found 3 spots in this mornings pet scan

13

Comments

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    now we know how odd i really am
    personally i prefer the term rare.

    i think marie mentioned this, i have started digging and researching.

    see the pubmed below.

    http://www.wjso.com/content/4/1/42/ the discussion here is really good.
    http://www.ncbi.nlm.nih.gov/pubmed/21258837

    Now why the spleen ? what role the supplements for or against ?
    Now my lymphocytes have always been low. they are stored in the spleen.
    I love to play doctor, I am keen to see what the onc's have to say.


    i found this info on msm's blog, my first impression is now i have a few targets to go in gentley at first and save the big guns when and if needed. this is just my feelings even before i have done the rounds of onc's here and the surgeons. of course surgery also sounds very good if its an option.

    http://www.coloncancerandyouth.com.au/murray-mcnab-healing-foundation
    just some hyperthermia costs and treatment options

    Isolated splenic metastasis from colorectal cancer.
    Abi Saad GS, Hussein M, El-Saghir NS, Termos S, Sharara AI, Shamseddine A.
    Source
    Department of Surgery, American University of Beirut Medical Center, Riad el Solh, Beirut, Lebanon. ga17@aub.edu.lb
    Abstract
    Splenic metastases are unusual, arising in less than 1% of all metastases. Isolated solitary splenic metastasis from colorectal carcinoma is considered exceptional. This rarity has been explained by several hypotheses relating to the anatomical, histological, and immunological features of the spleen. We review the reported cases of isolated solitary splenic metastasis from colorectal carcinoma and discuss the diagnostic and therapeutic options for this entity. We searched the English-language medical literature, using the Medline and Pubmed databases from January 1966 through July 2010, for articles reporting isolated splenic metastasis from colorectal carcinoma. Only 26 cases have been reported; four cases had synchronous splenic metastasis. Fifteen patients had regional lymph node involvement on diagnosis of primary carcinoma. The primary tumor was located in the left colon or in the rectum in 18 cases. Carcinoembryonic antigen (CEA) level was elevated in 73% of cases. All patients underwent curative splenectomy; only one patient had laparoscopic resection of the spleen. Mean reported survival interval was 19.5 months; only three patients were deceased at last follow-up. Solitary splenic metastasis from colorectal carcinoma is very rare; clinicians are advised to pay close attention when routinely evaluating patients with serial CEA levels and abdominal scans. Splenectomy seems to be the preferred treatment modality with improvement of long-term survival. However, definitive conclusions cannot be drawn from the small number of case reports available.
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member

    now we know how odd i really am
    personally i prefer the term rare.

    i think marie mentioned this, i have started digging and researching.

    see the pubmed below.

    http://www.wjso.com/content/4/1/42/ the discussion here is really good.
    http://www.ncbi.nlm.nih.gov/pubmed/21258837

    Now why the spleen ? what role the supplements for or against ?
    Now my lymphocytes have always been low. they are stored in the spleen.
    I love to play doctor, I am keen to see what the onc's have to say.


    i found this info on msm's blog, my first impression is now i have a few targets to go in gentley at first and save the big guns when and if needed. this is just my feelings even before i have done the rounds of onc's here and the surgeons. of course surgery also sounds very good if its an option.

    http://www.coloncancerandyouth.com.au/murray-mcnab-healing-foundation
    just some hyperthermia costs and treatment options

    Isolated splenic metastasis from colorectal cancer.
    Abi Saad GS, Hussein M, El-Saghir NS, Termos S, Sharara AI, Shamseddine A.
    Source
    Department of Surgery, American University of Beirut Medical Center, Riad el Solh, Beirut, Lebanon. ga17@aub.edu.lb
    Abstract
    Splenic metastases are unusual, arising in less than 1% of all metastases. Isolated solitary splenic metastasis from colorectal carcinoma is considered exceptional. This rarity has been explained by several hypotheses relating to the anatomical, histological, and immunological features of the spleen. We review the reported cases of isolated solitary splenic metastasis from colorectal carcinoma and discuss the diagnostic and therapeutic options for this entity. We searched the English-language medical literature, using the Medline and Pubmed databases from January 1966 through July 2010, for articles reporting isolated splenic metastasis from colorectal carcinoma. Only 26 cases have been reported; four cases had synchronous splenic metastasis. Fifteen patients had regional lymph node involvement on diagnosis of primary carcinoma. The primary tumor was located in the left colon or in the rectum in 18 cases. Carcinoembryonic antigen (CEA) level was elevated in 73% of cases. All patients underwent curative splenectomy; only one patient had laparoscopic resection of the spleen. Mean reported survival interval was 19.5 months; only three patients were deceased at last follow-up. Solitary splenic metastasis from colorectal carcinoma is very rare; clinicians are advised to pay close attention when routinely evaluating patients with serial CEA levels and abdominal scans. Splenectomy seems to be the preferred treatment modality with improvement of long-term survival. However, definitive conclusions cannot be drawn from the small number of case reports available.

