starting Avastin tomorrow

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Comments

  • connsteele
    connsteele Member Posts: 232

    Just want you to know that I
    Just want you to know that I am thinkingo of you this morning. I really support your decision to keep David's apartment as long as it's possible. It's like a beacon of hope for him, something he can look forward to as a goal. If anything, his apartment could serve as a "mini-retreat" for even a day or an afternoon.
    Love to you and David
    Connie

    Oops, meant to ask something with the above post
    Cindy, I had wanted to add to my 8:08 am post: Is David scheduled to include another drug with the Avastin?
    Thanks, Connie
  • BenLenBo
    BenLenBo Member Posts: 145 Member

    Thank you, Dan.
    Thank you Dan, for your post and especially for your prayers. I'm really touched and blessed that you and others on CSN follow my epic posts and keep up on David's condition and my state of mind. I would love to think that I have some strength, and to believe that I encourage others, but these days, I feel like I am barely crawling through my life. I feel so weak! I was a mess yesterday......still trying to go forward, but it's been a rough go for me lately. Yesterday was bad.....but today is a little better. And even a little better is still better!

    I just now took a break from responding to these posts here on CSN, and David and my husband and I, and my daughter Cathy and her fiancé, and my sis and bro in law all went out for lunch. David is a little better today. Since he just did the Avastin infusion yesterday, I am very glad to already see some improvement, even if it's just a slight one. But like I said to David, a little bit better is better than a little bit worse, and it's a lot better than a lot worse. I was trying to make him smile....he just looked at me like, "Whatever, Mom." But he did smile.

    Thank you again for your note....it encourages me to hang in there, and it makes me feel a measure of peace to know that you and others are praying for David and for me.

    Love and blessings,
    Cindy in Salem, OR

    Prayers
    Hello David & Cindy,
    Our prayers for better days ahead- gifted hands of the medical field, strength for
    David to carry on toward recovery, and for laughter to get everyone through the rough patches.
    I was glad to hear that you kept David's Apartment, its his domain, when Benjamin was
    home for 3 months, we would visit his farm and watch movies at his home. Friends were
    called to pop in. Really boosted his spirits, and ours, it removed the everyday stress, while the battle is on to beat this cancer.
    As for crying, I cry all the time, to see one of your children going through these
    uncertain time, how can one not cry. Crying helps the soul, and relieves tension with in
    the body to help move forward. Cindy you are like me, I never cry in front of Benjamin, and neither does the rest of the family. We started in the hospital- NO ONE ENTERS THIS
    ROOM AND CRIES! Also, no negative thoughts or statements were allowed, I really disliked
    when a Doctor or Nurse would come into his room before diagnoises and say "I AM SO SORRY",
    finally told them to stop. We didn't need to hear it.
    Until I took the time to read post on this site, I did not know that Radiation is
    only a one time shot- so thanks for the information. We were probably told this when
    treatment was being mapped out, but our minds were elsewhere. This site is really hard
    to wean out the old from the new, posts are total mixed up. I read some really old post
    an wonder how those individuals are doing, but no information is offered- frustrating. As I write this today, I admire your strength and compassion you have keeping everyone up to
    date on David and your lives. It's so helpful to others :o)
    My friend sent me this: YOUR SON WILL HOLD YOUR HAND FOR ONLY A
    LITTLE WHILE, BUT HE WILL HOLD YOUR HEART
    FOR A LIFETIME!!!!!

    (((((hugs))))

    Benjamin & Carol
  • Scottgri
    Scottgri Member Posts: 44

    how long is your plan for avastin?
    Hi Scottgri-

    My daughter started avastin in May 2011. She has tolerated it very well. A little bloodly nose here and there. Her MRI's are also stable. She is supposed to stop her infusion at the end of April. There has been some discussion about continuing the Avastin. It is very scary to know what to do to prevent a reoccurrence. Do you know what your treatment plan is?

    Edna

    Nothing Final...
    Hi Edna,

    I don't have a final treatment plan yet. However, the most recent thoughts of my doc are to continue Avastin permanently every 3 weeks instead of the two-week cycle I'm on now.

    I had some platelet issues around September last year so they reduced my Temodar by 25% which fixed that right up. High blood pressure from the Avastin is being treated with some low dose meds and that is fine now.

    Scott
  • Scottgri
    Scottgri Member Posts: 44

    That's fantastic! So glad
    That's fantastic! So glad that the Avastin/Temodar is working so well for you. And thanks for letting us know by posting on this site. We all need a boost of hope every now and then.
    Connie
    m/o David, age 35, dx April 2011 AA3, has progressed to AA4

    Glad to share, I had some
    Glad to share, I had some scary times before I found the hope I was looking for...but my family and I found it.