Stage 4 Survivors

lagwag
lagwag Member Posts: 76 Member
in Colorectal Cancer #1
Just looking for those who wish to share being a Stage 4 Survivor.

Having a down day.

Thanks -
«1

Comments

  • dmdwins
    dmdwins Member Posts: 454 Member
    #2
    3 1/2 years
    Sorry to hear that you are havin a down day :(. I was diagnosed Stage 4 in october 2007. I just had my CT scan last week and I am still No Evidence of Disease! Wishing you hope and healing.

    Smiles,
    Dawn
  • dmdwins
    dmdwins Member Posts: 454 Member
    #3
    3 1/2 years
    Sorry to hear that you are havin a down day :(. I was diagnosed Stage 4 in october 2007. I just had my CT scan last week and I am still No Evidence of Disease! Wishing you hope and healing.

    Smiles,
    Dawn
  • janie1
    janie1 Member Posts: 753 Member
    #4
    dmdwins said:

    3 1/2 years
    Sorry to hear that you are havin a down day :(. I was diagnosed Stage 4 in october 2007. I just had my CT scan last week and I am still No Evidence of Disease! Wishing you hope and healing.

    Smiles,
    Dawn

    I like good stories, also.
    I like good stories, also. Not sure if you are in the U.S., but tonight(6/13)on TV there will be a Republican debate (i know, no politics here), HOWEVER, one of the candidates, Herman Cain, is 7 years out from being dx'd Stage 4. He is a bundle of energy, one of my heroes. He wants to lead a country.....I'm just trying to get back to my small life. Inspiration is sooooo good.
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #5
    janie1 said:

    I like good stories, also.
    I like good stories, also. Not sure if you are in the U.S., but tonight(6/13)on TV there will be a Republican debate (i know, no politics here), HOWEVER, one of the candidates, Herman Cain, is 7 years out from being dx'd Stage 4. He is a bundle of energy, one of my heroes. He wants to lead a country.....I'm just trying to get back to my small life. Inspiration is sooooo good.

    2 years since DX still fighting but doing well hoping to beat
    this thing soon, we can! Hugs!.
  • pluckey
    pluckey Member Posts: 484 Member
    #6
    I had plenty of those,
    I had plenty of those, during and after!

    I was already pretty sick by the time I got DX'd in March 2009. CEA 1600

    During the next 12 months I had an ileostomy, colon tumor resection, 9 tumors on my liver, weekly chemo, several hospitilizations due to dehydration, malnutrition, blockages, feeding tubes, anorexia, infected Port, then, finally, thru a series of research and moments of clarity and connections and miracles, one year after diagnosis, I went to Sloan Kettering in NYC and had 8 of the 9 tumors on my liver removed.

    Today, I am one year past my final chemo treatments. 2.5 years post DX. All my hair is back. Except for my Portable catheter, you'd never know I had a 5-month Expiration Date on my head.

    I went for a port flush last month and the nurse recognized my name and was flabbergasted I was still amonth the living.

    Miracles HAPPEN; There are sooooo many people here that have gone from darkness to light with this awful disease.

    I wish for you all that you need to have this be your story as well.

    ((hugs))

    Peggy
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #7
    pluckey said:

    I had plenty of those,
    I had plenty of those, during and after!

    I was already pretty sick by the time I got DX'd in March 2009. CEA 1600

    During the next 12 months I had an ileostomy, colon tumor resection, 9 tumors on my liver, weekly chemo, several hospitilizations due to dehydration, malnutrition, blockages, feeding tubes, anorexia, infected Port, then, finally, thru a series of research and moments of clarity and connections and miracles, one year after diagnosis, I went to Sloan Kettering in NYC and had 8 of the 9 tumors on my liver removed.

    Today, I am one year past my final chemo treatments. 2.5 years post DX. All my hair is back. Except for my Portable catheter, you'd never know I had a 5-month Expiration Date on my head.

    I went for a port flush last month and the nurse recognized my name and was flabbergasted I was still amonth the living.

    Miracles HAPPEN; There are sooooo many people here that have gone from darkness to light with this awful disease.

    I wish for you all that you need to have this be your story as well.

    ((hugs))

    Peggy

    Love your Story Peggy .....miracles happen ,some times
    more often we think,........but also with a little help of doctors and modern medicine! LOL..
    Hugs!
  • atrue
    atrue Member Posts: 29
    #8
    one year
    hi i am one year free of the BEAST....i am looking forward to many more. my prayers go out to all who are still fighting...keep smiling it makes you feel better
  • atrue
    atrue Member Posts: 29
    #9
    one year
    hi i am one year free of the BEAST....i am looking forward to many more. my prayers go out to all who are still fighting...keep smiling it makes you feel better
  • lesvanb
    lesvanb Member Posts: 905
    #10
    3 years since May '08
    and doing well, really. Not in tx; working; working out and losing weight slowly but surely, enjoying spring/summer. And waiting on my PET/CT Thurs.; and though I take each day at a time, sometimes the baggage weight I choose to pick up makes the days harder.

    lots of love, Leslie
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #11
    pepebcn said:

    Love your Story Peggy .....miracles happen ,some times
    more often we think,........but also with a little help of doctors and modern medicine! LOL..
    Hugs!

