Thyroid Meds & Weight Gain

2

Comments

  • bkane101
    bkane101 Member Posts: 35
    sunnyaz said:

    You are very welcome!
    It may be that you aren't on enough replacement hormone. This depends on your current weight. I am 173 pounds right now and taking 175 mcg's daily if this gives you any indication of where you should be. I would ask your doctor as soon as possible. They should be trying to keep you hyperthyroid after a cancer diagnosis for at least the first three years. As you loose the weight you will probably need to have your dosage adjusted as well.

    You are right, most people have told me that it is impossible to loose the weight without a thyroid. I am bound and determined to beat the odds though. I worked too damn hard to get to a size four before my diagnosis and I will die trying to get back there. I work for a doctor that specializes in weight control and have a few tips if you are interested.

    1. Eat an apple or at least half an apple about half and hour before every meal. The pectin coats the stomach and makes it harder to absorb fat that you consume.
    2. Eat your biggest meal of the day in the morning then slowly tapper off towards sundown. Don't eat after sundown. Water only.
    3. Water, water, water. Fat is water soluble. You will pee out fat that you are burning.
    4. Eat smaller meals more often. Don't eat three meals a day. Have breakfast, snack, light lunch, snack and small dinner.
    5. Your stomach is only as big as your fist. Don't eat any more food (condensed) than the size of your fist in one sitting.
    6. Don't ever starve yourself. If you feel hungry eat something until you are "just" satisfied. This keeps your metabolism from going into starvation mode. This is how the hCG diet works. The hCG (human chorionic gonadotrophin) is the chemical in pregnant woman that stops them from going into starvation mode. This way the baby gets as much nutrition as it needs. If you keep your metabolism moving it will keep burning fat and calories. Lots of people have used hCG to loose weight and it's been effective. However, as you probably already know, any weight loss program includes modifying your life style for good.
    7. Exercise daily even if it just a walk. Try to get your heart rate up to 80% of it's max capacity for your age for at least 20 minutes per day. Work up from there. Don't over work your body or you will not want to keep it up. Also working too hard doesn't benefit you any more than a simple work out that gets you sweating a little and gets your heart rate up to 80% not 100%.
    8. My doctor prescribes an appetite suppressant called Phentermine. Yes, it's the first part of Phen in the Phen/Phen diet that caused so much debate in prior years. None of our patients have had any bad side effects from the Phentermine 37.5 mg. I have decided not to use the suppressant because appetite isn't my issue. I am pretty well controlled in that area.

    I have been able to maintain my current weight for about three months and I haven't really been busting my butt to get to the gym because I am gone eleven hours a day with my job and drive time. Working for a doctor is time consuming. I try to fit in work outs and "me time" on the weekends. At least I know when I finally do get back to a size four, I will be able to maintain it more easily than I could before. I believe we can do this! I fully intend to beat the odds and I know you will too. Maybe after we succeed we should meet and co-author a book for Thyroid cancer patients and weight loss.

    Blessings and healthy wishes,
    Julie-SunnyAZ

    Julie,
    Ironically it was the

    Julie,

    Ironically it was the nurse practitioner at the weight control center who found the tumor in my neck and told me to go check it out immediately and low and behold it was cancer! So I know about taking Phentermine because I was taking it up until my diagnosis. I didn't think we can still take it while taking thyroid medicine? I did put a call into my doctor this morning because I'm not waiting any longer to get my dosage adjusted. I too weigh what you do now and I've now put on 12 pounds in just over a week on the medicine, but yet I'm still so exhausted I can't try to exercise to help some of this weight gain. I'm only on 88mcg's so I'm hoping he'll double it. Plus I'm still waiting for my scan results from last week so at least I can (hopefully) not have to worry about cancer anymore. But today I am feeling so depressed and I've been incredibly moody lately. Did you experience that as a side affect as well? And I don't sleep well at all and have panic attacks and anxiety attacks in my sleep and very weird and active dreams. I'm a mess!!!!
  • bkane101
    bkane101 Member Posts: 35

    Weight gain
    I've been on Levoxyl since my TT in 2004 for HCC. I currently take 175 mcg six days a week and 1/2 tab on the seventh (lol, sounds kind of biblical). My weight has gone from 140 to 168. It swings up and down, and it sucks. I work out 5-6 days a week, bust my ****, and I still can't control my weight. My average weight has been 148-150. Now that might not seem heavy, but I'm 4'11'', so I feel like a fat, overweight cow. I hate it!!! And forget the damn holistic ****. It doesn't work. Your thyroid controls your metabolism and without it, meds keep you alive, but can't keep your weight down, unless you're taking to high of a dosage, which creates other medical issues.