    I have it in my spleen,
    I have it in my spleen, every weirder is that my colon tumor was on the right side.....I have no clue why my surgeon didn't remove my spleen when he was in there doing colon resection.....folfiri calcified it, but on last scan it's active again.
  • Psalm37bl
    Psalm37bl Member Posts: 25
    Dear Pete,
    Was saddened to

    Dear Pete,
    Was saddened to hear about your pet scan! I will be praying for good news from your onc and a good plan for moving forward. You were one of the first to welcome me and give me possible answers. I really appreciated you reaching out! One of my favorite scripture verses that gives me comfort and peace is Psalm 34:18 "The Lord is close to the broken hearted and saves those who are crushed in spirit" I pray He gives you a peace that passes all understanding as you wait!
    Beth
  • SharonVegas
    SharonVegas Member Posts: 189
    Pete,
    I read your post on

    Pete,
    I read your post on Friday and didn't know what to say. I still don't but I wanted you to know that I am thinking about you. You are such an upbeat person and you touch so many lives on this board - off this board too, I'm sure of that. Keep smiling and researching. And most of all, keep us posted......I'm sure you will.
    Big Hug to you!
    SharonVegas
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    things are happening fast
    thats my style sometimes....

    so i have i think my financial problems fixed, got access to retirement savings, goto have some advantages with the good old terminal prognosis. now thats just what the doctors say, but its helped remove alot of pressure.

    I have uploaded my pet cd, my surgical patholgy and emailed them to some hospitals internationally.

    I have offered my brotherinlaw the management of our business and the trustee of the kids trust. yes setting all this up now, well inadvance, so no pressure down the track.

    i have off loaded most of the business activities to subcontractors as well as management.

    I am seeing potential house keeper to help with the kids while wife and I are off seeing surgoens and oncologists. my wife has been out of the doctor loop mainly becuase she was running our business, now thats been resolved she can at least hear first hand and ask any and all questions to the doctors on the spot.

    tomorrow will be another great day regardless.

    went out tonight to a tv show comedy, i was in the front row. i had a great laugh. Then my brotherinlaw and i went out to a great chinese seafood restaurant and i had vegetables and sea cumcumber. it was fantastic. anticancer to the end, whenever that is. hopefully along long long way away!

    I learnt that with home lending, ie getting more funds, its best to do it before your progression is viewed as terminal. getting a financial plan in place well in advance of any recurrence is a good strategy.

    thanks for caring everyone. I am privileged to count you as friends.

    over the coming days i will be drawing on your wealth of experience of cyber knife, dendritc cell vaccines. etc etc.

    the pet scan report is on the blog, if you want to read it, its pretty yuk though.

    Oh and today i started the navy protocol, thanks tony! still here!!

    hugs,
    Pete
  • annalexandria
    annalexandria Member Posts: 2,571 Member

    things are happening fast
    thats my style sometimes....

    so i have i think my financial problems fixed, got access to retirement savings, goto have some advantages with the good old terminal prognosis. now thats just what the doctors say, but its helped remove alot of pressure.

    I have uploaded my pet cd, my surgical patholgy and emailed them to some hospitals internationally.

    I have offered my brotherinlaw the management of our business and the trustee of the kids trust. yes setting all this up now, well inadvance, so no pressure down the track.

    i have off loaded most of the business activities to subcontractors as well as management.

