almost 3 months out

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Comments

  • Greend
    Greend Member Posts: 678
    brigboo67 said:

    Mom
    My mom is 6 weeks out from rads. My sister and I are concerned because she is eating very little and is so thin. Somedays she has no desire to get out of bed. She still throws up alot. Her post rad petscan is Aug 29th. We lost my dad to his cancer during my mom's treatment. I just don't know what to do for my mom...she said she has no desire to eat or get out of bed. My sister and I have talked to her doctors and they all say "she has been through alot with her own cancer and losing her husband". My sister and I know this but we feel there has to be something that can be done. They have her on zoloft and ativan. I am hoping Monday brings good news and it will help her mental state.

    MOM
    I can't believe what she has been through, she must be one tough lady. Give her a hug from this bald headed Alabama survivor.

    My thoughts and prayers are with you.

    Denny
  • Hondo
    Hondo Member Posts: 6,636 Member
    Greend said:

    As stated so well here by those who have marched before you:

    1. End of treatment doesn't grant you and automatic "feel good pass" other than the one for not having to listen to that machine, wear that mask, drive to the doctor's office or inject the poison. Many of you are still cooking and yet disappointed that you aren't feeling better...that is not logical.

    2. You must take care of yourself and not over-do. Drink fluids and when you feel the beginning of fatigue then STOP and rest. Be aware of this and watch for being tired. It is a part of healing. This is easy to say but hard to do. You want so badly to be normal again that you push yourselves too hard and then have a set-back

    3. There is no magic "Wow I'm well and I feel great" number of days you have to suffer before feeling better. Some will be better in weeks and others in months.

    4. Focus on the positives. As stated above, Enjoy the Yay moments.

    5. You are going to have mucus problems and the crap will stick in the back of your throat. There is nothing you can do about that but there are things to make it less intrusive.

    It took months to destroy your body (and the cancer cells) so give yourself a break and allow yourself the time to heal. You and your caretakers have been through a very rough time, one that defeats many people so be proud you won but also be patient. Laugh at the mess your body is in, it will get better and it keeps you from crying.


    O'k Hondo, Sweet and Skiffen I'm off my soapbox.

    Soapbox

    You were doing so well! lol

    Hondo
  • Hondo
    Hondo Member Posts: 6,636 Member
    Greend said:

    As stated so well here by those who have marched before you:

    1. End of treatment doesn't grant you and automatic "feel good pass" other than the one for not having to listen to that machine, wear that mask, drive to the doctor's office or inject the poison. Many of you are still cooking and yet disappointed that you aren't feeling better...that is not logical.

    2. You must take care of yourself and not over-do. Drink fluids and when you feel the beginning of fatigue then STOP and rest. Be aware of this and watch for being tired. It is a part of healing. This is easy to say but hard to do. You want so badly to be normal again that you push yourselves too hard and then have a set-back

    3. There is no magic "Wow I'm well and I feel great" number of days you have to suffer before feeling better. Some will be better in weeks and others in months.

    4. Focus on the positives. As stated above, Enjoy the Yay moments.

    5. You are going to have mucus problems and the crap will stick in the back of your throat. There is nothing you can do about that but there are things to make it less intrusive.

    It took months to destroy your body (and the cancer cells) so give yourself a break and allow yourself the time to heal. You and your caretakers have been through a very rough time, one that defeats many people so be proud you won but also be patient. Laugh at the mess your body is in, it will get better and it keeps you from crying.


    O'k Hondo, Sweet and Skiffen I'm off my soapbox.

    .
    Ops one to many
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    Hondo said:

    Soapbox

    You were doing so well! lol

    Hondo

    Denny
    Dude, you can stay on the soap box. Saves me from being up there. Lol.
  • arndog64
    arndog64 Member Posts: 537

    Denny
    Dude, you can stay on the soap box. Saves me from being up there. Lol.