    I'm on reoccurence #3, my 5th surgery since this all happened. My next surgery is Wed. I guess I can say I'm still alive, but damn, this sucks, for a cancer that's supposed to be 98% curable, I sure got the short end of the stick.

    It seems like you're on a
    It seems like you're on a high dosage of the medicine yet you're still having weight issues? I'm only on 88mcg's and not only do I have the weight problems but I'm still exhausted and my moods and emotions are all over the place! So sorry to hear that your cancer has come back so many times! You have surgery each time or just radiation? Do they just remove lymph nodes or are the tumors other places? I'm still waiting for my scan results and I'm hoping they come back all clear, but yet I was told that mine was pretty aggresive.
  • palmyrafan
    palmyrafan Member Posts: 396
    bkane101 said:

    Julie,
    Ironically it was the

    Julie,

    Ironically it was the nurse practitioner at the weight control center who found the tumor in my neck and told me to go check it out immediately and low and behold it was cancer! So I know about taking Phentermine because I was taking it up until my diagnosis. I didn't think we can still take it while taking thyroid medicine? I did put a call into my doctor this morning because I'm not waiting any longer to get my dosage adjusted. I too weigh what you do now and I've now put on 12 pounds in just over a week on the medicine, but yet I'm still so exhausted I can't try to exercise to help some of this weight gain. I'm only on 88mcg's so I'm hoping he'll double it. Plus I'm still waiting for my scan results from last week so at least I can (hopefully) not have to worry about cancer anymore. But today I am feeling so depressed and I've been incredibly moody lately. Did you experience that as a side affect as well? And I don't sleep well at all and have panic attacks and anxiety attacks in my sleep and very weird and active dreams. I'm a mess!!!!

    Thyroid Medication
    Just out of curiosity, what time of day are you taking your thyroid medication and what med are you taking?

    I take mine when I wake up at 5:00 a.m. and then I go back to bed for an hour until my husband wakes up. I try to take all my meds by noon so it doesn't interfere with my sleep. I noticed that the later I took my meds the more trouble I had sleeping.

    As for the weird dreams? I had those at the higher dose; especially when I started seeing neon signs as soon as I closed my eyes. I've never been to Times Square but I have seen it and that is what it felt like.

    I also had the panic and anxiety attacks as well. That is what convinced the docs to lower my dosage and to allow me to take it early in the a.m. so I could at least work through it through the day and not have it affect my sleep.

    Just an idea.
    Best of luck to you,

    Teresa
  • sunnyaz
    sunnyaz Member Posts: 582
    bkane101 said:

    Julie,
    Ironically it was the

    Julie,

    Ironically it was the nurse practitioner at the weight control center who found the tumor in my neck and told me to go check it out immediately and low and behold it was cancer! So I know about taking Phentermine because I was taking it up until my diagnosis. I didn't think we can still take it while taking thyroid medicine? I did put a call into my doctor this morning because I'm not waiting any longer to get my dosage adjusted. I too weigh what you do now and I've now put on 12 pounds in just over a week on the medicine, but yet I'm still so exhausted I can't try to exercise to help some of this weight gain. I'm only on 88mcg's so I'm hoping he'll double it. Plus I'm still waiting for my scan results from last week so at least I can (hopefully) not have to worry about cancer anymore. But today I am feeling so depressed and I've been incredibly moody lately. Did you experience that as a side affect as well? And I don't sleep well at all and have panic attacks and anxiety attacks in my sleep and very weird and active dreams. I'm a mess!!!!

    Ironic...... not really.
    Hi bkane,

    Most NP's are awesome! I used to work for one and he knows more than most doctors I have worked with. Strange that your doctor would put you on an appetite suppressant before checking your thyroid levels first. That is the first thing we do at our clinic for each new patient.

    I am exhausted too. I hate to say it but replacement hormone just isn't the same as having a thyroid. Even at 175 mcg's a day I just want to sleep but having trouble doing so. It's a no win situation. Depression and mood fluctuations are also a problem with me. I was generally a pretty happy person before my symptoms began. Before my diagnosis when I started feeling like crap, I was diagnosed with Bi-Polar disorder, Fibromyalgia and an assortment of other diseases that didn't make sense to me. I knew it all had to do with my Thyroid but my doctor wouldn't listen to me. Just because blood work comes back normal doesn't mean there isn't a problem. I had all of the classic symptoms of a non-functioning thyroid. My doctor just thought I was a hypochondriac. At least now he doesn't condescend to me like he used to. It's the "hah, I told you" concept I have to hold over his head. He actually takes what I say seriously now. I am able to call the office, tell him my symptoms, request the medication I need and they call it in for me with no questions asked. If I hadn't been in the Medical field and found my own thyroid nodule, who knows where I would be right now.

