CEA........***UPDATED TODAY_07/23,2011***

2

Comments

  • herdizziness
    herdizziness Member Posts: 3,624 Member
    Buzz
    Get off your knee, your too d@mn stubborn to have a worry.
    Love at you hon,
    Winter Marie
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member

    Buzz
    Get off your knee, your too d@mn stubborn to have a worry.
    Love at you hon,
    Winter Marie

    keeping
    you in my prayers and in my heart.just think positive...Godbless....johnnybegood
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    hope for the best
    and prepare for worse is what we did at this point. Focusing on obliteration or excision, preparation was a life saver. Allowed us to pick up dropped balls and add cheat codes.

    We tight space the blood and biomarker data, 21-30 days if "normal", 10-17 days if there are any questions on progress or treatment changes, also dependent on expected response times for a particular change. We've been stepping up the immunochemo series ever since and are starting to hit full throttle on some items.

    Wife feels great, no chemo sick days, just took a short overseas trip with the kids. Had forgotten about the second surgery as a twinge or limitation in less than 6 weeks after the second major surgery for the missed para aortic nodes.

    Best wishes.
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    tanstaafl said:

    hope for the best
    and prepare for worse is what we did at this point. Focusing on obliteration or excision, preparation was a life saver. Allowed us to pick up dropped balls and add cheat codes.

    We tight space the blood and biomarker data, 21-30 days if "normal", 10-17 days if there are any questions on progress or treatment changes, also dependent on expected response times for a particular change. We've been stepping up the immunochemo series ever since and are starting to hit full throttle on some items.

    Wife feels great, no chemo sick days, just took a short overseas trip with the kids. Had forgotten about the second surgery as a twinge or limitation in less than 6 weeks after the second major surgery for the missed para aortic nodes.

    Best wishes.

    Now that my mind is somewhat wrapped around my diliema
    I am coming to grips that this may be "the" battle that will be one of the hardest fights...I feel and sense whats going on and think I know what I am up against...I am just starting to look at options...Somehow, my sixth sense is telling me that I really need to get prepared for this one.....not sure how, but am getting my game face on for whatever it is to run full force into it hoping to come out not much worse for wear on the other end...I have to redirect my thinking and know that my kids will be ok ...as long as I am confident that they will in time be ok then I will be fine. I am not in the field academically to where I can diagnose or medically induce, intervene or interpret what may or may not help me physically, but I am capable of mentally establishing a point to where as long as I have my family in a state of stability and know that whereever I land in all of this that in time they will financially and physically / mentally be ok then I can find a void to place myself in to where if it turns out to be a major catastrophe it just is what it is and myself, not afraid to die...but to have that mindset I have to be mad at my attacker, then I address the situation that if I die, it does too...so it doesn't win, it never will, not with me.
    Yeah, I know...kind of a weird way to view it all..but this disease makes you do a lot of things that we normally wouldn't do so if it works for us then thats what should be done.
    Still awaiting the call from Imagery Clinic to get a date set for CT scan then we will see ( with the help and opinions from all of you) what my next move will be, and where.......
    Be patient with me...Im slowly getting the paint on...I will be ready when the time comes.......buzz
  • lesvanb
    lesvanb Member Posts: 905
    Buzzard said:

    Now that my mind is somewhat wrapped around my diliema
    I am coming to grips that this may be "the" battle that will be one of the hardest fights...I feel and sense whats going on and think I know what I am up against...I am just starting to look at options...Somehow, my sixth sense is telling me that I really need to get prepared for this one.....not sure how, but am getting my game face on for whatever it is to run full force into it hoping to come out not much worse for wear on the other end...I have to redirect my thinking and know that my kids will be ok ...as long as I am confident that they will in time be ok then I will be fine. I am not in the field academically to where I can diagnose or medically induce, intervene or interpret what may or may not help me physically, but I am capable of mentally establishing a point to where as long as I have my family in a state of stability and know that whereever I land in all of this that in time they will financially and physically / mentally be ok then I can find a void to place myself in to where if it turns out to be a major catastrophe it just is what it is and myself, not afraid to die...but to have that mindset I have to be mad at my attacker, then I address the situation that if I die, it does too...so it doesn't win, it never will, not with me.
    Yeah, I know...kind of a weird way to view it all..but this disease makes you do a lot of things that we normally wouldn't do so if it works for us then thats what should be done.
    Still awaiting the call from Imagery Clinic to get a date set for CT scan then we will see ( with the help and opinions from all of you) what my next move will be, and where.......
    Be patient with me...Im slowly getting the paint on...I will be ready when the time comes.......buzz

    Loving you Buzz
    and waiting with you as everything unfolds.

    all the best, Leslie
  • christinecarl
    christinecarl Member Posts: 543 Member
    I am sorry to hear the CEA
    I am sorry to hear the CEA is up, it must be nothing, because you promised me a lot more years and I am going to hold you to it.
  • pamness
    pamness Member Posts: 524 Member
    All my best thoughts are headed your way
    I haven't been on the board in quite some time. My CEA has fluctuated and CT scans have shown no problem. I am currently 4 years out of treatment. I pray that your CEA will be a one time thing. Mine goes up and down with no particular pattern. Yes the disease sucks. All the best.

