does this mean i am stage 4 now ? need some prayers and rainbows

2

Comments

  • wolfen
    wolfen Member Posts: 1,324 Member

    Pete,
    Pete,
    Of course I am holding you in my prayers. We had a beautiful rainbow over the island this morning and I believe it is for you. Be strong my friend. Yes, the tool of meditation will be good in the scan.

    Aloha,
    Kathleen

    Oh, My Aussie Friend
    You are such an inspiration to so many here. Many warm thoughts are on their way. As many have said, maybe the CEA rise is caused by something else. Please keep that smiling face and positive attitude. Cancer hates that.

    Much Luv,

    Wolfen
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    Holding on to the best of
    Holding on to the best of thoughts for you Pete!

    Hugs, Gail
  • k1
    k1 Member Posts: 220 Member
    You got 'em
    My thoughts and prayers are with you.

    Try to enjoy the hell out of all the time you have before you have the scans and before you may (or may not) have to have surgery. Keep doing all those positive things you have been doing mentally and physically. Stay strong! Keep enjoying the time with your children as you have been.

    I'm sorry to say I wasted good time in life while I was feeling great from March to May of this year going through the same things you are now going through...worrying about rising CEA, having a CT scan that showed nothing, having a PET scan that also showed nothing, then finally having an MRI that showed something and ending up having a liver resection in June that really weakened me for a time.

    Now here I am, back on my feet at least some of the time even though getting regularly knocked down by chemo too, also having rising CEA every month again when it was also down six months ago right after surgery, and wondering what my halfway-through-chemo MRIs and CT scan will show after I have them next week.

    Again, my thoughts and prayers will be with you in this period of limbo for you to find out what is going on, and I hope for the best. Your journey has inspired so many.

    K1
    I hope I can maintain a more positive attitude through this process than I did last spring and not waste good living time consumed by fear and worry on a constant basis.
  • buckeye2
    buckeye2 Member Posts: 428 Member
    taraHK said:

    feed the faith
    Hey Pete. Sorry to hear about the CEA. Your doctors and you are, of course, completely right in taking the rise in CEA seriously and in thoroughly investigating. However, I'm still going to consider it a "blip" until more information comes in!! The wonderful expression I learned on this board "Feed the faith, starve the fear"....If it turns out to be not-so-good, I know you will tackle it with your usual style and determination -- and, I hope, with the love and support of our loving friends on this board. Until then -- keep breathing in and out!

    Love,
    Tara

    I haven't heard this
    I haven't heard this expression before. Now it's my new motto. Lisa
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    words are not enough! so thanks will have to do!
    my little boy keith 6 years old is looking at me, he said "why are you smiling."
    at the time i was just reading all your replies. they have really helped. alot.

    I honestly hoped all my alternatives would give me an edge, maybe they have. still i have a new challenge.

    so i breathe and maintain peace of mind.

    plan for the worst, hope for best!!!! thats been said here before.

    and i will keep the faith.

    yesterday i met my onc for 15 min, she handed me the pet order, will see her monday to discuss results and have game plan conventional outlined. from there i went to a brand new personal trainer to focus on weight training to gain muscle mass. he gave me one month for free, that six days a week. been twice and its excellent. they even help with stretching. then i went to the best cancer specialist doctor i have met so far. spent about 90 minutes with him, he reviewed my anti cancer life, he made many suggestions and improvements. he made constructive comments on all my supplements I MEAN ALL. i asked him if i was in the top ten of cancer patients, he said "yes". what does that mean anyway. i guess i wanted some reinforcement for all the effort i have put in, and the results so far.

    I have so many resources around me i feel humble and privileged. just dam lucky, my support team gawler foundation, quest for life, paul, ashley, anvi, theresa, tracie, brett, chris, sue, greg, tammy, alison, eva, darren, gareth. these guys are nds and doctors and nurses. I have everyone here with more combined crc experience and memory than any other board. i am glad ron and graig and emily have been around for so long. everyone of us here on forum 128 is special. lets keeps on posting and living and having fun.

    meanwhile i think i have a 6 week window to give some alternatives a try. number one at present is hyperthermia and and iv vit c done by the only doctor in australia offering it.
    the doctor is a legend, very impressive in the flesh. i got to know him at the conference on the weekend. cannot see a big downside to this treatment. it seems good value. and can happen before any chemo. they will not do chemo here until they can see mets on ct.
    http://www.alternative-cancer-care.com/Hyperthermia_Treatment.html
    http://www.ncbi.nlm.nih.gov/pubmed/22110227

    so what happened today,i did the pet. got lost in the hospital basement. turned right when i should have turned left. if you go in the wrong direction you end up in the morgue. I am not kidding you. I took a photo, just had to, and said well one day but not today!