    I take diazepam 5 mg's in the evening after work to relax and then I take an over the counter sleep aid about half an hour before bed. I just use the generic equivalent to Unisom. This seems to keep me out for eight hours a night. I try to not use the diazepam unless I feel really anxious because it is addictive. I still have some disturbing dreams but I don't usually remember them in the morning. Maybe twenty-five percent of the time I remember them in detail.

    I think getting a higher dose of Synthroid is going to be good for your entire well being. Give it about two weeks to start really feeling the effects of the new dose. Remember that it takes T4 about two weeks to convert to TSH in your body. Ask your doctor for a prescription for anxiety and something to help you sleep more sound. It WILL make a difference in how you feel physically and mentally.

    Keep me posted, you are in my prayers. By the way, I don't know your first name. Are you willing to share it on line?

    Blessings,
    Julie-SunnyAZ
  • nasher
    nasher Member Posts: 505 Member
    bkane101 said:

    It seems like you're on a
    It seems like you're on a high dosage of the medicine yet you're still having weight issues? I'm only on 88mcg's and not only do I have the weight problems but I'm still exhausted and my moods and emotions are all over the place! So sorry to hear that your cancer has come back so many times! You have surgery each time or just radiation? Do they just remove lymph nodes or are the tumors other places? I'm still waiting for my scan results and I'm hoping they come back all clear, but yet I was told that mine was pretty aggresive.

    it all depends on your body and weight
    myself I am on 200 mgs synthroid and 25 mgs cytomel (weight 300 LBS)

    I am still showing most the symptoms of hypo-thyroidism though

    they also have me on celexa 20 mg/day <--- Anti Depressant
    the anti depressant seems to have stabalized my moods but i am still low on enegy and having problems looseing weight.

    I am currently on my LID for my 1 year out scans but at least im getting thyroigen injections this time

    as far as other extrem weight loss plans and such they have me going through the prep classes for barratric surgery since the docs all agree this is probaly the only way i will loose the weight.

    remember if you loose or gain a significant amount of weight (say 10% of your body weight) you will probaly have to get your synthroid level adjusted.

    @ Bkane101 - um 88mcg's sounds like a low dose to me... do you have any of your thyroid left or do you weight alot less than most of us.

    Craig
  • bkane101
    bkane101 Member Posts: 35

    Thyroid Medication
    Just out of curiosity, what time of day are you taking your thyroid medication and what med are you taking?

    I take mine when I wake up at 5:00 a.m. and then I go back to bed for an hour until my husband wakes up. I try to take all my meds by noon so it doesn't interfere with my sleep. I noticed that the later I took my meds the more trouble I had sleeping.

    As for the weird dreams? I had those at the higher dose; especially when I started seeing neon signs as soon as I closed my eyes. I've never been to Times Square but I have seen it and that is what it felt like.

    I also had the panic and anxiety attacks as well. That is what convinced the docs to lower my dosage and to allow me to take it early in the a.m. so I could at least work through it through the day and not have it affect my sleep.

    Just an idea.
    Best of luck to you,

    Teresa

    Teresa,
    I take the medicine

    Teresa,

    I take the medicine 1st thing when I wake up....or if I wake up a little early I will roll over and take it and then go back to sleep because I have to wait an hour before I eat and sometimes I don't have that long before I leave and then I have a long commute to work and that wouldn't be good on an empty stomach. I am taking Levothyroxine and the doctor just increased my dosage from 88mcg to 125mcg so I'm hoping it makes a difference soon.

    But if they lower your dosage doesn't that mean you'll have all the problems with weight gain and being tired? It seems like with these medicines you have to decide which problems you'd rather live with more!

    Barbara
  • bkane101
    bkane101 Member Posts: 35
    sunnyaz said:

    Ironic...... not really.
    Hi bkane,

    Most NP's are awesome! I used to work for one and he knows more than most doctors I have worked with. Strange that your doctor would put you on an appetite suppressant before checking your thyroid levels first. That is the first thing we do at our clinic for each new patient.