    I am seeing potential house keeper to help with the kids while wife and I are off seeing surgoens and oncologists. my wife has been out of the doctor loop mainly becuase she was running our business, now thats been resolved she can at least hear first hand and ask any and all questions to the doctors on the spot.

    tomorrow will be another great day regardless.

    went out tonight to a tv show comedy, i was in the front row. i had a great laugh. Then my brotherinlaw and i went out to a great chinese seafood restaurant and i had vegetables and sea cumcumber. it was fantastic. anticancer to the end, whenever that is. hopefully along long long way away!

    I learnt that with home lending, ie getting more funds, its best to do it before your progression is viewed as terminal. getting a financial plan in place well in advance of any recurrence is a good strategy.

    thanks for caring everyone. I am privileged to count you as friends.

    over the coming days i will be drawing on your wealth of experience of cyber knife, dendritc cell vaccines. etc etc.

    the pet scan report is on the blog, if you want to read it, its pretty yuk though.

    Oh and today i started the navy protocol, thanks tony! still here!!

    hugs,
    Pete

    Ok, maybe I'm weird...
    but I read your PET results, and honestly, once you get over the extreme disappointment that anything at all is there, it's not that bad! Whack out that liver bit, the entire freaking spleen can go if it has to, and as for the lung thingie...maybe that's not even cancer? I don't think I've ever seen anyone with a cancerous bit that had an SUV of 1.1 And even if it is, whack that out too, and you're good to go. No lymph nodes lit up, which is awesome. Maybe that's where your alternatives really did make a difference. A few cancer cells got out and got a foothold, but your lymph system is still going strong. You're going to kick cancer's butt, Pete. I'm feeling confident about this. Ann Alexandria
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member

    Ok, maybe I'm weird...
    but I read your PET results, and honestly, once you get over the extreme disappointment that anything at all is there, it's not that bad! Whack out that liver bit, the entire freaking spleen can go if it has to, and as for the lung thingie...maybe that's not even cancer? I don't think I've ever seen anyone with a cancerous bit that had an SUV of 1.1 And even if it is, whack that out too, and you're good to go. No lymph nodes lit up, which is awesome. Maybe that's where your alternatives really did make a difference. A few cancer cells got out and got a foothold, but your lymph system is still going strong. You're going to kick cancer's butt, Pete. I'm feeling confident about this. Ann Alexandria

    thanks ann alexandria, i know i am a drama queen!
    dear ann Alexandria,

    i appreciate the positive perspective, i was measuring up the coffin today. what a fool i am, as you say, so much good going on for me, i am ungrateful for what i have. I will contemplate acceptance tonight in my new far infared sauna.

    its ok to be a little different. it makes the board an exciting place to visit.

    its just i hoped the carrots would beat the crc! alas. but I got red carrots now and a few other tricks up my sleave!

    anyway thanks for reading pet. lots to ponder in my little case study.

    lets assume my supplement/nutrient rich diet filled my blood with anti cancer stuff that protected liver and organs. so now the crc cells left over from the op 2 years ago have grown, you know the doubling time algorithm.

    you can download the whole cd and check out the spots.

    your analysis is what i thought from reading the report.

    but the doctors explanation was chilling.

    i just saw onc and surgeon today.

    it seems the spread has been contained to the periteonum.

    the message is its contained in the peritoneum. doctor morris is a top liver guy who does the mitomycin chemo bath while they ripe out your peritanum. they may kill you in the process, serious op about 10 hours. in my mind 70 days and counting to the biggest cut of them all. I am already committed to grabbing this curative option, if my last ditch alternative binge cannot get the markers to go down then I will go the hardcore surgery. If 5 hours a day qigong and my alt csan cure me, then i will skip the surgery.

    the pre op pet in say 3 months will support the movement of cea.

    from the surgical team it maybe curative and the lung thingy well lets cyberknife.

    looks like going to india to get cyberknife, not available in australia, in india may also get dedredic cell vaccine and hyperthermia treatment. considering this for fun, now i have some tumours they can make a vaccine out of. its about $15,000 all up so its not huge money. And i have never been to india. slumdog millionaire is the kids favourite movie.

    actually hammering all the alts a bit harder, yes its possible.

    contemplating the avastin/5fu free chemo offer.

    it could fit in to the 8 week preop trial to shutdown any growth.

