UPDATED "put up or shut up" I have made the core argument clearer I hope SUGAR

2

Comments

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    thingy45 said:

    Hi Pete,
    Yes exercise is

    Hi Pete,
    Yes exercise is part of the survival, I just had my second CEA test and all came back clear. still NED. I juice and take Monavie juices with 19 different fruits and berries including Acai and Lychee, both known to fight cancer cells. I walk and I swim.
    Get moving is always good even if you start with 5 min. on the treadmill and bring it up every day a little more. Bathroom always close by.That is how I started now up to 30 min.
    twice a day.
    Motivating others is good keep it up!
    Hugs Marjan

    thanks marjan
    i hope you stay ned.

    i hope someone can check the study and see if it applies to neds.

    after surgery all stage 1-3's are ned by definition.

    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    tootsie1 said:

    no need
    Pete,

    I don't have any reason to email, call, write or go visit my oncologist about this subject. I was diagnosed at Stage 1, and I have been reminded at every visit, starting with my first, that exercise is the best defense for me. So I really have no issues with my very fine oncologist about this matter.

    *hugs*
    Gail

    P.S. And it's not his fault that I don't exercise more!

    thanks gail
    getting a few nibbles now.

    i am so glad you were well advised by your onc, he is a leader i think.

    lets see how many other stage 1-3 get this advice, is it pushed really hard.

    hugs,
    pete

    ps come for a walk with me, got time tomorrow ? in spirit of course.
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    Good stuff
    Good stuff Pete, keep it coming. I must also say from a caregivers point of view the exercise helps me stay balanced in the midst of all this. Moving is good for all of us!

    Aloha,
    Kathleen
  • Matta
    Matta Member Posts: 39
    yoga said:

    Matta . . . . have you tried reboudning?
    Matta,

    Sorry to hear that chemo side effects are holding you back. Have you tried rebounding? I was uncertain about the claimed benefits so discussed with my naturopathic doctor and she agreed with my information. . . . I had read that rebounding helps drain the lymphatic system as well as give a good work out - easy to do at home and easy on the body. (You can also get a stabalizer bar to help with balance if necessary.) I found a used one online for $20. To research try googling 'rebounding and cancer'.

    Hoping you find new and creative ways to exercise and continue to grow your energy level. Having energy certainly makes this whole thing easier to handle!

    Yoga
    No I have not tried that but it´s a great idea, thank you!
  • 2bhealed
    2bhealed Member Posts: 2,064 Member
    Passion
    Hi Pete,

    It goes without saying that I exercise. It's always been a HUGE part of my curing protocol. I never post on your walking post b/c my time in here is very limited.

    What I want to comment on is your passion. I completely understand the depths of your passion for this issue. I feel the exact same way about diet and crc. To me, it's a no-brainer that we change our diets and take out all the gunk that's killing us. I used to tear my hair out (figuratively) when I'd read all the GARBAGE that folks were eating on here (some braggioso about it) and then we'd wonder (not) why there were experiencing recurrences or not experiencing NED. It made me want to scream. So I had to back off of the boards for quite some time. For my own health I had to disengage because my "passionate" stance wasn't doing me any favors. Everyone chooses her/his own path. Thank goodness there are passionate ones like you to light some fires under some couch potato hinders. ;-)

    Just remember, though, that our doctors practice MEDICINE and impart their knowledge in regards to pills and surgeries and diagnostics. They don't study health in the terms you're demanding. I agree with Phil: WE are going to have to demand of THEM our health and make the change in the system....they will have to follow in order to stay competitive. Just think that in the old days doctors actually suggested that smoking was healthy. I kid you not.

    So to me, you're singing to the choir....the one who refused chemo....who instead walks/runs/bikes/swims/practices yoga/dances/juices her way to a cancer free life!! :-)
    I just don't post on your threads about it b/c I'm too busy out doing it!!!

    peace, emily
  • biz
    biz Member Posts: 60 Member
    exercise
    My onc knew I was working out before I was diagnosed, and he told me to keep it up through chemo. So that's my plan!