    I am exhausted too. I hate to say it but replacement hormone just isn't the same as having a thyroid. Even at 175 mcg's a day I just want to sleep but having trouble doing so. It's a no win situation. Depression and mood fluctuations are also a problem with me. I was generally a pretty happy person before my symptoms began. Before my diagnosis when I started feeling like crap, I was diagnosed with Bi-Polar disorder, Fibromyalgia and an assortment of other diseases that didn't make sense to me. I knew it all had to do with my Thyroid but my doctor wouldn't listen to me. Just because blood work comes back normal doesn't mean there isn't a problem. I had all of the classic symptoms of a non-functioning thyroid. My doctor just thought I was a hypochondriac. At least now he doesn't condescend to me like he used to. It's the "hah, I told you" concept I have to hold over his head. He actually takes what I say seriously now. I am able to call the office, tell him my symptoms, request the medication I need and they call it in for me with no questions asked. If I hadn't been in the Medical field and found my own thyroid nodule, who knows where I would be right now.

    I take diazepam 5 mg's in the evening after work to relax and then I take an over the counter sleep aid about half an hour before bed. I just use the generic equivalent to Unisom. This seems to keep me out for eight hours a night. I try to not use the diazepam unless I feel really anxious because it is addictive. I still have some disturbing dreams but I don't usually remember them in the morning. Maybe twenty-five percent of the time I remember them in detail.

    I think getting a higher dose of Synthroid is going to be good for your entire well being. Give it about two weeks to start really feeling the effects of the new dose. Remember that it takes T4 about two weeks to convert to TSH in your body. Ask your doctor for a prescription for anxiety and something to help you sleep more sound. It WILL make a difference in how you feel physically and mentally.

    Keep me posted, you are in my prayers. By the way, I don't know your first name. Are you willing to share it on line?

    Blessings,
    Julie-SunnyAZ

    Julie,
    Whenever I had my

    Julie,

    Whenever I had my bloodwork done I never had any problems with my thyroid that showed up in my results. The only reason I knew I had cancer was from the lump and then the biopsy. The doctor decided to increase my dosage from 88mcg to 125mcg so today is my first day on the higher amount. I should be feeling immediately back to normal, right??? If only! One of my co-workers is on thyroid medicine because her thyroid doesn't work anymore and her doctor splits her dosage up to twice a day to prevent her from feeling tired towards the end of the day, which doesn't sound like a bad idea so I might ask my doctor about that when I see him next month. She also takes adreanal supplements which helps her body produce adrenaline so she doesn't crash and she has consistant energy all day long. Have you heard of that? Again that doesn't sound like a bad thing either.

    Barbara
  • bkane101
    bkane101 Member Posts: 35
    nasher said:

    it all depends on your body and weight
    myself I am on 200 mgs synthroid and 25 mgs cytomel (weight 300 LBS)

    I am still showing most the symptoms of hypo-thyroidism though

    they also have me on celexa 20 mg/day <--- Anti Depressant
    the anti depressant seems to have stabalized my moods but i am still low on enegy and having problems looseing weight.

    I am currently on my LID for my 1 year out scans but at least im getting thyroigen injections this time

    as far as other extrem weight loss plans and such they have me going through the prep classes for barratric surgery since the docs all agree this is probaly the only way i will loose the weight.

    remember if you loose or gain a significant amount of weight (say 10% of your body weight) you will probaly have to get your synthroid level adjusted.

    @ Bkane101 - um 88mcg's sounds like a low dose to me... do you have any of your thyroid left or do you weight alot less than most of us.

    Craig</p>

    Craig,
    I don't have any

    Craig,

    I don't have any thyroid left and my weight is heavy for a girl now...170. I was 145 before my cancer diagnosis. My doctor just increased my dosage to 125mcg so I'm hoping things start changing a bit for me. I think they just started me out low to get used to the medicine but I'm glad he agreed to increase it.

    Barbara
  • Baldy
    Baldy Member Posts: 243
    bkane101 said:

    Craig,
    I don't have any

    Craig,

    I don't have any thyroid left and my weight is heavy for a girl now...170. I was 145 before my cancer diagnosis. My doctor just increased my dosage to 125mcg so I'm hoping things start changing a bit for me. I think they just started me out low to get used to the medicine but I'm glad he agreed to increase it.

    Barbara

    Dosage
    Barbara,

    I'm no doctor, but 125 mcg STILL sounds low to me. I've been at 175 mcg from the start and I'm hovering between 160 & 165 pounds, {I think they weighed me at 166 pounds when the endocrinologist set the dose.} My endo told me that he wanted me slightly hyperthyroidal. I haven't noticed any weight gain except immeadiately after my surgery when I was literally sitting around doing nothing.

