cea 66 today up from 7 in 4 weeks, i might have more than the common cold going on !!!!!
Comments
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Some things you don't knowtina dasilva said:sorry
I'm so sorry pete I wish you all the best my friend .
Pete,
My husband had chemoradiation for rc, with positive regional lymph nodes as well as malignant lymph nodes in the immediate area. One of the lymph nodes along the iliac artery tripled in size after completion of cr. He said to the surgeon that the chemoradiation didn't work to which the surgeon replied, "you don't know that, the node could be the size of a baseball if you hadn't had the treatments".
You don't know if your alternatives failed or helped you. You have no idea what the CEA numbers would be had you not been doing all that you've been doing. I don't know, no one does. One thing is almost certain, you didn't cause this to happen and you are no doubt much healthier for what you will be facing if it turns out the CEA numbers are an indication that the cancer is rearing its ugly head again.
Best to you...
Robin0 -
Praying for the best
I hope everything will be just fine. It's nuts how one day it seems good then boom all hell breaks loose!! I'll be praying for you.
Jeff0 -
Petelisa42 said:Sorry to hear
Hi Pete, man, this really sucks! You've tried to do so much to keep the cancer away, it just isn't fair! Then again, cancer never plays fair. I'll be praying for you and awaiting your scan results.
Hugs to you,
Lisa
So sorry to hear that even with all your valiant efforts, your CEA continues to rise. Hopefully, this scan will show you the cause. Please enjoy your holidays with friends and family. Will be thinking of you.
Luv,
Wolfen0 -
only through enlightened discussions can we know what new methods are available to us in this fight. Resected tumor testing has to be bought into by the surgeon... if not, the vast info that might be found is lost.... Tanstaafl, Pete, ... the challenge is for us... and for that next one "new to the board"... How can the latest science be stated in layman's terms? What needs to be said to the surgeon to get his attention and buy in?.... Maggietanstaafl said:about the DQ dude...
It is too bad that Pete was unable to get more scientific medical support from literal day 1, perhaps like the rgcc blood test and others, perhaps have a few radiation enhancing supplements, have a hard answer for cimetidine by surgery time, get his resected tumor(s) directly tested against biological and chemotherapies, have better blood monitoring post chemo, and perhaps have a more sensitive test to decide on maintenance (immuno)chemo after the inital chemo blast. Vs an empirical, debilitating 6 mo chemo and just "wait 'n see" 3-9 months on UFO sized recurs. Instead he's left to acramble over massive technical ground that our industrial medical complex has largely managed tosabota-, er, f-o- for the last 25-70 years, even yet.
Hopefully surgery II straightens this out pronto.0 -
getting to "yes"MaggieCat said:only through enlightened discussions can we know what new methods are available to us in this fight. Resected tumor testing has to be bought into by the surgeon... if not, the vast info that might be found is lost.... Tanstaafl, Pete, ... the challenge is for us... and for that next one "new to the board"... How can the latest science be stated in layman's terms? What needs to be said to the surgeon to get his attention and buy in?.... Maggie
First, is the surgeon's personality, experience, inclinations and technical background. In my limited experience it's harder to move a "conservative" doctor, or an A$CO member. Second, was being up to speed enough to have papers, personal data at finger tips, and simple clear requests (laboratory instructions). Third, for us, "practice" conversations on previous non-viable surgeons, made our presentation gold for the finale.
Next step is "training" enough doctors so that some will offer it upfront, rather than patients searching, pushing or begging. It may be a matter of causing competition.0 -
Hey Pete- Sorry to hear this
Hey Pete- Sorry to hear this news I know how hard you've been trying to keep this thing down. I haven't been on here much lately but I keep up with some of the posts with yours being one. I don't recall if you are on Tagamet or not. I know when I had my recurrence I started on it and while my case was not as advanced as yours I did have my CEA drop by half just prior to surgery. I also have an immune system deficiency similar to yours that no one has figured out in two years. I'm low in all my counts and had active lymph nodes in PET scans that they thought was Lymphoma. Fortunatly the lymph node issue corrected itself after chemoradiation but my blood counts are still all bad. Anyway, if you're not, look into the Tagamet and give it a try. I've seen enough promising info on it for me.
Take care, keep the faith.
CJ0 -
simply more thanks
its 2.16am here in our little holiday unit in forster.
the fridge is covered in supplements.
it also has my 3g wifi wireless router, so i can talk to you guys anywhere and do research!
inside the fridge its full of veg/fruit and salmon and the drugs that have to be cold.
the tap has my portable top quality water purifier.
i got my champion juicer on one side of the sink, the chinese herb cooker on the other.
i have 2 boxes of medical files, to organise.
i am going to o/d on vit c and artemisinin see my blog for the methods of action.
it may still work, experimenting on myself before the onc gets my body.
today i have done the functional liver test, goto finish it now by taking some aspirin specific dose and then peeing into a bottle for 10 hours. the other part of the test is a caffiene based saliva test. pretty interested in the results.
my full bloods show no damage.
my live bloods show significant liver impairment.
