Even the best laid plans go awry....

John23
John23 Member Posts: 2,122 Member
Oh well....

Even the best laid plans go awry....

What was going to be a two hour operation (with a one week
recovery period) to remove/repair a partial intestinal obstruction,
turned out to be a total mess. I went in for surgery on January 28th,
and tonight (February 28th) I am home, typing.

I had been released last week on the 23rd, after insisting that if
they refused to release me, I would sign myself out. There's an old adage,
that if you stay in the hospital long enough, they will figure out how
to kill you; they came damned close!

Three major operations, each taking an average of four hours, were
spread across three weeks, and my "recovery" is still in progress;
it ain't over yet.

There were numerous adhesions and hernias, not just one or two.
Unexpected major infections after each operation complicated
each procedure. The procedures to remove the heavily infected
and abyssed areas, left me in a really weakened state. I've become
deydrated, in spite of the TPN and saline drip.

I had bad reactions to whatever they used for anesthesia,
and remained lashed to the table (bed) with an NG tube, TPN,
and an assorted amount of Sci-Fi looking devices. There was
absolutely no way for me to converse, and nothing anyone
was saying made any sense to me. It was a surreal experience,
at the least!

I've lost about 13 feet of the total 25' of small intestine, and my
original Ileostomy stoma is no longer usable. The old stoma
will remain sitting there doing nothing, while my new Ileostomy
stoma takes it's place.

The new stoma is not anything like the old one; this new one is
recessed, elongated, and a major challenge to maintain. It's also
disappointingly well above my belt line, and will make wearing my
usual clothes a real challenge. I'm being told that no revision to it
will be possible for quite some time (if ever).

I'm 5'4", and went from being overweight at around 175 lbs, to
a nice slim 125 lbs. Losing 50 lbs in four weeks would have been
more to my liking, had I planned it to be that way....!

I should have the "op reports", etc, sometime over the next few
weeks, and from that I might know better about everything that
actually transpired.

I guess cancer doesn't stop taking from us. Long after we think that
we can put it all behind us and relax, some filthy nuance, like
an adhesion, or hernia, or some sort of intestinal infection, will
awaken us in the middle of the night.

For me, it was almost five years after surgery, but the surgeons
told me about patients with ten (and more) years post-op, just now
feeling the ramifications of past intestinal surgery.

Regardless of our type of cancer, our stage of cancer, or the methods
we've chosen to do battle against it, we're all in this together.

Thanks to all that sent "PM"s, and to all those that have expressed
their concern regarding my health and absence! I really appreciate it.
I'm sorry to not have written sooner, but I have been so damned
weak, that just sitting up took more energy than I had.

As I read through all the "PM"s tonight, I realized that it would be
better to write and post this, than to attempt to answer each of the personal
notes. But I will follow up as soon as I'm able! Right now, I'm running
on Loratabs just to have the energy to be able to get this typed out.

My best wishes for better health to each and every one out here!

Thank you all so much for caring!

John.
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Comments

  • Love2Cats
    Love2Cats Member Posts: 127
    Glad you are out of the hospital
    I hear you about the "cancer diet". When I had my resection done, I lost 25lbs in 10 days. I wish you a speedy recovery!

    Sandy
  • Crow71
    Crow71 Member Posts: 679 Member
    What a mess!!
    Thanks for posting John. We've be worrying about you and missing you. I hate it that you've had such a tough time. You're new stoma sounds like a challenge. I'm sure you will be able to figure it out. Is this one going to be permanent?

    Really glad to hear from you.

    Better health to you as well.

    Roger
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    OMG
    Do you know how crazy with worry I was getting?
    I'm so glad to see you posted. Now I'm going to go read it.
    Was so worried.
    Winter Marie
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    Okay
    I hope your recovery goes very well. You rest up a lot, I'm glad you got home even with all the problems. So sorry for your pain. Take care.
    Winter Marie
  • Moesimo
    Moesimo Member Posts: 1,072 Member
    feel better
    I hope things are getting better and I am sorry that you are having a rough time. I am 8 years from diagnosis and have had many small bowel obstructions. I had one in Jan. but got better with bowel rest and did not need surgery.

    I hope you get stronger every day. Being so sick is awful.

