug to get. I suspect it will be doxil since we can start this immediately.

    I ask for everyone's prayers at this time. Thanks, Mary Ann
  • marieinlv
    marieinlv Member Posts: 47
    #27
    daisy366 said:

    Thanks Connie, Ro, Pat and all for support and concern
    The plan is to start Doxil on Thursday. I have to start "cooling" my hands and feet on Wed every 4 hours in preparation for chemo. Doxil really ravages the skin apparently and it has me a bit freaked out. I tolerated carboplatin and taxol well so hopefully this will go well too.

    We've had company so I have been busy with that up till now. Now it's back to me and trying to calm myself down.

    Today I resorted to calling medicare again about denial of abraxene. I also called the manufacturer and they said they would appeal for me. I could also apply for patient assistance for free meds but I know we would not qualify. We have discussed paying for this ourselves but I costs $1000 per vial and I may need 6 for each round.

    I decided to let the doctor decide tomorrow - which drug to get. I suspect it will be doxil since we can start this immediately.

    I ask for everyone's prayers at this time. Thanks, Mary Ann

    Mary Ann, I'll Pray for God
    Mary Ann, I'll Pray for God to show the path for all involved to be clear, and fast. So Sorry for the waiting game, that is the worst of it. We're all thinking of you, and know you'll be strong physically and mentally. Hugs to ya, Marie
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #28
    daisy366 said:

    Thanks Connie, Ro, Pat and all for support and concern
    The plan is to start Doxil on Thursday. I have to start "cooling" my hands and feet on Wed every 4 hours in preparation for chemo. Doxil really ravages the skin apparently and it has me a bit freaked out. I tolerated carboplatin and taxol well so hopefully this will go well too.

    We've had company so I have been busy with that up till now. Now it's back to me and trying to calm myself down.

    Today I resorted to calling medicare again about denial of abraxene. I also called the manufacturer and they said they would appeal for me. I could also apply for patient assistance for free meds but I know we would not qualify. We have discussed paying for this ourselves but I costs $1000 per vial and I may need 6 for each round.

    I decided to let the doctor decide tomorrow - which drug to get. I suspect it will be doxil since we can start this immediately.

    I ask for everyone's prayers at this time. Thanks, Mary Ann

    Mary Ann good luck on Thursday
    Hope all goes well for you I can understand your anxiety about the doxil. Others have talked about their hand and feet problems. I hope you can avoid any problems. Extra prayers coming your way. Sending an extra big cyber hug, too. In peace and caring.
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #29
    Ro10 said:

    Mary Ann good luck on Thursday
    Hope all goes well for you I can understand your anxiety about the doxil. Others have talked about their hand and feet problems. I hope you can avoid any problems. Extra prayers coming your way. Sending an extra big cyber hug, too. In peace and caring.

    so far so good
    very anxious and tearful about this. started cooling of hands/feet protocol yesterday. Nurse explained that doxil settles in fat cells and that hands and feet are very vascular and we use them so much that doxil will collect there unless blood vessels are constricted. Hence the regime of cooling for days before and after treatment.

    They knocked me out with ativan and before I knew it I was done. I brought my ice bags to cool everything there too!! They probably thought I was nuts. But I will religiously do this. Everyone very patient and sweet with me today.

    Now home to rest and drink cool water, ice chips and cool those hands and feet.

    Thanks for all the prayers. Love you all. Mary Ann
  • ConnieSW
    ConnieSW Member Posts: 1,678 Member
    #30
    daisy366 said:

    so far so good
    very anxious and tearful about this. started cooling of hands/feet protocol yesterday. Nurse explained that doxil settles in fat cells and that hands and feet are very vascular and we use them so much that doxil will collect there unless blood vessels are constricted. Hence the regime of cooling for days before and after treatment.

    They knocked me out with ativan and before I knew it I was done. I brought my ice bags to cool everything there too!! They probably thought I was nuts. But I will religiously do this. Everyone very patient and sweet with me today.

    Now home to rest and drink cool water, ice chips and cool those hands and feet.

    Thanks for all the prayers. Love you all. Mary Ann

    I hope Chester is so
    I hope Chester is so uncomfortable he will flee and never come back. He should know he's met his match in you.

    Connie
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #31
    daisy366 said:

    so far so good
    very anxious and tearful about this. started cooling of hands/feet protocol yesterday. Nurse explained that doxil settles in fat cells and that hands and feet are very vascular and we use them so much that doxil will collect there unless blood vessels are constricted. Hence the regime of cooling for days before and after treatment.

    They knocked me out with ativan and before I knew it I was done. I brought my ice bags to cool everything there too!! They probably thought I was nuts. But I will religiously do this. Everyone very patient and sweet with me today.

    Now home to rest and drink cool water, ice chips and cool those hands and feet.

    Thanks for all the prayers. Love you all. Mary Ann

    Glad to hear that today went well
    First one down! Glad it went well for you. I hope those ice bags help. I remember Linda talked about how typing even hurt her fingers. Take care of yourself and rest as needed. Keep those fluids going. In peace and caring.

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