Follicular NHL at age of 33

2

Comments

  • Davis285
    Davis285 Member Posts: 15
    bluerose said:

    A little story about 'the dark'
    I was moved to share this with you Davis. I was listening to the Sunday sermon on TV last weekend as I am not well enough to go to church physically so have found a good TV church to get my fix. lol.

    Anywho I was listening to a sermon about the light and the dark and the simple symbolism that the pastor used was pretty effective for me and thought it might be a good image for you to carry around too.

    The Pastor brought in a suitcase to demonstrate her point. She said that all that 'the dark' is is really the absence of light and that all you have to do to get rid of the dark is open the suitcase and light overtakes it. Light ALWAYS OVERTAKES THE DARK. ALWAYS. So when you are feeling that 'dark' feeling - open your mental 'suitcase' and it will be gone. Light is much more powerful than the dark - when the Pastor opened the suitcase there was no struggle, the dark had to leave and allow the light to take over.

    Simple analogy but it really stuck with me. Hope this helps if only for a bit.

    Take good care.

    Blessings,

    Bluerose

    I felt the "dark" yesterday
    Hello Bluerose,
    These couple of days I am having abdominal pain and constipation. Yesterday, my belly looked like 3 months pregnagnt. I finally was able to go to the bathroom and relax my body but the pain in my abdomen still there. It's under my rib (I think is the mass putting presion on my body). Yesterday I was getting angry and in "the dark". "The dark" was acting in me and giving me the feeling that the medicine was not working, that I am not getting better and the "what if thought" :( I was getting very irritated in the house that my husband told me that I needed to go out for a bit. I decided to go out of the house and I took the kids with me. While I was driving I cried and I was upset with myself. I asked the Lord to please help me as I don't want to loose my Faith and Trust in Him. Finally I ended up in Toys R Us with the boys looking around and buying something for them. I enjoyed my time with them looking around this store full of toys! I took my time and I didn't rush them. We looked at every single isle in the store until we finally found a toy for everyone. The Lord gave me peace. I opened my briefcase and I didn't let the "dark" take over me. I was not alone, I was with my boys and they opened the case of Joy and light in my life again! Thank you BlueRose! I needed to read this :) My spirit is up again and with more power to fight the "dark" ;) --hugs--
  • Davis285
    Davis285 Member Posts: 15
    JoanieP said:

    Welcome
    Sorry you are joining us under these circumstances but there are wonderful people on this site that have helped so many including me. I was dx in jan 2009 and began chemo in Mar, GONE in June and have been back to work since then(except summers) Going back to fifth graders next week and I feel very blessed. You have a great attitude and you know God is good and in control. You will get to the other side of this journey with lessons learned and living and loving every minute. Godd luck on your journey. Joanie

    Thank you Joanie! I am glad
    Thank you Joanie! I am glad I can count with all of you :) I will defenitely express my feeling with you all ;)
  • allmost60
    allmost60 Member Posts: 3,178 Member
    Davis285 said:

    I felt the "dark" yesterday
    Hello Bluerose,
    These couple of days I am having abdominal pain and constipation. Yesterday, my belly looked like 3 months pregnagnt. I finally was able to go to the bathroom and relax my body but the pain in my abdomen still there. It's under my rib (I think is the mass putting presion on my body). Yesterday I was getting angry and in "the dark". "The dark" was acting in me and giving me the feeling that the medicine was not working, that I am not getting better and the "what if thought" :( I was getting very irritated in the house that my husband told me that I needed to go out for a bit. I decided to go out of the house and I took the kids with me. While I was driving I cried and I was upset with myself. I asked the Lord to please help me as I don't want to loose my Faith and Trust in Him. Finally I ended up in Toys R Us with the boys looking around and buying something for them. I enjoyed my time with them looking around this store full of toys! I took my time and I didn't rush them. We looked at every single isle in the store until we finally found a toy for everyone. The Lord gave me peace. I opened my briefcase and I didn't let the "dark" take over me. I was not alone, I was with my boys and they opened the case of Joy and light in my life again! Thank you BlueRose! I needed to read this :) My spirit is up again and with more power to fight the "dark" ;) --hugs--