    I got to get an appointment to see doctor morris, get his opinion about my pet.

    lets just have fun.

    hugs,
    Pete

    ps looks like the gcmaf nagalase result is not an indicator for me, i knew about this possibility but i thought i would include it here.

    pps http://www.ncbi.nlm.nih.gov/pubmed/20232161 this says it all, these are the questions for the hipec surgeon.
    http://www.ncbi.nlm.nih.gov/pubmed/18726900 some interesting stats

    ppps http://jco.ascopubs.org/content/30/18/2287.2.full this is chilling but i need to know. yuk!
  • steved
    steved Member Posts: 834 Member

    thanks ann alexandria, i know i am a drama queen!
    dear ann Alexandria,

    i appreciate the positive perspective, i was measuring up the coffin today. what a fool i am, as you say, so much good going on for me, i am ungrateful for what i have. I will contemplate acceptance tonight in my new far infared sauna.

    its ok to be a little different. it makes the board an exciting place to visit.

    its just i hoped the carrots would beat the crc! alas. but I got red carrots now and a few other tricks up my sleave!

    anyway thanks for reading pet. lots to ponder in my little case study.

    lets assume my supplement/nutrient rich diet filled my blood with anti cancer stuff that protected liver and organs. so now the crc cells left over from the op 2 years ago have grown, you know the doubling time algorithm.

    you can download the whole cd and check out the spots.

    your analysis is what i thought from reading the report.

    but the doctors explanation was chilling.

    i just saw onc and surgeon today.

    it seems the spread has been contained to the periteonum.

    the message is its contained in the peritoneum. doctor morris is a top liver guy who does the mitomycin chemo bath while they ripe out your peritanum. they may kill you in the process, serious op about 10 hours. in my mind 70 days and counting to the biggest cut of them all. I am already committed to grabbing this curative option, if my last ditch alternative binge cannot get the markers to go down then I will go the hardcore surgery. If 5 hours a day qigong and my alt csan cure me, then i will skip the surgery.

    the pre op pet in say 3 months will support the movement of cea.

    from the surgical team it maybe curative and the lung thingy well lets cyberknife.

    looks like going to india to get cyberknife, not available in australia, in india may also get dedredic cell vaccine and hyperthermia treatment. considering this for fun, now i have some tumours they can make a vaccine out of. its about $15,000 all up so its not huge money. And i have never been to india. slumdog millionaire is the kids favourite movie.

    actually hammering all the alts a bit harder, yes its possible.

    contemplating the avastin/5fu free chemo offer.

    it could fit in to the 8 week preop trial to shutdown any growth.

    I got to get an appointment to see doctor morris, get his opinion about my pet.

    lets just have fun.

    hugs,
    Pete

    ps looks like the gcmaf nagalase result is not an indicator for me, i knew about this possibility but i thought i would include it here.

    pps http://www.ncbi.nlm.nih.gov/pubmed/20232161 this says it all, these are the questions for the hipec surgeon.
    http://www.ncbi.nlm.nih.gov/pubmed/18726900 some interesting stats

    ppps http://jco.ascopubs.org/content/30/18/2287.2.full this is chilling but i need to know. yuk!

    Keeping your head together
    Pete-
    I have kept up with the porgress and am pleased you have seen your team today for their assessment rather than simply relying on your own interpretation of the results. I was concerned to read of you making radical changes to your life around your work and finances so quickly and before any clear plan is made. I know this is your style and approach to this situation and I have a part of me that works like that too. It is a part I need to control and have learnt to listen to others when they tell me to STOP which is something I would gently advise you to consider at this moment too.

    These growths have been there for a while and the decisions you make about how to manage them will be critical. There is a part of you that is very rational and likes to gain a wide range of good opinions and consider all your options. However, there is also another part of you that jumps into decisions quickly and immediately on impulse- it is this part you need to control at this moment. This is the time to allow the more rational PEte to take over anc calmly assess your options before making decisions. That includes about treatments, your family, your lifestyle and your finances. There is no need for immediate decisions and you have time to gather information and knowledge as well as contemplate and discuss your options with people you trust. These are some of the most important decisions you will ever make.

    Stop and take the time in making them. Writing ideas and options here is often a great way to order your thoughts and gain others opinions- perhaps a good thing for you to do over the next period.

