A little question about where your NHL was found, what part of your body?

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  • daisies
    daisies Member Posts: 2
    #82
    found in abdomin
    Docs thought my boyfriend had kidney stones so they ordered a CT scan. Shocking news to say the least. He had R-CHOP treatments and its been "GONE" since july 2010. bless you all!!!!
  • bluerose
    bluerose Member Posts: 1,104
    #83
    daisies said:

    found in abdomin
    Docs thought my boyfriend had kidney stones so they ordered a CT scan. Shocking news to say the least. He had R-CHOP treatments and its been "GONE" since july 2010. bless you all!!!!

    Found by accident
    Yup Daisies this happens a fair amount with all kinds of cancers. Doctors are looking for something else and find a cancer by mistake. The reason for that is because many cancers show no obvious symptoms until sometimes it's too late so finding a cancer in this way, seemingly by accident, I always think is kind of a miracle - that a totally different issue brought the cancer to the docs attention before it was too late. Sounds like a miracle happened to your boyfriend - led docs to the cancer through a kidney stone issue.

    Hope all goes well for your boyfriend.

    Blessings,

    Bluerose
  • tiger39m9
    tiger39m9 Member Posts: 1
    #84
    bluerose said:

    Found by accident
    Yup Daisies this happens a fair amount with all kinds of cancers. Doctors are looking for something else and find a cancer by mistake. The reason for that is because many cancers show no obvious symptoms until sometimes it's too late so finding a cancer in this way, seemingly by accident, I always think is kind of a miracle - that a totally different issue brought the cancer to the docs attention before it was too late. Sounds like a miracle happened to your boyfriend - led docs to the cancer through a kidney stone issue.

    Hope all goes well for your boyfriend.

    Blessings,

    Bluerose

    NHL
    in Dec of 2010 had cramping in lower abdomin, it would start out like 4 days cramping and 3 days i would be fine. it did this all mounth long in dec of 2010.

    now jan 3 of 2011 i whent into the hospital with the cramping and the pain was getting worse, they did a ct scan and found a large mass in my lower abdomin, they tried to
    do the biopsy with the scope thingy not sure of what its called but you know what i mean and they said it was in to dangerous of and area to use the scope to do the biopys
    so they did and open biopys on me with a 6in scar going down my belly and found a large lymnode in my neck.

    now Jan 8 of 2011 i got my Diag. which is High Grade Diffused Large B-Cell Lymphoma, Stage 3B

    i did 6cyc of r-chop with no radition finished that in jun 20, 2010 and the 2 pet scan since then shows a lot of scar tissue, but no active lymphoma , goto my 3 pet scan on jan 3 2012.

    but the troulbe i have now is with the scar tissue left since it was so much of it left
    mine was 3in wide by 6ih long and now i have a lot of adhesition to the scar tissue witch keep me in pain all the time
  • po18guy
    po18guy Member Posts: 1,465 Member
    #85
    Behind my left ear
    I simply put my left hand against the side of my head, like you might do when contemplating or sitting at a desk. Oh oh. By the time I was properly diagnosed, there were 53 others. Ugh. Did I mention that we must become our own advocates? That second opinions save lives? Oh, yeah!
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #86
    po18guy said:

    Behind my left ear
    I simply put my left hand against the side of my head, like you might do when contemplating or sitting at a desk. Oh oh. By the time I was properly diagnosed, there were 53 others. Ugh. Did I mention that we must become our own advocates? That second opinions save lives? Oh, yeah!

    Lumps
    I bet everyone that reads your post just checked behind their ears for any lumps. I know I did. It is strange sometimes where these lumps pop up. I never had any lumps that I could feel. Mine were all in my abdominal area,except for a very small one in my groin and shoulder area. John
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #87
    COBRA666 said:

    Lumps
    I bet everyone that reads your post just checked behind their ears for any lumps. I know I did. It is strange sometimes where these lumps pop up. I never had any lumps that I could feel. Mine were all in my abdominal area,except for a very small one in my groin and shoulder area. John

    Could feel mine...
    I could feel the lumps on my groin and neck, but couldn't feel the tumors in my stomach. I guess thats why I get a little anxious at times wondering if the tumors in my stomach are still "stable" since I didn't ever feel them in the first place. My CVP-R chemo knocked all of the tumors down, and the Rituxan maint is suppose to keep them down, but I still worry a bit since I don't get scans as often as others. I hated feeling and seeing the tumors on my groin and neck and was soooo relieved when they disappeared. Sue (FNHL-2-3A-6/10)
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #88
    allmost60 said:

    Could feel mine...
    I could feel the lumps on my groin and neck, but couldn't feel the tumors in my stomach. I guess thats why I get a little anxious at times wondering if the tumors in my stomach are still "stable" since I didn't ever feel them in the first place. My CVP-R chemo knocked all of the tumors down, and the Rituxan maint is suppose to keep them down, but I still worry a bit since I don't get scans as often as others. I hated feeling and seeing the tumors on my groin and neck and was soooo relieved when they disappeared. Sue (FNHL-2-3A-6/10)

    Lumps
    Sue,
    I could not feel the lumps in my abdominal area either. At least I did not notice them. The scan showed mine were rather large. He said to lay on my back in bed and press from the rib cage down to about the naval area. Your body is relaxed like that and anything that is not normal will show up to the touch. After my first treatment I went home and tryed it. Nothing felt any different than before. The next night I noticed that my abdominal area felt softer...almost smoother to the touch and my fingers seemed to go farther into the abdominal cavity. Within 3 days my stomach felt extremely soft. I never noticed it before. It was like they melted away in a few days. Thats why I say I never felt them to begin with. I never noticed there were any lumps there until after I had the 1st treatment.I think most people can press pretty far down into their abdominal cavity when all is clear and if there is anything there you would notice it knowing what to feel for. In my case in the beginning I did not know what I was feeling so it felt normal. John

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