    Thanks for the encouragement,
    Biz
  • dasspears
    dasspears Member Posts: 227
    2bhealed said:

    Passion
    Hi Pete,

    It goes without saying that I exercise. It's always been a HUGE part of my curing protocol. I never post on your walking post b/c my time in here is very limited.

    What I want to comment on is your passion. I completely understand the depths of your passion for this issue. I feel the exact same way about diet and crc. To me, it's a no-brainer that we change our diets and take out all the gunk that's killing us. I used to tear my hair out (figuratively) when I'd read all the GARBAGE that folks were eating on here (some braggioso about it) and then we'd wonder (not) why there were experiencing recurrences or not experiencing NED. It made me want to scream. So I had to back off of the boards for quite some time. For my own health I had to disengage because my "passionate" stance wasn't doing me any favors. Everyone chooses her/his own path. Thank goodness there are passionate ones like you to light some fires under some couch potato hinders. ;-)

    Just remember, though, that our doctors practice MEDICINE and impart their knowledge in regards to pills and surgeries and diagnostics. They don't study health in the terms you're demanding. I agree with Phil: WE are going to have to demand of THEM our health and make the change in the system....they will have to follow in order to stay competitive. Just think that in the old days doctors actually suggested that smoking was healthy. I kid you not.

    So to me, you're singing to the choir....the one who refused chemo....who instead walks/runs/bikes/swims/practices yoga/dances/juices her way to a cancer free life!! :-)
    I just don't post on your threads about it b/c I'm too busy out doing it!!!

    peace, emily

    It is about choices..
    A friend of mine who was diagnosed with Stage I anal cancer a year ago decided to forgo the conventional treatment and pursue alternative treatments at a center in Germany and then at the Gershon clinic. There is a standard protocol for treating anal cancer that is very successful as anal cancer can be cured. A few weeks ago, the CT scan revealed that the cancer had returned and is in her peritoneum and in some lymph nodes. My friend exercised and followed the Gershon diet.

    When I was diagnosed, I chose the conventional treatment and I'm 4 years NED. In my opinion, it is about choices. While my friend has now chosen to do chemo and radiation, I do think her system will be stronger since she has been diligent about eating and exercising habits.

    Wishing everyone well!
  • Buckwirth
    Buckwirth Member Posts: 1,258 Member
    2bhealed said:

    Passion
    Hi Pete,

    It goes without saying that I exercise. It's always been a HUGE part of my curing protocol. I never post on your walking post b/c my time in here is very limited.

    What I want to comment on is your passion. I completely understand the depths of your passion for this issue. I feel the exact same way about diet and crc. To me, it's a no-brainer that we change our diets and take out all the gunk that's killing us. I used to tear my hair out (figuratively) when I'd read all the GARBAGE that folks were eating on here (some braggioso about it) and then we'd wonder (not) why there were experiencing recurrences or not experiencing NED. It made me want to scream. So I had to back off of the boards for quite some time. For my own health I had to disengage because my "passionate" stance wasn't doing me any favors. Everyone chooses her/his own path. Thank goodness there are passionate ones like you to light some fires under some couch potato hinders. ;-)

    Just remember, though, that our doctors practice MEDICINE and impart their knowledge in regards to pills and surgeries and diagnostics. They don't study health in the terms you're demanding. I agree with Phil: WE are going to have to demand of THEM our health and make the change in the system....they will have to follow in order to stay competitive. Just think that in the old days doctors actually suggested that smoking was healthy. I kid you not.

    So to me, you're singing to the choir....the one who refused chemo....who instead walks/runs/bikes/swims/practices yoga/dances/juices her way to a cancer free life!! :-)
    I just don't post on your threads about it b/c I'm too busy out doing it!!!

    peace, emily

    Tobacco
    "Just think that in the old days doctors actually suggested that smoking was healthy. I kid you not."

    That is a rather simplistic view of the history here.

    The Native Americans saw tobacco as a healing agent, both smoking and using the leaves as a type of poultice to kill pain.