    Alan
  • sunnyaz
    sunnyaz Member Posts: 582
    bkane101 said:

    Craig,
    I don't have any

    Craig,

    I don't have any thyroid left and my weight is heavy for a girl now...170. I was 145 before my cancer diagnosis. My doctor just increased my dosage to 125mcg so I'm hoping things start changing a bit for me. I think they just started me out low to get used to the medicine but I'm glad he agreed to increase it.

    Barbara

    I agree with Craig
    Barbara,

    I agree with Craig. I think your dose needs to be more like 175 mcg's. There should be no reason to have you "get used to the medicine" since it's a naturally occurring hormone in your body. After a cancer diagnosis the goal is to keep you hyperthyroid for the first three years from your last diagnosis/recurrence. My TSH is .4 and that is where they want to keep me. Have you gotten your labs and found out where your TSH level is? At the 125 mcg dose you should have another lab two weeks after you started it to find out where your levels are. It will take that long for the T4 to change to TSH in your body. If you are not below 1 you should have your dose increased.

    Blessings,
    Julie-SunnyAZ
  • bkane101
    bkane101 Member Posts: 35
    sunnyaz said:

    I agree with Craig
    Barbara,

    I agree with Craig. I think your dose needs to be more like 175 mcg's. There should be no reason to have you "get used to the medicine" since it's a naturally occurring hormone in your body. After a cancer diagnosis the goal is to keep you hyperthyroid for the first three years from your last diagnosis/recurrence. My TSH is .4 and that is where they want to keep me. Have you gotten your labs and found out where your TSH level is? At the 125 mcg dose you should have another lab two weeks after you started it to find out where your levels are. It will take that long for the T4 to change to TSH in your body. If you are not below 1 you should have your dose increased.

    Blessings,
    Julie-SunnyAZ

    Dosage
    (It's weird because I typed out a post a couple hours ago & I don't see it here so I'm trying to remember what I wrote!)
    I do think the 125mcg is still too low. I was completely exhausted this weekend...again. And going to work and then coming home and still having to be mom to 2 girls is really hard! But yet should I be noticing a difference yet in 5 days? I know you've said it can take 2 weeks so maybe it will get better??? My doctor is not having me come back in until about June 17th for my labs and I have an appointment June 20th. A co-worker of mine that has thyroid problems told me there is no way that I can wait that long to have my labs done because at the rate I'm going I won't be able to function by then! I have no idea what my levels are right now. I'm thinking I might call my doctor next week and see if they can do lab work. This is all so confusing.

    Barbara
  • sunnyaz
    sunnyaz Member Posts: 582
    bkane101 said:

    Dosage
    (It's weird because I typed out a post a couple hours ago & I don't see it here so I'm trying to remember what I wrote!)
    I do think the 125mcg is still too low. I was completely exhausted this weekend...again. And going to work and then coming home and still having to be mom to 2 girls is really hard! But yet should I be noticing a difference yet in 5 days? I know you've said it can take 2 weeks so maybe it will get better??? My doctor is not having me come back in until about June 17th for my labs and I have an appointment June 20th. A co-worker of mine that has thyroid problems told me there is no way that I can wait that long to have my labs done because at the rate I'm going I won't be able to function by then! I have no idea what my levels are right now. I'm thinking I might call my doctor next week and see if they can do lab work. This is all so confusing.

    Barbara

    Dosage
    Yes, it takes two weeks for the T4 (levothyroxine ie. Synthroid) to turn to TSH in your body. There is no way to notice a difference or be able to tell from labs until that point. I know this is frustrating but you just need to hang in there. I still think that you needed to start out at 175 mcg's just from what you have told me. My doctor started me on that dose and got it right the first time. It is based on weight, age etc. I think that you and I are about the same age and weight within a few pounds and years.

    I am hoping and praying that you will feel better soon. I know this is no real consolation but here is the reality. I am right where I need to be with my meds/TSH levels and I still have issues. On the weekends I take two hour naps and sleep at least ten hours a night to make up for only eight hours I get during the week. Eight used to be plenty of sleep for me. Now I wake up tired and never feel rested no matter how much I sleep. My TSH level is Hyperthyroid at 0.4. I realize that I will never be the same again. There should be a law that anyone without a Thyroid is able to go on disability because I just don't know how I am going to get through the next twenty years until I am able to retire.

    Blessings,
    Julie-SunnyAZ
  • bkane101
    bkane101 Member Posts: 35
    sunnyaz said:

    Dosage
    Yes, it takes two weeks for the T4 (levothyroxine ie. Synthroid) to turn to TSH in your body. There is no way to notice a difference or be able to tell from labs until that point. I know this is frustrating but you just need to hang in there. I still think that you needed to start out at 175 mcg's just from what you have told me. My doctor started me on that dose and got it right the first time. It is based on weight, age etc. I think that you and I are about the same age and weight within a few pounds and years.

