insurance won't pay for assay

froggy1
froggy1 Member Posts: 205
I recently had an assay done from surgical tissue. My insurance has denied coverage. It is a large sum of money. Has anybody else experienced this? I am wondering if this has any worth at all, after reading some of the info on the internet.

Comments

  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    I recently got a letter
    I recently got a letter saying my insurance (BCBS) is denying my test as well. It is being appealed. Any ideas on the cost? My letter did not say.
  • jazzy1
    jazzy1 Member Posts: 1,379

    I recently got a letter
    I recently got a letter saying my insurance (BCBS) is denying my test as well. It is being appealed. Any ideas on the cost? My letter did not say.

    Assay cost
    I had this procedure done, which at time had no clue it was even completed during surgery. I received a bill from an "unknown" company for something like $6K....I flipped out. Called both my radiologist and OB oncologist, and found the oncologist office said to wait it'll usually get paid. After receiving one more bill, that was the end of it.

    I'd suggest calling your oncologist as possibly they can direct you. Almost as if my doc knows magic and it simply disappears????? Wishful thinking, but all I can figure out. Just happy I didn't have to pay that big bill, and yes it's so worth getting this testing.

    Good luck my friend~
    Jan
  • kayandok
    kayandok Member Posts: 1,202 Member
    jazzy1 said:

    Assay cost
    I had this procedure done, which at time had no clue it was even completed during surgery. I received a bill from an "unknown" company for something like $6K....I flipped out. Called both my radiologist and OB oncologist, and found the oncologist office said to wait it'll usually get paid. After receiving one more bill, that was the end of it.

    I'd suggest calling your oncologist as possibly they can direct you. Almost as if my doc knows magic and it simply disappears????? Wishful thinking, but all I can figure out. Just happy I didn't have to pay that big bill, and yes it's so worth getting this testing.

    Good luck my friend~
    Jan

    chemo essay
    I had 2 chemo essays after my last surgery, I had in August of 2011. I have no insurance in the US and was covered by ?????? and the other I paid $250. In any case, I agree with Jan, call your onc, or beter yet his secretary. The two labs were Precision (came back right away and covered mostly chemo and hormon stuff- short and sweet). The second one, covered hundreds of stuff, and although nice to read, I only needed chemo, hormon and VEFG (determines whether avastin is helpful or not). It took about a month, which was way too long. But, they did it for no charge - someone must have to suck this up, I don't know who......

    The first surgery, in 2007, I was billed for $10,000 by a company no longer in business! I ended up negotiating it down to $5000, and only paid $2000 or so. (To my luck, the business was bought out, the new owner never sent us a bill, go figure.....)

    Hope it gets resolved soon, Froggy!
    kathleen
  • froggy1
    froggy1 Member Posts: 205
    Thank you
    Thanks for all the replies. My insurance denied 2500. I haven't started to appeal it yet. In the rush of the moment, my docs office had me sign a blank form, saying I would pay for it if my insurance didn't. It is interesting how different the stories are about payment.
    I have read a lot of negative about these tests and wonder if they are really worth it.
  • kayandok
    kayandok Member Posts: 1,202 Member
    froggy1 said:

    Thank you
    Thanks for all the replies. My insurance denied 2500. I haven't started to appeal it yet. In the rush of the moment, my docs office had me sign a blank form, saying I would pay for it if my insurance didn't. It is interesting how different the stories are about payment.
    I have read a lot of negative about these tests and wonder if they are really worth it.

    froggy,
    Did the onc order it or did you? Did they let you know how much the cost would be that you would have to cover? That form is can't be a legallly binding thing if there is no cost on it. Are you back in the US?
    K❤
  • froggy1
    froggy1 Member Posts: 205
    kayandok said:

    froggy,
    Did the onc order it or did you? Did they let you know how much the cost would be that you would have to cover? That form is can't be a legallly binding thing if there is no cost on it. Are you back in the US?
    K❤

    Assay
    The Doc took the specimens during surgery, but held the processing until I signed the form saying the cost could be from 0-4500.
    I was under a lot of stress and should have asked more questions. It seemed highly unethical to me.....I am in the US
  • jazzy1
    jazzy1 Member Posts: 1,379
    froggy1 said:

    Assay
    The Doc took the specimens during surgery, but held the processing until I signed the form saying the cost could be from 0-4500.
    I was under a lot of stress and should have asked more questions. It seemed highly unethical to me.....I am in the US

    Assay
    Just found the billing sheet from my insurance and company charged me $6000 and kicker, out of network...yikes! My notes from calling my oncologist "don't worry, I won't be billed" and may receive a check from this company. Never did receive a thing in mail in form of check, just the statement. Company they used is "PRECISION THERAPUTIC INC", noted -- SERVICE DENIED.

    Surely don't like idea that you signed something with no clue what it was about...not fair! They'll try to use that one against you. File a claim...keep trying as eventually you'll get lucky and stumble upon some area that holds success for you.

