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        <title>Surviving Caregivers — Cancer Survivors Network</title>
        <link>https://csn.cancer.org/</link>
        <pubDate>Sat, 11 Apr 2026 17:12:18 +0000</pubDate>
        <language>en</language>
            <description>Surviving Caregivers — Cancer Survivors Network</description>
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    <item>
        <title>Caregiver for husband</title>
        <link>https://csn.cancer.org/discussion/329256/caregiver-for-husband</link>
        <pubDate>Sat, 12 Apr 2025 15:50:19 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>Peedad</dc:creator>
        <guid isPermaLink="false">329256@/discussions</guid>
        <description><![CDATA[<p>My husband has Myelodysplastic Syndrome which is a blood cancer.  We have been married 47 years.  He has turned into a totally different person.  I cannot carry on a conversation with him.  He never laughs.  He talks to me like I am a dog.  He cannot say anything nice to me.  He has been given 1-3 years.  I am dealing with his anger towards me all by myself and it would be nice to talk with other people going through similar circumstances.  I hate the way I feel towards him now.  He has made it so hard to be understanding.  </p>]]>
        </description>
    </item>
    <item>
        <title>My 28 year-old daughter had to leave us13 years ago.  It’s still so painful.</title>
        <link>https://csn.cancer.org/discussion/329351/my-28-year-old-daughter-had-to-leave-us13-years-ago-it-s-still-so-painful</link>
        <pubDate>Sat, 10 May 2025 14:11:08 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>hrubin51</dc:creator>
        <guid isPermaLink="false">329351@/discussions</guid>
        <description><![CDATA[<p>(I also posted this in a reply to a woman whose husband developed Wilms tumor)</p><p><br />
Hello, I am a retired physician; now in a second marriage, after my first wife of 38 years left 2 years after the death of our daughter, Miriam. Her departure was also devastating. </p><p>Miriam was a freshman in high school, age 15, when she was diagnosed with Wilms tumor, a kidney tumor usually occurring in toddlers, usually successfully treated with surgery, chemotherapy, and radiation. Teenagers who get Wilms have a poorer outcome. <br /></p><p>Miriam was a wonderful person - unique in many ways - a top student, creative, participated in athletics, took to family outdoor activities like backpacking and kayaking trips, and was loved by everyone she met. She had a remarkably accepting personality and ability to adapt to any circumstance. She was somehow able to listen to anyone and understand who they were. I think she even understood me better than anyone else in the world, and I understood her. This, and her bravery, served her well over the next 13 years during which she triumphantly survived the cancer's relentless advance. <br /><br />
Miriam had the standard treatments, but kept having relapses, metastases from the original tumor, many, and had multiple courses of chemotherapy, radiation. And a stem cell transplant, which didn’t do it. When her bone marrow could no longer tolerate the negative impact of chemotherapy, she underwent surgery after surgery, (some of them very major (removal of sections of her lung or spinal vertebrae, removal of metastases near the heart) to remove recurrences wherever they occurred. <br /></p><p>By the age of 28, when she was so worn out that she was finally unable to go on.   I'd say she'd had more treatments and more surgeries than most 70 or 80 year old patients I knew when I was in practice. She left this world 13 years ago, February 23, 2012. </p><p><br />
