Sam (sangora) update

sangora
sangora Member Posts: 213
Wanted to let my EC buddies know that I am still around. Am getting very tired and having hard time being up much to check on our board. Last friday I had to have my feeding tube replaced. That was an ordeal but I got through it ok. Hospice continues to be here and are very supportive and doing a good job.I continue to be 99% pain free and am not feeling over sedated. Please continue to remember me, Sam Stage IV

Comments

  • chrissiebass
    chrissiebass Member Posts: 56
    was wondering....
    Though we have never "talked" I have followed your story here, and have been thinking of you, it is good to hear your pain free, but not too sedated. Take care of yourself and thanks for checking in

    chrissie
    dad stage iv
  • paul61
    paul61 Member Posts: 1,391 Member
    Nice to hear from you
    Sam,

    It is great to hear from you. You continue to be in my thoughts and prayers daily. I am glad that hospice has been able to give you some support. May you continue to be as comfortable as possible.

    Best Regards,

    Paul Adams
    McCormick, South Carolina
  • Ginny_B
    Ginny_B Member Posts: 532
    Worry Worry Worry
    You are always in my thoughts and most importantly in my prayers. I'm so glad you are not in horrible pain! Keep your chin up! love love love hearing from you!
  • have2believe
    have2believe Member Posts: 134
    glad you are painfree
    Hi Sam,
    I'm glad you are pretty much pain free. I pray for peace and comfort. You are in my thoughts and prayers. I still believe in miracles no matter how big or small. I hope you continue to enjoy what life brings each and every day. In my thoughts always, L.
  • stephikindred
    stephikindred Member Posts: 140
    Thanks for the update
    Hi Sam. It's good to hear from you again as usual. I'm especially glad to know that you're not in pain. Just know that you're thought about often. I remember you in my thoughts and prayers daily. Thank you for keeping us updated as much as possible. You have many friends here who love you very much and think about you often. It means so much to us to get a good word from you!
    Sending you love and blessings,
    Stephanie
  • TerryV
    TerryV Member Posts: 887
    Grateful for small things...
    Glad to hear that hospice is attentive and able to keep you mostly painfree. You are never far from our thoughts, Sam.

    With much love and many {hugs}

    Terry
  • Coach B
    Coach B Member Posts: 18
    I m new and was DX EC 3 wks ago
    this is my first day todiscuss on the board that i have never done this before and i just found out that I have a EC three weeks ago and I have no idea who to talk to and I dont know how to enter chat to chat with someone... I just want to let you know I was born deaf and I dont know how to start chat live or discuss on the board and i really need "help" to decide which treatment and the surgery option and etc.... I am very nervous and was speechless when I found out.... Sam we never met or get to know each other and I hope u doing well and Pray for you and everyone..
  • Coach B
    Coach B Member Posts: 18
    I m new and was DX EC 3 wks ago
    this is my first day todiscuss on the board that i have never done this before and i just found out that I have a EC three weeks ago and I have no idea who to talk to and I dont know how to enter chat to chat with someone... I just want to let you know I was born deaf and I dont know how to start chat live or discuss on the board and i really need "help" to decide which treatment and the surgery option and etc.... I am very nervous and was speechless when I found out.... Sam we never met or get to know each other and I hope u doing well and Pray for you and everyone..
  • Coach B
    Coach B Member Posts: 18
    I m new and was DX EC 3 wks ago
    this is my first day todiscuss on the board that i have never done this before and i just found out that I have a EC three weeks ago and I have no idea who to talk to and I dont know how to enter chat to chat with someone... I just want to let you know I was born deaf and I dont know how to start chat live or discuss on the board and i really need "help" to decide which treatment and the surgery option and etc.... I am very nervous and was speechless when I found out.... Sam we never met or get to know each other and I hope u doing well and Pray for you and everyone..
  • rose20
    rose20 Member Posts: 258
    you are in our prayers...
    Sam, I sent you a private message. Praying.
  • BMGky
    BMGky Member Posts: 621
    Thanks for posting
    Glad to hear you are in no pain and receiving good care. We all are thinking of you. BMGky
  • megmacmd
    megmacmd Member Posts: 85
    thanks for the update
    You are in my thoughts as are all the stage 4s Glad you are pain free most important thing hope you have some quailty of life. For me quality is foremost care less about quantity (highly overrated)My trusty jack russell CC(criss cross) and I managed to navigate Home depot get a lawn mower on our own and get it home to mow great day They say I am stage 4 inooperable not curable and yet I continue to continue on.My dad ( an Irish man and Captain in the navy on submarines) always said "I aint dead yet stop checking my pulse" he died of bladder cancer at home pain free and very funny til the very end.Keep a going as my irish grandmother used to say and/or may the spirits guide you well as my other french canadian indian grandmother would say. Its all the same at the end of the day how was your day?I hope and pray it was good. I think of all that is right and good no sense in dwelling on the negative .KEEP A GOING may you have pleasant dreams and a host of good supportive friends. MegMac and trusty jack russell CC Oh yes the beach was awesome today very scary on the early morning fairway walk lots of red foxes on the prowl
  • This comment has been removed by the Moderator
  • JReed
    JReed Member Posts: 428
    Hi Sam
    Sam:

    God certainly works in mysterious ways. When I look back to the time I first posted on this site, little did I know that God was leading me to my new lifetime heroes. Until this site, whenever I heard someone asked who their hero was, I often wondered who truly was my hero. I never had answer.