    "dark" days...
    Hi Monica,
    There are a few things you need to remember while doing the CVP-R chemo. The Vincristine..(V) in the chemo is notorious for causing constipation. What helped me immensely was taking 2 tablets of Senokot-S EVERY night after my diner throughout the entire 6 rounds of treatment. It's a mild stool softner(not a laxative). I still take it on a regular basis while doing my Rituxan Maint and no longer have any problems with constipation. I get mine at Walmart. Also, the Prednisone..(P) stays in your body during the entire chemo regimine and has a tendency to mess with your mood swings. My moods were very intense during the 5 days of high dose pred, but I also knowticed many days of anxiety in the 21 day cycle between chemo's and high doses of pred. It wasn't until 3 or 4 months "after" finishing my CVP-R that I knowticed I was no longer having moody "dark" days. Something else I knowticed with the pred was how it affected the shape of my body. I developed a small pooch in my tummy and fat deposits in area's I NEVER had fat before. I did some extensive reading on Prednisone and learned how it affects many areas in our body and how it can take upwards of a year(sometimes longer) to completely get out of our system. Weight gain is very common, and loosing the weight after we are off of it is very hard. I read many prednisone patient testimonials where folks said their body shape changed after taking it. So..the bottom line is always remembering that the medicine(poison) we take to fight the cancer will no doubt make changes to our body that may last for many years and possibly forever. Thats where our "new normal" comes into play, and learning how to cope with the new changes, which might end up being permanent. I try to look at it as a small price to pay in order to stay alive. I hope some of this info is helpful. Mind you...I can only say how things affected me, so remember...we all re-act differently and what works for one or affects one, might not work or affect another in the same way. This cancer business and fighting it, is quite the ride! Hang in there dear.
    Love...Sue (FNHL-2-3A-6/10)
  • bluerose
    bluerose Member Posts: 1,104
    Davis285 said:

    I felt the "dark" yesterday
    Hello Bluerose,
    These couple of days I am having abdominal pain and constipation. Yesterday, my belly looked like 3 months pregnagnt. I finally was able to go to the bathroom and relax my body but the pain in my abdomen still there. It's under my rib (I think is the mass putting presion on my body). Yesterday I was getting angry and in "the dark". "The dark" was acting in me and giving me the feeling that the medicine was not working, that I am not getting better and the "what if thought" :( I was getting very irritated in the house that my husband told me that I needed to go out for a bit. I decided to go out of the house and I took the kids with me. While I was driving I cried and I was upset with myself. I asked the Lord to please help me as I don't want to loose my Faith and Trust in Him. Finally I ended up in Toys R Us with the boys looking around and buying something for them. I enjoyed my time with them looking around this store full of toys! I took my time and I didn't rush them. We looked at every single isle in the store until we finally found a toy for everyone. The Lord gave me peace. I opened my briefcase and I didn't let the "dark" take over me. I was not alone, I was with my boys and they opened the case of Joy and light in my life again! Thank you BlueRose! I needed to read this :) My spirit is up again and with more power to fight the "dark" ;) --hugs--

    Hey there Davis
    Oh I am so pleased the story I relayed in here helped you, it helped me too when I heard it on my tv church last Sunday. I knew someone might be able to use it as it lifted me up too when I heard it first.

    Yuppers, you will have those dark days as we all do but you did the total right thing and that was to plunge yourself into your kids and do something totally fun - not only does it distract us but it allows the light into our lives again as you said.

    The dark has nothing on the light, remember that. One thing though, might be a better idea to have someone drive you when you are feeling down, crying and blurring your vision while driving with the kids might not be the best idea and our decision making can be compromised when we are upset. I say that because I did that once and almost had an accident, it was a close one, just thought I would share.

