found 3 spots in this mornings pet scan

24

Comments

  • thingy45
    thingy45 Member Posts: 632 Member
    dmj101 said:

    Pete, Good luck whichever
    Pete, Good luck whichever option you select. I am so sorry your results netted 3 spots.
    Sending you peace and light..
    Donna

    SUCKS
    Dear Pete,
    This sucks, I have no other word. however....... you are a handson kind of man and have tried many things we could only dream about.
    Look at Sundanceh story, you will be NED again, just find the best approached and I am sure you will.
    Ready for the fight.... then lets GO!!!
    Hugs my friend, Marjan
  • thxmiker
    thxmiker Member Posts: 1,278 Member
    Keep up the good fight! We
    Keep up the good fight! We are sending you thoughts and prayers from the Mountains in AZ.

    As always the battle against the Big C is a juggle of treatments for one's self. We know that you will make good choices for you.

    Best Always, mike
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    Oh Pete, I was so hoping
    Oh Pete, I was so hoping that your scans would be clear. :-(
    I'm cheering for you to get rid of the little buggers, no matter how you do it. Just go get'em.

    Hugs,
    Cyn
  • lepperl
    lepperl Member Posts: 39
    pet scan
    Darn it! I am sorry for your recent news. Sending prayers your way! I am not trying to give you false hope and I am sure your PET is accurate but I have to ask...Do you exercise in the days just before your PET? There is a lot of research that you can skew the results if you do this. I am hoping all your complimentary treatments will make chemo easier for you to handle. You are going in strong and that will help. I can't figure out how to PS you but here is my email. I don't mind posting it. lorilepp22@gmail.com. If you would like we can share info on our integrative approach. Stay positive! I know that is so hard. Everytime I get a PET scan I am so hoping for a favorable result and it just doesn't seem to happen. Each time it gets a little harder to pick yourself up after being knocked down. Get knocked down 6 times get up 7! You can do it!
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    thanks everyone, as i wipe away a few tears
    dear friends,

    not joking, these are real kind replies. thankyou.

    laying in bed this morning, after a good nights sleep, i realised a few aspects of my journey that i wantted to share.

    1. the benefit of the pet, is i can focus on a target, a few now.
    2. the cancers were always there, so being pissed by the result is foolish. they were in me, i just did not know where. the old rising cea without scans confirmation is well we are just hopeful that its not cancer but the assumption has to be it dam well is.
    3. so no regrets about very hardcore alternatives.
    4. the pattern of spots may be related to malaria infection, will research this one day.
    5. my stage3 needs to have aggressive anti inflamation approaches ie fish oil lyprinol. and measures to minimise body inflamation, like taking anti malarials, avoiding inflamation and infection.
    6. the pattern of appearance is rare, not where main onc was scanning, why ? has my supplement altered this appearance. the liver met in on the surface.
    7. i favour aggressive surgery, as long as they leave my lovelly head, the rest can go.
    but i may try a few more strategies while that is in place.
    8. looking into ukrain, my friends mum is on it, it walls off mets and is approved here for pancreatic
    9. funny how these mets appeared about 6 weeks after i started working my arse off and stopped most of my practices, even my enemas. maybe they were really helping.
    10. i am in a unique position
    11. this is for raquel, waiting until we can see the mets, means we have a target, i can goto get hyperthermia and low dose localised chemo asap, while surgical options are maintained. i hope your chemo works.
    12. my goal will be containment, not killing them just yet. i like ukrains abilioty to wall of these tumours, so its claimed. goto check this out.
    13. the thalidamide antiangiogenic might also be a drug i will start next week.
    14. keeping my hardone health, which i view as my life boat. i am the life boat.
    15. focusing on money had to happen, i think the permanent solution is also needed.

    I will add more to this, but i have to do my gigong

    hugs,
    pete
  • jjaj133
    jjaj133 Member Posts: 867 Member
    Pete, so sorry to read this.
    Pete, so sorry to read this. Will continue to send prayers your way.
    (((Hugs))))
    Judy
  • ron50
    ron50 Member Posts: 1,723 Member

    thanks everyone, as i wipe away a few tears
    dear friends,

    not joking, these are real kind replies. thankyou.

    laying in bed this morning, after a good nights sleep, i realised a few aspects of my journey that i wantted to share.