    I do now - you, Sam, and I'm afraid to name names in fear that I would forget someone, you Esophageal Cancer warriors and caregivers are my heroes. You make me laugh, you make me cry, you send encouragement, you send cyber hugs, positive mojo, suggestions, phone numbers to call if needed, and the list goes on of what you send. Most of all you send the courage to make it through this battle with grace. You are my hero and I thank God for you and everyone on this site.

    I love you Sam,
    Judy
  • Donna70
    Donna70 Member Posts: 852 Member
    JReed said:

    Hi Sam
    Sam:

    God certainly works in mysterious ways. When I look back to the time I first posted on this site, little did I know that God was leading me to my new lifetime heroes. Until this site, whenever I heard someone asked who their hero was, I often wondered who truly was my hero. I never had answer.

    I do now - you, Sam, and I'm afraid to name names in fear that I would forget someone, you Esophageal Cancer warriors and caregivers are my heroes. You make me laugh, you make me cry, you send encouragement, you send cyber hugs, positive mojo, suggestions, phone numbers to call if needed, and the list goes on of what you send. Most of all you send the courage to make it through this battle with grace. You are my hero and I thank God for you and everyone on this site.

    I love you Sam,
    Judy

    Sam, thanks for the update
    Dear Sam,
    I think of you and pray for you everyday. Thanks for letting us know what is going on with you. I am glad hospice is doing a great job and that you are not in pain. You have been an inspiration to everyone here, we love you. many hugs,
    Donna70
  • lilrusty
    lilrusty Member Posts: 49
    Donna70 said:

    Sam, thanks for the update
    Dear Sam,
    I think of you and pray for you everyday. Thanks for letting us know what is going on with you. I am glad hospice is doing a great job and that you are not in pain. You have been an inspiration to everyone here, we love you. many hugs,
    Donna70

    Keep On Fighting
    Sam Im so glad your pain free and still able to fight this nasty disease. I pray you continue with peace and comfort. Love To You, Chrissy
  • mardigras
    mardigras Member Posts: 215 Member
    Coach B said:

    I m new and was DX EC 3 wks ago
    this is my first day todiscuss on the board that i have never done this before and i just found out that I have a EC three weeks ago and I have no idea who to talk to and I dont know how to enter chat to chat with someone... I just want to let you know I was born deaf and I dont know how to start chat live or discuss on the board and i really need "help" to decide which treatment and the surgery option and etc.... I am very nervous and was speechless when I found out.... Sam we never met or get to know each other and I hope u doing well and Pray for you and everyone..

    Hi Coach
    Please send your message again under new topic. It should be at the top of your page.
    I'm so sorry that you find yourself here although there is a wealth of help and support
    here for you.
    If you send your message under 'new topic', more people will see it and respond accordingly. The discussion boards here are really informative, if a little daunting.
    I know William will be able to help you a lot and so will lots of other long time survivors.
    I am just a carer for my husband, who also has EC, and we are in England, so the system
    here will be very different to you if you are in the USA.
    I will pray for you and hope that you will get all the help you need. If you have specific
    questions, I am happy to try and answer them if I can.
    On the left of the page you will see 'chat'. Once you are registered, you can join in and lots of people will talk to you and try and help you.
    Take care of yourself.
    Love and hugs,
    Marci x
  • captdave
    captdave Member Posts: 153
    Sam, Great to hear from
    Sam, Great to hear from you! I had been wondering how you were doing as we hadn't heard any hews for a while. Thanks for checking in and keeping us up to date we all appreciate it. It is good to hear that your pain is being well managed and yet you're not feeling sedated or loopy. You're in my prayers daily.

    Dave
  • unclaw2002
    unclaw2002 Member Posts: 599
    Sam,
    You are in my thoughts

    Sam,

    You are in my thoughts and prayers. I continue to wish you good moments and precious time with friends. And all of us, your CSN family, keep you in our thoughts every day.

    Hugs and love,
    Cindy
  • Heeran
    Heeran Member Posts: 171
    Sam, no worries on anyone
    Sam, no worries on anyone forgetting you. Very happy to hear the 99% pain free part. Take care of yourself.