Miriam NEVER gave up. She always wanted more life. And after every recurrence and treatment, she worked on her recovery, and quickly resumed her life where she had just taken a medical detour. She graduated high school second in her class despite having spent months in the hospital, she went to one of the top liberal arts colleges in the US in Massachusetts and graduated in 5 years. Miriam worked full-time up until 2 moths before she died; and Miriam married, one of her life goals. She continued to hike and cross-country ski when possible. She amazed her caregivers by her attitude and survival when they said most others would have been unable to persevere. She wanted more life. Miriam loved life. <br /></p><p>Miriam and her sister, Ilana, were also each other's best friend, and they had planned to live close to one another and raise their families together - a dream which disappeared. <br /></p><p>My loss of my daughter, Miriam, is still so painful, but my greatest struggle throughout, and to this day, was watching and remembering how Miriam suffered - the pain, losing her strength, her physical resilience, abilities, hopes, dreams, seeing her friends move ahead in life, slowly losing the life and future she loved, knowing it would come to an end too soon, although she persisted as if that would not occur. <br /></p><p>I think about her many times every day still, often with tears in my eyes. I could not smile or hum a tune for over a year after she passed away. I still have distressing memories of her treatments, including a stem cell transplant, and things she said, and an occasional fleeting look in her eyes. Sometimes I call it "the never-ending end of Miriam." She was a unique and beautiful human being. I love her so, so much.</p><p>Miriam's Dad, </p><p>Hal Rubin</p>]]>
        </description>
    </item>
    <item>
        <title>My 22 yo daughter has cancer &amp; long history of mental illness.</title>
        <link>https://csn.cancer.org/discussion/329083/my-22-yo-daughter-has-cancer-long-history-of-mental-illness</link>
        <pubDate>Sat, 15 Mar 2025 06:18:27 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>doggiebert</dc:creator>
        <guid isPermaLink="false">329083@/discussions</guid>
        <description><![CDATA[<p>My daughter who has struggled with mental issues- depression, self harm, feelings of worthlessness, suicidal ideations etc, half her life, is now going through treatments for Hodgkin Lymphoma.</p><p>As if life isn’t hard enough for her as it was. <br /><br />
Can somebody please tell me how to cope?</p><p><br />
I too suffer with her. I feel like I’ve been through the wringer over &amp; over again.  Not just with watching her pain, I just don’t know how to deal with my own pain. I am divorced, so I don’t have anybody to share this with on a daily basis. When my daughter goes silent and stops  communicating, which is like 90% of the time, I am lonely &amp; feel hopeless for her and I. <br /></p><p>We are not wealthy. I work a regular job &amp; get help from her dad &amp; grandparents- for which I’m very thankful.</p><p><br />
I don’t mind caring for my grown child. I love having her home. I like cooking &amp; caring for her. Watching movies together etc. We have a very quiet life. I don’t seek anything eventful or exciting in life. But when she’s depressed &amp; stops talking, then I feel my world goes dark. And I feel hopeless  tougher with her.</p><p>I feel so sad for her. She’s got a very hard life &amp; the hardships keep coming. She may lose her hair in the near future. I was tasked with cutting off her waist long hair, we cried together. Her sister - whom she &amp; I love dearly, is in the military &amp; stationed far away. It’s hard for both her &amp; I.</p><p>I know people have it way worse in many many cases. But that doesn’t mean I don’t hurt in my own situation.</p><p><br />
Believe it or not, my best friend, whom I didn’t talk to for just 4 months, contacted me this week and said she was diagnosed with kidney cancer stage 2 and had surgery yesterday.<br /><br />
Is it just me, or does life just keep getting harder &amp; harder for everyone? </p>]]>
        </description>
    </item>
    <item>
        <title>helping with funeral arrangements</title>
        <link>https://csn.cancer.org/discussion/164853/helping-with-funeral-arrangements</link>
        <pubDate>Fri, 23 Jan 2009 02:14:56 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>kat6678</dc:creator>
        <guid isPermaLink="false">164853@/discussions</guid>
        <description><![CDATA[My husband has been diagnosed with terminal lung cancer which had spread to the brain and we had to remove the mass.  He is in the stage 4 of cancer and it has pretty well taken over his body.  He is currently going through chemo treatments but the dr is not very hopeful but that it will help relieve some of his pains.  