    i saw my local doctor first thing this morning, he completed the analysis of my bloods. my vit d is 209 nMol/l how fantastic, just a bitchht about the cea. ha ha!!!!!!!!!!
    Its not toxic so i will stick to 10000iu a day.

    while i am a free agent i am going to hammer vit c orally 3 x 1000mg breaky lunch dinner.
    not much to loose in this game now.

    really working hard to perfect and stick to my protocol. i am weight training 7am six days a week, i am meditating for 6am daily without fail. being a bad vegan, added in some protien as advised lets say 50-100 grams a day. mainly fish or seafood.

    the crc or me is going to hell and soon. now the way i am praying i am sure it cannot be me. my daughter and i looked at the pet results, no report. neither of us could work it out. she said i have an upside down smile. i said "mum, keith and her is great, i'd be crazy to be happy while facing the risk of leaving them to soon", then she smiled and hugged me. she is 10 going on 100. her hugs pull me through. my wife has been amazing we meditated in the pet waiting room for 30 minutes holding hands. these alternatives are so easy to put into practice. i know they will help.

    the best to last. yippe i can reapply for disabled parking permit now my crc maybe back, so while waiting for my renewed permit at our motor registry, this very old lady sat besides me, she was hard at hearing. we smiled and she started complaining about all the problems she faced getting old and driving. she was over 80. i thought do i tell her about my cancer and pet today. "no" i just smiled and listened and chuckled to myself. she would have thought a pet to be a dog or cat anyway.

    its my new medium goal to get to 80 and to be winging about my frailities. i looked her in the eyes, gave her a little pat, a big smile and said loudly that i hope she has a wonderful day.

    each day is a bit more precious now the crc has risen.

    hugs,
    pete
  • buckeye2
    buckeye2 Member Posts: 428 Member

    words are not enough! so thanks will have to do!
    my little boy keith 6 years old is looking at me, he said "why are you smiling."
    at the time i was just reading all your replies. they have really helped. alot.

    I honestly hoped all my alternatives would give me an edge, maybe they have. still i have a new challenge.

    so i breathe and maintain peace of mind.

    plan for the worst, hope for best!!!! thats been said here before.

    and i will keep the faith.

    yesterday i met my onc for 15 min, she handed me the pet order, will see her monday to discuss results and have game plan conventional outlined. from there i went to a brand new personal trainer to focus on weight training to gain muscle mass. he gave me one month for free, that six days a week. been twice and its excellent. they even help with stretching. then i went to the best cancer specialist doctor i have met so far. spent about 90 minutes with him, he reviewed my anti cancer life, he made many suggestions and improvements. he made constructive comments on all my supplements I MEAN ALL. i asked him if i was in the top ten of cancer patients, he said "yes". what does that mean anyway. i guess i wanted some reinforcement for all the effort i have put in, and the results so far.

    I have so many resources around me i feel humble and privileged. just dam lucky, my support team gawler foundation, quest for life, paul, ashley, anvi, theresa, tracie, brett, chris, sue, greg, tammy, alison, eva, darren, gareth. these guys are nds and doctors and nurses. I have everyone here with more combined crc experience and memory than any other board. i am glad ron and graig and emily have been around for so long. everyone of us here on forum 128 is special. lets keeps on posting and living and having fun.

    meanwhile i think i have a 6 week window to give some alternatives a try. number one at present is hyperthermia and and iv vit c done by the only doctor in australia offering it.
    the doctor is a legend, very impressive in the flesh. i got to know him at the conference on the weekend. cannot see a big downside to this treatment. it seems good value. and can happen before any chemo. they will not do chemo here until they can see mets on ct.
    http://www.alternative-cancer-care.com/Hyperthermia_Treatment.html
    http://www.ncbi.nlm.nih.gov/pubmed/22110227

    so what happened today,i did the pet. got lost in the hospital basement. turned right when i should have turned left. if you go in the wrong direction you end up in the morgue. I am not kidding you. I took a photo, just had to, and said well one day but not today!

    i saw my local doctor first thing this morning, he completed the analysis of my bloods. my vit d is 209 nMol/l how fantastic, just a bitchht about the cea. ha ha!!!!!!!!!!
    Its not toxic so i will stick to 10000iu a day.

    while i am a free agent i am going to hammer vit c orally 3 x 1000mg breaky lunch dinner.
    not much to loose in this game now.

    really working hard to perfect and stick to my protocol. i am weight training 7am six days a week, i am meditating for 6am daily without fail. being a bad vegan, added in some protien as advised lets say 50-100 grams a day. mainly fish or seafood.