the functional test will show something in between.
also doing a comprehensive stool test, looking for parasites.
i suspect my helicobacter is back, but will check tomorrow.
i am a busy busy boy, the 4 days of iv c at 60000ui each day is getting up their i think.
giving the alt a good run for its money. its not cheap, but if it saves on the cost of a coffin, it will be worth it.
my spendthirft ways of supplements and treatments are well if i fail the life insurance is big, if i win i will do some work and sooner or later to pay for all the credit card bills.
interest on interest is a good thing i think!!!!!!!!!
how do i answer everyones kind comments, i will find a way.
i loved everyones comments short like gails to long like especially craigs work of art.
my path reflects my obsessive personality, its out here, nowhere else really.
i have more empathy than i did before.
i just got results on a blood test, its just 3 letters cea. the amount of fear and power i give it bugs me. uncertainty the essence of life, or mine at least. i say bring it on.
every moment of research and reading from biology , to pubmed to yoga, to meditation , to diet. i have actually enjoyed and done enthusiastically.
crc just stimulated my interest my obsession about health and balance.
its late i have had my pills for the functional liver test, now i have to pee into a bottle for 10 hours.
i want to respond properly to everyones kind comments, just give me time.
hugs,
pete0 -
ivc sodium potassium balancepete43lost_at_sea said:simply more thanks
its 2.16am here in our little holiday unit in forster.
the fridge is covered in supplements.
it also has my 3g wifi wireless router, so i can talk to you guys anywhere and do research!
inside the fridge its full of veg/fruit and salmon and the drugs that have to be cold.
the tap has my portable top quality water purifier.
i got my champion juicer on one side of the sink, the chinese herb cooker on the other.
i have 2 boxes of medical files, to organise.
i am going to o/d on vit c and artemisinin see my blog for the methods of action.
it may still work, experimenting on myself before the onc gets my body.
today i have done the functional liver test, goto finish it now by taking some aspirin specific dose and then peeing into a bottle for 10 hours. the other part of the test is a caffiene based saliva test. pretty interested in the results.
my full bloods show no damage.
my live bloods show significant liver impairment.
the functional test will show something in between.
also doing a comprehensive stool test, looking for parasites.
i suspect my helicobacter is back, but will check tomorrow.
i am a busy busy boy, the 4 days of iv c at 60000ui each day is getting up their i think.
giving the alt a good run for its money. its not cheap, but if it saves on the cost of a coffin, it will be worth it.
my spendthirft ways of supplements and treatments are well if i fail the life insurance is big, if i win i will do some work and sooner or later to pay for all the credit card bills.
interest on interest is a good thing i think!!!!!!!!!
how do i answer everyones kind comments, i will find a way.
i loved everyones comments short like gails to long like especially craigs work of art.
my path reflects my obsessive personality, its out here, nowhere else really.
i have more empathy than i did before.
i just got results on a blood test, its just 3 letters cea. the amount of fear and power i give it bugs me. uncertainty the essence of life, or mine at least. i say bring it on.
every moment of research and reading from biology , to pubmed to yoga, to meditation , to diet. i have actually enjoyed and done enthusiastically.
crc just stimulated my interest my obsession about health and balance.
its late i have had my pills for the functional liver test, now i have to pee into a bottle for 10 hours.
i want to respond properly to everyones kind comments, just give me time.
hugs,
pete
A lot of vegetables helps increase potassium intake. However, frequent, high dose IV vitamin C may still deplete potassium levels in the body.
With all her IV C as sodium ascorbate, somewhat more grams/kg and frequent (3-4-5x, even 7x per wk), my wife's potassium levels eventually drifted down even with some vegetables. She needed to supplement prescription sized potassium tablets (over 100 mg potassium/pill, 2.5 milliequivalents, in the US is prescription. typical prescription tabs are 10 milliequivalents). Her potassium blood levels get checked periodically. Citrate was convenient, any prescription form is expensive.
Since she is winding down now, IVC "only" twice a week, potassium supplementation is borderline necessary for her. Else we would have moved to kitchen chemistry with bulk USP potassium (bi)carbonate and ascorbic acid in the supplements "milk shake", doctor okayed, for her.
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Sorry about all the liver issues, Pete. What level of milk thistle extract, NAC, lipoic, TMG, selenium might you be taking/starting? The naturopath may have some herbs like dandelion, burdock, Picrorhiza kurroa, or black radish in there too. Sometimes we catch sales on combo formulas that are inexpensive.0 -
Dont give up Pete. But givehere4lfe said:Sorry to hear this
Keep fighting and smiling. Cancer never sleeps, and never should you.
Best
Dont give up Pete. But give your body that needed rest. You (if anyone) will gain the upper edge on this setback. Praying for you my friend. Stage 4 can still be beat.0 -
So sorry to hear
Pete, so sorry to hear about your situation. You are such an inspiration to others and I am sure you will continue to be throughout this current battle. Don't forget to take time and enjoy your holiday. If you are in for surgery soon, it may be awhile before you can take another one so be sure to enjoy this one.
K10
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