I am asking for anyone out there that knows of any kind of funeral assistance that people can apply for.  I have no insurance for my husband and we are on a fixed income and have no wAy of paying for funeral expenses when the time does come.  I have done everything I know and been and asked everyone I know to ask.  The funeral homes will not take payment arrangements and with our income I can barely make ends meet now with rent and all.  I know everyone has been in the same situation as me but I sure do need some help in finding resources for my problem.  Thanks,]]>
        </description>
    </item>
    <item>
        <title>How can I help my dad?</title>
        <link>https://csn.cancer.org/discussion/257751/how-can-i-help-my-dad</link>
        <pubDate>Wed, 17 Apr 2013 06:00:35 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>BintNed</dc:creator>
        <guid isPermaLink="false">257751@/discussions</guid>
        <description><![CDATA[<p><span>My mama passed away a little over a month ago. Things are settling down. The fridge is no longer full of food that people brought by. We’ve all gone back to school or work. I worry about my dad. Do you have any advice about what I can do to help him? He’s “okay.” He’s functioning. I just want to know how to brighten his days a little bit. I’d appreciate any suggestions. Thanks. </span></p>
<p>&nbsp;</p>]]>
        </description>
    </item>
    <item>
        <title>only children = orphan adults</title>
        <link>https://csn.cancer.org/discussion/144163/only-children-orphan-adults</link>
        <pubDate>Wed, 28 Jul 2004 23:42:26 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>diane727</dc:creator>
        <guid isPermaLink="false">144163@/discussions</guid>
        <description><![CDATA[I'm starting this group for people just like me. Maybe, by writing this, and by you reading this and share your stories, we can get through this grief together. Though, I am 38 years old, tomorrow turning the dreaded 39 and holding, I still consider myself an orphan at this age. It has been a little over 3 years since my mom died and I will admit, it has not gotten easier, in fact it has gotten worse. My mom raised me by herself at a time when single mothers was not the "in" thing. Mom had it rough but she did it. I think that she did a damn good job. I have no siblings and never met my father, though I had found out very young that he died when I was six. My mom and I had more than a mother/daughter relationship. We were and will always be best friends. It's amazing, after all this time, just writing that line still gives me a lump in my throat and makes me cry. There are so many emotions I continue to experience on a daily basis. I still find myself questioning myself, "Did I do everything I could?" "Was I a good daughter?" "Why couldn't it have been me instead?" I lived with her for he last six months of her life and I thank GOD everyday that I did make that move. Yet, I still feel that I've been robbed. I wasn't finished yet. There were so many more things that we needed to experience together. To me it's not fair that not only do I not have her physical being around, but I no longer have that daily phone call. Even though at times she could be a nudge. Like for instance, this week she would have given me a birthday card every day. Or call me at the exact time I was born. I haven't had that for three years and I miss it. The death of your only parent throws you into adulthood regardless if you are ready or not. I know that I was well into adulthood when she died, but, that one person who had been your cheerleader all your life is no longer there. It's not an easy thing to become an orphan. The holidays are no longer an anticipated event. Though, I have tried to continue the tradition. My heart is just not in it. I know that this may sound like rambling nonsense, but it is everything that has been inside of me. I know that there must be other only children out there going through the same emotions or something similar. Though I am in a committed relationship with my partner, she will never understand the magnitude of this grief experience. If there is anyone out there who sees themselves in this message please feel free to contact me. I need to get to the next step of the grieving process. I have been stagnant for too long. I dont ever want anyone to go through this alone, it's just too painful. We might be only children, but we dont have to be alone. 
 
