a poll about hospice/Update about my brother

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Comments

  • angelsbaby
    angelsbaby Member Posts: 1,165 Member
    tootsie1 said:

    I'd want to know
    If I were dying, I would want to know. I believe people probably do realize it, but I would like to hear it, just the same. I have a very kind, caring doctor, and I would want to hear the news from him.

    I'm so sorry about the situation with your brother. I'll be praying for peace for all of you.

    *hugs*
    Gail

    The Dr
    told angel he had a few months months but angel knew i think a week before that this was it

    hospice nurses told me not angel the signs of death

    michelle
  • tesslee
    tesslee Member Posts: 97

    The Dr
    told angel he had a few months months but angel knew i think a week before that this was it

    hospice nurses told me not angel the signs of death

    michelle

    an
    update to the condition of my brother is posted in the first post. thank you.
  • ktlcs
    ktlcs Member Posts: 358
    tesslee said:

    an
    update to the condition of my brother is posted in the first post. thank you.

    I am glad
    That your brother is doing better and that he is at home. He sounds like a real fighter. when it came time for hospice for my husband all of the Drs assured me that the hospice workers would tell him what was happening. They were kind and wonderful people. Yet I chose to tell him myself. He took the news peacefully, asked for the morphine drip (he was in excrutiating pain) and passed in the hospital that same night, before we could aven move him to a facility. It sounds as if you had a bad experience with, not all hospice workers are the same, most are very caring of not only the patien but the family

    I wish you and you family all the best.
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    ktlcs said:

    I am glad
    That your brother is doing better and that he is at home. He sounds like a real fighter. when it came time for hospice for my husband all of the Drs assured me that the hospice workers would tell him what was happening. They were kind and wonderful people. Yet I chose to tell him myself. He took the news peacefully, asked for the morphine drip (he was in excrutiating pain) and passed in the hospital that same night, before we could aven move him to a facility. It sounds as if you had a bad experience with, not all hospice workers are the same, most are very caring of not only the patien but the family

    I wish you and you family all the best.

    tesslee..............My heart goes out to you and family
    what a terrible situation to be in...I wish all the peace and calm and serenity in the universe for you and yours........Clift
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    Tesslee
    I am really happy your brother is home + is out of the situation. Thanks for the update.
  • tesslee
    tesslee Member Posts: 97
    AnneCan said:

    Tesslee
    I am really happy your brother is home + is out of the situation. Thanks for the update.

    thank you
    very much. this has been so hard.
  • tesslee said:

    thank you
    very much. this has been so hard.

    This comment has been removed by the Moderator
  • tesslee
    tesslee Member Posts: 97
    unknown said:

    This comment has been removed by the Moderator

    thank you Gracie
    i knew that already. that is why it did not hurt me. i would be very protective also of a chosen profession meant for love and compassion to help someone make their transition. i would only hope that no one go against my wishes if i am not ready. he's requested to see me today, so i'mm off. love to all.
  • tesslee
    tesslee Member Posts: 97
    tesslee said:

    thank you Gracie
    i knew that already. that is why it did not hurt me. i would be very protective also of a chosen profession meant for love and compassion to help someone make their transition. i would only hope that no one go against my wishes if i am not ready. he's requested to see me today, so i'mm off. love to all.

    found out
    the drug narcon is what brought him back. thank god for that.
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    tesslee said:

    found out
    the drug narcon is what brought him back. thank god for that.

    How was your visit?
    Tesslee, how was your visit with your brother?
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    tesslee said:

    found out
    the drug narcon is what brought him back. thank god for that.

    Tess
    If the drug given to your brother was Narcan, the opiate reversal agent to stop the action of his pain medication, he most likely was dealing with pain med overuse/toxicity and the drug helped to bring him out of the effects. Please refer to the website link below. It was written by a hospice nurse who was the caregiver for her husband who died of colon cancer. She is well informed and really touches on issues that we all deal with but, this posting labeled "WHEN YOUR LOVED ONE IS NOT HIMSELF" is quite informative and might apply to what your brother experienced before given Narcan. The posting is about half way down the page. Here is the site: http://sheddinglightonthecancerjourney.wordpress.com/page/2/.

    May I say that her blog should be required reading for anyone going through this cancer journey. I sent you to the 2nd page because it discusses the use of anti-anxiety and pain meds and how they effect the hospice experience. But, her whole blog is so full of good information and real human experience and I've found it a wonderful read.

