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Riding that train again

herdizziness
herdizziness Member Posts: 3,624
edited August 2012 in Colorectal Cancer #1
Well, it appears since stopping Avastin due to the heart medications, has allowed the tumors that were being nicely suffocated and in check, to roam free long enough to increase their sizes and be a problem.
The report reads as follows:
Impression: Interval development of suspected recurrent and metastatic disease with a new small, 5 mm pulmonary nodule in the right lower lobe, 4 cm (4.3 x 4 cm to be exact) right hepatic mass(that's in liver) and a 3.3 cm (3.3 x 3 cm to be exact)sigmoid mass seen in the left pelvis.
Darn it.
Winter Marie
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Comments

  • Lovekitties
    Lovekitties Member Posts: 3,364
    Dear Winter
    I am so very sorry for the news.

    You have beaten the odds before, and I pray that you will do so again.

    Hugs,

    Marie who loves kitties
  • Doc_Hawk
    Doc_Hawk Member Posts: 685
    You can beat it!
    Winter, I'm so sorry to hear about the recurrence, but I'm sure that you'll be able to beat those tumors down into submission. I'll be praying for you.
  • steveandnat
    steveandnat Member Posts: 886
    Darn
    This cancer stinks to high heaven. I had to stop Avastin too and noe my Dr has me on this 5f/u for 8 weeks then hope to try zaltrap. We just have to keep fighting somehow. Praying for you always. Jeff
  • thingy45
    thingy45 Member Posts: 632

    Darn
    This cancer stinks to high heaven. I had to stop Avastin too and noe my Dr has me on this 5f/u for 8 weeks then hope to try zaltrap. We just have to keep fighting somehow. Praying for you always. Jeff

    what to say
    So sorry winter that the train made a stop for you and you have to ride it again.
    But you can do it,you are in my prayers.
    hugs, Marjan
  • Semira
    Semira Member Posts: 378
    Go for it Winter...
    ... and kick that crap !!!
  • wolfen
    wolfen Member Posts: 1,324
    Semira said:

    Go for it Winter...
    ... and kick that crap !!!

    Winter
    Just dam#,dam#,dam#. That's all I can think of to say. I know this is so disheartening, as you have been doing so well. Just put those a$$ kickin' boots back on again and stomp the heck out of it.

    Luv,

    Wolfen
  • jjaj133
    jjaj133 Member Posts: 867
    I am so sorry to to read
    I am so sorry to to read this, Winter. We all know how hard this news is to take.
    Many prayers for your healing and some extra ones for renewing that "sh-t kicker attitude".
    Judy
  • mukamom
    mukamom Member Posts: 402
    jjaj133 said:

    I am so sorry to to read
    I am so sorry to to read this, Winter. We all know how hard this news is to take.
    Many prayers for your healing and some extra ones for renewing that "sh-t kicker attitude".
    Judy

    [email protected], Winter
    I am so sorry to hear this. Prayers for strength and successful treatment plan.

    ((Hugs))

    Angela
  • johnnybegood
    johnnybegood Member Posts: 1,117
    mukamom said:

    [email protected], Winter
    I am so sorry to hear this. Prayers for strength and successful treatment plan.

    ((Hugs))

    Angela

    so sorry
    that train ride had to pick you up again.just remember you fought them down before so you cam do this again fight onward...Godbless...johnnybegood
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    so sorry
    You will find way.

    Hugs,
    Pete

    Ps these tumoursare a pain in the butt. Glad your hearts working.
  • LivinginNH
    LivinginNH Member Posts: 1,456
    You've kicked the little

    You've kicked the little buggers to the curb before, and you can do it again girl!
    Go get'em!

    (((Hugs)))

    Cyn
  • smokeyjoe
    smokeyjoe Member Posts: 1,425

    You've kicked the little

    You've kicked the little buggers to the curb before, and you can do it again girl!
    Go get'em!

    (((Hugs)))

    Cyn

    Crap!!! I was hoping when
    Crap!!! I was hoping when I opened this that it was going to be a "back to school" story and not cancer related. I guess you'll be meeting with onc. to come up with a plan of attack. Have you been on Xeloda during this time, if so for how long and what dose??
  • herdizziness
    herdizziness Member Posts: 3,624
    smokeyjoe said:

    Crap!!! I was hoping when
    Crap!!! I was hoping when I opened this that it was going to be a "back to school" story and not cancer related. I guess you'll be meeting with onc. to come up with a plan of attack. Have you been on Xeloda during this time, if so for how long and what dose??