    Hugs back and glad I could help.

    Blessings,

    Bluerose
  • 711tom
    711tom Member Posts: 44
    Hi Monica
    I was also 33 when I was DX with NHL stage 4 Follicular. I went through CHOP in 1993/94, 9 times in 6 months and have had a few relapses and been through a few other treatments but I am now 53, in complete remission and run about 10 miles a week feeling good. My only advice would be to be patient as you go through the treatment. It seems like it takes forever but you get through it and having a strong family and support system (as I did) really gets you through it all. Stay strong and I feel you will be fine, you have a long life ahead of you!!

    George
  • Davis285
    Davis285 Member Posts: 15
    711tom said:

    Hi Monica
    I was also 33 when I was DX with NHL stage 4 Follicular. I went through CHOP in 1993/94, 9 times in 6 months and have had a few relapses and been through a few other treatments but I am now 53, in complete remission and run about 10 miles a week feeling good. My only advice would be to be patient as you go through the treatment. It seems like it takes forever but you get through it and having a strong family and support system (as I did) really gets you through it all. Stay strong and I feel you will be fine, you have a long life ahead of you!!

    George

    NEWS!
    Hello My Dear Friends,

    I just want to share with you some news about me. Last Tuesday was my 5th chemo and prior days to that I had a PET/CAT SCAN. My results were that 60% of the masses had shrunk and the doctor expects to be gone by my 6th treatment. If not, then I will have to do more chemo's until is gone. I am very happy for this news! I can't Thank God enough for this positive results!! I am healing and that's the most important. The medicine is working and that makes me happy :) I believe in the power of prayer and I know that The Lord listens to everyone's prayers in a lovely and merciful way. I thank you for your support and I know I can count with you. I would like to know your point of view and if you have any advice for me to do next. After this chemo I feel more tired and with low energy. I am eating a lot as always and I gained 20 pounds so far. Prednisone sometimes gets me in a bad mood but I try to control myself. Hope to hear from you soon. --Blessings to you all--
  • jimwins
    jimwins Member Posts: 2,107
    Davis285 said:

    NEWS!
    Hello My Dear Friends,

    I just want to share with you some news about me. Last Tuesday was my 5th chemo and prior days to that I had a PET/CAT SCAN. My results were that 60% of the masses had shrunk and the doctor expects to be gone by my 6th treatment. If not, then I will have to do more chemo's until is gone. I am very happy for this news! I can't Thank God enough for this positive results!! I am healing and that's the most important. The medicine is working and that makes me happy :) I believe in the power of prayer and I know that The Lord listens to everyone's prayers in a lovely and merciful way. I thank you for your support and I know I can count with you. I would like to know your point of view and if you have any advice for me to do next. After this chemo I feel more tired and with low energy. I am eating a lot as always and I gained 20 pounds so far. Prednisone sometimes gets me in a bad mood but I try to control myself. Hope to hear from you soon. --Blessings to you all--

    Congrats on the good news!
    Celebration on the good news, Davis.

    Prednisone is nasty stuff. My blood pressure rises, I can't sleep, I get
    grumpy and moody, and when it is out of the system, I crash like a falling
    kite :).

    I'm at the hospital and just happen to be on my very last cycle and as of 10 minutes
    ago, my very last bag of chemo. I will hopefully be out of here around
    3-4pm tomorrow. Chemotherapy complete - forever I hope :).

    I started R-EPOCH back in early May, had a surgical interruption and resumed
    the 6 cycle treatment. After cycle 4, PET scan shows clear but oncologist
    wanted to finish out the cycles. We're all optimistic here!

    I share this becuase I've had the fortune of being blessed throughout all
    of this and I'm grateful and I know prayers and positive thoughts have
    helped me in this journey so far.

    So, I'm passing positive and warm thoughts on to you.

    Big hugs to you!

    Jim
  • forme
    forme Member Posts: 1,161 Member
    jimwins said:

    Congrats on the good news!
    Celebration on the good news, Davis.