    My thoughts are with you Pete but more than anything I hope you find the strength to keep your head together and use the calmer more rational parts of you to slowly explore the way forward for you and your family.

    steve
  • marqimark
    marqimark Member Posts: 242 Member
    Sorry for the poor results
    Good luck in your battle.

    Hope you continue to be positive as always.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    steved said:

    Keeping your head together
    Pete-
    I have kept up with the porgress and am pleased you have seen your team today for their assessment rather than simply relying on your own interpretation of the results. I was concerned to read of you making radical changes to your life around your work and finances so quickly and before any clear plan is made. I know this is your style and approach to this situation and I have a part of me that works like that too. It is a part I need to control and have learnt to listen to others when they tell me to STOP which is something I would gently advise you to consider at this moment too.

    These growths have been there for a while and the decisions you make about how to manage them will be critical. There is a part of you that is very rational and likes to gain a wide range of good opinions and consider all your options. However, there is also another part of you that jumps into decisions quickly and immediately on impulse- it is this part you need to control at this moment. This is the time to allow the more rational PEte to take over anc calmly assess your options before making decisions. That includes about treatments, your family, your lifestyle and your finances. There is no need for immediate decisions and you have time to gather information and knowledge as well as contemplate and discuss your options with people you trust. These are some of the most important decisions you will ever make.

    Stop and take the time in making them. Writing ideas and options here is often a great way to order your thoughts and gain others opinions- perhaps a good thing for you to do over the next period.

    My thoughts are with you Pete but more than anything I hope you find the strength to keep your head together and use the calmer more rational parts of you to slowly explore the way forward for you and your family.

    steve

    thankyou steve, yes i agree
    I like your advise, somethings we move quick on, others we move slow on. The tumour doubling rate is a little scary though. i would hate to see a months delay make the surgical option non viable.

    but getting written opinions and quotes takes time, geting medical visa takes time, updating wills and completely handing over the business takes time. so i will take my time and meditate in my sauna.

    so still trying the newest antiangiogenic mix see the navy protocol, i am still here.

    got my tallberg powders today, not sure how to take them, waiting on instructions.

    my head is together, the pressure i am under is immense, but its not something i real discuss here much. my wife has ocd, I have made updated arrangements for the families welfare in the event of my passing. the planned op is very serious. I have decided to hit the operating table with all my affairs inorder. in fact i am considering everyday now as preparation for this surgery which is vast.

    hugs,
    Pete

    ps waiting still gives time for a few existing and new alternates to come to the rescue, but i am not holding my breathe.
  • herdizziness
    herdizziness Member Posts: 3,624 Member

    thanks ann alexandria, i know i am a drama queen!
    dear ann Alexandria,

    i appreciate the positive perspective, i was measuring up the coffin today. what a fool i am, as you say, so much good going on for me, i am ungrateful for what i have. I will contemplate acceptance tonight in my new far infared sauna.

    its ok to be a little different. it makes the board an exciting place to visit.

    its just i hoped the carrots would beat the crc! alas. but I got red carrots now and a few other tricks up my sleave!

    anyway thanks for reading pet. lots to ponder in my little case study.

    lets assume my supplement/nutrient rich diet filled my blood with anti cancer stuff that protected liver and organs. so now the crc cells left over from the op 2 years ago have grown, you know the doubling time algorithm.

    you can download the whole cd and check out the spots.

    your analysis is what i thought from reading the report.

    but the doctors explanation was chilling.

    i just saw onc and surgeon today.

    it seems the spread has been contained to the periteonum.

    the message is its contained in the peritoneum. doctor morris is a top liver guy who does the mitomycin chemo bath while they ripe out your peritanum. they may kill you in the process, serious op about 10 hours. in my mind 70 days and counting to the biggest cut of them all. I am already committed to grabbing this curative option, if my last ditch alternative binge cannot get the markers to go down then I will go the hardcore surgery. If 5 hours a day qigong and my alt csan cure me, then i will skip the surgery.

    the pre op pet in say 3 months will support the movement of cea.

    from the surgical team it maybe curative and the lung thingy well lets cyberknife.

    looks like going to india to get cyberknife, not available in australia, in india may also get dedredic cell vaccine and hyperthermia treatment. considering this for fun, now i have some tumours they can make a vaccine out of. its about $15,000 all up so its not huge money. And i have never been to india. slumdog millionaire is the kids favourite movie.

    actually hammering all the alts a bit harder, yes its possible.

    contemplating the avastin/5fu free chemo offer.

    it could fit in to the 8 week preop trial to shutdown any growth.