    Xeloda
    No, I was supposed to be on it for 6 months after surgery, but only went 3 months, I couldn't afford it. Darn.
    Winter Marie
  • Sundanceh
    Sundanceh Member Posts: 4,392
    "The Crazy Colon Train"
    :(
  • Kenny H.
    Kenny H. Member Posts: 502
    Sundanceh said:

    "The Crazy Colon Train"
    :(

    Had to stop treatment myself
    Had to stop treatment myself to.
    Due to getting lung resections havent had any Chemo since Jul 2nd (avastin 4 weeks before that)
    Anyway removed all nodes from one lung (jul 18th) doing other lung not till Sept 12th. Plus no more chemo can be given several weeks after that.
    Just wondering with no chemo at all this long where/if its gonna show up next. Maybe I shouldnt opted for lung mets surgery? Dammed if you do kinda thing.

    Hope you dont lose what you gained Marie. Did they say how long you would have to say off avastin?
  • steved
    steved Member Posts: 834
    Winter Marie
    Are all of these three nodules new or just the first one? I guess we all live with the truth that this cancer as a rule will advance and many of us are simply keeping things under control with what ever tools we have or choose. It is a pity that avast in can no longer be one of your tools (or is that still an option as it is ultimately a risk/benefit ratio decision as to whether to use it and it seems the risks of being off it may be worse than those of being on it) but there are other tools to look at. If I remember right ou have done a lot of the other conventionals and xeloda isn't possible (what about I've 5fu) so you may be a candidate for aflibercept or regorefenib.

    I guess the bigger question is-how are you, both physically and mentally? This is never the news we want to hear but you always seem very robust in your posts. How is your current day to day quality and how much is the cancer currently impacting on your life? I do think these are all things we consider when we have think what the next stepp is.

    It's is sad to be back on this train again but it is something familiar to so many of us. It really simply means another time to contemplate what next and some hard decisions. I hope you are keeping your head together and not letting yourself get overwhelmed by hat this might mean before you have had a good chance to talk to your team about next steps.

    My thoughts are with you and look forward to hearing your next plan of attack,

    Steve
  • tanstaafl
    tanstaafl Member Posts: 1,299
    sigh
    Sorry for this news. Please let us know what the plan is.
  • fatbob2010
    fatbob2010 Member Posts: 467
    Bummer
    I am off Avastin at least temporarily after surgery. Even though restarting FOLFOX minus Avastin and stay hopeful that will be enough. I am so sorry that you are experiencing this nightmare but I remain hopeful that a way will be found to beat this. ((Hugs of comfort))
  • tanstaafl
    tanstaafl Member Posts: 1,299
    Kenny H. said:

    Had to stop treatment myself
    Had to stop treatment myself to.
    Due to getting lung resections havent had any Chemo since Jul 2nd (avastin 4 weeks before that)
    Anyway removed all nodes from one lung (jul 18th) doing other lung not till Sept 12th. Plus no more chemo can be given several weeks after that.
    Just wondering with no chemo at all this long where/if its gonna show up next. Maybe I shouldnt opted for lung mets surgery? Dammed if you do kinda thing.

    Hope you dont lose what you gained Marie. Did they say how long you would have to say off avastin?

    doing something during the Avastin break
    The Avastin molecule attacks VEGF molecules. So far my wife has not been forced off her immunochemo by her surgery or dental work. If she were, we would still be doing cimetidine (anti-VEGF) and IV vitamin C (histamine neutralization where histamine levels mediate VEGF generation). Basically as much of the LEF protocols plus IV vitamin C as we can safely get away with.

    In fact when surgery or dental work is going on, her cimetidine intake may double and her IV vitamin C may double or triple to fight infections and rebuild tissue.
  • Maxiecat
    Maxiecat Member Posts: 544
    I am so sorry to hear your
    I am so sorry to hear your news. What is the new game plan for you? I will keep you in my thoughts and prayers.

    Alex
  • maglets
    maglets Member Posts: 2,576
    Maxiecat said:

    I am so sorry to hear your
    I am so sorry to hear your news. What is the new game plan for you? I will keep you in my thoughts and prayers.

