14 year survivor - bad PET scan rsults

13

Comments

  • Ann2800103
    Ann2800103 Member Posts: 31
    mom62 said:

    Mets
    Hi,

    I have mets too. I do hormone therapy too. Arimidex and every three months Lupron shot. Mine is original from BC. I had recurrance and had most of sternum and 3 ribs removed as it had grown into the bones. I did chemo after surgery and am now on the hormone therapy for mets that grew while I was given chemo so I don't think chemo helped me at all.

    Terry

    Lupron
    How is the Lupron doing for you? I have been on it almost three years. Seems to be doing well. on Femara also..... How are your side affects? I am feeling pretty good.

    Huggs
    Annie
  • Ann2800103
    Ann2800103 Member Posts: 31
    mom62 said:

    Mets
    Hi,

    I have mets too. I do hormone therapy too. Arimidex and every three months Lupron shot. Mine is original from BC. I had recurrance and had most of sternum and 3 ribs removed as it had grown into the bones. I did chemo after surgery and am now on the hormone therapy for mets that grew while I was given chemo so I don't think chemo helped me at all.

    Terry

    Lupron
    How is the Lupron doing for you? I have been on it almost three years. Seems to be doing well. on Femara also..... How are your side affects? I am feeling pretty good.

    Huggs
    Annie
  • DebbyM
    DebbyM Member Posts: 3,289 Member

    i'M 14 years out had recurrence three years ago doing great now
    Hi Had breast cancer in 1998 December 10. Had all chemo and radiation and Tamoxifen. After all those years my hip started to hurt. I had a scan and I was pending fracture. Ithad eaten almost through the hip and 3/4 down my femur.
    Had hip replaced no chemo this time radiation three years ago. I do not even have a limp
    and feeling great@@ Because my cancer lives on estrogen I am taking Lupron shots every six weeks hardly any side affects to speak of and I walk without a limp (: I was very sad also but fought like you know what said no chemo just rad because organs are fine.
    Keep in touch or you can send me emails on here. I am here foryou if you have any questions.
    I feel better now then I have in years.....I am on heavy Vit D. Make sure your Vit D stays up.
    Blessings to you my dear...Its not always what you think...I almost gave up. Now I'm keeping my grand daughter I am disabled because once it comes back they told me not to work
    and they approved disability right away. I worked since I was 14 so my disability is enough for me to live on. They felt stress of working would not be good.
    Huggs Annie

    Checking to see if you've
    Checking to see if you've heard any news yet Kay. Prayers and big hugs!



    Hugs,


    Debby
  • kmikola2
    kmikola2 Member Posts: 29
    DebbyM said:

    Checking to see if you've
    Checking to see if you've heard any news yet Kay. Prayers and big hugs!



    Hugs,


    Debby

    No news yet...
    Appointment scheduled for Wednesday, but he assured me he would call if he got the results before. Freak out every time I think of it.

    Hugs right back,

    Kay
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    kmikola2 said:

    No news yet...
    Appointment scheduled for Wednesday, but he assured me he would call if he got the results before. Freak out every time I think of it.

    Hugs right back,

    Kay

    I know how easy it is to
    I know how easy it is to freak out about test results Kay. I am praying for you and please post when you hear something.


    Sue :)
  • kmikola2
    kmikola2 Member Posts: 29
    Ritzy said:

    I know how easy it is to
    I know how easy it is to freak out about test results Kay. I am praying for you and please post when you hear something.


    Sue :)

    Recurrent breast cancer with bone mets....ER 90%+/PR 20% .../HER results not in yet....so the plan is Faslodex 500 mg for two weeks, then monthly/500 mg monthly Xgeva 120mg sub q. Will start the first shots next week.

    If the HER comes back positive, he will also administer HER...

    So, as horrible as this whole thing is, I'm glad I don't have to do traditional "chemo" again. He says we'll do another PET scan in 6 months...could do it sooner, but while bone is healing, he said everything will "light up" as the bone heals. Get a more accurate reading in 6 months. He said we will go on this indefinitely, as long as it works, which in his opinion can be years.

    Glad there is a plan in place. I am going to a different doctor tomorrow to get a different opinion.

    Thanks for all the prayers and positive thoughts.

    I'll let you know what doctor #2 says.

    Hugs,

    Kay
  • kmikola2
    kmikola2 Member Posts: 29
    Ritzy said:

    I know how easy it is to
    I know how easy it is to freak out about test results Kay. I am praying for you and please post when you hear something.


    Sue :)

    Recurrent breast cancer with bone mets....ER 90%+/PR 20% .../HER results not in yet....so the plan is Faslodex 500 mg for two weeks, then monthly/500 mg monthly Xgeva 120mg sub q. Will start the first shots next week.