    I am aware that it takes a
    I am aware that it takes a long time to heal, and I do enjoy every minute I have with my husband. What I am trying to say, is that I am concerned that something is going on. He has not been feeling well since Friday, he said his mouth is changing and it is causing more pain, than normal. I think he is even concerned, he asked me last night when his Pet Scan was going to take place and what time. I was not complaining about the slow process, I am worried that the cancer may still be active!!!
  • jim and i
    jim and i Member Posts: 1,788 Member
    arndog64 said:

    I am aware that it takes a
    I am aware that it takes a long time to heal, and I do enjoy every minute I have with my husband. What I am trying to say, is that I am concerned that something is going on. He has not been feeling well since Friday, he said his mouth is changing and it is causing more pain, than normal. I think he is even concerned, he asked me last night when his Pet Scan was going to take place and what time. I was not complaining about the slow process, I am worried that the cancer may still be active!!!

    I can understand
    I know what you mean. Every thing that changes is frightening. Have you called his doctor and expressed your concern? I would think they are used to the calls. Until you get that first PET you always have it in the back of your mind that maybe they didn't get the cancer, I know it is always on my mind abd on our children's minds. We have a lot to be thankful for, this is true. I also know that I can find comfort in God. But when you have watched a loved one go through the treatment, you still fear the unknown. It would be much easier if they could do the PET right away but alas that is not possible.

    My prayers and thoughts are with you both.

    God's Peace,

    Debbie
  • arndog64
    arndog64 Member Posts: 537
    jim and i said:

    I can understand
    I know what you mean. Every thing that changes is frightening. Have you called his doctor and expressed your concern? I would think they are used to the calls. Until you get that first PET you always have it in the back of your mind that maybe they didn't get the cancer, I know it is always on my mind abd on our children's minds. We have a lot to be thankful for, this is true. I also know that I can find comfort in God. But when you have watched a loved one go through the treatment, you still fear the unknown. It would be much easier if they could do the PET right away but alas that is not possible.

    My prayers and thoughts are with you both.

    God's Peace,

    Debbie

    Actually, we go for our 3
    Actually, we go for our 3 month pet this Friday. Thank god! If it wasn't scheduled we would be going to the ENT for a scope, trust me on that!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    arndog64 said:

    Actually, we go for our 3
    Actually, we go for our 3 month pet this Friday. Thank god! If it wasn't scheduled we would be going to the ENT for a scope, trust me on that!

    Anxiety
    He might be having some anxiety adding to the situation. I know that I'm always a lot more apprehensive just before a scan....

    And more than likely, this early out nothing is going on, but the PET should confirm that.

    Thoughts and Prayers,
    John
  • arndog64
    arndog64 Member Posts: 537
    Skiffin16 said:

    Anxiety
    He might be having some anxiety adding to the situation. I know that I'm always a lot more apprehensive just before a scan....

    And more than likely, this early out nothing is going on, but the PET should confirm that.

    Thoughts and Prayers,
    John

    I hope it's anxiety. I think
    I hope it's anxiety. I think he is kinda scared. He would NEVER lead me to think that. I stress enough on my own.. LOL
  • KDDavis
    KDDavis Member Posts: 34
    Last Friday, Aug 19th,
    Last Friday, Aug 19th, marked my 12 weeks since my last rad treatment. My ENT told me that I should begin to see rapid improvements beginning around week 12. Another person I know who happens to be a cardiologist that had the same type of cancer I have (hopefully had by now!!) (tonsil cancer) told me that he was feeling his worst at week 8. Perhaps you will soon begin to see some improvement. I am seeing improvement but I still have pain in my throat. It seems to move around. Best wishes for better days ahead!
  • KareGiver
    KareGiver Member Posts: 301 Member
    KDDavis said:

    Last Friday, Aug 19th,
    Last Friday, Aug 19th, marked my 12 weeks since my last rad treatment. My ENT told me that I should begin to see rapid improvements beginning around week 12. Another person I know who happens to be a cardiologist that had the same type of cancer I have (hopefully had by now!!) (tonsil cancer) told me that he was feeling his worst at week 8. Perhaps you will soon begin to see some improvement. I am seeing improvement but I still have pain in my throat. It seems to move around. Best wishes for better days ahead!

    Thinking of you guys today
    And hope things went well at your appointment. Waiting for good news!
  • elwoodsinoakdale
    elwoodsinoakdale Member Posts: 71 Member
    KareGiver said:

    Thinking of you guys today
    And hope things went well at your appointment. Waiting for good news!

    Waiting
    Thinking of you today, good news today


    Linda