    Alex

    bummer indeed
    oh Winter Marie: I am so so sorry the train started up again for you. You are right....no one wants to hear those words but we do.

    How are you feeling there girl????? you will get a plan forward soon ....

    best love to you winter marie and thanks for the comments on the cabin pic

    maggie
  • Brenda Bricco
    Brenda Bricco Member Posts: 579
    Dang it... I hate hearing
    Dang it... I hate hearing that your back on the train.
    Do I remember correctly that you are taking the cimetadine? :(
    I will be thinking of you and saying some prayers.
    GOD bless you.
    Brenda
  • Annabelle41415
    Annabelle41415 Member Posts: 6,704
    Sorry
    So sorry to hear that. Hopefully you can get those back in check or gone altogether.

    Kim
  • Annabelle41415
    Annabelle41415 Member Posts: 6,704
    Sorry
    So sorry to hear that. Hopefully you can get those back in check or gone altogether.

    Kim
  • Trapbear
    Trapbear Member Posts: 108
    Sorry to read this Winter.
    Sorry to read this Winter. Christopher will be starting chemo again after a summer off due to progression. Looks like he will go back on 5FU Avastin maintenance which has worked for him for over two years....Sending you big hugs
    Bill
  • annalexandria
    annalexandria Member Posts: 2,571
    Not the words any of us want to read, Winter Marie...
    I'm so sorry you didn't get better news. I really hope your docs can give you a new plan that will knock the little bastards out once again (sorry for not putting little symbols in place of letters...I'm too damn angry at cancer right now to worry about it). Many hugs, strength, coming your way~Ann Alexandria
  • Varmint5
    Varmint5 Member Posts: 384

    I am so sorry to read this, Winter Marie. Took my breath away. Prayers for you as you kick it down again.

    Sandy
  • herdizziness
    herdizziness Member Posts: 3,624
    steved said:

    Winter Marie
    Are all of these three nodules new or just the first one? I guess we all live with the truth that this cancer as a rule will advance and many of us are simply keeping things under control with what ever tools we have or choose. It is a pity that avast in can no longer be one of your tools (or is that still an option as it is ultimately a risk/benefit ratio decision as to whether to use it and it seems the risks of being off it may be worse than those of being on it) but there are other tools to look at. If I remember right ou have done a lot of the other conventionals and xeloda isn't possible (what about I've 5fu) so you may be a candidate for aflibercept or regorefenib.

    I guess the bigger question is-how are you, both physically and mentally? This is never the news we want to hear but you always seem very robust in your posts. How is your current day to day quality and how much is the cancer currently impacting on your life? I do think these are all things we consider when we have think what the next stepp is.

    It's is sad to be back on this train again but it is something familiar to so many of us. It really simply means another time to contemplate what next and some hard decisions. I hope you are keeping your head together and not letting yourself get overwhelmed by hat this might mean before you have had a good chance to talk to your team about next steps.

    My thoughts are with you and look forward to hearing your next plan of attack,

    Steve

    Steve
    They're all new ones. Physically good, in school full time (16 credit hours only this semester), working part time, still babysitting grandchildren the rest of the time. Cancer doesn't really impact my life except for the time it takes to do all the cancer related things (dr's, scans, blood work, etc). Hoping I'll do good on the chemo again. Don't know if it will be surgery first then chemo, or chemo, then surgery. Waiting to hear from onc, so until then, life as usual.
    Winter Marie
  • PhillieG
    PhillieG Member Posts: 4,866

    Steve
    They're all new ones. Physically good, in school full time (16 credit hours only this semester), working part time, still babysitting grandchildren the rest of the time. Cancer doesn't really impact my life except for the time it takes to do all the cancer related things (dr's, scans, blood work, etc). Hoping I'll do good on the chemo again. Don't know if it will be surgery first then chemo, or chemo, then surgery. Waiting to hear from onc, so until then, life as usual.
    Winter Marie

    Sorry to Hear This
    I know you said you don't have details yet but do you know if they are talking RFA, wedge resections, or a combination?
    They might be things to discuss...
    Hope it goes well.
    -p
  • SharonVegas
    SharonVegas Member Posts: 189
    WinterMarie you have an
    WinterMarie you have an amazing story. I just read your profile. I'm sorry the disease is back. You're a fighter and an inspiration. Isn't it amazing how you can feel fine and live life like normal but the scans read otherwise? Keep up the fight!