    The early Europeans (15th and 16th century) thought tobacco was a cure all, even for curing cancer.

    It was not until the 1950's that the link between smoking and cancer became clear, and the cigarette companies spent a fortune making fun of the science, though the advertising promoting the health benefits of smoking predated this discovery.

    Why did it take so long? Well, we did not really start smoking cigarettes until WW1, and WW2 just sealed the deal. Give a smoker about 30 to 40 years before lung cancer sets in and you can see the time-lines forming for the science to catch up.

    In the 1960's the Surgeon General made the link to cancer official government policy. The Feds also started regulating advertising (anyone watch Mad Men?) and the tobacco companies had to drop their health claims.

    I kid you not!

    Here are some links for those who are interested:

    Brief History of Tobacco

    More Doctors Smoke Camels
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    2bhealed said:

    Passion
    Hi Pete,

    It goes without saying that I exercise. It's always been a HUGE part of my curing protocol. I never post on your walking post b/c my time in here is very limited.

    What I want to comment on is your passion. I completely understand the depths of your passion for this issue. I feel the exact same way about diet and crc. To me, it's a no-brainer that we change our diets and take out all the gunk that's killing us. I used to tear my hair out (figuratively) when I'd read all the GARBAGE that folks were eating on here (some braggioso about it) and then we'd wonder (not) why there were experiencing recurrences or not experiencing NED. It made me want to scream. So I had to back off of the boards for quite some time. For my own health I had to disengage because my "passionate" stance wasn't doing me any favors. Everyone chooses her/his own path. Thank goodness there are passionate ones like you to light some fires under some couch potato hinders. ;-)

    Just remember, though, that our doctors practice MEDICINE and impart their knowledge in regards to pills and surgeries and diagnostics. They don't study health in the terms you're demanding. I agree with Phil: WE are going to have to demand of THEM our health and make the change in the system....they will have to follow in order to stay competitive. Just think that in the old days doctors actually suggested that smoking was healthy. I kid you not.

    So to me, you're singing to the choir....the one who refused chemo....who instead walks/runs/bikes/swims/practices yoga/dances/juices her way to a cancer free life!! :-)
    I just don't post on your threads about it b/c I'm too busy out doing it!!!

    peace, emily

    emily stay well dec 2001 girl
    your a star in my books.
    thanks for the kind words.
    science for walking not arguable.
    lets win the walking battle first.

    maybe then diet, but that is another mount everest.

    who wants to climb everest and raise money for crc ?

    i do!!!!!!!!!!!!!! anyone else.

    just registered umustwalk.com and survival-of-the-fitest.com
    cool names. can anyone build websites to get the message across ? pm me ?

    no answer from onc or surgeon. alas. but i have hope, i am stubborn.

    your example has added to my survival

    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Buckwirth said:

    Tobacco
    "Just think that in the old days doctors actually suggested that smoking was healthy. I kid you not."

    That is a rather simplistic view of the history here.

    The Native Americans saw tobacco as a healing agent, both smoking and using the leaves as a type of poultice to kill pain.

    The early Europeans (15th and 16th century) thought tobacco was a cure all, even for curing cancer.

    It was not until the 1950's that the link between smoking and cancer became clear, and the cigarette companies spent a fortune making fun of the science, though the advertising promoting the health benefits of smoking predated this discovery.

    Why did it take so long? Well, we did not really start smoking cigarettes until WW1, and WW2 just sealed the deal. Give a smoker about 30 to 40 years before lung cancer sets in and you can see the time-lines forming for the science to catch up.

    In the 1960's the Surgeon General made the link to cancer official government policy. The Feds also started regulating advertising (anyone watch Mad Men?) and the tobacco companies had to drop their health claims.

    I kid you not!