    I hope your visit with your brother went well for you both. HUGS
  • Lori-S said:

    Tess
    If the drug given to your brother was Narcan, the opiate reversal agent to stop the action of his pain medication, he most likely was dealing with pain med overuse/toxicity and the drug helped to bring him out of the effects. Please refer to the website link below. It was written by a hospice nurse who was the caregiver for her husband who died of colon cancer. She is well informed and really touches on issues that we all deal with but, this posting labeled "WHEN YOUR LOVED ONE IS NOT HIMSELF" is quite informative and might apply to what your brother experienced before given Narcan. The posting is about half way down the page. Here is the site: http://sheddinglightonthecancerjourney.wordpress.com/page/2/.

    May I say that her blog should be required reading for anyone going through this cancer journey. I sent you to the 2nd page because it discusses the use of anti-anxiety and pain meds and how they effect the hospice experience. But, her whole blog is so full of good information and real human experience and I've found it a wonderful read.

    I hope your visit with your brother went well for you both. HUGS

    This comment has been removed by the Moderator
  • tesslee
    tesslee Member Posts: 97
    unknown said:

    This comment has been removed by the Moderator

    Anne
    my visit was great. i was there 3+ hours. he talks, acts normal. he isn't walking yet. he did walk to the bathroom to go potty. his hospital bed is perfect. he was having a good time making it go uip and down, lol. his daughter (caregiver, respiratory therapist with children with tracheotomies(major mispell) would say Dad, don't go to far, remember your boxes of feed are under there. he likes to joke and makes you laugh. he loves hotrods and has been doing a lot of reading (about a special kind he plans on purchasing. so he has long term goals and does not plan on dying anytime soon.

    Lori i went to that site, and what i understood was a massive amount off miscommunication between medical professionals. i am not sure of what happened in this case, but do know miscommunication was given as to his condition, causes, and why it was time for his transition. i really hate to relay this info as i am not the immediate family, but i will give my impression.

    he was admitted because it was thought he had a dead bowel. abdominal pain. they opened him up and found it to be gas, closed him back. because he had a hard time bouncing back, sleeping a lot and such, the family was told it was his cancer, that he wasn't going to get better. then hospice enters the picture.

    what he is looking at now is walking again, to recover from the surgery, and then time will tell. Lori, i've bookmarked that site and plan to spend more time reading it. than you all.
  • tesslee
    tesslee Member Posts: 97
    tesslee said:

    Anne
    my visit was great. i was there 3+ hours. he talks, acts normal. he isn't walking yet. he did walk to the bathroom to go potty. his hospital bed is perfect. he was having a good time making it go uip and down, lol. his daughter (caregiver, respiratory therapist with children with tracheotomies(major mispell) would say Dad, don't go to far, remember your boxes of feed are under there. he likes to joke and makes you laugh. he loves hotrods and has been doing a lot of reading (about a special kind he plans on purchasing. so he has long term goals and does not plan on dying anytime soon.

    Lori i went to that site, and what i understood was a massive amount off miscommunication between medical professionals. i am not sure of what happened in this case, but do know miscommunication was given as to his condition, causes, and why it was time for his transition. i really hate to relay this info as i am not the immediate family, but i will give my impression.

    he was admitted because it was thought he had a dead bowel. abdominal pain. they opened him up and found it to be gas, closed him back. because he had a hard time bouncing back, sleeping a lot and such, the family was told it was his cancer, that he wasn't going to get better. then hospice enters the picture.

    what he is looking at now is walking again, to recover from the surgery, and then time will tell. Lori, i've bookmarked that site and plan to spend more time reading it. than you all.

    i should say
    instead of why it was time for his transition, that he was dying and in a lot of pain.
  • tesslee
    tesslee Member Posts: 97
    tesslee said:

    i should say
    instead of why it was time for his transition, that he was dying and in a lot of pain.

    omgsh
    i just found out i have pm's some very old, i didn't even know i had any.
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    tesslee said:

    Anne
    my visit was great. i was there 3+ hours. he talks, acts normal. he isn't walking yet. he did walk to the bathroom to go potty. his hospital bed is perfect. he was having a good time making it go uip and down, lol. his daughter (caregiver, respiratory therapist with children with tracheotomies(major mispell) would say Dad, don't go to far, remember your boxes of feed are under there. he likes to joke and makes you laugh. he loves hotrods and has been doing a lot of reading (about a special kind he plans on purchasing. so he has long term goals and does not plan on dying anytime soon.