    the crc or me is going to hell and soon. now the way i am praying i am sure it cannot be me. my daughter and i looked at the pet results, no report. neither of us could work it out. she said i have an upside down smile. i said "mum, keith and her is great, i'd be crazy to be happy while facing the risk of leaving them to soon", then she smiled and hugged me. she is 10 going on 100. her hugs pull me through. my wife has been amazing we meditated in the pet waiting room for 30 minutes holding hands. these alternatives are so easy to put into practice. i know they will help.

    the best to last. yippe i can reapply for disabled parking permit now my crc maybe back, so while waiting for my renewed permit at our motor registry, this very old lady sat besides me, she was hard at hearing. we smiled and she started complaining about all the problems she faced getting old and driving. she was over 80. i thought do i tell her about my cancer and pet today. "no" i just smiled and listened and chuckled to myself. she would have thought a pet to be a dog or cat anyway.

    its my new medium goal to get to 80 and to be winging about my frailities. i looked her in the eyes, gave her a little pat, a big smile and said loudly that i hope she has a wonderful day.

    each day is a bit more precious now the crc has risen.

    hugs,
    pete

    Well your new anxiety has
    Well your new anxiety has not affected your resolve, attitude, or sense of humor. The wrong turn and ending up at the morgue is a little funny. I hope your anxiety is lessened by the news on Monday. Keep staying the course. What works is what we believe will work. Lisa
  • here4lfe
    here4lfe Member Posts: 306 Member
    Jump on it
    Pete, I've been tracking you. You're in-tune with your body, and your attitude is upbeat. Take the tests, treat whatever, then get back to running.

    Best
  • laurettas
    laurettas Member Posts: 372

    words are not enough! so thanks will have to do!
    my little boy keith 6 years old is looking at me, he said "why are you smiling."
    at the time i was just reading all your replies. they have really helped. alot.

    I honestly hoped all my alternatives would give me an edge, maybe they have. still i have a new challenge.

    so i breathe and maintain peace of mind.

    plan for the worst, hope for best!!!! thats been said here before.

    and i will keep the faith.

    yesterday i met my onc for 15 min, she handed me the pet order, will see her monday to discuss results and have game plan conventional outlined. from there i went to a brand new personal trainer to focus on weight training to gain muscle mass. he gave me one month for free, that six days a week. been twice and its excellent. they even help with stretching. then i went to the best cancer specialist doctor i have met so far. spent about 90 minutes with him, he reviewed my anti cancer life, he made many suggestions and improvements. he made constructive comments on all my supplements I MEAN ALL. i asked him if i was in the top ten of cancer patients, he said "yes". what does that mean anyway. i guess i wanted some reinforcement for all the effort i have put in, and the results so far.

    I have so many resources around me i feel humble and privileged. just dam lucky, my support team gawler foundation, quest for life, paul, ashley, anvi, theresa, tracie, brett, chris, sue, greg, tammy, alison, eva, darren, gareth. these guys are nds and doctors and nurses. I have everyone here with more combined crc experience and memory than any other board. i am glad ron and graig and emily have been around for so long. everyone of us here on forum 128 is special. lets keeps on posting and living and having fun.

    meanwhile i think i have a 6 week window to give some alternatives a try. number one at present is hyperthermia and and iv vit c done by the only doctor in australia offering it.
    the doctor is a legend, very impressive in the flesh. i got to know him at the conference on the weekend. cannot see a big downside to this treatment. it seems good value. and can happen before any chemo. they will not do chemo here until they can see mets on ct.
    http://www.alternative-cancer-care.com/Hyperthermia_Treatment.html
    http://www.ncbi.nlm.nih.gov/pubmed/22110227

    so what happened today,i did the pet. got lost in the hospital basement. turned right when i should have turned left. if you go in the wrong direction you end up in the morgue. I am not kidding you. I took a photo, just had to, and said well one day but not today!

    i saw my local doctor first thing this morning, he completed the analysis of my bloods. my vit d is 209 nMol/l how fantastic, just a bitchht about the cea. ha ha!!!!!!!!!!
    Its not toxic so i will stick to 10000iu a day.

    while i am a free agent i am going to hammer vit c orally 3 x 1000mg breaky lunch dinner.
    not much to loose in this game now.

    really working hard to perfect and stick to my protocol. i am weight training 7am six days a week, i am meditating for 6am daily without fail. being a bad vegan, added in some protien as advised lets say 50-100 grams a day. mainly fish or seafood.