    1. the benefit of the pet, is i can focus on a target, a few now.
    2. the cancers were always there, so being pissed by the result is foolish. they were in me, i just did not know where. the old rising cea without scans confirmation is well we are just hopeful that its not cancer but the assumption has to be it dam well is.
    3. so no regrets about very hardcore alternatives.
    4. the pattern of spots may be related to malaria infection, will research this one day.
    5. my stage3 needs to have aggressive anti inflamation approaches ie fish oil lyprinol. and measures to minimise body inflamation, like taking anti malarials, avoiding inflamation and infection.
    6. the pattern of appearance is rare, not where main onc was scanning, why ? has my supplement altered this appearance. the liver met in on the surface.
    7. i favour aggressive surgery, as long as they leave my lovelly head, the rest can go.
    but i may try a few more strategies while that is in place.
    8. looking into ukrain, my friends mum is on it, it walls off mets and is approved here for pancreatic
    9. funny how these mets appeared about 6 weeks after i started working my arse off and stopped most of my practices, even my enemas. maybe they were really helping.
    10. i am in a unique position
    11. this is for raquel, waiting until we can see the mets, means we have a target, i can goto get hyperthermia and low dose localised chemo asap, while surgical options are maintained. i hope your chemo works.
    12. my goal will be containment, not killing them just yet. i like ukrains abilioty to wall of these tumours, so its claimed. goto check this out.
    13. the thalidamide antiangiogenic might also be a drug i will start next week.
    14. keeping my hardone health, which i view as my life boat. i am the life boat.
    15. focusing on money had to happen, i think the permanent solution is also needed.

    I will add more to this, but i have to do my gigong

    hugs,
    pete

    G'day Pete
    Not great results so far mate. I'll pass on the sea slugs but if you must eat them at least call them Beach De Mere ,it sounds so much more exotic. I had a chemo enhancement agent called levamisole. It is an anti parasitic cattle drench. Did it kill cancer .. I don't know but I never had worms . there are unknown side effects to everything ,some good ,some bad. At the very least you have tried them whilst you are reasonably healthy. I don't know whether I would be so adventurous if you are fighting to recover from surgeries and whateever treatments that are prescibed. The liver and lungs are the important ones to beat. My best wishes for your ongoing treatment,Ron.
  • pepebcn
    pepebcn Member Posts: 6,331 Member

    dearest walking pepe
    alas, if it looks like poo, if it smells like poo and if it tastes like poo, well i think we know what it is.

    we are poo experts here, thats our claim to fame.

    so with rising cea, so if it lights up the pet, if those spots suck up sugar, the report seemed conclusive , but i will wait and get the offical take on it. never read a pet report before with anything but the word clear before.

    i will reply to everyones kind comments in the morning, goto slurp down another seaslug smoothie. I am praying more today as well, prayed a bit during the pet. have alook at skinny pete on the pet machine.

    at last the game of hide and seek is over. and the next game can continue.

    hugs,
    Pete

    Wise words my friend but keep a place for hope yet!
    Praying for you mate!
  • maglets
    maglets Member Posts: 2,576 Member
    jjaj133 said:

    Pete, so sorry to read this.
    Pete, so sorry to read this. Will continue to send prayers your way.
    (((Hugs))))
    Judy

    cheers from Canada
    ahhhh Pete these are not the results any of us want to see....

    I join everyone with tears and hugs....gosh you have worked so hard....

    but you know Pete....you have learned sooooo much....all of your meditation and working with energy can really really help now.....

    just another step in our long journey my friend...

    sending love and a prayer Pete

    mags
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Sorry you're in the fight again
    Oh, Pete. I'm praying the treatment will make a difference!

    *Hugs*
    Gail
  • have2believe
    have2believe Member Posts: 134
    pulling for you
    I'm so sorry about the recent report. I wish you had better news, but I'm still pulling for you. I hope that your research and the wisdom of doctors and professionals will help guide you in finding the next course of action. Dealing with cancer brings so many ups and downs, and I hope you can only go "up" from here.

    L
  • steved
    steved Member Posts: 834 Member
    Pete
    Sorry to hear of your results as know you have been anxious about it considering you ceas lately. I would encourage you to not make any assumptions as to what it all means until you have talked to your team as pet scans do have false positives. I appreciate you know what it Amy mean but when we have part Of the information our mind always has a tendency to sprint down the worst case scenario path. Will be a long weekend for you so keep yourself busy and don't make any decisions about things till you have all the info.

