any stage 4 signet ring cell survivors out there

2

Comments

  • John23
    John23 Member Posts: 2,122 Member
    Pat -
    I am/was a stage 4 signet cell victim since 2006;
    I chose imported Chinese herbs rather than chemo.

    I wish you well regardless of your choice; there are
    no guarantees with any!

    Best of health,

    John
    --------------------

    OOOOPS

    Sorry gang, I didn't realize this was a repost from the past!

    Why Do People Do This?

    ugh.

    Best to all!

    John
  • mmikesell
    mmikesell Member Posts: 8
    good so far.
    My name is Mitch, 48 and I was diagnosed last July with appendix cancer. Stage 3c. It has both Goblet Cell and Signet ring cell cancers, very rare I've since found out. The appendix hadn't exploded yet so they were able to take it out. Had 24 lymph nodes taken 5 had cancer growing. I've had folfox for the 6 months and then nothing detected. At my 6 months my CEA was at 15 (from 4) and after lots of scans a 3/4 inch tumor was found on my abdomen wall. Just completed surgery to have that removed. They found nothing else. The pathology said it was all signet ring cell adenocarcenoma. I go see my oncologist on Wednesday to find out what the next plan is.

    My best thoughts and prayers for you!
  • laurettas
    laurettas Member Posts: 372
    mmikesell said:

    good so far.
    My name is Mitch, 48 and I was diagnosed last July with appendix cancer. Stage 3c. It has both Goblet Cell and Signet ring cell cancers, very rare I've since found out. The appendix hadn't exploded yet so they were able to take it out. Had 24 lymph nodes taken 5 had cancer growing. I've had folfox for the 6 months and then nothing detected. At my 6 months my CEA was at 15 (from 4) and after lots of scans a 3/4 inch tumor was found on my abdomen wall. Just completed surgery to have that removed. They found nothing else. The pathology said it was all signet ring cell adenocarcenoma. I go see my oncologist on Wednesday to find out what the next plan is.

    My best thoughts and prayers for you!

    Good luck, Mitch! My
    Good luck, Mitch! My husband, 58, was just diagnosed with stage 4 signet ring cell cancer of the colon. He had surgery and is now just past halfway on his first chemo treatment. He has cancer in his peritoneum, many lymph nodes and possibly lungs but has responded well to the chemo. Many of the spots are gone and the rest are smaller, CEA down to 13 from a high of 40 after surgery. He has had to leave Folfox after a severe reaction to Oxalyplatin and can't use Avastin because it gave him blood clots. He just had his first shot of Irinotecan last week and is waiting to see if he is a candidate for Erbitux. This is quite a roller coaster ride isn't it?!
  • SRC
    I was diagnosed in april, 2011 at age 48 with signet ring cell cancer in sigmoid. they tried to operate but it spread in peritoneum. It is scarry at our age. I have chosen not to get chemo at this time. It is Stage IV. Also, my sister was just diagnosed with rectal cancer but not signet ring cell. She has started radiation with chemo pills. Then IV chemo.
  • mmikesell
    mmikesell Member Posts: 8
    laurettas said:

    Good luck, Mitch! My
    Good luck, Mitch! My husband, 58, was just diagnosed with stage 4 signet ring cell cancer of the colon. He had surgery and is now just past halfway on his first chemo treatment. He has cancer in his peritoneum, many lymph nodes and possibly lungs but has responded well to the chemo. Many of the spots are gone and the rest are smaller, CEA down to 13 from a high of 40 after surgery. He has had to leave Folfox after a severe reaction to Oxalyplatin and can't use Avastin because it gave him blood clots. He just had his first shot of Irinotecan last week and is waiting to see if he is a candidate for Erbitux. This is quite a roller coaster ride isn't it?!

    yeah, quite a ride. On treatment 7 of 12, I went into the bathroom directly after they started the Oxy, locked the door and went into anaphylactic shock. The alarm on my chemo dispense went off and they rescued me from the bathroom. From there on, I was able to take the Oxy at half the speed with a double adult dose of benadryl and 4 times the "ants-in-the-pants". So the first day of the chemotherapy would take me a little over 8 hours to complete. But I was able to stay on it.
  • deddlem
    deddlem Member Posts: 1
    My dad is a 3 year survivor and still going strong!
    Hi, My Dad is a stage IV signet ring cell cancer survivor (colon). He was diagnosed 3 full years ago and the cancer has not progressed since then due to his chemo. He even started getting chemo breaks! I understand this is rather unusual but with cancer, like a lot of things, you just never know. One day at a time...I hope you are doing well and found the support you need!
  • laurettas
    laurettas Member Posts: 372
    mmikesell said:

    yeah, quite a ride. On treatment 7 of 12, I went into the bathroom directly after they started the Oxy, locked the door and went into anaphylactic shock. The alarm on my chemo dispense went off and they rescued me from the bathroom. From there on, I was able to take the Oxy at half the speed with a double adult dose of benadryl and 4 times the "ants-in-the-pants". So the first day of the chemotherapy would take me a little over 8 hours to complete. But I was able to stay on it.