    Pam
  • pscott1
    pscott1 Member Posts: 207 Member
    Buzz,
    Whenever I get on the

    Buzz,
    Whenever I get on the board I look for your name first. I think of you often and pray that everything is going well with you. Remember; I told you just a couple of months ago that my CEA was at 337; I found out yesterday it is down to 2.9. Yet, I have 30 lesions in my liver (mets from the colon cancer). They do say the lesions are shrinking and there aren't any new ones. It still is just a scary thing having that many tumors existing inside of you not knowing quite how this will all end. I will be praying for you my friend and believing that the CT scan will be clear. You are a wonderful, strong person Buzz and your strength has kept me going since my diagnosis. Hang in there and know that all of us are pulling for you. Let us know as soon as you hear something!

    Hugs,

    Pam
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Praying
    Oh, dear.

    I just hate to read this post! Praying that it's just not anything at all to worry about, but I know you're going to be on high alert until you really know what you're dealing with. I know you can handle it, and I'm not surprised to read your comments that you just want to make sure your kids are okay.

    Please let us know when you find out. I'll be praying you have good news for us!

    *hugs*
    Gail
  • aggie0053
    aggie0053 Member Posts: 110
    only talked one time but it
    only talked one time but it only takes once to know your a friend, prayers are with you buddy
  • aggie0053
    aggie0053 Member Posts: 110
    only talked one time but it
    only talked one time but it only takes once to know your a friend, prayers are with you buddy
  • aggie0053
    aggie0053 Member Posts: 110
    only talked one time but it
    only talked one time but it only takes once to know your a friend, prayers are with you buddy
  • aggie0053
    aggie0053 Member Posts: 110
    only talked one time but it
    only talked one time but it only takes once to know your a friend, prayers are with you buddy
  • aggie0053
    aggie0053 Member Posts: 110
    only talked one time but it
    only talked one time but it only takes once to know your a friend, prayers are with you buddy
  • aggie0053
    aggie0053 Member Posts: 110
    only talked one time but it
    only talked one time but it only takes once to know your a friend, prayers are with you buddy
  • Vickilg
    Vickilg Member Posts: 281 Member
    Prayers For You
    Hi, Buzz... I wish you only the best. I have not been on here for a while and was sad to see your post but have faith. Based on the comments, what I gather is that you had the cancer cut out and then did not do post chemo therapy. Is that true? How long have you been cancer free?
  • TMac52
    TMac52 Member Posts: 352
    Vickilg said:

    Prayers For You
    Hi, Buzz... I wish you only the best. I have not been on here for a while and was sad to see your post but have faith. Based on the comments, what I gather is that you had the cancer cut out and then did not do post chemo therapy. Is that true? How long have you been cancer free?

    Buzz
    I have not been on here much either (Vickilg good to see you) Buzz sorry to read this post a lot of people have helped me here this past year but none as much as you have. You ask for prayer? you got it!! you need anything else just say the word no matter what it is.
    I love you man!!!
    Tom
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    TMac52 said:

    Buzz
    I have not been on here much either (Vickilg good to see you) Buzz sorry to read this post a lot of people have helped me here this past year but none as much as you have. You ask for prayer? you got it!! you need anything else just say the word no matter what it is.
    I love you man!!!
    Tom

    Thanks to all of you
    Vickilg......I had the tumor removed and there were no nodes involved and all clear margins, there was nothing in my blood draws sighting anything was rogue so the post op chemo to me wasn't necessary because it was like it was a one shot thing that could have been dormant and simply decided to come alive..It could have just as easily not...I opted not to do any type of post op chemo and the Onc agreed, there was actually nothing to try and irradicate at that time and in my opinion it was a regimen that I could pass on...I am still glad I passed on it...I am just trying to juggle the lesser of two evils and try to determine which is more likely to cause more harm...
    "kinda like having to choose whether to take a bite out of a possum or a skunk".....Im not gonna like either one, but one is what I had to choose.......Im not looking at quantity anymore.....quality now....I have close to all my ducks in a row, now I will give it a good ole fashion butt kickin' and move on again.....and it is good to see you Vicki.....
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    Buzzard said:

    Thanks to all of you
    Vickilg......I had the tumor removed and there were no nodes involved and all clear margins, there was nothing in my blood draws sighting anything was rogue so the post op chemo to me wasn't necessary because it was like it was a one shot thing that could have been dormant and simply decided to come alive..It could have just as easily not...I opted not to do any type of post op chemo and the Onc agreed, there was actually nothing to try and irradicate at that time and in my opinion it was a regimen that I could pass on...I am still glad I passed on it...I am just trying to juggle the lesser of two evils and try to determine which is more likely to cause more harm...
    "kinda like having to choose whether to take a bite out of a possum or a skunk".....Im not gonna like either one, but one is what I had to choose.......Im not looking at quantity anymore.....quality now....I have close to all my ducks in a row, now I will give it a good ole fashion butt kickin' and move on again.....and it is good to see you Vicki.....

    Choices
    If it's between a opossum, a skunk, or a duck, I'd go for quality and have the duck.
    I agree that quality counts more than quantity. Here's hoping you have quantity and quality Buzz...
    -phil
  • fedester
    fedester Member Posts: 753 Member
    buzz
    all the best to you.
    never,ever give up!!
    be well
    bruce