    I am hoping and praying that you will feel better soon. I know this is no real consolation but here is the reality. I am right where I need to be with my meds/TSH levels and I still have issues. On the weekends I take two hour naps and sleep at least ten hours a night to make up for only eight hours I get during the week. Eight used to be plenty of sleep for me. Now I wake up tired and never feel rested no matter how much I sleep. My TSH level is Hyperthyroid at 0.4. I realize that I will never be the same again. There should be a law that anyone without a Thyroid is able to go on disability because I just don't know how I am going to get through the next twenty years until I am able to retire.

    Blessings,
    Julie-SunnyAZ

    Julie,
    I figure I should

    Julie,

    I figure I should wait until I get my labs done, but yet since I've still got the lower dosage in me as well shouldn't I be feeling a little better by now? Not sure if I should call the doctor for labs or wait until next week. My boyfriend really wants it checked since I've basically "checked out" with him. I just can't deal with anything extra in my life right now and I dont' want to go anywhere or be around anyone right now. I just want to lay down and be home in my sweats. And I do agree about the disability...it's so hard to work!

    One question I haven't asked...I have constant restless leg syndrome and it's really bad in my right leg and I've had it since right after surgery. It's horrible and it's really hard for me to fall asleep. I didn't know if this is a symptom of the fatigue or what but it's driving me crazy!!!

    Barbara
  • sunnyaz
    sunnyaz Member Posts: 582
    bkane101 said:

    Julie,
    I figure I should

    Julie,

    I figure I should wait until I get my labs done, but yet since I've still got the lower dosage in me as well shouldn't I be feeling a little better by now? Not sure if I should call the doctor for labs or wait until next week. My boyfriend really wants it checked since I've basically "checked out" with him. I just can't deal with anything extra in my life right now and I dont' want to go anywhere or be around anyone right now. I just want to lay down and be home in my sweats. And I do agree about the disability...it's so hard to work!

    One question I haven't asked...I have constant restless leg syndrome and it's really bad in my right leg and I've had it since right after surgery. It's horrible and it's really hard for me to fall asleep. I didn't know if this is a symptom of the fatigue or what but it's driving me crazy!!!

    Barbara

    Maybe okay to wait.
    Hi Barbara,

    It might be better to wait and see what the lab results are on the new dose first and then have it increased if you are still not within the range they want you to be. Then do labs again after the increase to be sure it is right.

    I fully understand the "checking out" concept. Wish I could check out of my job right now. My boss, the Doctor, almost had me in tears today. Doctor's can be such ****. I wanted to run out of there and never go back. Would love to go back to my old career as a business owner working from home, but the economy took a dive and I lost my business in 2009. Good thing I had the medical field to fall back on.

    I am assuming the Restless Leg Syndrome started after your TT. That's pretty typical. I think I remember experiencing that before I started on the anxiety meds and the sleep aids. And I know I had it before my diagnosis when I was hypothyroid from the cancer. I would probably have the same problem now if I didn't take meds.

    Maybe your doctor can prescribe something to help. You may need to try a few different medications before you find the one that works. There are two medications that are commonly used for RLS right now. They are Mirapex and Requip. Requip (generic name ropinirole) and Mirapex (generic name pramipexole), both originally used to treat Parkinson's disease. This class of drugs, called dopamine agonists, activates receptors in the brain that produce dopamine, a chemical that helps regulate movement and mood.

    Here is a website that might help aslo.
    http://www.helpguide.org/life/restless_leg_syndrome_rls.htm

    I might be more inclined to try a natural remedy first and if that doesn't work, see your doctor about a prescription for Mirapex or Requip.

    Take care and keep in touch. Let me know if you come up with anything that works for your RLS.

    Blessings,
    Julie-SunnyAZ
  • LBlackman
    LBlackman Member Posts: 113
    sunnyaz said:

    Maybe okay to wait.
    Hi Barbara,

    It might be better to wait and see what the lab results are on the new dose first and then have it increased if you are still not within the range they want you to be. Then do labs again after the increase to be sure it is right.

    I fully understand the "checking out" concept. Wish I could check out of my job right now. My boss, the Doctor, almost had me in tears today. Doctor's can be such ****. I wanted to run out of there and never go back. Would love to go back to my old career as a business owner working from home, but the economy took a dive and I lost my business in 2009. Good thing I had the medical field to fall back on.

