Taste buds...let us track when we all get them

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Comments

  • Sam999
    Sam999 Member Posts: 319 Member
    #22
    olybee said:

    interesting
    that it seems to vary so much. My hubby has been 1 year post rad, had neck dissection and then the usual 37 rads. He has had spells where his taste seems to be coming back really well, and then it goes away just as fast as it came. He can enjoy the first few bites of almost anything now, but then it is flavorless. At least it doesn't taste bad anymore, so that is a plus. I don't know if he'll ever have "normal" taste return, though. I think it has a lot to do with the lack of saliva, but who am I besides just a concerned wife.

    Olybee,
    Does the doc have
    Olybee,

    Does the doc have anything to say on this? It seems at one year, most do have taste returned. I get worried when i hear a case like yours.

    Hope things be normal soon for your DH.

    Sam
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #23
    Sam999 said:

    Olybee,
    Does the doc have
    Olybee,

    Does the doc have anything to say on this? It seems at one year, most do have taste returned. I get worried when i hear a case like yours.

    Hope things be normal soon for your DH.

    Sam

    care givers are great
    Olybee,

    Concerned wife is what brought many of us this far. Don’t discount your efforts, we may not always say it, but the caregivers are the link to surviving this ordeal. Too bad there is no pay, you would all be rich ( I know it would cost a bundle to take care of me).

    Best,

    Matt
  • jwmde
    jwmde Member Posts: 1
    #24
    taste buds
    It has been six years since my 35 radiation treatments that left me with no saliva glands. But all is not bad. I can eat many things even without saliva glands and can taste some.. not much but better than nothing.

    The biggest problem was eating. What i found as a great help that allows me to eat almost anything except meat (steaks). In many cases, I can eat pork or chicken but only with the help of POI (yes hawaiian poi), which coats my mouth and throat and acts as substitute for saliva that coats my throat and allows me to swallow..

    try it, it's amazing

    jerry
  • hwt
    hwt Member Posts: 2,328 Member
    #25
    jwmde said:

    taste buds
    It has been six years since my 35 radiation treatments that left me with no saliva glands. But all is not bad. I can eat many things even without saliva glands and can taste some.. not much but better than nothing.

    The biggest problem was eating. What i found as a great help that allows me to eat almost anything except meat (steaks). In many cases, I can eat pork or chicken but only with the help of POI (yes hawaiian poi), which coats my mouth and throat and acts as substitute for saliva that coats my throat and allows me to swallow..

    try it, it's amazing

    jerry

    Never lost taste
    My surgery involved the jaw but I did have rads and chemo. Water tasted salty from week 1 of Tx but was one of the 1st improvements after Tx. While I did not lose taste, some things burned so I could not eat them but I could still taste what they were.

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