 


Thread:  first msg |  prev msg |  next msg

 diane727
07-26-2004
07:32 PM EDT ONLY CHILDREN = ORPHANED ADULTS  
I'm starting this group for people just like me. Maybe, by writing this, and by you reading this and share your stories, we can get through this grief together. Though, I am 38 years old, tomorrow turning the dreaded 39 and holding, I still consider myself an orphan at this age. It has been a little over 3 years since my mom died and I will admit, it has not gotten easier, in fact it has gotten worse. My mom raised me by herself at a time when single mothers was not the "in" thing. Mom had it rough but she did it. I think that she did a damn good job. I have no siblings and never met my father, though I had found out very young that he died when I was six. My mom and I had more than a mother/daughter relationship. We were and will always be best friends. It's amazing, after all this time, just writing that line still gives me a lump in my throat and makes me cry. There are so many emotions I continue to experience on a daily basis. I still find myself questioning myself, "Did I do everything I could?" "Was I a good daughter?" "Why couldn't it have been me instead?" I lived with her for he last six months of her life and I thank GOD everyday that I did make that move. Yet, I still feel that I've been robbed. I wasn't finished yet. There were so many more things that we needed to experience together. To me it's not fair that not only do I not have her physical being around, but I no longer have that daily phone call. Even though at times she could be a nudge. Like for instance, this week she would have given me a birthday card every day. Or call me at the exact time I was born. I haven't had that for three years and I miss it. The death of your only parent throws you into adulthood regardless if you are ready or not. I know that I was well into adulthood when she died, but, that one person who had been your cheerleader all your life is no longer there. It's not an easy thing to become an orphan. The holidays are no longer an anticipated event. Though, I have tried to continue the tradition. My heart is just not in it. I know that this may sound like rambling nonsense, but it is everything that has been inside of me. I know that there must be other only children out there going through the same emotions or something similar. Though I am in a committed relationship with my partner, she will never understand the magnitude of this grief experience. If there is anyone out there who sees themselves in this message please feel free to contact me. I need to get to the next step of the grieving process. I have been stagnant for too long. I dont ever want anyone to go through this alone, it's just too painful. We might be only children, but we dont have to be alone.]]>
        </description>
    </item>
    <item>
        <title>anybody out there lost their life partner</title>
        <link>https://csn.cancer.org/discussion/155941/anybody-out-there-lost-their-life-partner</link>
        <pubDate>Tue, 23 Oct 2007 14:01:09 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>leftbehind</dc:creator>
        <guid isPermaLink="false">155941@/discussions</guid>
        <description><![CDATA[Barbara and I were together for 9 years and she passed away three weeks ago.  I took care of her for six months and the last day came unexpectedly.  I knew it was going to come, just "not today" or that day.  I have been taking care of things and running around to stay busy, but now I am tired of running and am just starting to deal with loosing her.  Everyone is around in the beginning, but then you go through all your phone contacts and no one answers.]]>
        </description>
    </item>
    <item>
        <title>Have feeding tube formula never opened! Can&#39;t use it! And would like someone to have it that needs i</title>
        <link>https://csn.cancer.org/discussion/315433/have-feeding-tube-formula-never-opened-cant-use-it-and-would-like-someone-to-have-it-that-needs-i</link>
        <pubDate>Fri, 16 Mar 2018 19:37:48 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>Michele LaGarde</dc:creator>
        <guid isPermaLink="false">315433@/discussions</guid>
        <description><![CDATA[<p>We have so much of formula that is unopened in boxes my dad is not tolerate to it. We like for someone who needs formula to have it! Pls let me know. Thank you. We know there are so many people without insurance that need this. Ect.&nbsp;</p>]]>
        </description>
    </item>
    <item>
        <title>is there a way to donate supplies?</title>
        <link>https://csn.cancer.org/discussion/153681/is-there-a-way-to-donate-supplies</link>
        <pubDate>Sun, 25 Feb 2007 03:32:22 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>Bugsmom</dc:creator>
        <guid isPermaLink="false">153681@/discussions</guid>
        <description><![CDATA[Just joined this board.  My husband lost his short fierce battle with cancer today.  I have lots to deal with in the coming days, weeks, whatever.  One question popped into my mind.  Is there a place or way to donate unused, or used but good supplies?  I have a carton containing 4 new chux - never opened.  About a dozen used, but clean and freshly washed chux.  Sheets to fit a hospital bed.  Medications?  Especially a lot of Lovenox - unopened boxed.  My husband and I beleive in helping whenever we can - and now that I have lost him, I have no need for this.  I am in Frederick county Md - if that matters.