    I am assuming the Restless Leg Syndrome started after your TT. That's pretty typical. I think I remember experiencing that before I started on the anxiety meds and the sleep aids. And I know I had it before my diagnosis when I was hypothyroid from the cancer. I would probably have the same problem now if I didn't take meds.

    Maybe your doctor can prescribe something to help. You may need to try a few different medications before you find the one that works. There are two medications that are commonly used for RLS right now. They are Mirapex and Requip. Requip (generic name ropinirole) and Mirapex (generic name pramipexole), both originally used to treat Parkinson's disease. This class of drugs, called dopamine agonists, activates receptors in the brain that produce dopamine, a chemical that helps regulate movement and mood.

    Here is a website that might help aslo.
    http://www.helpguide.org/life/restless_leg_syndrome_rls.htm

    I might be more inclined to try a natural remedy first and if that doesn't work, see your doctor about a prescription for Mirapex or Requip.

    Take care and keep in touch. Let me know if you come up with anything that works for your RLS.

    Blessings,
    Julie-SunnyAZ

    weight, thyroid dose, RLS
    I have noticed my right leg has been very restless at night and gives me troubles too, but never associated it with thyroid problems....I weighed in at 172 and have been on 150mcg except for Sat & Sun I am on 175 mcg. I lose weight when I am on the Atkins and actually have more energy, I just can't do it until after my scan tomorrow. I had labs done today and once again, another "mis-communication" with my Dr. I asked about checking my vitamin D levels and the tech said she didn't have an order to do that so she asked the Dr. and she said that should have been checked all along and they haven't been doing it. I am so thankful for the suggestions from others on this page. I will have a whole list of questions for my Dr. I got two different instructions from two different nurses in her office as to what to do before my scan. After this scan, I plan to find a new Dr. probably at the Mayo Clinic....
  • palmyrafan
    palmyrafan Member Posts: 396
    bkane101 said:

    Teresa,
    I take the medicine

    Teresa,

    I take the medicine 1st thing when I wake up....or if I wake up a little early I will roll over and take it and then go back to sleep because I have to wait an hour before I eat and sometimes I don't have that long before I leave and then I have a long commute to work and that wouldn't be good on an empty stomach. I am taking Levothyroxine and the doctor just increased my dosage from 88mcg to 125mcg so I'm hoping it makes a difference soon.

    But if they lower your dosage doesn't that mean you'll have all the problems with weight gain and being tired? It seems like with these medicines you have to decide which problems you'd rather live with more!

    Barbara

    Levo
    I also have to take my Levo on an empty stomach so I take it when I first wake up and then go back to sleep for an hour.

    My dosage is 25 mcgs per day; but I still have my thyroid. It was almost destroyed during radiation therapy and now I am being treated for hypothyroidism. As for the weight gain, I have only gained 4 pounds in 4 months and that weight is probably due to the Prednisone I am also taking. I am being tapered on that med from 30 mgs a day in February to 17 mgs daily now. The docs want me at 7.5 mgs a day on the Prednisone and to stay at 25 mcgs per day on the Synthroid.

    As for the Prednisone? I was put on Decadron by some resident who unilaterally decided that I needed to be on it when I was in the hospital and he heard I have brain cancer. Was switched to Prednisone due to Steroid Psychosis while on the Dec. Been weaning down ever since.

    The meds have been playing havoc with my hearing. Some days I hear great and other days I can't hear at all. But, given the choice, I told the docs to save my vision and I'll learn sign language if need be.

    Teresa
  • sunnyaz
    sunnyaz Member Posts: 582

    Levo
    I also have to take my Levo on an empty stomach so I take it when I first wake up and then go back to sleep for an hour.

    My dosage is 25 mcgs per day; but I still have my thyroid. It was almost destroyed during radiation therapy and now I am being treated for hypothyroidism. As for the weight gain, I have only gained 4 pounds in 4 months and that weight is probably due to the Prednisone I am also taking. I am being tapered on that med from 30 mgs a day in February to 17 mgs daily now. The docs want me at 7.5 mgs a day on the Prednisone and to stay at 25 mcgs per day on the Synthroid.

    As for the Prednisone? I was put on Decadron by some resident who unilaterally decided that I needed to be on it when I was in the hospital and he heard I have brain cancer. Was switched to Prednisone due to Steroid Psychosis while on the Dec. Been weaning down ever since.

    The meds have been playing havoc with my hearing. Some days I hear great and other days I can't hear at all. But, given the choice, I told the docs to save my vision and I'll learn sign language if need be.