    BtW Peggy the last tumor....
    Chemo toke care of it? hugs!
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #12
    lesvanb said:

    3 years since May '08
    and doing well, really. Not in tx; working; working out and losing weight slowly but surely, enjoying spring/summer. And waiting on my PET/CT Thurs.; and though I take each day at a time, sometimes the baggage weight I choose to pick up makes the days harder.

    lots of love, Leslie

    Leslie nice to see you here!
    I miss you, praying for good PET!
    Take Care!
  • jjaj133
    jjaj133 Member Posts: 867 Member
    #13
    I am sending you a hug. I
    I am sending you a hug. I just had my 2nd resection of the liver and will find out the 22nd if i have to do chemo again. So i am feeling a bit down myself. However, it is ok. we have to let out our fears every once in awhile. I bet you spend a lot of energy protecting your love ones . Putting on a happy face.
    Tomorrow will be better. we are going to fight tooth and nail to beat this thing. It ain't gonna be easy, but it will be worth it. Hold tight my dear,take my cyber hand, we will all do this together.
    Prayers and hugs coming your way.
    Judy
  • PamPam2
    PamPam2 Member Posts: 370 Member
    #14
    stage 4 survivor
    Hi
    I went for emergency surgery in Aug 2004, so coming up on 7 yr since. Had total blockage due to tumor that grew through intestinal wall and engulfed overy, lymph nodes positive. Had lesions on liver that have been shrinking/dissapearing on their own, for whatever reason. Did 7 out of 12 chemo treatments, and surgery to remove tumor, half of colon, total hysterectomy, appendix, and lymph nodes. Still hanging in there!
    Pam
  • marqimark
    marqimark Member Posts: 242 Member
    #15
    Hope you feel better soon
    I only had 3c and I wouldn't know where to start counting the survivor timeline. Dx (3/10)or end of chemo (10/10).


    Anyway --- HUGS to you.

    Mark
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #16
    pluckey said:

    I had plenty of those,
    I had plenty of those, during and after!

    I was already pretty sick by the time I got DX'd in March 2009. CEA 1600

    During the next 12 months I had an ileostomy, colon tumor resection, 9 tumors on my liver, weekly chemo, several hospitilizations due to dehydration, malnutrition, blockages, feeding tubes, anorexia, infected Port, then, finally, thru a series of research and moments of clarity and connections and miracles, one year after diagnosis, I went to Sloan Kettering in NYC and had 8 of the 9 tumors on my liver removed.

    Today, I am one year past my final chemo treatments. 2.5 years post DX. All my hair is back. Except for my Portable catheter, you'd never know I had a 5-month Expiration Date on my head.

    I went for a port flush last month and the nurse recognized my name and was flabbergasted I was still amonth the living.

    Miracles HAPPEN; There are sooooo many people here that have gone from darkness to light with this awful disease.

    I wish for you all that you need to have this be your story as well.

    ((hugs))

    Peggy

    Peggy
    Your story gives my heart hope! Thank you for sharing that it IS possible for some to beat stage IV cancer!!

    Lisa
    (who is still in active treatment at stage IV, dx in Aug. 2007)
  • Nana b
    Nana b Member Posts: 3,030 Member
    #17
    marqimark said:

    Hope you feel better soon
    I only had 3c and I wouldn't know where to start counting the survivor timeline. Dx (3/10)or end of chemo (10/10).


    Anyway --- HUGS to you.

    Mark

    Stage 4
    Dx Nov 2008, with 4 liver lesions. Liver resection, April 2009. NED since. hang in there! Believe!
  • luvmum
    luvmum Member Posts: 457 Member
    #18
    Cheers to all stage IV survivors!!!
    Dear all,

    I'm so glad to see all your post here, they give me hope and light up my day.

    You are all my inspirations!
    Love and hugs to all of you.
    Dora
  • daBeachBum
    daBeachBum Member Posts: 164
    #19
    Six Months
    Been six months since the dx. Sitting and getting chemo (Avastin) right now.

    Feeling great and people who don't know I'm sick are shocked to find out, so no complaints!

    Best of luck to us all!

    Ray
  • pluckey
    pluckey Member Posts: 484 Member
    #20
    pepebcn said:

    BtW Peggy the last tumor....
    Chemo toke care of it? hugs!

    it's sitting on the hepatic
    it's sitting on the hepatic artery so it was ablated and is nice a dried up, not active per Scan!
  • mom_2_3
    mom_2_3 Member Posts: 953 Member
    #21
    Stage IV
    I was diagnosed (like Nana) in November 2008 with 5 bilobar liver mets. Colon resection, liver resection and HAI pump implanted in February 2009. Last chemo in November 2009. NED since (29 months) and next scan in August.

    I found lots of hope in "meeting" other long-term survivors here when I was first diagnosed. It's the least one can do to share hope with another.

    I hope you find strength in these posts,
    Amy

    PS. Our best friend's father just had his 7 year clean scan since diagnosis of Stage IV. This particular survivor had extensive lymph node mets throughout his chest and neck and became NED via colon surgery for primary and chemo only (Folfox/Avastin) for lymph mets. I just saw him last month at a birthday party and is he is feeling great!!

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