    Prednisone is nasty stuff. My blood pressure rises, I can't sleep, I get
    grumpy and moody, and when it is out of the system, I crash like a falling
    kite :).

    I'm at the hospital and just happen to be on my very last cycle and as of 10 minutes
    ago, my very last bag of chemo. I will hopefully be out of here around
    3-4pm tomorrow. Chemotherapy complete - forever I hope :).

    I started R-EPOCH back in early May, had a surgical interruption and resumed
    the 6 cycle treatment. After cycle 4, PET scan shows clear but oncologist
    wanted to finish out the cycles. We're all optimistic here!

    I share this becuase I've had the fortune of being blessed throughout all
    of this and I'm grateful and I know prayers and positive thoughts have
    helped me in this journey so far.

    So, I'm passing positive and warm thoughts on to you.

    Big hugs to you!

    Jim

    Great
    Hi Jim

    I just wanted to say that I am so happy for you. You are almost done. Hooray! When you get home, just start enjoying life. Make sure you get your rest too..

    I always love to read about folks who are done with treatment and or in remission. It is such encouraging news.

    You are so helpful on this site. I see many of your wonderful words to so many.
    Thanks for your kind support. Keep the humor coming..

    (((hugs)))
    Lisha
  • allmost60
    allmost60 Member Posts: 3,178 Member
    Davis285 said:

    NEWS!
    Hello My Dear Friends,

    I just want to share with you some news about me. Last Tuesday was my 5th chemo and prior days to that I had a PET/CAT SCAN. My results were that 60% of the masses had shrunk and the doctor expects to be gone by my 6th treatment. If not, then I will have to do more chemo's until is gone. I am very happy for this news! I can't Thank God enough for this positive results!! I am healing and that's the most important. The medicine is working and that makes me happy :) I believe in the power of prayer and I know that The Lord listens to everyone's prayers in a lovely and merciful way. I thank you for your support and I know I can count with you. I would like to know your point of view and if you have any advice for me to do next. After this chemo I feel more tired and with low energy. I am eating a lot as always and I gained 20 pounds so far. Prednisone sometimes gets me in a bad mood but I try to control myself. Hope to hear from you soon. --Blessings to you all--

    Davis and Jim..
    Hi,
    Davis, I'm glad the tumors have shrunk and you only have one more treatment to go."YEAH"! I'm 9 months out from my last chemo treatment and I still don't have my energy back 100%. It takes time, or so I'm told, so I guess we just have to be patient and wait for it to pick up. The pred can cause weight gain, but at your young age the extra pounds might be easier to take off than someone my age. I wouldn't work too hard at getting back down to your prior weight until after your done with treatment and given yourself time to recover. Keep us posted on how things go...Love, Sue (FNHL-2-3A-6/10)



    Hi Jim,
    "Yeah"...todays your last treatment!!! It's such an awesome feeling to get the last one under your belt. No more pred... "B-I-G YEAH"!!! ha! I'm so happy for you! When you go home tomorrow just relax and let your body heal...it's been through a battle and needs a good break. Best wishes....Sue (FNHL-2-3A-6/10)
  • jimwins
    jimwins Member Posts: 2,107
    allmost60 said:

    Davis and Jim..
    Hi,
    Davis, I'm glad the tumors have shrunk and you only have one more treatment to go."YEAH"! I'm 9 months out from my last chemo treatment and I still don't have my energy back 100%. It takes time, or so I'm told, so I guess we just have to be patient and wait for it to pick up. The pred can cause weight gain, but at your young age the extra pounds might be easier to take off than someone my age. I wouldn't work too hard at getting back down to your prior weight until after your done with treatment and given yourself time to recover. Keep us posted on how things go...Love, Sue (FNHL-2-3A-6/10)



    Hi Jim,
    "Yeah"...todays your last treatment!!! It's such an awesome feeling to get the last one under your belt. No more pred... "B-I-G YEAH"!!! ha! I'm so happy for you! When you go home tomorrow just relax and let your body heal...it's been through a battle and needs a good break. Best wishes....Sue (FNHL-2-3A-6/10)

    Lisha and Sue,
    Thank you so

    Lisha and Sue,

    Thank you so much!