    Oh my goodness! How long
    Oh my goodness! How long were you passed out in the bathroom? You were very fortunate to have survived that! Interesting that your onc kept you on oxy. My husband's said no more because his reaction was too severe--even though it was not a full-blown anaphylactic shock since he could still breathe.

    A couple of questions--what is "ants in the pants"? And what is your chemo schedule? You said that your first day of chemo took 8 hours. My husband gets one chemo treatment every two weeks. He was on FOXFOX plus Avastin but has had to drop the oxy due to the reaction and the Avastin due to blood clots.
  • laurettas
    laurettas Member Posts: 372
    deddlem said:

    My dad is a 3 year survivor and still going strong!
    Hi, My Dad is a stage IV signet ring cell cancer survivor (colon). He was diagnosed 3 full years ago and the cancer has not progressed since then due to his chemo. He even started getting chemo breaks! I understand this is rather unusual but with cancer, like a lot of things, you just never know. One day at a time...I hope you are doing well and found the support you need!

    What wonderful news,
    What wonderful news, deddlem! Do you know your dad's chemo history--what he took when and for how long? My husband has responded well to the chemo so far but he has had to drop a couple of drugs due to side effects. Hope the new drugs work as well for him.
  • mmikesell
    mmikesell Member Posts: 8
    laurettas said:

    Oh my goodness! How long
    Oh my goodness! How long were you passed out in the bathroom? You were very fortunate to have survived that! Interesting that your onc kept you on oxy. My husband's said no more because his reaction was too severe--even though it was not a full-blown anaphylactic shock since he could still breathe.

    A couple of questions--what is "ants in the pants"? And what is your chemo schedule? You said that your first day of chemo took 8 hours. My husband gets one chemo treatment every two weeks. He was on FOXFOX plus Avastin but has had to drop the oxy due to the reaction and the Avastin due to blood clots.

    laurettas I sent you an email
    with the details of what my regimine was.
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    laurettas said:

    What wonderful news,
    What wonderful news, deddlem! Do you know your dad's chemo history--what he took when and for how long? My husband has responded well to the chemo so far but he has had to drop a couple of drugs due to side effects. Hope the new drugs work as well for him.

    You Might Want to Start Your Own Thread
    Hey Guys

    You guys want might want to open your own thread from scratch to discuss this topic.

    This post is a couple of years old and Kapper48 is no longer with us, having lost his fight. He was a good friend, husband and father. Seeing his picture evokes alot of strong feelings.
  • julesio
    julesio Member Posts: 24
    Sundanceh said:

    You Might Want to Start Your Own Thread
    Hey Guys

    You guys want might want to open your own thread from scratch to discuss this topic.

    This post is a couple of years old and Kapper48 is no longer with us, having lost his fight. He was a good friend, husband and father. Seeing his picture evokes alot of strong feelings.

    Hi everyone, I just found
    Hi everyone, I just found out that my partner has this kind of cancer, any suggestions or advice would be appreciated, they have tried folfox on him already and it didn't work and now he is getting bowel obstructions from peritioneal mets. Things I read are all very depressing so any help would be appreciated. Thanks!
  • John23
    John23 Member Posts: 2,122 Member
    julesio said:

    Hi everyone, I just found
    Hi everyone, I just found out that my partner has this kind of cancer, any suggestions or advice would be appreciated, they have tried folfox on him already and it didn't work and now he is getting bowel obstructions from peritioneal mets. Things I read are all very depressing so any help would be appreciated. Thanks!

    julesio
    Please start a new thread, this is a 2009 thread,
    and some just wil not be able to respond anymore.

    Thank you, and best wishes,

    John
  • Mrs. B.
    Mrs. B. Member Posts: 7

    SRC
    I was diagnosed in april, 2011 at age 48 with signet ring cell cancer in sigmoid. they tried to operate but it spread in peritoneum. It is scarry at our age. I have chosen not to get chemo at this time. It is Stage IV. Also, my sister was just diagnosed with rectal cancer but not signet ring cell. She has started radiation with chemo pills. Then IV chemo.

    Signet ring cell adenocarcinoma
    I am 68 years old and was diagnosed with Stage IV Signet ring cell in January 2011. Started in appendix, no other health problems. Surgery removed appendix, hemicolectomy removing 5" of both intestines/colon. Cancer had spread to peritonea. Prognosis was 1 1/2 to 2 years with chemo; 6 to 9 months without chemo. Oncologist said "treating in the dark", 40% chance of responding to chemo, very rare, aggressive..." I chose to not have chemo. I became vegan, do extensive juicing etc. My lab work is all normal and I do not have any symptoms. I see the oncologist every 3 months.
  • Krebs
    Krebs Member Posts: 4
    John23 said:

    julesio
    Please start a new thread, this is a 2009 thread,
    and some just wil not be able to respond anymore.

    Thank you, and best wishes,

    John

    Please help...Thank you

    Hello, how are you? Hope all is well. My father was diagnosed with signet ring cell cancer stage 4 in March and it has spread to the abdominal walls. They said surgery is not possible. Started chemo with Oxciliplatin in March. Will have the 5th cycle on Wednesday and a check up soon. He is in his late 60s.