    Lori i went to that site, and what i understood was a massive amount off miscommunication between medical professionals. i am not sure of what happened in this case, but do know miscommunication was given as to his condition, causes, and why it was time for his transition. i really hate to relay this info as i am not the immediate family, but i will give my impression.

    he was admitted because it was thought he had a dead bowel. abdominal pain. they opened him up and found it to be gas, closed him back. because he had a hard time bouncing back, sleeping a lot and such, the family was told it was his cancer, that he wasn't going to get better. then hospice enters the picture.

    what he is looking at now is walking again, to recover from the surgery, and then time will tell. Lori, i've bookmarked that site and plan to spend more time reading it. than you all.

    Tesslee
    I am so glad you had such a great visit. It sounds like your brother is quite a character. I am glad he is doing so much better.
  • tesslee
    tesslee Member Posts: 97
    AnneCan said:

    Tesslee
    I am so glad you had such a great visit. It sounds like your brother is quite a character. I am glad he is doing so much better.

    Anne
    yes he is. a lot like Kerry. he loves to tease his nurses. he embarrasses ( can't spell nor type anymore, pls forgive) his daughter, and makes his wife laugh. the nurses have great comebacks tho. i just wish i could be more like him in my journey.
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    tesslee said:

    Anne
    my visit was great. i was there 3+ hours. he talks, acts normal. he isn't walking yet. he did walk to the bathroom to go potty. his hospital bed is perfect. he was having a good time making it go uip and down, lol. his daughter (caregiver, respiratory therapist with children with tracheotomies(major mispell) would say Dad, don't go to far, remember your boxes of feed are under there. he likes to joke and makes you laugh. he loves hotrods and has been doing a lot of reading (about a special kind he plans on purchasing. so he has long term goals and does not plan on dying anytime soon.

    Lori i went to that site, and what i understood was a massive amount off miscommunication between medical professionals. i am not sure of what happened in this case, but do know miscommunication was given as to his condition, causes, and why it was time for his transition. i really hate to relay this info as i am not the immediate family, but i will give my impression.

    he was admitted because it was thought he had a dead bowel. abdominal pain. they opened him up and found it to be gas, closed him back. because he had a hard time bouncing back, sleeping a lot and such, the family was told it was his cancer, that he wasn't going to get better. then hospice enters the picture.

    what he is looking at now is walking again, to recover from the surgery, and then time will tell. Lori, i've bookmarked that site and plan to spend more time reading it. than you all.

    Tess
    Yes, lots of miscommunication. Both between the medical staff to staff and with the patients and caregivers. I've really found that to be the case while caregiving for my son. I consider myself fortunate having been an RN because I find that if you speak the language they talk to you differently and are more forthcoming wiht information. You have to know what to ask. And there is no place to go to found out what to ask. It seems like a vicious cycle sometimes.

    I'm so glad that your brother is doing better. So many in hospice care really need to have their medications watched. It is easy to have them over medicated or under medicated and that is where the family can really help the staff. Each of us is different on how we handle medications and what works for one may not for another. Please be sure to have his caregivers note his reactions so that he can be as productive and active as possible and the docs can get him the right doses.

    HUGS to you!
  • Lori-S said:

    Tess
    Yes, lots of miscommunication. Both between the medical staff to staff and with the patients and caregivers. I've really found that to be the case while caregiving for my son. I consider myself fortunate having been an RN because I find that if you speak the language they talk to you differently and are more forthcoming wiht information. You have to know what to ask. And there is no place to go to found out what to ask. It seems like a vicious cycle sometimes.

    I'm so glad that your brother is doing better. So many in hospice care really need to have their medications watched. It is easy to have them over medicated or under medicated and that is where the family can really help the staff. Each of us is different on how we handle medications and what works for one may not for another. Please be sure to have his caregivers note his reactions so that he can be as productive and active as possible and the docs can get him the right doses.

    HUGS to you!

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  • amyb15
    amyb15 Member Posts: 109 Member
    unknown said:

    This comment has been removed by the Moderator

    hi, my sister died on
    hi, my sister died on 1/27/2011. she did not believe that she was dying. when she couldn't get out of bed for an appt. we called her doc who said to call an ambulance. the ambulance guy asked me to ask her if she wanted to be kept alive no matter what in entailed, she gave a profound yes and acted very confused as to y they would be asking that. she was going to get a blood transfusion at hospital, but scans showed cancer was all over and most likely into the braun, she was put on the hospicce wing and died less than 2 days later . weather it was denial of what it seemed to work for her for almost 2 years, in the end i don't thonk it mattered. it was how she wanted it. i think she always knew there was a great chance she would die from the cancer, but never gave up hope. that is what worked for her