    It's going to be a little weird in about a month not having to
    come in for the chemo. I won't know what to do with myself.
    At least I have plenty of Joe Boxer pants to run around the
    the house in :). Maybe I should keep a hospital gown for
    old times sake - I DON'T THINK SO.

    You guys are awesome and all positives and hugs back at you!

    Jim
  • anliperez915
    anliperez915 Member Posts: 770
    Davis285 said:

    NEWS!
    Hello My Dear Friends,

    I just want to share with you some news about me. Last Tuesday was my 5th chemo and prior days to that I had a PET/CAT SCAN. My results were that 60% of the masses had shrunk and the doctor expects to be gone by my 6th treatment. If not, then I will have to do more chemo's until is gone. I am very happy for this news! I can't Thank God enough for this positive results!! I am healing and that's the most important. The medicine is working and that makes me happy :) I believe in the power of prayer and I know that The Lord listens to everyone's prayers in a lovely and merciful way. I thank you for your support and I know I can count with you. I would like to know your point of view and if you have any advice for me to do next. After this chemo I feel more tired and with low energy. I am eating a lot as always and I gained 20 pounds so far. Prednisone sometimes gets me in a bad mood but I try to control myself. Hope to hear from you soon. --Blessings to you all--

    Hi Davis
    Hi Davis;
    Thank God that you're getting great results and everything that your going through is worth it because we'll give everything to be with our kids and family more time...don't worry about the pounds sooo much because like somebody already said before me they are a small price to pay for our good health, you can always get some exercise done or eat healthier in the future when you feel better...
    God Bless you and your family...

    Sincerely,

    Liz
  • MammaDuck
    MammaDuck Member Posts: 1
    Follicular NHL
    Monica,
    I also had NHL Follicular Bcell Stage 4. My bone marrow was 20% infected. I was diagnosed in May of 2007.I was in my late 40's. I am presently in remission! I had a lot of aches and pains after chemo and rituxan. I took L-Glutamine. I would just take a spoonful and mix it in bottled water in the morning with flavoring. It helped a lot.
    I had 6 CHOP treatments w/Rituxan then a follow up of 8 treatments of rituxan over 2 years. The rituxan often left me feeling like I had the flu for a day or so.
    There is life after Cancer. I ran in the Circle of Life 5K race a year after treatment. I went back to school to become a teacher. I have made a bucket List and have done several things. Some I never would have dreamed of doing before!
    I wish you the best of luck with your treatment. Stay positive and take care of yourself.

    I started looking on this site because the one longterm effect for me is my memory and attention span just don't seem to be what they once were. Anyone else have this problem?
  • Davis285
    Davis285 Member Posts: 15
    MammaDuck said:

    Follicular NHL
    Monica,
    I also had NHL Follicular Bcell Stage 4. My bone marrow was 20% infected. I was diagnosed in May of 2007.I was in my late 40's. I am presently in remission! I had a lot of aches and pains after chemo and rituxan. I took L-Glutamine. I would just take a spoonful and mix it in bottled water in the morning with flavoring. It helped a lot.
    I had 6 CHOP treatments w/Rituxan then a follow up of 8 treatments of rituxan over 2 years. The rituxan often left me feeling like I had the flu for a day or so.
    There is life after Cancer. I ran in the Circle of Life 5K race a year after treatment. I went back to school to become a teacher. I have made a bucket List and have done several things. Some I never would have dreamed of doing before!
    I wish you the best of luck with your treatment. Stay positive and take care of yourself.

    I started looking on this site because the one longterm effect for me is my memory and attention span just don't seem to be what they once were. Anyone else have this problem?

