Update On Liver and Lung Mets

Options
2»

Comments

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #22
    Options
    dmj101 said:

    WOW
    All I can say is WOW..,.
    I have lung mets, spleen and tonsil as per a recent pet ct, and lung biopsy confirns it is colon primary.. my bones are clear(YEA) but my oncologist started me on Xeloda, she kept talking about preserving the quality of my life,, this concerned me... I am 48 and the lung spots are supposedly small but there are several. so I am going for 2nd opinion next week to see if there is more I should be doing,, We did speak about surgery but I am not so keen on that idea.. on my lungs.,. omg,. I told dr I don't want to be walking around with an oxygen tank.. I walked around with the chemo pump and that was nough for me.

    Please keep posting on this subject.. I really want to know what peple do about this.. I am so confused

    DMJ
    I've had 2 major surgeries on the lungs...I know a couple of folks here who have had 3...we're all as okay as we can be given the cirumstances

    I had radiation to the lung following the surgery as well....I'm not on oxygen, I almost left the hospital with it, but stubbornly held out and build my SPO2 level back up in the mid 90's after I returned home and resumed walking on the treadmill.

    It's scary, but I went around twice and the 2nd time around I was okay with it - even when the surgeon changed plans seconds before the surgery and said he was doing a "full-open" thoracotomy.

    Respiratory exercises and treatments re-expand the lung and exercise helps to keep it expanded...once the wound heals, they pull the chest tube, which is a relief. The key issue with any lung surgery is SPO2 levels...ideally you want to be in the mid to high 90's....they will ususally hold you in the hospital if you are under 90...unless it is borderline and then you have an option to be on supplememental oxygen for a short time.

    Morphine will make you feel like a superwoman and you'll be running laps around the corridors...get one last shot before you leave...once you get home and the morphine wears off, it gets a little tougher...but it's just time and patience at that point.

    We can walk you through all of that.

    -Craig
  • gophergenius
    gophergenius Member Posts: 33
    #23
    Options
    abackhou said:

    3 Years with Stage 4
    If you have surgery then you have to wait at least 30 days after chemo and then another 30 days before commencing chemo treatment.
    I have stage 4 CRC with secondary mets to liver & lungs which are still growing. Had Colon surgery in May 09, no more surgery for this fella......no point wasting good time for a very poor future....the cards have been dealt!!!!!

    Given 20 months but still here after 37 months...what a bonus...

    That is what I think...
    I am glad I have read your post...someone understands what I think as well. Not only is the outcome usually poor, but surgeries/chemo/radiation and so forth changes the quality life in many ways...emotionally, physically and financially. I'd rather have less time with good quality of life, than longer with misery. But I do understand those that fight on, it is what they choose...especially young people that have not lived long, people with children...be supportive of choice.

Discussion Boards