2nd cycle

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  • allmost60
    allmost60 Member Posts: 3,178 Member
    Andy187 said:

    Have NO taste what's so ever...
    Well, I just went through my first round of R-CHOP this past Monday . I'm in my last day of the Pred. Thank god. I haven't been able to sleep more than 8 hours till today. Haven't gotten really bad side effects but yesterday everything I ate taste like crap. Brushing and rinsing with biotine helps. Also mints and pop cycles helps a lot.

    Im just wondering, after tomorrow coming down from the Pred. Will I get those pains in my joints and bones? Yesterday was really the only day that I felt tired and not doing anything. Like Max, I'm trying to be tough and strong and keep positive. Will it get wost as cycles passes by? I need 5 more cycles in my treatment.

    Drinking a lot of fluids helps as well. Drinking ensure as well for proteins . Power drinks with electrolytes as well. I'm due for my second cycle on August 20. I am feeling nose drips and some scar tissue in one of my nostrils. Feels like a pimple. Can't barely touch my nose and scratchy throat. Is that normal. Thank you for all your support. I'm so glad I found this site cause I had no clue that so many of us are going through the same thing. Made some new, good friends. God bless you all and I'll keep you all in my prayers. Let's kick butt and be strong.

    Coming down from the Pred...
    Hi Andy,
    I took 60mg of pred the day of chemo and again for the following 4 days. My chemo was always given on a Tuesday , so my last dose of pred was on Saturday morning. By Sunday evening I would start to feel the achey sore joints. I'd be so tired and exhausted from not sleeping the week before that the following week I'd sleep and nap most of the time. My shoulders hurt, knees ached and I remember when I'd sit down on the toilet the bones in my butt hurt so bad that I'd have to live my butt off the seat to pee. My joints still bother me 2 years out from chemo, but I'm still getting Rituxan infusions every other month, so that might be the reason. I didn't get any mouth sores, but certain foods tasted really strange. I didn't like really cold beverages...sounds weird, but cold drinks left me feeling cold "inside" and sometimes caused me to feel chilled....(if that makes sense). Also...I didn't use tooth paste during my 6 rounds of chemo, but instead brushed my teeth, gums and tongue with baking soda. I remember brushing 3 to 4 times a day just to keep that fresh feeling in my mouth. I gargled with warm salt water to help with the scratchy sore throat...(still do because the Rituxan makes my throat sore). My nose dripped all of the time...went through kleenex like crazy, but never had any sores in my nostrils. I bought kleenex with lotion in them...extra soft and easy on the nose. I would boil salt water on the stove and then lean over the steam with a towel over my head to help with my nose/nostrils feeling sensitive. These are just a few tips that helped me...hope they help you. Hang in there friend...the end prize is worth the present discomfort. Sue
    (FNHL-2-3A-6/10)
  • Andy187
    Andy187 Member Posts: 18
    allmost60 said:

    Coming down from the Pred...
    Hi Andy,
    I took 60mg of pred the day of chemo and again for the following 4 days. My chemo was always given on a Tuesday , so my last dose of pred was on Saturday morning. By Sunday evening I would start to feel the achey sore joints. I'd be so tired and exhausted from not sleeping the week before that the following week I'd sleep and nap most of the time. My shoulders hurt, knees ached and I remember when I'd sit down on the toilet the bones in my butt hurt so bad that I'd have to live my butt off the seat to pee. My joints still bother me 2 years out from chemo, but I'm still getting Rituxan infusions every other month, so that might be the reason. I didn't get any mouth sores, but certain foods tasted really strange. I didn't like really cold beverages...sounds weird, but cold drinks left me feeling cold "inside" and sometimes caused me to feel chilled....(if that makes sense). Also...I didn't use tooth paste during my 6 rounds of chemo, but instead brushed my teeth, gums and tongue with baking soda. I remember brushing 3 to 4 times a day just to keep that fresh feeling in my mouth. I gargled with warm salt water to help with the scratchy sore throat...(still do because the Rituxan makes my throat sore). My nose dripped all of the time...went through kleenex like crazy, but never had any sores in my nostrils. I bought kleenex with lotion in them...extra soft and easy on the nose. I would boil salt water on the stove and then lean over the steam with a towel over my head to help with my nose/nostrils feeling sensitive. These are just a few tips that helped me...hope they help you. Hang in there friend...the end prize is worth the present discomfort. Sue
    (FNHL-2-3A-6/10)

    Pred. Over today
    Hi Sue,

    Thank you for the heads up. Wow, I had total knee replacement in Janary and I was due for another surgery in the same knee. My Ortho. And Onco. Spoke and said NOOOOO.. Until treatment is done. My knee has been killing me. Well, I should be feeling something by tomorrow night.