    News & Zevalin
    Dear friends! Just want to give an update about me. Praise The Lord doctor told me the week before Thanksgiving that I was in remission. I had tears of joy when he said those words. The Lord made everything perfect and I was able to have a wonderful Christmas with my family and my kids. My body recovered very well and I felt with energy to do things and very happy that my body was going back to normal little by little. This week I have my next procedure which is the Zevalin. Dr gave me indications and side effects. I'd like to know if any of you had it and if you could share your experience with me.
    I send you all big hugs and wishing you a Happy and Healthy New Year! We are all in the same boat and we are here to help each other with the Love, Support and Mercy of our Lord Jesus Christ who straighten us everyday!
  • forme
    forme Member Posts: 1,161 Member
    Davis285 said:

    News & Zevalin
    Dear friends! Just want to give an update about me. Praise The Lord doctor told me the week before Thanksgiving that I was in remission. I had tears of joy when he said those words. The Lord made everything perfect and I was able to have a wonderful Christmas with my family and my kids. My body recovered very well and I felt with energy to do things and very happy that my body was going back to normal little by little. This week I have my next procedure which is the Zevalin. Dr gave me indications and side effects. I'd like to know if any of you had it and if you could share your experience with me.
    I send you all big hugs and wishing you a Happy and Healthy New Year! We are all in the same boat and we are here to help each other with the Love, Support and Mercy of our Lord Jesus Christ who straighten us everyday!

    Congratulations
    Hi Monica

    Just wanted to say congratulations on your remission. What wonderful news.
    Wishing you many happy family days ahead.

    Lisha
  • jimwins
    jimwins Member Posts: 2,107
    Davis285 said:

    News & Zevalin
    Dear friends! Just want to give an update about me. Praise The Lord doctor told me the week before Thanksgiving that I was in remission. I had tears of joy when he said those words. The Lord made everything perfect and I was able to have a wonderful Christmas with my family and my kids. My body recovered very well and I felt with energy to do things and very happy that my body was going back to normal little by little. This week I have my next procedure which is the Zevalin. Dr gave me indications and side effects. I'd like to know if any of you had it and if you could share your experience with me.
    I send you all big hugs and wishing you a Happy and Healthy New Year! We are all in the same boat and we are here to help each other with the Love, Support and Mercy of our Lord Jesus Christ who straighten us everyday!

    Congratulations - Happy Dance in order :)
    Happy Dance for Monica :)
    Hope you like "kitties" ;).


    Happy Dance Prayers For You :)

    Hugs and positive thoughts,

    Jim
    DX: DLBL 4/2011, Chemo completed 10/2011, currently in remission. :)
    Members are sharing recipes!:
    ♥ Recipe Sharing Project
  • allmost60
    allmost60 Member Posts: 3,178 Member
    Davis285 said:

    News & Zevalin
    Dear friends! Just want to give an update about me. Praise The Lord doctor told me the week before Thanksgiving that I was in remission. I had tears of joy when he said those words. The Lord made everything perfect and I was able to have a wonderful Christmas with my family and my kids. My body recovered very well and I felt with energy to do things and very happy that my body was going back to normal little by little. This week I have my next procedure which is the Zevalin. Dr gave me indications and side effects. I'd like to know if any of you had it and if you could share your experience with me.
    I send you all big hugs and wishing you a Happy and Healthy New Year! We are all in the same boat and we are here to help each other with the Love, Support and Mercy of our Lord Jesus Christ who straighten us everyday!

