Got CT Results today.....

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Comments

  • AnneCan
    AnneCan Member Posts: 3,673 Member
    Melissa
    Hugs are coming to you. I am sorry you have these Da%$ nodules. I have a small one on my lung + the onc says we will deal with it when we need to. Right now we are more concerned with the Liver + lymph nodes. I have never had a PET. I think a second opinion is a good idea. I am thinking of you + I am hoping for good things for you.
  • sasjourney
    sasjourney Member Posts: 395 Member
    Sorry to hear your news
    Melissa,

    Sorry that you didn't get better news and I know it is impossible not to worry about it now. I would get some second opinions and start figuring out your plan of attack. My thoughts and prayers are with you. Now go kick some butt!

    Hugs,
    Sara
  • lisa42
    lisa42 Member Posts: 3,625 Member
    Melissa
    Hi Melissa,

    I'm sorry you had disappointing results on your scan, truly. Me too, actually, so I know how you're probably feeling this week.
    The thing that seems so weird to me is how oncs are all so different. Yours won't give you a PET scan & mine won't give any other kind of scan. I get a PET/CT every time. I've asked if I should have a regular CT with contrast & he said no, because then we wouldn't be able to see or follow the change in metabolic uptake/activity. So I get a PET every single time. I know that my liver surgeon doesn't put a lot of stock in PETs. My onc said for him it depends upon where the PET is being taken. Some places have better and more or less precise machines than other places.
    I'm glad to hear your update that you went ahead and made an appointment with another oncologist. I was very surprised to hear that he didn't give you chemo, saying the nodules are too small. Why wait and just watch them grow? Doesn't make sense to me & I guess it didn't to you either, which is one of the reasons you're switching oncs. the wait and see what happens approach is the stupid approach, in my opinion! If it were your onc w/ the nodules, would he just wait and see what happens? I bet not!
    I hope that your appt w/ the new onc goes well and that he or she is more proactive than your first onc.
    I have my appt w/ my onc on Monday to discuss my scan results. My growth was slight & since there really isn't any other chemos left for me (the one I'm on now isn't even approved for colorectal cancer- it was a fight for insurance to pay for it, so I don't know where I turn now). Maybe we'll just keep it the same and I'll step up/continue the natural treatments as well. That is one nice thing- my onc is fine w/ me doing holistic treatments in addition to my chemo. I really haven't been doing it long enough to see it impact those nasty tumor cells yet.

    There's more that can be done & I'm glad you made the change. Let us know how that appt goes- take care!

    Lisa
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    lisa42 said:

    Melissa
    Hi Melissa,

    I'm sorry you had disappointing results on your scan, truly. Me too, actually, so I know how you're probably feeling this week.
    The thing that seems so weird to me is how oncs are all so different. Yours won't give you a PET scan & mine won't give any other kind of scan. I get a PET/CT every time. I've asked if I should have a regular CT with contrast & he said no, because then we wouldn't be able to see or follow the change in metabolic uptake/activity. So I get a PET every single time. I know that my liver surgeon doesn't put a lot of stock in PETs. My onc said for him it depends upon where the PET is being taken. Some places have better and more or less precise machines than other places.
    I'm glad to hear your update that you went ahead and made an appointment with another oncologist. I was very surprised to hear that he didn't give you chemo, saying the nodules are too small. Why wait and just watch them grow? Doesn't make sense to me & I guess it didn't to you either, which is one of the reasons you're switching oncs. the wait and see what happens approach is the stupid approach, in my opinion! If it were your onc w/ the nodules, would he just wait and see what happens? I bet not!
    I hope that your appt w/ the new onc goes well and that he or she is more proactive than your first onc.
    I have my appt w/ my onc on Monday to discuss my scan results. My growth was slight & since there really isn't any other chemos left for me (the one I'm on now isn't even approved for colorectal cancer- it was a fight for insurance to pay for it, so I don't know where I turn now). Maybe we'll just keep it the same and I'll step up/continue the natural treatments as well. That is one nice thing- my onc is fine w/ me doing holistic treatments in addition to my chemo. I really haven't been doing it long enough to see it impact those nasty tumor cells yet.

    There's more that can be done & I'm glad you made the change. Let us know how that appt goes- take care!

    Lisa

    Melissa......remember,
    that change is normally a good thing......and in this case I think its a great thing......buzz
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    Lilmiss82 said:

    Hi Pepe
    For some reason my oncologist never wants to do a PET scan. She always says that PETs are not for colon cancer follow up. But I just switched oncologist like 5 minutes ago and have an appointment for this coming tuesday and my husband and I will ask for a PET.

    PET
    I'm sorry about your CT results. Overall it sounds like your oncologist is on track, due to how small the growths are. But I would want a PET to see if there is activity which shows probable cancer or not.

    I don't understand your oncologist saying that PET is not for colon cancer follow up. That is all I get right now - PET/CT. Since my progression has been in lymph nodes only so far, those are hard to pick up on CT alone, and you don't get as much information on whether something is benign or cancer. A PET/CT can give more answers. Push for A PET for your peace of mind - the more information you can arm yourself with, the better decisions you can make.
  • dorookie
    dorookie Member Posts: 1,731 Member
    Thinking of you
    I am sorry your results were not what you expected or wanted. I have to agree with Lisa on how different ONC can be. I tell you I must have had an angel in my ONC, because I never questioned, nor ever felt like I needed to,I just did what he said, when my cancer came back in my right lung, found during a cat scan, he immediately did a PET scan, then a biopsy, I really dont recall how big it was but I want to say 5-7mm range, I could be wrong, but anyway, he immediately set me up for surgery, the plan was to get it out of me, like for buzz, then start chemo. I could have argued that chemo wasnt needed after I got an all clear margins and no lymph node involvement, but my ONC said that chemo was in his plans and he highly recommended I do it, and so far (knocking on wood) I have been clear for 2.5 years. I know alot of people talk about Dr. Lenz and some other doctors, but let me tell you my ONC (my angel) name is Dr. Kellogg, and he is located in Phoenix AZ. I have a new ONC only because I got a job transfer to Texas, if it werent for that I would still be with the same one. Just an outstanding DR, doesnt talk much, but very compassionate, and above all very very knowledgeable. I too would recommend a PET scan, but others here dont agree, I had a very aggressive ONC and well I have said enough about him.

    You will be in my prayers, stay strong young lady, and before you know it we will be calling you old lady..LMAO...

    HUGS
    Beth
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    Melissa
    I was upset at reading your post and Lisa's. I really wanted improvements for you both. But we are family on here, and we are in this together. Your a tough lady and I know you'll get a plan of action together. Hopefully your nodules will stay down in the next scan, I pray they do.

    Hugs
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Sorry
    Melissa,

    I know how distressing this must be for you! Praying things will be just fine for you!

    *hugs*
    Gail