Thanks]]>
        </description>
    </item>
    <item>
        <title>Why am I a widower at 46</title>
        <link>https://csn.cancer.org/discussion/310592/why-am-i-a-widower-at-46</link>
        <pubDate>Tue, 04 Jul 2017 14:19:48 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>wstomlin</dc:creator>
        <guid isPermaLink="false">310592@/discussions</guid>
        <description><![CDATA[<p>My wife and I were married for 20 years when she was diagnosed with Renal Cell Carcenoma, or as I call it kident cancer. &nbsp;She was diagnosed March 9, 2016. &nbsp;She had bariatrci surgery in 2011 and lost half her body weight, and every thing was looking up by this point. &nbsp;When she got the diagnosis I was floored. March 31, they took her kidney and a few other things. &nbsp;She had to have dialasis to get the remaining kidney to function right. &nbsp;One week post surgery there was a major problem, she had a perferated bowl and she was very very swollen. &nbsp;Nine surgeries later they finaly was able to close her up, this whole time I am trying my best to be strong but it was killing me a little each day. &nbsp;She was finally released from the hospital and rehab over two months later. &nbsp;But she has an ostomy bag and was in a wheel chair. &nbsp;She started to improve and before long she was up and about with out the wheel chair and only used her walker in extreme cases. &nbsp;Fast forward July 25, she went to her oncologist appointment, and a few test run. &nbsp;On the way home after dinner we were reended, by some woman who was texting, but right after the ambulance left before the cop let us go she got a call from her doctor, the cancer had returned, it was in four places now and&nbsp;inoperable, it returned in her spine, lungs, liver and stomach. &nbsp;I took her to the hospital for crash related things, and she had to stay there a week while they figured out what to do next about the cancer. &nbsp;She had one round of radiation on her spine, and then they set up the chemo. &nbsp;I am not for sure what kind of chemo she got. &nbsp;But to me she had improved, then she had three rounds of chemo, and she contracted a fungal infection where kidney use to be. &nbsp;Back into the hospital she went. &nbsp;She was released a week and a half later. &nbsp;she was back in the wheel chair and she was deteriorating quickly. &nbsp;She went back into the hospital the nexxt week, the infection was not going away, her body was failing, and when they told me she woould beed to go into hospice, I kept it together while I was there, but after I left I lost it. &nbsp;I got sent home from work, because I was unable to function. &nbsp;I spent the rest of the day with her at the hospice house. &nbsp;I hd to go home to take care of our pets and get cleaned up with plans on on going back the next morning. &nbsp;</p>
<p>At 5:55 am Friday September the 16, 2016, I got the call. &nbsp;She passed in her sleep. &nbsp;I was feeding my pets at the time, after I hung up I finished, then called my parents. &nbsp;After I went to my bed room and broke down I was mess the rest of the day. &nbsp;I cried for what seemed like hours. My girls, pets, tried to comfort me. &nbsp;My parents helped me with all the arrangments, and my cousin helped also. &nbsp;When I walked into the hospice room she looked like she was asleep. &nbsp;</p>
<p>Now it is almost ten months later and I still feel like I am going to see her when I wake up, or she will be sitting on the couch when I get home, or she is going to walk in and complain about something. &nbsp;I am only 46 now, why am I a widoweer this young. &nbsp;I know I am not young but for this OI feel like I am. &nbsp;I think I finally have my house in order. &nbsp;The bank had to take back her car because with out her I could not afford the payments.</p>
<p>My world felt like it got turned up side down last year, I started smoking again, and I was not the best company, and when she died it was worse because it felt like my world ended. &nbsp;Now I am trying to remember how to be single, and trying to stop holding my breath and get on with my life, it is not easy for me. &nbsp;If not for my two dogs and one cat I do not think I would have made it this far.</p>
<p>I love her and miss her. &nbsp;And I wish this feeling of gloom and doom would go away. &nbsp;I feel totally lost most of the time.</p>]]>
        </description>
    </item>
    <item>
        <title>cancer just wont quit even though it already took my wife from me</title>
        <link>https://csn.cancer.org/discussion/312065/cancer-just-wont-quit-even-though-it-already-took-my-wife-from-me</link>
        <pubDate>Tue, 19 Sep 2017 22:11:04 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>thisismyhouse</dc:creator>
        <guid isPermaLink="false">312065@/discussions</guid>
        <description><![CDATA[<p>i dont no how much more i can put up with. im at the end of my rope. i knew the day cancer took my wife things were going to be so different in my life. cancer took the only one that i loved 6 months ago, yet it still reaks havoc in my life. i have no one, family and freinds were never there us at all and when they did stop by to say hello they would steal from me. i cant do this anymore, it has won in every way it can. i had to leave the house now. i couldnt afford it by my self. im now living in the car and have been for a week. the only thing people can say to me is you have to figure something out. I KNOW!!! if it were that easy i wouldnt be living at walmart parking lot. &nbsp;i no people had to be in simular situation and found a way out. i tryed, i cant get no help from the county or any resourses because they say they are out of funds or im on a waiting list. i swear cancer is the whole reason this is happening and my future isnt looking to good. it mite just take another without even having it.&nbsp;</p>]]>
        </description>
    </item>
    <item>
        <title>Lovenox (Blood Thinner) 60 M. available for donnation</title>
        <link>https://csn.cancer.org/discussion/311945/lovenox-blood-thinner-60-m-available-for-donnation</link>
        <pubDate>Wed, 13 Sep 2017 02:53:21 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>leena_gupta</dc:creator>
        <guid isPermaLink="false">311945@/discussions</guid>
        <description><![CDATA[<p>Lovenox (Blood Thinner) I have 40 days supply of&nbsp;Lovenox (Blood Thinner)&nbsp;60 M. Contact me me if interested&nbsp;</p>
<p>If any one know where to donnate do write us</p>]]>
        </description>
    </item>
    <item>
        <title>The Day The Music Died...</title>
        <link>https://csn.cancer.org/discussion/221324/the-day-the-music-died</link>
        <pubDate>Sun, 26 Jun 2011 06:44:31 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>luz del lago</dc:creator>
        <guid isPermaLink="false">221324@/discussions</guid>
        <description><![CDATA[Babe lyrics
Songwriters: De Young, Dennis;