    the crc or me is going to hell and soon. now the way i am praying i am sure it cannot be me. my daughter and i looked at the pet results, no report. neither of us could work it out. she said i have an upside down smile. i said "mum, keith and her is great, i'd be crazy to be happy while facing the risk of leaving them to soon", then she smiled and hugged me. she is 10 going on 100. her hugs pull me through. my wife has been amazing we meditated in the pet waiting room for 30 minutes holding hands. these alternatives are so easy to put into practice. i know they will help.

    the best to last. yippe i can reapply for disabled parking permit now my crc maybe back, so while waiting for my renewed permit at our motor registry, this very old lady sat besides me, she was hard at hearing. we smiled and she started complaining about all the problems she faced getting old and driving. she was over 80. i thought do i tell her about my cancer and pet today. "no" i just smiled and listened and chuckled to myself. she would have thought a pet to be a dog or cat anyway.

    its my new medium goal to get to 80 and to be winging about my frailities. i looked her in the eyes, gave her a little pat, a big smile and said loudly that i hope she has a wonderful day.

    each day is a bit more precious now the crc has risen.

    hugs,
    pete

    Pete,
    your life is always an adventure! Loved the story and keep on keepin' on thru this next adventure, whatever it may be!
  • thingy45
    thingy45 Member Posts: 632 Member
    Sorry to hear the news Pete.
    Sorry to hear the news Pete. BUT above all keep up the juicing etc, so you will be in optimum shape if an operation is in order.
    Prayers and positive thinking and vibes are being send your way.
    Hugs, Marjan
  • PhillieG
    PhillieG Member Posts: 4,866 Member

    words are not enough! so thanks will have to do!
    my little boy keith 6 years old is looking at me, he said "why are you smiling."
    at the time i was just reading all your replies. they have really helped. alot.

    I honestly hoped all my alternatives would give me an edge, maybe they have. still i have a new challenge.

    so i breathe and maintain peace of mind.

    plan for the worst, hope for best!!!! thats been said here before.

    and i will keep the faith.

    yesterday i met my onc for 15 min, she handed me the pet order, will see her monday to discuss results and have game plan conventional outlined. from there i went to a brand new personal trainer to focus on weight training to gain muscle mass. he gave me one month for free, that six days a week. been twice and its excellent. they even help with stretching. then i went to the best cancer specialist doctor i have met so far. spent about 90 minutes with him, he reviewed my anti cancer life, he made many suggestions and improvements. he made constructive comments on all my supplements I MEAN ALL. i asked him if i was in the top ten of cancer patients, he said "yes". what does that mean anyway. i guess i wanted some reinforcement for all the effort i have put in, and the results so far.

    I have so many resources around me i feel humble and privileged. just dam lucky, my support team gawler foundation, quest for life, paul, ashley, anvi, theresa, tracie, brett, chris, sue, greg, tammy, alison, eva, darren, gareth. these guys are nds and doctors and nurses. I have everyone here with more combined crc experience and memory than any other board. i am glad ron and graig and emily have been around for so long. everyone of us here on forum 128 is special. lets keeps on posting and living and having fun.

    meanwhile i think i have a 6 week window to give some alternatives a try. number one at present is hyperthermia and and iv vit c done by the only doctor in australia offering it.
    the doctor is a legend, very impressive in the flesh. i got to know him at the conference on the weekend. cannot see a big downside to this treatment. it seems good value. and can happen before any chemo. they will not do chemo here until they can see mets on ct.
    http://www.alternative-cancer-care.com/Hyperthermia_Treatment.html
    http://www.ncbi.nlm.nih.gov/pubmed/22110227

    so what happened today,i did the pet. got lost in the hospital basement. turned right when i should have turned left. if you go in the wrong direction you end up in the morgue. I am not kidding you. I took a photo, just had to, and said well one day but not today!

    i saw my local doctor first thing this morning, he completed the analysis of my bloods. my vit d is 209 nMol/l how fantastic, just a bitchht about the cea. ha ha!!!!!!!!!!
    Its not toxic so i will stick to 10000iu a day.

    while i am a free agent i am going to hammer vit c orally 3 x 1000mg breaky lunch dinner.
    not much to loose in this game now.

    really working hard to perfect and stick to my protocol. i am weight training 7am six days a week, i am meditating for 6am daily without fail. being a bad vegan, added in some protien as advised lets say 50-100 grams a day. mainly fish or seafood.

    the crc or me is going to hell and soon. now the way i am praying i am sure it cannot be me. my daughter and i looked at the pet results, no report. neither of us could work it out. she said i have an upside down smile. i said "mum, keith and her is great, i'd be crazy to be happy while facing the risk of leaving them to soon", then she smiled and hugged me. she is 10 going on 100. her hugs pull me through. my wife has been amazing we meditated in the pet waiting room for 30 minutes holding hands. these alternatives are so easy to put into practice. i know they will help.