    My nose drips a lot still. Have kind of scratchy throat and dry cough as if I was getting a cold. I got the booster shot for my WBC the day after my first treatment. They told me to take claritin for 5 days and that should help with the back and chest pains. Havent felt any pains yet thank god.

    My inside of my left nostril still bothers me and hurts though. I'm going to try what you said and see what happens. Thanks sue for your imput. I really appreciate it. God bless you and thanks for the tips...;) your an angel!
  • Andy187
    Andy187 Member Posts: 18

    taste

    Andy,

    I did r-abvd, not r-chop. However, Vinblastine in abvd causes the taste issues, and chop has a very similiar drug (works the same way) known as Vincristine. Vincristine is probably your culprit.

    I had odd taste issues, but not until about the 4th treatment or so. My mouth never had the famous "metallic" sensation; it felt like it was full of salt all the time. It felt like someone had poured a cup of table salt in all the time ! Very odd and hard to get used to.

    Rituxan causes many people muscle pain, which feels just like a bad case of the flu. I kept this all the time, so much so that I feared I was getting the actual flu. Loritab is all that would touch it. If you get neulasta shots for WBC, it can body slam some folks as well with orthopedic pain. I had to go with a half dose, mine was so bad. But, I had arthritis from 18 fractures from a wreck years before which left me vulnerable to this.

    Clinically, the biggest difference between abvd and chop is that abvd has no Pred. I was exhausted all the time, and averaged about 17 hours per day asleep. There is never a "hyper" period with abvd.

    Chop is usually a NHL combo, and most of the folks here have done chop, so a lot will chime in regarding chop-specific stuff. We do have some commonalities, like Rituxan, and perhaps others.

    I know that Jimwins is very knowledgable regarding Pred.

    Go to chemocare.com for great, authoratative chemo information. It describes all of the (around) 150) chemo drugs used in the US. No New Age or wacked-out nonesense.

    Bless your struggle. Write often,

    Max

    .

    Thanks Max
    Wlow, your full f information....thank you so much buddy. You and this site has been a blessing. I had the booster shot the day after my first treatment. They told me to take Claritin for the back and chest pains. No pain yet for me...yeeeyyyy...

    Today was my last day on Pred. Let's see what happens tomorrow. Thank you sooooo much Max, your the man and a real inspiration. Hey, got a question, when do you usually start loosing your hair? I want to get a head start and shave it off first.

    My taste buds comes and goes. Still can't really taste spices and stuff...need to add some salt to my food sometimes.

    Thanks for the info Max and god bless you. Keep in touch...
  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,803 Member
    Andy187 said:

    Pred. Over today
    Hi Sue,

    Thank you for the heads up. Wow, I had total knee replacement in Janary and I was due for another surgery in the same knee. My Ortho. And Onco. Spoke and said NOOOOO.. Until treatment is done. My knee has been killing me. Well, I should be feeling something by tomorrow night.

    My nose drips a lot still. Have kind of scratchy throat and dry cough as if I was getting a cold. I got the booster shot for my WBC the day after my first treatment. They told me to take claritin for 5 days and that should help with the back and chest pains. Havent felt any pains yet thank god.

    My inside of my left nostril still bothers me and hurts though. I'm going to try what you said and see what happens. Thanks sue for your imput. I really appreciate it. God bless you and thanks for the tips...;) your an angel!

    Hair Loss

    Andy,

    Abvd pretty consistently causes the hair to drop out about five days after the second cycle. Assuming chop is similiar, assume a few days after the second infusion. It may vary a little, but probably not a lot.

    Note: It will fall out in gobs, handfuls. It is an emotional time for most. It will not be a gradual loss.

    Odd occurence: A friend has a serious cancer that began inside his nostril. I am not sure what it was, but I suspect melenomia or such. He went for surgery at Emory in Atlanta. They super-radiated his nose the day before surgery, and he said the next morning hs beard had fallen out !

    I was speaking with an RN at my center about sider-effects and skin tone, and she told me of a patient whose EYE color changed under chemo (and never changed back).

    Do not let many things surprise you with this stuff. The first chemo drug was mustard gas, during WW II. Mustardgen is still in use today, FDA approved.

    Hang in there our friend,

    max

    .
  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,803 Member
    Andy187 said:

    Thanks Max
    Wlow, your full f information....thank you so much buddy. You and this site has been a blessing. I had the booster shot the day after my first treatment. They told me to take Claritin for the back and chest pains. No pain yet for me...yeeeyyyy...

    Today was my last day on Pred. Let's see what happens tomorrow. Thank you sooooo much Max, your the man and a real inspiration. Hey, got a question, when do you usually start loosing your hair? I want to get a head start and shave it off first.

    My taste buds comes and goes. Still can't really taste spices and stuff...need to add some salt to my food sometimes.

    Thanks for the info Max and god bless you. Keep in touch...

    Yea
    My wife says I am "full" of "something" !