    His state of mind is scared. Naturally we all are. Can you please based on your own experience and fact finding tell me what is most effective to kill off this type of cancer? Is there any realistic chance at a cure? Anything particular helpful that you came across? Any additional advice would be greatly appreciated.

    Thank you so much.

    Michael

  • John23
    John23 Member Posts: 2,122 Member
    Krebs said:

    Please help...Thank you

    Hello, how are you? Hope all is well. My father was diagnosed with signet ring cell cancer stage 4 in March and it has spread to the abdominal walls. They said surgery is not possible. Started chemo with Oxciliplatin in March. Will have the 5th cycle on Wednesday and a check up soon. He is in his late 60s.

    His state of mind is scared. Naturally we all are. Can you please based on your own experience and fact finding tell me what is most effective to kill off this type of cancer? Is there any realistic chance at a cure? Anything particular helpful that you came across? Any additional advice would be greatly appreciated.

    Thank you so much.

    Michael

    Please start a new thread regarding your question.

    Please start a new thread regarding your question.

     

    The thread you are answering to is originally from 2009, with the last post from 2011; Many of the individuals have passed on, making it very difficult for them to answer you.

     

    Those of us that remain on Earth will be happy to offer suggestions, but on a new thread.

     

    Thanks.

     

    Best wishes,

     

    John

     

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    jheadley said:

    Hey
    I was diagnosed on 8/5 with Signet Ring Cell Carsinoma -- I am trying to fing the right Oncologist as I recover from surgery... My only course of action seems to be Chemo at this point..

    Mistake

    Mistake. Sorry!

  • Footandankledoc
    Footandankledoc Member Posts: 1
    "Survivor"

    just turned 38.  Diagnosed at 37 - 3 months out with chemo headed to Houston for follow up.  Yeah - it's scary but I've built quite a support group.  My work terminated me a week after diagnosis - they found out through transmission of records not authorized.  

     

    You oy are not alone.  i feel I have yet to live

  • Trubrit
    Trubrit Member Posts: 5,796 Member

    "Survivor"

    just turned 38.  Diagnosed at 37 - 3 months out with chemo headed to Houston for follow up.  Yeah - it's scary but I've built quite a support group.  My work terminated me a week after diagnosis - they found out through transmission of records not authorized.  

     

    You oy are not alone.  i feel I have yet to live

    Hello Doc

    This is a very old thread (2009) and most are not here any more, so it would be a good idea for you to start your own. That way we can all jump in and welcome you.

    Sue - Trubrit

  • Time2havefun
    Time2havefun Member Posts: 1
    kapper48 said:

    tnstudent please respond
    You didn't leave your name so I dont know who I am talking to. I was also diagnosed with stage 4 signet ring cell in June of this year. It also spread to my small Intestines and my pelvic area. I started my chemo treatments on Monday of this week and got the pump off today I dont feel to bad other than a little headache, the meds they gave me seem to be working pretty good. If your husband would like to talk I would love to have someone to go through this journey with you can email me at patkapper@jbmarineco.com if you want we can exchange phone numbers and talk also. I am 49 years old with a loving wife and 5 daughters and 5 grand kids so as you can see I have alot to live for. I cant offer much but I know that being able to talk to someone else with the same cancer would be nice
    Yours truley
    Pat

    Stage 4 Signet Ring Cell

    Hi I see that you were diagnosed with stage 4 in June 2009.  I'm very interested to see how you are doing.  I was orignally stage 3b in 2014 but the cancer came back exactly one year later and is my retropertineal and subclivicular lymph node.  I completed six months of chemo for the recurrence.  Getting scans every three months.  Enjoying the break but have no idea when it's going to start growing again.  Right now all I know is that I am terminal and that I will probably be in and out of treatments for the rest of my life.  I'm being treated at Johns Hopkins in Baltimore.  Medical Oncologist says it's a mystery nobody knows how long it's going to take to come back.  I've had chemo three times and third of my stomach removed.  Diagnosed when I wa 45 years old I'm now 48.  So scary!!!  Would like to know how you are doing?  I realize everyone is different but we are close to the same age.

  • Trubrit
    Trubrit Member Posts: 5,796 Member

    Stage 4 Signet Ring Cell

    Hi I see that you were diagnosed with stage 4 in June 2009.  I'm very interested to see how you are doing.  I was orignally stage 3b in 2014 but the cancer came back exactly one year later and is my retropertineal and subclivicular lymph node.  I completed six months of chemo for the recurrence.  Getting scans every three months.  Enjoying the break but have no idea when it's going to start growing again.  Right now all I know is that I am terminal and that I will probably be in and out of treatments for the rest of my life.  I'm being treated at Johns Hopkins in Baltimore.  Medical Oncologist says it's a mystery nobody knows how long it's going to take to come back.  I've had chemo three times and third of my stomach removed.  Diagnosed when I wa 45 years old I'm now 48.  So scary!!!  Would like to know how you are doing?  I realize everyone is different but we are close to the same age.

    Welcome, Time2havefun

    Kapper's profile page has been removed which often indicates that they have passed away. This may not be the case, but he certainly hasn't posted since I've been on the forum. 

    TRU