    the best to last. yippe i can reapply for disabled parking permit now my crc maybe back, so while waiting for my renewed permit at our motor registry, this very old lady sat besides me, she was hard at hearing. we smiled and she started complaining about all the problems she faced getting old and driving. she was over 80. i thought do i tell her about my cancer and pet today. "no" i just smiled and listened and chuckled to myself. she would have thought a pet to be a dog or cat anyway.

    its my new medium goal to get to 80 and to be winging about my frailities. i looked her in the eyes, gave her a little pat, a big smile and said loudly that i hope she has a wonderful day.

    each day is a bit more precious now the crc has risen.

    hugs,
    pete

    A Parking Permit?!?!
    My doctors wouldn't allow me to have one. They wanted me to park as FAR away as possible, they encouraged the walking.
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    thingy45 said:

    Sorry to hear the news Pete.
    Sorry to hear the news Pete. BUT above all keep up the juicing etc, so you will be in optimum shape if an operation is in order.
    Prayers and positive thinking and vibes are being send your way.
    Hugs, Marjan

    Hey Pete..
    Sending prayers and everything good your way.....

    Jennie
  • lisa42
    lisa42 Member Posts: 3,625 Member

    words are not enough! so thanks will have to do!
    my little boy keith 6 years old is looking at me, he said "why are you smiling."
    at the time i was just reading all your replies. they have really helped. alot.

    I honestly hoped all my alternatives would give me an edge, maybe they have. still i have a new challenge.

    so i breathe and maintain peace of mind.

    plan for the worst, hope for best!!!! thats been said here before.

    and i will keep the faith.

    yesterday i met my onc for 15 min, she handed me the pet order, will see her monday to discuss results and have game plan conventional outlined. from there i went to a brand new personal trainer to focus on weight training to gain muscle mass. he gave me one month for free, that six days a week. been twice and its excellent. they even help with stretching. then i went to the best cancer specialist doctor i have met so far. spent about 90 minutes with him, he reviewed my anti cancer life, he made many suggestions and improvements. he made constructive comments on all my supplements I MEAN ALL. i asked him if i was in the top ten of cancer patients, he said "yes". what does that mean anyway. i guess i wanted some reinforcement for all the effort i have put in, and the results so far.

    I have so many resources around me i feel humble and privileged. just dam lucky, my support team gawler foundation, quest for life, paul, ashley, anvi, theresa, tracie, brett, chris, sue, greg, tammy, alison, eva, darren, gareth. these guys are nds and doctors and nurses. I have everyone here with more combined crc experience and memory than any other board. i am glad ron and graig and emily have been around for so long. everyone of us here on forum 128 is special. lets keeps on posting and living and having fun.

    meanwhile i think i have a 6 week window to give some alternatives a try. number one at present is hyperthermia and and iv vit c done by the only doctor in australia offering it.
    the doctor is a legend, very impressive in the flesh. i got to know him at the conference on the weekend. cannot see a big downside to this treatment. it seems good value. and can happen before any chemo. they will not do chemo here until they can see mets on ct.
    http://www.alternative-cancer-care.com/Hyperthermia_Treatment.html
    http://www.ncbi.nlm.nih.gov/pubmed/22110227

    so what happened today,i did the pet. got lost in the hospital basement. turned right when i should have turned left. if you go in the wrong direction you end up in the morgue. I am not kidding you. I took a photo, just had to, and said well one day but not today!

    i saw my local doctor first thing this morning, he completed the analysis of my bloods. my vit d is 209 nMol/l how fantastic, just a bitchht about the cea. ha ha!!!!!!!!!!
    Its not toxic so i will stick to 10000iu a day.

    while i am a free agent i am going to hammer vit c orally 3 x 1000mg breaky lunch dinner.
    not much to loose in this game now.

    really working hard to perfect and stick to my protocol. i am weight training 7am six days a week, i am meditating for 6am daily without fail. being a bad vegan, added in some protien as advised lets say 50-100 grams a day. mainly fish or seafood.

    the crc or me is going to hell and soon. now the way i am praying i am sure it cannot be me. my daughter and i looked at the pet results, no report. neither of us could work it out. she said i have an upside down smile. i said "mum, keith and her is great, i'd be crazy to be happy while facing the risk of leaving them to soon", then she smiled and hugged me. she is 10 going on 100. her hugs pull me through. my wife has been amazing we meditated in the pet waiting room for 30 minutes holding hands. these alternatives are so easy to put into practice. i know they will help.