    Sorry you're going thru this...
    Jan
  • froggy1
    froggy1 Member Posts: 205
    jazzy1 said:

    Assay
    Just found the billing sheet from my insurance and company charged me $6000 and kicker, out of network...yikes! My notes from calling my oncologist "don't worry, I won't be billed" and may receive a check from this company. Never did receive a thing in mail in form of check, just the statement. Company they used is "PRECISION THERAPUTIC INC", noted -- SERVICE DENIED.

    Surely don't like idea that you signed something with no clue what it was about...not fair! They'll try to use that one against you. File a claim...keep trying as eventually you'll get lucky and stumble upon some area that holds success for you.

    Sorry you're going thru this...
    Jan

    thank you
    Thanks for the reply. It is the same company. I'm not sure who to approach first. My Doc's office just seems more interested in money these days than cancer, sad....
  • garden gal
    garden gal Member Posts: 212 Member
    froggy1 said:

    thank you
    Thanks for the reply. It is the same company. I'm not sure who to approach first. My Doc's office just seems more interested in money these days than cancer, sad....

    I too received a bill
    for this assay.Called my insurance and Dr and was told it was submitted wrong, went through the insurance again- paid in full. Kathy
  • whiterose
    whiterose Member Posts: 89
    My insurance company denied this test as well. I didn't even know what it was for at the time, but have since researched it. Someone from the assay company called me and sent me a form for them to re-submit the bill to the insurance company. Seems the bill was for about $4-5,000. Haven't heard anything since, it's been several months. They also told me that they would charge me a "compassionate rate", not the full amount, if the insurance company didn't pay. This is a good test, since it tells the oncologists what chemos are likely to work for you. However, many feel it's still in the experimental stage, which is why the insurance co.'s sometimes balk at paying for it. Keep re-submitting!
  • gdpawel
    gdpawel Member Posts: 523 Member
    whiterose said:

    My insurance company denied this test as well. I didn't even know what it was for at the time, but have since researched it. Someone from the assay company called me and sent me a form for them to re-submit the bill to the insurance company. Seems the bill was for about $4-5,000. Haven't heard anything since, it's been several months. They also told me that they would charge me a "compassionate rate", not the full amount, if the insurance company didn't pay. This is a good test, since it tells the oncologists what chemos are likely to work for you. However, many feel it's still in the experimental stage, which is why the insurance co.'s sometimes balk at paying for it. Keep re-submitting!

    Insurance Appeal
    For those wanting to appeal their insurance denial, there is a gracious woman on the Inspire ovarian cancer board (Tibet) who may be able to help you out. Her private insurance company denied her assay test reimbursement. I gave her what information I had and she personalized an appeal presentation. She was so good, on the way home from the appeal with about a dozen people (a lot were doctors), she received a cell phone call. They unanimously approved her reimbursement. They couldn't understand why this testing wasn't used and used widely. She has volunteered her services to anyone who would ask. You may want to make a Friends Request to her.
  • froggy1
    froggy1 Member Posts: 205
    gdpawel said:

    Insurance Appeal
    For those wanting to appeal their insurance denial, there is a gracious woman on the Inspire ovarian cancer board (Tibet) who may be able to help you out. Her private insurance company denied her assay test reimbursement. I gave her what information I had and she personalized an appeal presentation. She was so good, on the way home from the appeal with about a dozen people (a lot were doctors), she received a cell phone call. They unanimously approved her reimbursement. They couldn't understand why this testing wasn't used and used widely. She has volunteered her services to anyone who would ask. You may want to make a Friends Request to her.

    thank you
    Thank you Greg for the info. I am waiting on an appeal to the insurance company from Precision. My charge was $2500.00. I'm not
    sure the information was worth it.....
  • gdpawel
    gdpawel Member Posts: 523 Member
    froggy1 said:

    thank you
    Thank you Greg for the info. I am waiting on an appeal to the insurance company from Precision. My charge was $2500.00. I'm not
    sure the information was worth it.....

    Insurance Appeal
    Froggy

    I can understand. There are two conceptual weaknesses about the ChemoFx assay. The fact that they are amplifying cells outside of the body, results in a subpopulation selection. The other is 2D (two-dimensional) analysis. They plate cells in monolayers, then grow them to confluence (stop growing), and then add the drugs. It's a better assay to be used for the purpose of drug "de-selection" and not for drug "selection."

    I think a better way is to get an ice could tumor (fresh), straight from the patient (just as good as an ice cold kidney, straight from the patient). And then isolate 3D (three-dimensional) cell clusters, straight from the tumor, exactly as they are in the patient, add the drugs shortly after the tumor is re-warmed to body temperature, and then measure whether the drugs kill the tumor, in comparison with extensive databases of tumors with similar characteristics ("apples to apples" comparisons). It's not that ChemoFx is wrong, it's just that it is not as "accurate" as 3D analysis.

    If you do not get a favorable appeal, still contact Tibet on the Inspire ovarian website. She used to work for those guys and she knows ways to get around the bureaucratic red-tape.

    Greg