    Here are some links for those who are interested:

    Brief History of Tobacco

    More Doctors Smoke Camels

    thanks blake
    government is a bankrupt dinosaur. why wait for them.
    dam how many lives lost for obama to go for a walk around the whitehouse to help save lives.

    this recession the world is heading into may have a positive, less work more chance to be healthy and walk.

    we know the facts about smoking and walking.

    i am going for a walk right now. is my logic about 40min walking buying me an extra 9.12 days ok ?

    thanks for joining in on this post. i know we disagree but somethings often but its also why i am keeping this post focused on walking and exercising for maximum survival benefit.

    i have asked greta to get the warning on the csn front page, do you or anyone have any contacts at csn to get this idea up as a campaign. after all we are csn.

    all i want is a button with WHYEXERCISE? on the front page that goes to the news item.

    then the job is done. the message is being constantly publicised, now if its on csn.

    all us cancer patients will see it, any slow onc or surgeon will get a question from the patient, "oh i saw on csn about walking"

    we can dream, can't we.

    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    dasspears said:

    It is about choices..
    A friend of mine who was diagnosed with Stage I anal cancer a year ago decided to forgo the conventional treatment and pursue alternative treatments at a center in Germany and then at the Gershon clinic. There is a standard protocol for treating anal cancer that is very successful as anal cancer can be cured. A few weeks ago, the CT scan revealed that the cancer had returned and is in her peritoneum and in some lymph nodes. My friend exercised and followed the Gershon diet.

    When I was diagnosed, I chose the conventional treatment and I'm 4 years NED. In my opinion, it is about choices. While my friend has now chosen to do chemo and radiation, I do think her system will be stronger since she has been diligent about eating and exercising habits.

    Wishing everyone well!

    sorry about your friend, i hope she wins
    dear dasspears,

    but before choice is information.

    i don't want you friends fate or mine to influence this debate.
    actually no one is debating the science, thankgod sigh ahhhhh at last.

    just help me get the walking message onto the front page of csn. after csn then the whitehouse. can someone in the usa email obama to go for a 40 minute walk on a treadmill to raise awareness for crc and all cancers. its an innovative way to save a few lives and dollars in the us health budget.

    now is the time

    "Victory, however long and hard the road may be;
    for without victory there is no survival"
    -Sir Winston Churchill

    i love this.

    lets not debate diet, juicing, chemo.

    lets agree to walk, talk, and post and smile.

    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    toyfox said:

    exercise

    My husband walks on a treadmill for one hour every day except for a few days
    after treatment. When he mentioned it to his onc....was told it was important to
    keep it up after chemo.
    Linda

    thanks toyfox
    dear linda,

    that's really good news but the wrong way around. where is the prescription from the onc for the treadmill. your husband is the patient telling the onc. good on him.

    the onc are supposed to lead us in this battle, we are being ripped off.

    we loose our lives and our money because of their negligence. its time to stop mucking around. i am not pulling any punches.

    its simple, get this message on csn.

    then get every onc in the usa telling every crc to walk at every appointment, if they don't gived the warning then they get sued by a class action for negligence. is that simple.

    the onc main message will be walk, oh and then they can say don't forget the chemo.
    now if chemo makes you to ill to walk, well thats the 15-40% chemo benefit against 53% walking benefit. at this point i would stop chemo and walk. but that is each doctor and patients decision.

    after the onc's get the message, then the whitehouse for obama, or has it been nicknamed the blackhouse. either way thats a great message for obama to deliver to the usa and to the world. unfortunately us aussies follow the usa lead in most things. like crc. i am proof of this.

    its time for fat usa to be thin usa, you simply cannot afford to be fat anymore.

    i want a treadmill in the home of every crc survivor yesterday.

    given the problems some of us have, maybe it needs to be in the bathroom.

    then some bathrooms are not big enough. i got a solution, i got my portable loo in my car.
    a portable loo next to the treadmill is all that is needed.

    hell lets just walk outside, with nappies, or doogy poo bags. and take the risk.

    i will have my immodiums right now.
  • northernlites
    northernlites Member Posts: 96

    emily stay well dec 2001 girl
    your a star in my books.
    thanks for the kind words.
    science for walking not arguable.
    lets win the walking battle first.

