My son with Hodgkins..

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Comments

  • kalalaud
    kalalaud Member Posts: 14

    PET Results
    kalalaud,

    I'm very saddened that your son needs further treatment. The stem cell process is a second line, or "salvage" therapy. Since nearly all of it will be administered as an inpatient, you will at least have nurses and staff to discuss things with directly. And you always have us here at the discussion. If they have not already, the doctors will be testing to see if his own stems can be used, or a relative may need to donate, but usually the patient's own cells are sufficient. I will pray for him daily. Max

    thank you max.... i believe
    thank you max.... i believe they will be using his own stem cell. the stem cells are harvested, frozen stored until he's done with his chemo... then given back to him... i believe that's what he's gonna get. the doctor said it will be intensive, but i have to believe this will work for him...he is going to get through this... thanks so much for keeping him in your prayers.... desiree..
  • allmost60
    allmost60 Member Posts: 3,178 Member
    kalalaud said:

    PT Scan results
    Thank you so much for being positive... we really need it right now.. but, the sad thing is, we just found out... he has to do more treatments...after he finished his abvd, their was a month between his last day and his pt scan on monday...they see the tumor growing back. so now it looks like he'll do a couple of rounds of chemo in the hospital and then he'll do 2 to 3 mos of stem cell transplant... i don't know the words for all of the treatments because it all went over my head when i heard "his tumor is growing back". i couldn't absorb anything after that. i just know that he's in for a fight for the next 5 months or so... please keep sending your prayers our way.. lani will need all he can get..he's so disappointed and depressed. i need to stay positive to get him through this... so all prayers are greatly appreciated! we're going to beat this - there is no doubt about that!!! i will fight the fight with my son... whatever it takes, one day at a time!!! god bless to you all... thanks for sharing your knowledge and prayers with me...

    Tumor growth...
    Hi,
    I'm so sorry the scan results showed tumor growth. The next few months are going to be difficult with chemo and stem cell transplant, but hopefully by fall he will be on the road to a full recovery. Keep the faith and I will most definetely keep you both in my prayers. Best wishes...Sue (FNHL-2-3a-6/10)
  • jimwins
    jimwins Member Posts: 2,107
    kalalaud said:

    PT Scan results
    Thank you so much for being positive... we really need it right now.. but, the sad thing is, we just found out... he has to do more treatments...after he finished his abvd, their was a month between his last day and his pt scan on monday...they see the tumor growing back. so now it looks like he'll do a couple of rounds of chemo in the hospital and then he'll do 2 to 3 mos of stem cell transplant... i don't know the words for all of the treatments because it all went over my head when i heard "his tumor is growing back". i couldn't absorb anything after that. i just know that he's in for a fight for the next 5 months or so... please keep sending your prayers our way.. lani will need all he can get..he's so disappointed and depressed. i need to stay positive to get him through this... so all prayers are greatly appreciated! we're going to beat this - there is no doubt about that!!! i will fight the fight with my son... whatever it takes, one day at a time!!! god bless to you all... thanks for sharing your knowledge and prayers with me...

    Hope is still strong
    Big hugs, Desiree.

    Sorry you guys are experiencing this. Sometimes the war
    isn't won in the first battle but it can still be won so please
    take heart that there's still plenty of hope.

    We're all on your side and here for you guys. You're in our thoughts
    and prayers.

    Hugs and positive thoughts,

    Jim
    DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)
  • cathyp
    cathyp Member Posts: 376 Member
    kalalaud said:

    thank you max.... i believe
    thank you max.... i believe they will be using his own stem cell. the stem cells are harvested, frozen stored until he's done with his chemo... then given back to him... i believe that's what he's gonna get. the doctor said it will be intensive, but i have to believe this will work for him...he is going to get through this... thanks so much for keeping him in your prayers.... desiree..

    So sorry
    I'm saddened to read of your sons results. Your post sounds positive and hopeful, I hope you can continue to carry those traits throughout your journey. Praying for strength for you and a cure for your son.
    Cathy
    HD 1989
    HD 1994
    IDC 2007
  • kalalaud
    kalalaud Member Posts: 14
    jimwins said:

    Hope is still strong
    Big hugs, Desiree.

    Sorry you guys are experiencing this. Sometimes the war
    isn't won in the first battle but it can still be won so please
    take heart that there's still plenty of hope.

    We're all on your side and here for you guys. You're in our thoughts
    and prayers.

    Hugs and positive thoughts,

    Jim
    DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)

    thank you everyone for
    thank you everyone for showing so much compassion and all of your support and prayers...i truly believe that this round of treatments will help my son to get onto the road to recovery... what a wonderful site this is to have so many new friends that truly understands what we are going through! thank you all again! hugs to you all!!!
  • diazr1
    diazr1 Member Posts: 101
    kalalaud said:

    thank you everyone for
    thank you everyone for showing so much compassion and all of your support and prayers...i truly believe that this round of treatments will help my son to get onto the road to recovery... what a wonderful site this is to have so many new friends that truly understands what we are going through! thank you all again! hugs to you all!!!

    Kaluud let me know if u want
    Kaluud let me know if u want me to talk to your son