    I got to get an appointment to see doctor morris, get his opinion about my pet.

    lets just have fun.

    hugs,
    Pete

    ps looks like the gcmaf nagalase result is not an indicator for me, i knew about this possibility but i thought i would include it here.

    pps http://www.ncbi.nlm.nih.gov/pubmed/20232161 this says it all, these are the questions for the hipec surgeon.
    http://www.ncbi.nlm.nih.gov/pubmed/18726900 some interesting stats

    ppps http://jco.ascopubs.org/content/30/18/2287.2.full this is chilling but i need to know. yuk!

    I am amazed
    At our differences, I find I have tumors that are "large" as my onc kept putting it, yet I remain calm. I know I'll do the chemo and have the surgery. I expected this because I've seen it over and over here on our site. I didn't hit panic mode, I'm not going out of my mind and worrying and I don't even do tai chi (although I'm considering it again, if I find I have the patience and have tried it in the past) to calm my mind, because my mind remains calm. It's totally different then the first time I heard the words "you have cancer, I'm sorry"... this time no shattering earthquake, no "why me's" coming out of my mouth, no questioning the Gods, not one tear or tearing out of a hair on my head. Just acceptance that crap happens and I'll deal with it the best I can.
    I hope you can get to this non-desperation point at some time Pete, it's a calmer more serene world, I'm going on life as usual, doing the chemo and going to school at the same time, keeping schedules and mind on ordinary, because I guess it isn't a shock to find cancer invading my world again.
    Pete, take a minute and smell a rose, or a daisy or any kind of flower and try and relax a moment or two, don't let the stress get to you, it isn't worth it.
    Hoping you find a bit of peace(mine hasn't cost me a dime),
    Winter Marie
  • jen2012
    jen2012 Member Posts: 1,607 Member
    I can understand not being
    I can understand not being calm. My husband was diagnosed a month ago and I feel like a crazy person...calm one second and complete breakdown the next. The first day he was told stage 4 he just kept saying how scared he was for us ... me and the kids. I only work Pt and no benefits...we have a baby and two older kids....we are terrified but try to keep the hope alive. You have done and tried so much..its got to be frustrating and disappointing. Hang in there...you are in my prayers.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    jen2012 said:

    I can understand not being
    I can understand not being calm. My husband was diagnosed a month ago and I feel like a crazy person...calm one second and complete breakdown the next. The first day he was told stage 4 he just kept saying how scared he was for us ... me and the kids. I only work Pt and no benefits...we have a baby and two older kids....we are terrified but try to keep the hope alive. You have done and tried so much..its got to be frustrating and disappointing. Hang in there...you are in my prayers.

    thanks jen
    Instead of progression I say challenge, lots of good is coming from the confronting pet result.

    Be cool, look after yourself, kids and hubby.

    Miracles happen everyday, I'd like to believe.

    We are due a few here on csn 128, yes I am selfish.

    Hugs,
    Pete
  • thingy45
    thingy45 Member Posts: 632 Member

    thanks jen
    Instead of progression I say challenge, lots of good is coming from the confronting pet result.

    Be cool, look after yourself, kids and hubby.

    Miracles happen everyday, I'd like to believe.

    We are due a few here on csn 128, yes I am selfish.

    Hugs,
    Pete

    OK Pete, it seems that you are ready. Right fully so you have taken care of the future of your loved ones.
    Now it is time to look at YOUR future. Option are to be weight against other options.
    And I know eventually you will come up with the right way to proceed.
    So far you have done whatever possibly was available to you. I have followed you posts and read and re-read every one of them.
    One thing I can only add to the mixture is the power of positive thinking. Do not underestimate your brain power.
    Possitive thinking is enormous.
    Hugs as always,
    Marjan
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    thingy45 said:

    OK Pete, it seems that you are ready. Right fully so you have taken care of the future of your loved ones.
    Now it is time to look at YOUR future. Option are to be weight against other options.
    And I know eventually you will come up with the right way to proceed.
    So far you have done whatever possibly was available to you. I have followed you posts and read and re-read every one of them.
    One thing I can only add to the mixture is the power of positive thinking. Do not underestimate your brain power.
    Possitive thinking is enormous.
    Hugs as always,
    Marjan

    thanks marjan
    dear marjan,

    our dear kerry here used to say attitude, attitude, attitude.