    the best to last. yippe i can reapply for disabled parking permit now my crc maybe back, so while waiting for my renewed permit at our motor registry, this very old lady sat besides me, she was hard at hearing. we smiled and she started complaining about all the problems she faced getting old and driving. she was over 80. i thought do i tell her about my cancer and pet today. "no" i just smiled and listened and chuckled to myself. she would have thought a pet to be a dog or cat anyway.

    its my new medium goal to get to 80 and to be winging about my frailities. i looked her in the eyes, gave her a little pat, a big smile and said loudly that i hope she has a wonderful day.

    each day is a bit more precious now the crc has risen.

    hugs,
    pete

    Hugs to you, Pete
    Hi Pete,

    Sorry to hear the CEA is up. The waiting is so darn hard, I know! I am hoping and praying that the PET report you see on Monday will show nothing and that the upped CEA is just a fluke. I'm here cheering you on and praying too- take care-

    Lisa
  • toddi1973
    toddi1973 Member Posts: 41 Member
    i am crossing all fingers
    i am crossing all fingers that I have for you !
    best of luck with the results and a big thank you for your inspirations in this forum!

    best wishes from Florida ,

    toddi

    p.s. praying for you tonight
  • Nana b
    Nana b Member Posts: 3,030 Member
    here4lfe said:

    Jump on it
    Pete, I've been tracking you. You're in-tune with your body, and your attitude is upbeat. Take the tests, treat whatever, then get back to running.

    Best

    I went from 2, to 4, then up
    I went from 2, to 4, then up to 6.5. Then down to 6, just last month. With nothing showing on the pet or ct. Just keep doing what you're doing. Don't stress.

    It is, what it is, we have keep on pressing forward!

    Hugs!!
  • relaxoutdoors08
    relaxoutdoors08 Member Posts: 521 Member

    words are not enough! so thanks will have to do!
    my little boy keith 6 years old is looking at me, he said "why are you smiling."
    at the time i was just reading all your replies. they have really helped. alot.

    I honestly hoped all my alternatives would give me an edge, maybe they have. still i have a new challenge.

    so i breathe and maintain peace of mind.

    plan for the worst, hope for best!!!! thats been said here before.

    and i will keep the faith.

    yesterday i met my onc for 15 min, she handed me the pet order, will see her monday to discuss results and have game plan conventional outlined. from there i went to a brand new personal trainer to focus on weight training to gain muscle mass. he gave me one month for free, that six days a week. been twice and its excellent. they even help with stretching. then i went to the best cancer specialist doctor i have met so far. spent about 90 minutes with him, he reviewed my anti cancer life, he made many suggestions and improvements. he made constructive comments on all my supplements I MEAN ALL. i asked him if i was in the top ten of cancer patients, he said "yes". what does that mean anyway. i guess i wanted some reinforcement for all the effort i have put in, and the results so far.

    I have so many resources around me i feel humble and privileged. just dam lucky, my support team gawler foundation, quest for life, paul, ashley, anvi, theresa, tracie, brett, chris, sue, greg, tammy, alison, eva, darren, gareth. these guys are nds and doctors and nurses. I have everyone here with more combined crc experience and memory than any other board. i am glad ron and graig and emily have been around for so long. everyone of us here on forum 128 is special. lets keeps on posting and living and having fun.

    meanwhile i think i have a 6 week window to give some alternatives a try. number one at present is hyperthermia and and iv vit c done by the only doctor in australia offering it.
    the doctor is a legend, very impressive in the flesh. i got to know him at the conference on the weekend. cannot see a big downside to this treatment. it seems good value. and can happen before any chemo. they will not do chemo here until they can see mets on ct.
    http://www.alternative-cancer-care.com/Hyperthermia_Treatment.html
    http://www.ncbi.nlm.nih.gov/pubmed/22110227

    so what happened today,i did the pet. got lost in the hospital basement. turned right when i should have turned left. if you go in the wrong direction you end up in the morgue. I am not kidding you. I took a photo, just had to, and said well one day but not today!

    i saw my local doctor first thing this morning, he completed the analysis of my bloods. my vit d is 209 nMol/l how fantastic, just a bitchht about the cea. ha ha!!!!!!!!!!
    Its not toxic so i will stick to 10000iu a day.

    while i am a free agent i am going to hammer vit c orally 3 x 1000mg breaky lunch dinner.
    not much to loose in this game now.

    really working hard to perfect and stick to my protocol. i am weight training 7am six days a week, i am meditating for 6am daily without fail. being a bad vegan, added in some protien as advised lets say 50-100 grams a day. mainly fish or seafood.