    maybe then diet, but that is another mount everest.

    who wants to climb everest and raise money for crc ?

    i do!!!!!!!!!!!!!! anyone else.

    just registered umustwalk.com and survival-of-the-fitest.com
    cool names. can anyone build websites to get the message across ? pm me ?

    no answer from onc or surgeon. alas. but i have hope, i am stubborn.

    your example has added to my survival

    hugs,
    pete

    Hi Pete,
    I have a wonderful

    Hi Pete,
    I have a wonderful Dr.(my surgeon) who is a 12 year colon cancer (stage III) survivor... His words to me the day after my surgery was "I want you up and walking today". He has inspired me in so many ways that I can't explain. He has helped me not only medically but emotionally as well. His story is amazing...I tell him all the time he was sent from heaven to heal me...I am blessed and thank God everyday for one more day.

    So yes, I walked again today,it was a beautiful day!

    tessa
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    biz said:

    exercise
    My onc knew I was working out before I was diagnosed, and he told me to keep it up through chemo. So that's my plan!

    Thanks for the encouragement,
    Biz

    thats great biz
    It seems some once are pushing exercise.

    Hugs,
    Pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member

    Hi Pete,
    I have a wonderful

    Hi Pete,
    I have a wonderful Dr.(my surgeon) who is a 12 year colon cancer (stage III) survivor... His words to me the day after my surgery was "I want you up and walking today". He has inspired me in so many ways that I can't explain. He has helped me not only medically but emotionally as well. His story is amazing...I tell him all the time he was sent from heaven to heal me...I am blessed and thank God everyday for one more day.

    So yes, I walked again today,it was a beautiful day!

    tessa

    thanks tessa
    your surgeon is great. i just wish they all were.
    i appreciate the good stories as well as the bad.

    they say goodnews does not sell, but it certainly raises my spirits.

    we loose 53000 yanks each year, that over 1000 a week because stage 1-3 are not walking.

    still no reply from my onc or surgeon, still no front page on csn. that life, its just a crying shame.

    hugs,

    pete
  • Buckwirth
    Buckwirth Member Posts: 1,258 Member

    thanks tessa
    your surgeon is great. i just wish they all were.
    i appreciate the good stories as well as the bad.

    they say goodnews does not sell, but it certainly raises my spirits.

    we loose 53000 yanks each year, that over 1000 a week because stage 1-3 are not walking.

    still no reply from my onc or surgeon, still no front page on csn. that life, its just a crying shame.

    hugs,

    pete

    your stats are a bit off
    how many are already stage 4 at dx?

    This reduces your risk of recurrence by 50%. So, if you were stage 1 and your risk of recurrence was 10%, exercise could reduce that risk to 5%

    BTW, ACS has lots of links to the benefit of exercise, and a program for employers to get their employees moving.

    CSN is about us, and every cancer is a bit different, so a general "everyone" benefits by working out is not quite true, and would be a inappropriate on the CSN home page. Your walking post has been on the front page of the CRC forum since you started it, so I would say that your message is getting to who it needs to get to.
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    Actually
    I don't understand your point at all. I'm glad others do. The first post makes absolutely no sense to me whatsoever. What are you asking the oncs to do??
    Please re-read your post (first one)and explain what the heck are you talking about? Where is there Sugar in this? Just totally confused.
    Winter Marie
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member

    Actually
    I don't understand your point at all. I'm glad others do. The first post makes absolutely no sense to me whatsoever. What are you asking the oncs to do??
    Please re-read your post (first one)and explain what the heck are you talking about? Where is there Sugar in this? Just totally confused.
    Winter Marie

    sorry winter
    hi winter,

    hope your going well.

    sorry i guess its a bit confusing.
    I put the sugar in the title because BUCKWIRTH said I needed to sweeten up my message if I wanted to get it across. Now I took it literally I put SUGAR in the title.