    Teresa

    Hi Teresa
    So sorry to hear about your hearing. No pun intended. Because you have been hearing for so many years, you will be able to speak just fine if your hearing does take a turn for the worse. However, with the use of hearing aids you will probably be just fine unless it's a connection from the ears to the brain. It's kind of interesting that you mention the hearing loss because I have some issues with hearing also. I can mostly hear okay, but if there is a lot of different noises in a room or too many different sounds going on at the same time (such as in a crowded restaurant), I have difficulty understanding the person I am talking with. This started when I was a kid. My mom noticed that in loud places I would retreat to a corner or the quietest location and cover my ears with my eyes closed and head down between my legs. So..... knowing this, I took American Sign Language in college as my second language should my hearing ever deteriorate further. It has come in very handy in my career. Spanish would have been an asset as well, living in the southwest, but I wasn't really interested in Spanish. I just don't like the way it sounds. Had some bad experiences as a kid growing up "gringa" (white girl) in Tucson. I was actually a minority here. I was picked on because I moved from Upper Michigan, near Canada and I was really very white/pale. The Hispanic girls at my school hated me because I had long dark hair and very fair complected. I am not angry or prejudice against Hispanics, but I have developed a severe dislike to the language that they try to force down our throats. Anyway, my point is that Sign Language has been a valuable language for me and I highly recommend learning it even if you never loose your hearing. It's also really fun.
    Blessings,
    Julie-SunnyAZ
  • nasher
    nasher Member Posts: 505 Member
    LBlackman said:

    weight, thyroid dose, RLS
    I have noticed my right leg has been very restless at night and gives me troubles too, but never associated it with thyroid problems....I weighed in at 172 and have been on 150mcg except for Sat & Sun I am on 175 mcg. I lose weight when I am on the Atkins and actually have more energy, I just can't do it until after my scan tomorrow. I had labs done today and once again, another "mis-communication" with my Dr. I asked about checking my vitamin D levels and the tech said she didn't have an order to do that so she asked the Dr. and she said that should have been checked all along and they haven't been doing it. I am so thankful for the suggestions from others on this page. I will have a whole list of questions for my Dr. I got two different instructions from two different nurses in her office as to what to do before my scan. After this scan, I plan to find a new Dr. probably at the Mayo Clinic....

    slow and steady
    The reason they go slow on increasing your synthroid dose is they do not want you to have the problems with excessive hyperthyroidism.

    Darn it i cannot find my calculation for weight so I am making one from the normal dose

    100-125 mcg/day for a 70 kg adult
    1 kg = 2.2 lbs therefore 154 lbs

    Barbara you said you weigh about 170 lbs so from what i have seen for people of that weight you should be roughly on 150-200 mcg/day

    Synthroid builds up very slowly in the body and it take about 6 weeks to get to the new level where they can do the blood test and determine what your free T4 levels are at.

    Another thing you should consider one of the side effects from too much synthroid is intolerance to heat and you mentioned you are in California and something about 110 F heat expected... being on too much synthroid would make it feel much worse.

    for myself I am at 200 mcg of synthroid and 25 mcg of Cytomel (or the equivalent of 300 mcg total synthroid) and for my weight that is about right.

    Another option you might have is ask the doctors about doing a synthroid and Cytomel trial to see if that controls your thyroid replacement better.

    Cytomel takes about 8 days to build up to the full strength while synthroid takes about 6 weeks.

    The ONLY problem I have noticed with Cytomel is if I miss a dose I notice it that day... if you miss a dose of synthroid you might not even notice it.

    Be sure to check your calcium and vitamin D levels (being in California you might not have the vitamin D problems I have in Washington)

    Good luck and keep us informed

    Craig
  • teamwink
    teamwink Member Posts: 97
    is it possible?
    I have similar issues - I am heavier than I've been in 10 years, and I'm eating less and exercising a little more. I am barely fitting into my "fat clothes", those that I wore in the first trimester of pregnancy and after the baby came. My doc says my levels are normal so she is not concerned, but I feel like I'm spinning my wheels and I'm miserable dieting with no results at all. I've never had this problem, and I'm not sure how to address it in a healthy way - advice?
  • teamwink
    teamwink Member Posts: 97
    is it possible?
    I have similar issues - I am heavier than I've been in 10 years, and I'm eating less and exercising a little more. I am barely fitting into my "fat clothes", those that I wore in the first trimester of pregnancy and after the baby came (ladies who've had babies, you know what I mean!). My doc says my levels are normal so she is not concerned, but I feel like I'm spinning my wheels and I'm miserable dieting with no results at all. I've never had this problem, and I'm not sure how to address it in a healthy way - advice?