Babe, I'm leaving, I must be on my way
The time is drawing near
My train is going, I see it in your eyes
The love, the need, your tears

But I'll be lonely without you
And I'll need your love to see me through
Please believe me, my heart is in your hands
'Cause I'll be missing you

'Cause you know it's you babe
Whenever I get weary and I've had enough
I feel like giving up
You know it's you babe
Giving me the courage and the strength I need
Please believe that it's true, babe, I love you

You know it's you babe
[- From: http://www.elyrics.net/read/s/styx-lyrics/babe-lyrics.html -]
Whenever I get weary and I've had enough
I feel like giving up
You know it's you babe
Giving me the courage and the strength I need
Please believe that it's true, babe, I love you

Babe, I'm leaving, I'll say it once again
Somehow try to smile
'Cause I know the feelings we're trying to forget
If only for a while

'Cause I'll be lonely without you
And I'll need your love to see me through
Please believe me, my heart is in your hands
'Cause I'll be missing you

Babe, I love you
Babe, I love you
Ooh, babe


Styx was my love's fav rock band, and this was his favorite.  When he passed, music became "noise" to me.  I simply could not tolerate it!

Little by little, I have begun to listen again.  We loved music, and to dance, and I still feel a "sting" when I hear certain songs!

In the past few weeks, I have had to drive some distances, as my mom was hospitalized.  The "quiet" can be deafening!  So, on came the radio, and the memories.

At first, all the music seemed to be crying out my sorrow, my loss.  But as the time has passed, I am now hearing the words of songs that speak of "tomorrow".  Of finding new "beginnings".  

Music, books and poetry have always captivated me.  I have always found an outlet or motivation, through these mediums.  I thought I had lost that.  It has brought me great joy to enjoy these once more!

May you all "hear" the music once more!