    I thought the email I sent to my oncologist and colorectal surgeon was clear. I essence another study recommending serious exercise for stage 1-3 crc's means the recurrence risk is reduced by a massive 53%. Now I have been aware of this last year, so few year and it appears around the world are getting this life saving message.

    Doctors don't or won't to get into lifesyle issues, to me it appears they prefer to issue pills. even chemo that say gives an extra 15% survival benefit but say leaves you crippled means you cannot walk or exercise so you miss out on exercises benefits.

    so few have got the exercise message, I just want some more company in the walking post. Its lonely doing all this walking on my own, but netherless I will.

    I asked CSN to put the study on the front page, that request is still being considered.

    My surgeon and oncologist have not replied, silence is deafening.

    I am looking after myself pretty well, I just wished other would get this life saving message.

    hugs,
    Pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Buckwirth said:

    your stats are a bit off
    how many are already stage 4 at dx?

    This reduces your risk of recurrence by 50%. So, if you were stage 1 and your risk of recurrence was 10%, exercise could reduce that risk to 5%

    BTW, ACS has lots of links to the benefit of exercise, and a program for employers to get their employees moving.

    CSN is about us, and every cancer is a bit different, so a general "everyone" benefits by working out is not quite true, and would be a inappropriate on the CSN home page. Your walking post has been on the front page of the CRC forum since you started it, so I would say that your message is getting to who it needs to get to.

    thanks blake
    I assumed 1/3 at initial DX were stage 4.
    so in the usa 150,000 new cases would be split by exercise benefit.

    ie 100,000 stage 1-3 and then 50 stage 4.

    even if the ratios reversed that 50,000 stage 1-3 so thats 25,000 lives saved.

    only 500 lives saved a week in the USA, we are not even talking UK, Canada, New Zealand or Australia.

    I think CSN should tackle the lifestyle exercise issue head on. I think most people after they start caring for their bodies by exercise move to caring for themselves with a healthy diet.

    My issue is that our doctors are not willing to tackle lifestyle issues. As far as I understand the facts, I don't have an option, I want to live.

    Even if I get stuck with a recurrance I'll be the fitest and strongest of any patient, so they can then hammer me with whatever radiation and chemo is necessary to survive. Every single day I am getting healthier and stronger, if the crc comes back then at least I am not the overweight slob I used to be.

    worst case my strength and fitness might just buy me another 6 months with the family, best case a lifetime.

    pete
  • herdizziness
    herdizziness Member Posts: 3,624 Member

    sorry winter
    hi winter,

    hope your going well.

    sorry i guess its a bit confusing.
    I put the sugar in the title because BUCKWIRTH said I needed to sweeten up my message if I wanted to get it across. Now I took it literally I put SUGAR in the title.

    I thought the email I sent to my oncologist and colorectal surgeon was clear. I essence another study recommending serious exercise for stage 1-3 crc's means the recurrence risk is reduced by a massive 53%. Now I have been aware of this last year, so few year and it appears around the world are getting this life saving message.

    Doctors don't or won't to get into lifesyle issues, to me it appears they prefer to issue pills. even chemo that say gives an extra 15% survival benefit but say leaves you crippled means you cannot walk or exercise so you miss out on exercises benefits.

    so few have got the exercise message, I just want some more company in the walking post. Its lonely doing all this walking on my own, but netherless I will.

    I asked CSN to put the study on the front page, that request is still being considered.

    My surgeon and oncologist have not replied, silence is deafening.

    I am looking after myself pretty well, I just wished other would get this life saving message.

    hugs,
    Pete

    Okay
    Your saying Onc's should be recommending people get out there and exercise etc? Helping shake the cancer by physical movement? Can't complain there, you are right, they don't really suggest that you do that. I think because a lot of them are your first life line to your cancer and they figure the last thing you want to hear is go exercise, they probably figure you want to hear more about your chemo's, surgeries and staging at that point, however I think that 6 months in they might suggest it by then or even sooner. It's a good idea Pete, when I think about it, my onc, great as he might be, hasn't recommended exercise, and I agree with you that one should be doing it.
    Winter Marie