    the crc or me is going to hell and soon. now the way i am praying i am sure it cannot be me. my daughter and i looked at the pet results, no report. neither of us could work it out. she said i have an upside down smile. i said "mum, keith and her is great, i'd be crazy to be happy while facing the risk of leaving them to soon", then she smiled and hugged me. she is 10 going on 100. her hugs pull me through. my wife has been amazing we meditated in the pet waiting room for 30 minutes holding hands. these alternatives are so easy to put into practice. i know they will help.

    the best to last. yippe i can reapply for disabled parking permit now my crc maybe back, so while waiting for my renewed permit at our motor registry, this very old lady sat besides me, she was hard at hearing. we smiled and she started complaining about all the problems she faced getting old and driving. she was over 80. i thought do i tell her about my cancer and pet today. "no" i just smiled and listened and chuckled to myself. she would have thought a pet to be a dog or cat anyway.

    its my new medium goal to get to 80 and to be winging about my frailities. i looked her in the eyes, gave her a little pat, a big smile and said loudly that i hope she has a wonderful day.

    each day is a bit more precious now the crc has risen.

    hugs,
    pete

    CEA 2nd Opinion 10 was the number
    Pete,
    I had a low CEA before surgery of 1.0. Post surgery pre chemo .5 and post Folfox .6 and at one year post diagnosis .5. My Mayo Oncologist decided since so low before surgery we would no longer do the CEA test as not reliable. In Arizona, I had my port flushed at another Cancer Center (not Mayo), this oncologist felt that I should have my CEA checked every 3 months and if it went above 10 yes 10 then we would start the scans earlier than every 6 months. Here is hoping that your 6 is just your body's response to your new healthy regiment or something unrelated. BUT it is good to have the checkup to be on the safe side.
    NB
  • relaxoutdoors08
    relaxoutdoors08 Member Posts: 521 Member
    k1 said:

    You got 'em
    My thoughts and prayers are with you.

    Try to enjoy the hell out of all the time you have before you have the scans and before you may (or may not) have to have surgery. Keep doing all those positive things you have been doing mentally and physically. Stay strong! Keep enjoying the time with your children as you have been.

    I'm sorry to say I wasted good time in life while I was feeling great from March to May of this year going through the same things you are now going through...worrying about rising CEA, having a CT scan that showed nothing, having a PET scan that also showed nothing, then finally having an MRI that showed something and ending up having a liver resection in June that really weakened me for a time.

    Now here I am, back on my feet at least some of the time even though getting regularly knocked down by chemo too, also having rising CEA every month again when it was also down six months ago right after surgery, and wondering what my halfway-through-chemo MRIs and CT scan will show after I have them next week.

    Again, my thoughts and prayers will be with you in this period of limbo for you to find out what is going on, and I hope for the best. Your journey has inspired so many.

    K1
    I hope I can maintain a more positive attitude through this process than I did last spring and not waste good living time consumed by fear and worry on a constant basis.

    Wishing you Healing Prayers
    K1,
    Wishing you Healing Prayers. Wishing you Daily Relaxation and Joy with your Pets.
    NB
  • lauragb
    lauragb Member Posts: 370 Member
    Sending love, light and
    Sending love, light and prayers your way. Hang in there.
    Laura
  • TMac52
    TMac52 Member Posts: 352
    lauragb said:

    Sending love, light and
    Sending love, light and prayers your way. Hang in there.
    Laura

    Prayers
    Sending happy thoughts and prayers bud. Tom
  • th_in_canada
    th_in_canada Member Posts: 46

    words are not enough! so thanks will have to do!
    my little boy keith 6 years old is looking at me, he said "why are you smiling."
    at the time i was just reading all your replies. they have really helped. alot.

    I honestly hoped all my alternatives would give me an edge, maybe they have. still i have a new challenge.

    so i breathe and maintain peace of mind.

    plan for the worst, hope for best!!!! thats been said here before.

    and i will keep the faith.

    yesterday i met my onc for 15 min, she handed me the pet order, will see her monday to discuss results and have game plan conventional outlined. from there i went to a brand new personal trainer to focus on weight training to gain muscle mass. he gave me one month for free, that six days a week. been twice and its excellent. they even help with stretching. then i went to the best cancer specialist doctor i have met so far. spent about 90 minutes with him, he reviewed my anti cancer life, he made many suggestions and improvements. he made constructive comments on all my supplements I MEAN ALL. i asked him if i was in the top ten of cancer patients, he said "yes". what does that mean anyway. i guess i wanted some reinforcement for all the effort i have put in, and the results so far.