    I am hanging onto to my positive attitude with both hands.

    thankyou for reminding me and the support.

    hugs,
    pete
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member

    thanks ann alexandria, i know i am a drama queen!
    dear ann Alexandria,

    i appreciate the positive perspective, i was measuring up the coffin today. what a fool i am, as you say, so much good going on for me, i am ungrateful for what i have. I will contemplate acceptance tonight in my new far infared sauna.

    its ok to be a little different. it makes the board an exciting place to visit.

    its just i hoped the carrots would beat the crc! alas. but I got red carrots now and a few other tricks up my sleave!

    anyway thanks for reading pet. lots to ponder in my little case study.

    lets assume my supplement/nutrient rich diet filled my blood with anti cancer stuff that protected liver and organs. so now the crc cells left over from the op 2 years ago have grown, you know the doubling time algorithm.

    you can download the whole cd and check out the spots.

    your analysis is what i thought from reading the report.

    but the doctors explanation was chilling.

    i just saw onc and surgeon today.

    it seems the spread has been contained to the periteonum.

    the message is its contained in the peritoneum. doctor morris is a top liver guy who does the mitomycin chemo bath while they ripe out your peritanum. they may kill you in the process, serious op about 10 hours. in my mind 70 days and counting to the biggest cut of them all. I am already committed to grabbing this curative option, if my last ditch alternative binge cannot get the markers to go down then I will go the hardcore surgery. If 5 hours a day qigong and my alt csan cure me, then i will skip the surgery.

    the pre op pet in say 3 months will support the movement of cea.

    from the surgical team it maybe curative and the lung thingy well lets cyberknife.

    looks like going to india to get cyberknife, not available in australia, in india may also get dedredic cell vaccine and hyperthermia treatment. considering this for fun, now i have some tumours they can make a vaccine out of. its about $15,000 all up so its not huge money. And i have never been to india. slumdog millionaire is the kids favourite movie.

    actually hammering all the alts a bit harder, yes its possible.

    contemplating the avastin/5fu free chemo offer.

    it could fit in to the 8 week preop trial to shutdown any growth.

    I got to get an appointment to see doctor morris, get his opinion about my pet.

    lets just have fun.

    hugs,
    Pete

    ps looks like the gcmaf nagalase result is not an indicator for me, i knew about this possibility but i thought i would include it here.

    pps http://www.ncbi.nlm.nih.gov/pubmed/20232161 this says it all, these are the questions for the hipec surgeon.
    http://www.ncbi.nlm.nih.gov/pubmed/18726900 some interesting stats

    ppps http://jco.ascopubs.org/content/30/18/2287.2.full this is chilling but i need to know. yuk!

    Did I read that right?? It
    Did I read that right?? It spread to your peritoneal cavity and you're considering HIPEC??? I didn't see that one coming! Well, if you decide to go for it, send me a note and I'll tell you all about it.

    Take care,

    Cyn
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member

    thanks ann alexandria, i know i am a drama queen!
    dear ann Alexandria,

    i appreciate the positive perspective, i was measuring up the coffin today. what a fool i am, as you say, so much good going on for me, i am ungrateful for what i have. I will contemplate acceptance tonight in my new far infared sauna.

    its ok to be a little different. it makes the board an exciting place to visit.

    its just i hoped the carrots would beat the crc! alas. but I got red carrots now and a few other tricks up my sleave!

    anyway thanks for reading pet. lots to ponder in my little case study.

    lets assume my supplement/nutrient rich diet filled my blood with anti cancer stuff that protected liver and organs. so now the crc cells left over from the op 2 years ago have grown, you know the doubling time algorithm.

    you can download the whole cd and check out the spots.

    your analysis is what i thought from reading the report.

    but the doctors explanation was chilling.

    i just saw onc and surgeon today.

    it seems the spread has been contained to the periteonum.