    Maureen
  • maglets
    maglets Member Posts: 2,576 Member
    Moesimo said:

    feel better
    I hope things are getting better and I am sorry that you are having a rough time. I am 8 years from diagnosis and have had many small bowel obstructions. I had one in Jan. but got better with bowel rest and did not need surgery.

    I hope you get stronger every day. Being so sick is awful.

    Maureen

    wow double wow
    that is an amazing story.....even more amazing that we go through these things and out the other end to tell the story.

    I so hope you will feel better at home and begin a gentle speedy recovery

    maggie
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Dear John
    So very glad that you were able to finally get home.

    Hoping that you will now be able to get some rest and recover quickly from all this.

    Thank you so much for letting us know how you are.

    Take care and we look forward to your posts when you are able.

    Marie who loves kitties
  • soccermom13
    soccermom13 Member Posts: 224
    We do care!
    Now is the time for rest and to regain your strength.
    Hugs
    Shanna
  • pepebcn
    pepebcn Member Posts: 6,331 Member

    We do care!
    Now is the time for rest and to regain your strength.
    Hugs
    Shanna

    Dear holiness hehehe! really glad to see you posting again!
    Well we still need Kerry recovered to have the 4 musketeers here !....Kerry ,Buzz, Phil and you,hahaha!
    Hope Kerry is doing well too, despite no news since few days ago!
    Hugs your holiness!
  • lisa42
    lisa42 Member Posts: 3,625 Member
    triple wow
    Hi John,

    Good to hear from you finally, but man, I'm so sorry for what you've been through!
    I don't even know what to say after all you've been through, but I'm glad that you've come through it and are now coherent and home.
    Please keep us updated when you're able & know that many people here care about you.

    Keep strong & here are wishes for you to get stronger and stronger again-
    Lisa
  • Nana b
    Nana b Member Posts: 3,030 Member
    Rest and get better! Sleep and let your body heal!!

    Chat with you soon! Raquel
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    John
    We have all missed you a lot + wondered how you were doing. What a relief to see this post! I am sorry you have been through so much. I hope you receover quickly.
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    wow
    Oh my goodness...that is soo much for anyone to go through and I'm sorry it happened to you. Now that you're home I hope the real recovery can begin and you can feel some wellness. It's good to see your name on here again.

    Take good care, Gail
  • tesslee
    tesslee Member Posts: 97
    plh4gail said:

    wow
    Oh my goodness...that is soo much for anyone to go through and I'm sorry it happened to you. Now that you're home I hope the real recovery can begin and you can feel some wellness. It's good to see your name on here again.

    Take good care, Gail

    John,
    what a relief to see you posting, and an ordeal you've been thru. heal, get better, stronger, physically, and emotionally. take extra good care. Tess

    i don't post often but i do keep tabs of everyone.
  • kersha
    kersha Member Posts: 63
    Glad to hear you are out of
    Glad to hear you are out of the hospital. Now you would heal faster and make a quicker recovery. I know from your fist cancer surgery you had said you had some complications with healing and I thought that was what was happening at this time, but did not think you would have had to go through so many surgeries in such a short space of time. So now keep hydrated, nourish yourself and get back your strength.
    Fight the good fight. Keep strong.
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    You Sound Different, John.....
    .... but then again "our experiences" have a way of changing us all, don't they?

    What a major cluster you've had to endure - they really rang you up. At least you can publish your 50-lb diet loss plan:)

    But seriously, glad you are home and here's to continued recovery.

    -Craig
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    John! So Good
    to finally hear from you. I am so sorry that what should have been one surgery ended up being a fiasco! You were missed. Welcome back and here's to a better recovery now that your home. HUGS
  • kant_spell
    kant_spell Member Posts: 6
    dog year conversion factor should apply
    John:

    Almost 4 weeks in the hospital probably felt like a year. The longest I've ever been in for is a week and that was close to unbearable.
    I'm sorry it went so poorly but I'm glad you're out.

    What are op reports? I take it we can request a written report that documents what happens in the OR?

    Grant
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    John
    I hope you have felt the warm blanket of caring that has been wrapped around you. You wouldn't believe often your name has been mentioned (all good!) in the last weeks.
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    Welcome back!

    Hey John, so good to see your post, and that you're back at home and away from the hospital. I hope that you are feeling better and stronger soon. Take care, Cyn