    I have so many resources around me i feel humble and privileged. just dam lucky, my support team gawler foundation, quest for life, paul, ashley, anvi, theresa, tracie, brett, chris, sue, greg, tammy, alison, eva, darren, gareth. these guys are nds and doctors and nurses. I have everyone here with more combined crc experience and memory than any other board. i am glad ron and graig and emily have been around for so long. everyone of us here on forum 128 is special. lets keeps on posting and living and having fun.

    meanwhile i think i have a 6 week window to give some alternatives a try. number one at present is hyperthermia and and iv vit c done by the only doctor in australia offering it.
    the doctor is a legend, very impressive in the flesh. i got to know him at the conference on the weekend. cannot see a big downside to this treatment. it seems good value. and can happen before any chemo. they will not do chemo here until they can see mets on ct.
    http://www.alternative-cancer-care.com/Hyperthermia_Treatment.html
    http://www.ncbi.nlm.nih.gov/pubmed/22110227

    so what happened today,i did the pet. got lost in the hospital basement. turned right when i should have turned left. if you go in the wrong direction you end up in the morgue. I am not kidding you. I took a photo, just had to, and said well one day but not today!

    i saw my local doctor first thing this morning, he completed the analysis of my bloods. my vit d is 209 nMol/l how fantastic, just a bitchht about the cea. ha ha!!!!!!!!!!
    Its not toxic so i will stick to 10000iu a day.

    while i am a free agent i am going to hammer vit c orally 3 x 1000mg breaky lunch dinner.
    not much to loose in this game now.

    really working hard to perfect and stick to my protocol. i am weight training 7am six days a week, i am meditating for 6am daily without fail. being a bad vegan, added in some protien as advised lets say 50-100 grams a day. mainly fish or seafood.

    the crc or me is going to hell and soon. now the way i am praying i am sure it cannot be me. my daughter and i looked at the pet results, no report. neither of us could work it out. she said i have an upside down smile. i said "mum, keith and her is great, i'd be crazy to be happy while facing the risk of leaving them to soon", then she smiled and hugged me. she is 10 going on 100. her hugs pull me through. my wife has been amazing we meditated in the pet waiting room for 30 minutes holding hands. these alternatives are so easy to put into practice. i know they will help.

    the best to last. yippe i can reapply for disabled parking permit now my crc maybe back, so while waiting for my renewed permit at our motor registry, this very old lady sat besides me, she was hard at hearing. we smiled and she started complaining about all the problems she faced getting old and driving. she was over 80. i thought do i tell her about my cancer and pet today. "no" i just smiled and listened and chuckled to myself. she would have thought a pet to be a dog or cat anyway.

    its my new medium goal to get to 80 and to be winging about my frailities. i looked her in the eyes, gave her a little pat, a big smile and said loudly that i hope she has a wonderful day.

    each day is a bit more precious now the crc has risen.

    hugs,
    pete

    Good wishes
    Hope all goes well on Monday for you. I love your big smile in your picture.
    Tricia
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    more tears, tears of joy, my pet is as clear as a bell, what now
    so i am not out of the woods yet, got another cea 9th december and see onc on the 12th.

    thankyou god, thankyou everyone for your kind thoughts and wishes and prayers.

    as i mentioned i had been planning for the worst and hoping for the best. finally at last my wife agreed to sell a property in the city so i would not be so limited in choosing the cheapest supplements. i wanted the money to goto germany to do hyperthermia, to try whatever exotic treatment was the most promising.

    i had been stage 4 in the head for 6 days, now i am back to stage 3.

    maybe the cea is a fluke, maybe its the malaria i got 2 months ago. my doctors were worried.

    now i have a clear pet under my belt and i am extra positive if that were possible.

    maybe all the effort in all the alternatives has helped. well tell will tell. i just hope so.

    you see i was very very worried, i have given this fight every once i have got. to raise the the prospect of the stage 4 battle was confronting.

    that relentless little **** crc cell, that despite my 1000s of juices and kilometers on the treadmill and all the vitamin d, all the disgusting tcm teas, all the weight i have lost, all the supplements and it still kept on coming. that freaked me right out.

    the two new stage 4 supplements are 5gm of melatonin daily and 20ml iscador x 3 per week i inject into to my tummy.

    I have the greatest respect for my stage 4 friends here and at rest. i thought of roger and kerry over the last few days as well as the ned crew. i dont think of symptoms with stage 4 i think of peoples stories and how priviliged i am, we are that we share them.

    what a wonderful day, i am still smiling. for me a small miracle but a day in my life i will never forget. i dried my tears of joy as i was injecting my first iscador.

    uncertainty is the hallmark of my life. i just hope we all see the beauty in each day around us.

    just lots of hugs back at all of you.

    i hope this news brings a smile for you, it did for me.

    in our prayers tonight my kids thanked jesus, i did to. i owe him.

    hugs,
    Pete