Lucy]]>
        </description>
    </item>
    <item>
        <title>Lost, Confused and Broken Hearted Is Where I&#39;m At Now -</title>
        <link>https://csn.cancer.org/discussion/311773/lost-confused-and-broken-hearted-is-where-im-at-now</link>
        <pubDate>Mon, 04 Sep 2017 02:35:15 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>Lost and Confused</dc:creator>
        <guid isPermaLink="false">311773@/discussions</guid>
        <description><![CDATA[<p>Hello,&nbsp;</p>
<p>First let me apologize right away for the very long post. But the details are needed as a starting point in the hopes of reaching out for some much needed help and support.</p>
<p>My name is James. I found this site when looking for if and why spouses might turn against each other when one of them gets cancer.</p>
<p>I read through a number of pages/posts about marriages ending and people considering leaving their marriages/relationships because of the difficulties and changes usually in the cancer patient - I think it was called chemo brain, etc.</p>
<p>In my photo is my wife, Kindness, who is 34 and 20 years younger than me. That photo is a good example of our happiness as has been for the last 7 1/2 years.</p>
<p>She was dx with aggressive clear cell carcinoma Ovarian cancer in April and started chemo on May 10.</p>
<p>After 4 of a scheduled 6 rounds, there was some shrinking of her main tumor and other lesions, but not enough as hoped for for surgery.</p>
<p>She went in for round 5 on July 20, but having increasing pain the week before, the chemo was halted for a CT scan to be sure there was no risk of a blood clot. &nbsp;</p>
<p>That turned out ok.</p>
<p>On Sunday, July 30, her fever was 38 degrees so we had to get her in the ER. quickly</p>
<p>After 36 grueling hours and almost an overdose of her pain meds by an on-call ER nurse, she was finally sent upstairs to the Palliative Ward, mainly for isolation and better care. Her Mother and I were with her, but I was yelled at by my wife for some of my hours away from her during that scare.</p>
<p>She has been in palliative ward ever since. It's now Sept. 3.</p>
<p>Her Mother said ‘I'm not leaving’, and has been with her day and night since July 30 in Kindness' room. &nbsp;</p>
<p>I would go back every day for 10-12 hours in the room with Kindness and her Mother - and be the 'gofer' for coffee, and anything else needed anytime by the two women. I also had small amounts of work to tend to.</p>
<p>There were some complications with her liver, fluids, etc. and Kindness needed help to the washroom, and back and everything else for the first time ever. Her Mother and I would get up and help her with anything she needed.</p>
<p>Then on Monday, Aug. 7, I was turned away by one of our favorite nurses. I was told that she had just met with the Oncologist, whom I had seen and been in meetings with many times, and a social worker, whom I've never met. Apparently, she was told that the chemo didn't work, and that she now has 2-3 months to live.</p>
<p>I was told this by text from her Mother or sister (can't remember now), and that she just needed a few days.</p>
<p>I understood that, in the way that that's terrible news and couldn't be worse, and that she needed to time to digest and accept that, and most likely didn't want to see me yet, or me to see her and have us cry in front of each other - totally understandable.</p>
<p>Earlier that day, before 'the news' she had sent me an email reaching out to me. I had not seen it until after I was turned away and went back home.</p>
<p>She sent me a text as well the next day. &nbsp;I replied to both with as much love and understanding as I could, and with all gentility. I have no idea if she got or ever read my replies to her reaching out to me and my loving suggestions.</p>
<p>Today marks 28 days since I've seen or heard from her in any way.&nbsp;</p>
<p>No more texts, calls, emails or visits.&nbsp;</p>
<p>After the first week, I even went to the hospital admin who listened to my concerns, including not even knowing what ward or room she'd been moved to, nor any updates of her progress, status and health whatsoever. Nothing came from that meeting with the admin.&nbsp;</p>
<p>Apparently Kindness had me put on the do not call list, which also means do not inform or update in any way, as I later found out.</p>
<p>One week ago, after spending 3 weeks at home just 2 minutes away from her, wondering, waiting and worrying about her incessantly and about what is happening, I got finally a very long, harsh, cold 'Goodbye text' from her - but from her sisters phone.&nbsp;</p>
<p>It was completely out of character for Kindness and us, being so happy and in love as we had been for so long.</p>
<p>There were some critical things about me in the text as well, and a request not to her contact her. She added that she just can't take care of me and my need for attention and validation, nor my depression about this.&nbsp;</p>
<p>I'm not sure why she thinks she even had to. I certainly didn't ask or give her any reasons to think that way, but that’s the way she is - she worries about others even when she's down and out.</p>
<p>I can honestly say that I didn’t need any attention or validation, nor do I feel that I was depressed, other than the normal concerns and worries that any good loving husband would feel and most likely show.</p>
<p>So now, with no discussion, no visits, no text, no calls, or emails, my marriage is over - just like that!</p>
<p>I saw her for the last time 28 days ago, and I'll never see her again now.</p>
<p>Naturally, I want to be with her and go though it with her, as any good husband would, but it almost seems now that her Mother and sisters have finally showed her the love and support she's always needed from them, I'm no longer needed - and no longer wanted.</p>
<p>So I'm extremely broken hearted, lost, confused and bewildered.</p>
<p>I love her soooo much and have thoroughly enjoyed taking care of her since she came to me in Nov. 2009 and needed me very much at that time, and ever since. Taking care of her and being happy to do anything and everything she’s ever needed gave me a sense of purpose, meaning, and value, and also made me feel wanted and needed.</p>
<p>Now I feel like I've been discarded with no chance of any discussion or say whatsoever in what was the best relationship in my life, and a love I've never known, shown or received before.</p>