    If the HER comes back positive, he will also administer HER...

    So, as horrible as this whole thing is, I'm glad I don't have to do traditional "chemo" again. He says we'll do another PET scan in 6 months...could do it sooner, but while bone is healing, he said everything will "light up" as the bone heals. Get a more accurate reading in 6 months. He said we will go on this indefinitely, as long as it works, which in his opinion can be years.

    Glad there is a plan in place. I am going to a different doctor tomorrow to get a different opinion.

    Thanks for all the prayers and positive thoughts.

    I'll let you know what doctor #2 says.

    Hugs,

    Kay
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    kmikola2 said:

    Recurrent breast cancer with bone mets....ER 90%+/PR 20% .../HER results not in yet....so the plan is Faslodex 500 mg for two weeks, then monthly/500 mg monthly Xgeva 120mg sub q. Will start the first shots next week.

    If the HER comes back positive, he will also administer HER...

    So, as horrible as this whole thing is, I'm glad I don't have to do traditional "chemo" again. He says we'll do another PET scan in 6 months...could do it sooner, but while bone is healing, he said everything will "light up" as the bone heals. Get a more accurate reading in 6 months. He said we will go on this indefinitely, as long as it works, which in his opinion can be years.

    Glad there is a plan in place. I am going to a different doctor tomorrow to get a different opinion.

    Thanks for all the prayers and positive thoughts.

    I'll let you know what doctor #2 says.

    Hugs,

    Kay

    I am very glad that you
    I am very glad that you won't have to do traditional chemo again too Kay. And, glad that this doctor does have a plan in place for you. Please let us know what the next doctor says.

    Praying,

    Jan
  • Kylez
    Kylez Member Posts: 3,761 Member

    I am very glad that you
    I am very glad that you won't have to do traditional chemo again too Kay. And, glad that this doctor does have a plan in place for you. Please let us know what the next doctor says.

    Praying,

    Jan

    This is good news, isn't it
    This is good news, isn't it Kay that your treatment plan is in order? Although I am so very sorry that there is even a reason for the need of it.

    The pink sisters are here for you, 24/7, so count on us, ok?


    Hugs, Kylez
  • Megan M
    Megan M Member Posts: 3,000

    i'M 14 years out had recurrence three years ago doing great now
    Hi Had breast cancer in 1998 December 10. Had all chemo and radiation and Tamoxifen. After all those years my hip started to hurt. I had a scan and I was pending fracture. Ithad eaten almost through the hip and 3/4 down my femur.
    Had hip replaced no chemo this time radiation three years ago. I do not even have a limp
    and feeling great@@ Because my cancer lives on estrogen I am taking Lupron shots every six weeks hardly any side affects to speak of and I walk without a limp (: I was very sad also but fought like you know what said no chemo just rad because organs are fine.
    Keep in touch or you can send me emails on here. I am here foryou if you have any questions.
    I feel better now then I have in years.....I am on heavy Vit D. Make sure your Vit D stays up.
    Blessings to you my dear...Its not always what you think...I almost gave up. Now I'm keeping my grand daughter I am disabled because once it comes back they told me not to work
    and they approved disability right away. I worked since I was 14 so my disability is enough for me to live on. They felt stress of working would not be good.
    Huggs Annie

    Thanks Kay for the update as
    Thanks Kay for the update as we have all been watching for it. Your doctor sounds like he is ready to help you fight this with his plan. Good luck with your appointment with the 2nd doctor.


    Hugs, Megan
  • Noel
    Noel Member Posts: 3,095 Member
    kmikola2 said:

    Recurrent breast cancer with bone mets....ER 90%+/PR 20% .../HER results not in yet....so the plan is Faslodex 500 mg for two weeks, then monthly/500 mg monthly Xgeva 120mg sub q. Will start the first shots next week.

    If the HER comes back positive, he will also administer HER...

    So, as horrible as this whole thing is, I'm glad I don't have to do traditional "chemo" again. He says we'll do another PET scan in 6 months...could do it sooner, but while bone is healing, he said everything will "light up" as the bone heals. Get a more accurate reading in 6 months. He said we will go on this indefinitely, as long as it works, which in his opinion can be years.

    Glad there is a plan in place. I am going to a different doctor tomorrow to get a different opinion.

    Thanks for all the prayers and positive thoughts.

    I'll let you know what doctor #2 says.

    Hugs,

    Kay

    I am so sorry Kay that your
    I am so sorry Kay that your bc came back in your bones. There are several pink sisters on here with bone cancer and I hope they can help you.