    I will be hoping to clarity for you next week and my thoughts are certainly with you,
    Steve
  • MrsJP
    MrsJP Member Posts: 157
    Pete....
    one step back...two steps forward..

    "Keep on keeping on!" (2behealed)

    jp
  • lauragb
    lauragb Member Posts: 370 Member
    Pete, I am sorry to read
    Pete, I am sorry to read your results. But know you'll come up with a good plan and keep on going full tilt. Sending love, light and hugs your way.

    Laura
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    what great friends to have when you get into a tough spot!
    or should i say a few tough spots. haha! my tumour needs as much work as my spelling. sorry thats a typo, i meant to say humour. there i go again.

    i have read everyones kind replies, and showed the wife. sometimes she must wonder about my posts and research as you all do. sometimes i even wonder myself.

    learning how to do my qigong and meditate well, i got these skills just when i needed them.

    i prised peace of mind above all else, i have to admit the old realisation that i am mortal has been everpresent this weekend. i think sometimes i loose focus on how fragile our health and life is. but also in that fragility is our strength.

    spent the best night tonight snuggled with wife and kids watching "naria" , life is just too great, to loose sight of that greatness even for a few hours is kind of disrespectful to all our friends at peace who have touched our lives. most recently jennie, and all our other friends here on csn and around me at home.

    the bond i feel between us all is so strong, despite our differences of opinion on carrot verus steak, or chemo versus tea. in the scheme of life our sharing our journey amongst friends that understand and can emphasise is what precious here. i am confident we will always preserve it.

    hugs,
    pete

    ps i got something out of every comment. thanks again.
  • Kenny H.
    Kenny H. Member Posts: 502 Member
    lauragb said:

    Pete, I am sorry to read
    Pete, I am sorry to read your results. But know you'll come up with a good plan and keep on going full tilt. Sending love, light and hugs your way.

    Laura

    Yep sorry to hear this
    Yep sorry to hear this Pete.
    At least they are small and are on it quick.
    Keeping my fingers crossed myself as have not had any chemo since Jul 2nd. Getting full scan tuesday. Having 2nd (right side) lung surgery Wed. From there who knows.My nodules in lungs are small also (4 total from 7mm to 1cm)just hoping no spots show up somewhere else, they wanted to keep me off chemo to help control bleeding in surgery.
    Stay strong as I know your the biggest fighter, hopefully you can get them removed surgically also.
  • k44454445
    k44454445 Member Posts: 494
    Pete
    i have been reading all of your posts & i can tell you have a kick **** attitude. you are always so upbeat & positive. you really help the rest of us to stay positive so i thank you for that! i know you will fight this with all you got & you know we are all with you in the fight! prayers for you every nite.
    lots of hugs
    judy
  • relaxoutdoors08
    relaxoutdoors08 Member Posts: 521 Member
    Prayers and Support
    Pete,
    You were dx about the same time I was so I feel you are a kindred spirit in this journey. Because I too used chemo diet, meditaton, prayer, exercise, Tai Chi as I completed the first line chemo Folfox, I have read all your posts. I am so sorry you have this new development in your journey.

    I have links to an influencial Qigong Instructor in Minneapolis MN and I would encourage you to continue the healing effects in your journey no matter what the future brings.

    Prayers,
    NB
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member

    Prayers and Support
    Pete,
    You were dx about the same time I was so I feel you are a kindred spirit in this journey. Because I too used chemo diet, meditaton, prayer, exercise, Tai Chi as I completed the first line chemo Folfox, I have read all your posts. I am so sorry you have this new development in your journey.

    I have links to an influencial Qigong Instructor in Minneapolis MN and I would encourage you to continue the healing effects in your journey no matter what the future brings.

    Prayers,
    NB

    Awwwe Pete sorry your scans
    Awwwe Pete sorry your scans were not clear.....wait till the results are in and see what onc.s assessment is.
  • westie66
    westie66 Member Posts: 642
    smokeyjoe said:

    Awwwe Pete sorry your scans
    Awwwe Pete sorry your scans were not clear.....wait till the results are in and see what onc.s assessment is.

    Scan Woes
    Hi Pete: I'm on the same road as you and know what you are going through. Remember though that PET scans can be misinterpreted - "bright spots"can be non-cancerous just areas of high cell activity. Thinking of you.
    Cheryl