    Happy for you..
    Hi Monica,
    So glad you are in remission.."YEAH"! I do not know anything about Zevalin, but do know we have a couple of folks in the group that have done the treatment. Hopefully they will chime in soon and answer your questions. "Happy New Year" to you my dear, and ALL of us...we've earned a better year!!! Much love...Sue (FNHL-2-3A-6/10)
  • anliperez915
    anliperez915 Member Posts: 770
    Davis285 said:

    News & Zevalin
    Dear friends! Just want to give an update about me. Praise The Lord doctor told me the week before Thanksgiving that I was in remission. I had tears of joy when he said those words. The Lord made everything perfect and I was able to have a wonderful Christmas with my family and my kids. My body recovered very well and I felt with energy to do things and very happy that my body was going back to normal little by little. This week I have my next procedure which is the Zevalin. Dr gave me indications and side effects. I'd like to know if any of you had it and if you could share your experience with me.
    I send you all big hugs and wishing you a Happy and Healthy New Year! We are all in the same boat and we are here to help each other with the Love, Support and Mercy of our Lord Jesus Christ who straighten us everyday!

    Congratulations!
    Congratulations Monica,
    On kicking the cancer's butt, I'm really happy that that your better! Just take care of yourself and wishing you a great healthy new year to you and your family.

    Sincerely,
    Liz
  • rclaxb
    rclaxb Member Posts: 13
    RCHOP
    Hi Monica,

    I did RCHOP Nov. 2009-Feb. 2010. Just so you know, the Rituxam caused me no problems. Know that my symptoms of being tired and lost of teast got worse after each chemp cycle. Wed. I will have my last Rituxam maint. treatment after 2 years every three months. These sessions have not been bad. Only main issue is not being able to sleep the night of the treatments and being tired for about four days. Hang in there. My primary felt zololf would help me and it has made a big diffence in my attitude.
  • caregiver1829
    caregiver1829 Member Posts: 51

    Follicular Lymphoma
    Hi Monica - you've heard from Sue and Bluerose, two VERY positive gals on this site who have helped me a lot this past year. Welcome, Sinatra.

    I'm 68, have FNHL, stage 4 also, Indolent B cell. Did watchful waiting for 9 months, then last June started CVP-R every 21 days. I shrank my abdominal tumor from 15cm to 9 cm - not enough. In November started a newer chemo, Treanda/Bendamustine with a high success rate and my Dr. also added R to it. It was a very difficult treatment for me and ended April 14. Shrank tumor to 3.8 cm but not yet in remission. Tomorrow, July 27, I start my first Rituxan alone maintenance treatment every two months.

    Your faith and positive attitude will be the two things that will see you through the future. I agree with Bluerose - I'm on dozens of church prayer lists and know that's why I'm still smiling and doing so well. God bless and keep in touch with this site - Fran in Florida

    treanda, whats the results?
    Hi cookingirl, Im hunting for results for treanda.. My wife may be starting this chemo soon. she s had r-chop in 08, blood stem cell transplant for big b n dec 2010 had maint rituxin in july 2011 jan 2012 and this year and the pt scan this month shows something is back.. she s scheduled for biopsy Mar 1,2012.. and Treanda w/rituxin is what they are recommending..It would help us make that decision if we knew what the success rate is.. AND YES the strength of prayer does work and monica you ve got to stay positive even if you get set backs.. BUTT after 4 years shes already tired of being sick,, she says she ll never to a transplant again.. an out of body experience put the fear of god in her.. thanks Caregiver..
  • caregiver1829
    caregiver1829 Member Posts: 51
    Davis285 said:

    News & Zevalin
    Dear friends! Just want to give an update about me. Praise The Lord doctor told me the week before Thanksgiving that I was in remission. I had tears of joy when he said those words. The Lord made everything perfect and I was able to have a wonderful Christmas with my family and my kids. My body recovered very well and I felt with energy to do things and very happy that my body was going back to normal little by little. This week I have my next procedure which is the Zevalin. Dr gave me indications and side effects. I'd like to know if any of you had it and if you could share your experience with me.
    I send you all big hugs and wishing you a Happy and Healthy New Year! We are all in the same boat and we are here to help each other with the Love, Support and Mercy of our Lord Jesus Christ who straighten us everyday!

    how long
    davis did you take treanda with rituxin and for how long.. maint rituxin didnt succeed in keeping my wife in the clear.. we re waiting for biopsy to see what new cancer has made its day view// thanks caregiver,,
    ps congrads too,,