    Prayers and positive thoughts,

    Noel
  • kmikola2
    kmikola2 Member Posts: 29
    kmikola2 said:

    Recurrent breast cancer with bone mets....ER 90%+/PR 20% .../HER results not in yet....so the plan is Faslodex 500 mg for two weeks, then monthly/500 mg monthly Xgeva 120mg sub q. Will start the first shots next week.

    If the HER comes back positive, he will also administer HER...

    So, as horrible as this whole thing is, I'm glad I don't have to do traditional "chemo" again. He says we'll do another PET scan in 6 months...could do it sooner, but while bone is healing, he said everything will "light up" as the bone heals. Get a more accurate reading in 6 months. He said we will go on this indefinitely, as long as it works, which in his opinion can be years.

    Glad there is a plan in place. I am going to a different doctor tomorrow to get a different opinion.

    Thanks for all the prayers and positive thoughts.

    I'll let you know what doctor #2 says.

    Hugs,

    Kay

    Dr #2 confirms Dr #1 plan
    Went and saw Dr #2 today...he was actually VERY good. He recommended the same treatment plan that Dr #1 suggested. This made me feel better. He said he expected me to do very well, and that I had a good prognosis. Have every hope to be around MANY years....keep praying! Hugs!
  • Noel
    Noel Member Posts: 3,095 Member
    kmikola2 said:

    Dr #2 confirms Dr #1 plan
    Went and saw Dr #2 today...he was actually VERY good. He recommended the same treatment plan that Dr #1 suggested. This made me feel better. He said he expected me to do very well, and that I had a good prognosis. Have every hope to be around MANY years....keep praying! Hugs!

    Excellent news then Kay!
    Excellent news then Kay! Wishing you the best with your treatment and please keep us updated.


    Hugs and prayers to you,


    Noel
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    Noel said:

    I am so sorry Kay that your
    I am so sorry Kay that your bc came back in your bones. There are several pink sisters on here with bone cancer and I hope they can help you.

    Prayers and positive thoughts,

    Noel

    I'm glad that both of your
    I'm glad that both of your doctors agreed so now you can have a plan of attack to rid yourself of the beast.


    I wish you the best Kay.


    Hugs,


    Debby
  • kmikola2
    kmikola2 Member Posts: 29
    DebbyM said:

    I'm glad that both of your
    I'm glad that both of your doctors agreed so now you can have a plan of attack to rid yourself of the beast.


    I wish you the best Kay.


    Hugs,


    Debby

    Had my first shots yesterday
    Had my first shots yesterday...I actually feel very well...a little achy, but nothing horrible.

    But, what's with this co-pay? $344 for one (every month), and $340 for the other (every month). Luckily, the one shot has an agreement with the pharm. co. that they will pay the co-pay (yeah!), but really? For the rest of my VERY LONG life? I don't think I'll ever be able to retire...:(
  • Angie2U
    Angie2U Member Posts: 2,991
    kmikola2 said:

    Had my first shots yesterday
    Had my first shots yesterday...I actually feel very well...a little achy, but nothing horrible.

    But, what's with this co-pay? $344 for one (every month), and $340 for the other (every month). Luckily, the one shot has an agreement with the pharm. co. that they will pay the co-pay (yeah!), but really? For the rest of my VERY LONG life? I don't think I'll ever be able to retire...:(

    Glad you feel so well Kay!
    Glad you feel so well Kay! Do you have anything to take for the achy feeling?

    Hugs, Angie
  • Kristin N
    Kristin N Member Posts: 1,968 Member
    Angie2U said:

    Glad you feel so well Kay!
    Glad you feel so well Kay! Do you have anything to take for the achy feeling?

    Hugs, Angie

    Very good news that you
    Very good news that you don't have to do traditional chemo Kay. Good luck and keep us updated!
  • mollyz
    mollyz Member Posts: 756 Member
    Kristin N said:

    Very good news that you
    Very good news that you don't have to do traditional chemo Kay. Good luck and keep us updated!

    Wonderful news!!!!
    As i read thru the post it was as if i was holding my breath waiting for a a out come and thank God it is a good one for you,good luck and as always you and all the pink sisters have my prayers ~~MollyZ~~
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    mollyz said:

    Wonderful news!!!!
    As i read thru the post it was as if i was holding my breath waiting for a a out come and thank God it is a good one for you,good luck and as always you and all the pink sisters have my prayers ~~MollyZ~~

    I'm with the other pinkies
    I'm with the other pinkies in saying what good news you got! Good luck and keep posting.


    Sue :)
  • kmikola2
    kmikola2 Member Posts: 29
    Ritzy said:

    I'm with the other pinkies
    I'm with the other pinkies in saying what good news you got! Good luck and keep posting.


    Sue :)

    Thanks for all the good thoughts!
    I really appreciate all the positive thoughts. This whole thing sucks, but you guys have been great. I will continue to post with updates!