    the message is its contained in the peritoneum. doctor morris is a top liver guy who does the mitomycin chemo bath while they ripe out your peritanum. they may kill you in the process, serious op about 10 hours. in my mind 70 days and counting to the biggest cut of them all. I am already committed to grabbing this curative option, if my last ditch alternative binge cannot get the markers to go down then I will go the hardcore surgery. If 5 hours a day qigong and my alt csan cure me, then i will skip the surgery.

    the pre op pet in say 3 months will support the movement of cea.

    from the surgical team it maybe curative and the lung thingy well lets cyberknife.

    looks like going to india to get cyberknife, not available in australia, in india may also get dedredic cell vaccine and hyperthermia treatment. considering this for fun, now i have some tumours they can make a vaccine out of. its about $15,000 all up so its not huge money. And i have never been to india. slumdog millionaire is the kids favourite movie.

    actually hammering all the alts a bit harder, yes its possible.

    contemplating the avastin/5fu free chemo offer.

    it could fit in to the 8 week preop trial to shutdown any growth.

    I got to get an appointment to see doctor morris, get his opinion about my pet.

    lets just have fun.

    hugs,
    Pete

    ps looks like the gcmaf nagalase result is not an indicator for me, i knew about this possibility but i thought i would include it here.

    pps http://www.ncbi.nlm.nih.gov/pubmed/20232161 this says it all, these are the questions for the hipec surgeon.
    http://www.ncbi.nlm.nih.gov/pubmed/18726900 some interesting stats

    ppps http://jco.ascopubs.org/content/30/18/2287.2.full this is chilling but i need to know. yuk!

    Oops, doubled tapped...

    Oops, doubled tapped...
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member

    Did I read that right?? It
    Did I read that right?? It spread to your peritoneal cavity and you're considering HIPEC??? I didn't see that one coming! Well, if you decide to go for it, send me a note and I'll tell you all about it.

    Take care,

    Cyn

    thanks cyn
    oh cyn,

    the joys of this illness.

    I think its hipec they said for me , i am waiting till i see the surgeon.

    I suspected it was coming, and not in the liver, as my liver has been scanned till the cows come home.

    yes that where the action is, the peritoneal cavity. yuk!

    i will pm, after i have the consult, I am touch and go with regard to be considered for surgery.

    hugs,
    Pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member

    I am amazed
    At our differences, I find I have tumors that are "large" as my onc kept putting it, yet I remain calm. I know I'll do the chemo and have the surgery. I expected this because I've seen it over and over here on our site. I didn't hit panic mode, I'm not going out of my mind and worrying and I don't even do tai chi (although I'm considering it again, if I find I have the patience and have tried it in the past) to calm my mind, because my mind remains calm. It's totally different then the first time I heard the words "you have cancer, I'm sorry"... this time no shattering earthquake, no "why me's" coming out of my mouth, no questioning the Gods, not one tear or tearing out of a hair on my head. Just acceptance that crap happens and I'll deal with it the best I can.
    I hope you can get to this non-desperation point at some time Pete, it's a calmer more serene world, I'm going on life as usual, doing the chemo and going to school at the same time, keeping schedules and mind on ordinary, because I guess it isn't a shock to find cancer invading my world again.
    Pete, take a minute and smell a rose, or a daisy or any kind of flower and try and relax a moment or two, don't let the stress get to you, it isn't worth it.
    Hoping you find a bit of peace(mine hasn't cost me a dime),
    Winter Marie

    thanks winter
    i smelt the flowers, they were really nice.

    then i gave them to the wife.

    hugs,
    Pete
  • herdizziness
    herdizziness Member Posts: 3,624 Member

    thanks winter
    i smelt the flowers, they were really nice.

    then i gave them to the wife.

    hugs,
    Pete

    Pete
    Pete, oh dear Pete, keep smelling them, let them give you a calmness of some sort, so that this crazy often insane world of cancer can keep you in a peaceful spot for a minute or two, and then hopefully linger on in your memory, keeping things on an even keel.
    I hate where your cancer has arisen (I'm know you do too even more so)but I believe with your determination and fortitude you can beat this once again.
    Do your yoga, and whatever else mind wise that can bring a bit of peace to you, I know from experience the heart does a bit of the pitter patter a lot more when you discover it is back...but I have faith that you can beat it again, so take a little step back, reassure yourself and go from there my friend from down under.
    And Pete??? Hugs back,
    Winter Marie