<p>We both feel that God brought her to me in 2009.</p>
<p>I should mention that she had a head injury from 7 years old, and comes from a very abusive Father and Brother as well.&nbsp;</p>
<p>Even her Mother and sisters have been somewhat abusive to her, which she would confide and take comfort in with me.</p>
<p>So it hurts even more to be ‘traded in’ for her Mother and sisters now, after all her complaints to me about them.</p>
<p>He Mother has caused us much trouble and has tried to come between us in the past - even hinting that her and I should be together instead, which made both my wife and I cringe each of the 5-6 times she would say that. I thought that was very tacky to say right in front of the only daughter who has actually had a successful relationship with a man, including the Mother herself. She (Mother) had a very unhealthy obsession with and about me, and would love and hate me all in the same day sometimes.</p>
<p>Many think that her Mother has succeeded in coming between us now, and has also been able to ‘brow-beat’ my wife into submission.&nbsp;</p>
<p>Kindness said years ago that her Mother was manipulative.</p>
<p>She’s probably too weak and tired to argue with her Mother now, as she’s drugged up quite a bit with pain meds.&nbsp;</p>
<p>I think the Mother's just trying to exclude me from the will, if my wife should pass.&nbsp;</p>
<p>I don’t care about that - I just want to love her and be with her during the hardest and worst time of her life. But I truly feel that it's too late now.</p>
<p>The ‘Goodbye’ text was not from Kindness’ phone, and so I'll never really know if she sent it, had it typed for her or even knows it was sent to me.&nbsp;</p>
<p>I'll just never know.&nbsp;</p>
<p>Now I have to move on and move away from our apartment without the woman I've loved so very much for so long.</p>
<p>I found some beautiful emails from her that we shared just in June and July that spoke of us starting a new chapter in our lives, buying our own home, and our declared love for each other that is worded so tenderly and beautifully for and about each other.</p>
<p>Then the very last communication that I got form my wife was that 'Goodbye text’ on Aug. 25.&nbsp;</p>
<p>Cold, harsh, critical - not a stitch or warmth, love or any mention whatsoever of our memories and wonderful years together.</p>
<p>So I’m hurting and alone - and confused, and very unprepared for this and also what I need to do to survive now.&nbsp;</p>
<p>And I'll never have any closure now. I'll never know if she lives and survives and goes on to live a full, happy healthy life - or not.</p>
<p>I don't believe that I'll ever be told if she passes nor ‘invited' to her funeral, knowing the Mother in law.</p>
<p>For all I know, she’s even been told that they’ve been calling and calling me but I just don’t come anymore – I have no way of knowing.</p>
<p>I miss her sooo much and what we had together, and can't imagine a life without her.&nbsp;</p>
<p>It’s almost impossible to face the day as soon as I wake up and realize my situation, which takes about 10 seconds to come and punch me in the face and gut. I just can't accept all this and it’s nearly impossible to try and function.</p>
<p>The 'Goodbye' text just doesn't jive with how we were together for the last 7 1/2 years.</p>
<p>Nor up to just recently - in March/April in person with so much tenderness and the lovely emails in June/July where she repeated that she'd be lost without me, that she’s so blessed to have me in her life, and that I'm the love of her life, etc. etc.</p>
<p>Our happiness was so fun and so enjoyable together - and so very loving and caring for each other - and now it's gone!</p>
<p>The last text I got from the sister last week is that Kindness has hired some movers to come get all her stuff on Sept. 12.</p>
<p>In the 'Goodbye' text there was mention of her trying to heal and start over without me. Makes me feel like some kind of criminal or something.</p>
<p>If she can heal and live on, than I'm all for it, naturally - even if it's forever without me.</p>
<p>I love her so much, that I'll do whatever it takes - whatever she needs.</p>
<p>I've always told her that I just want her to be happy. And nothing would make me happier than to know she survives this and carries on with her life.</p>
<p>It's possible that she just can't deal with me and all of the emotions and concerns about me and 'us' now. &nbsp;</p>
<p>&nbsp;</p>
<p>But I just don't know how to handle all of this.</p>
<p>&nbsp;</p>
<p>Thank you for reading. &nbsp;</p>
<p>&nbsp;</p>
<p>&nbsp;</p>
<p>&nbsp;</p>
<p>&nbsp;</p>]]>
        </description>
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        <title>Lost my mother last month to stage 4 pancratic cancer</title>
        <link>https://csn.cancer.org/discussion/308210/lost-my-mother-last-month-to-stage-4-pancratic-cancer</link>
        <pubDate>Sun, 26 Feb 2017 20:38:02 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>quietdaughter</dc:creator>
        <guid isPermaLink="false">308210@/discussions</guid>
        <description><![CDATA[<p>Hello. &nbsp;I'm...new here and...I thought maybe I'd just try to reach out.</p>
<p>My mother last November, was rushed to the hosptial by me for jaudice. &nbsp;A CT scan showed suspcisious masses in her body, especially on her liver. &nbsp;Her bile tubes were blocked, and so she had a procedure done to insert a drain and have an outside bag. &nbsp;A week later she was allowed home, but as she had not been given any physical therapy and from the stress of everything, she had become very weak, did not want to eat, and was depressed. &nbsp;Trying to take care of her by myself with the aid of her coworkers did not go well, as she had three falls-which further only added to the stress. &nbsp;The third time she fell, I called 911 and she was rushed back to the hosptial. &nbsp;We found out there she had low sodium, she had a case of a extremely high heartrate, and it was there we found out that what she had was cancer. &nbsp;<br />As she was recovering from the low sodium, we were told that the cancer was very agressive, had reached the point where surgery was not an option, and that palladive chemo could offer some comfort. &nbsp;</p>
<p>From there my mother was moved to a rehab to try and learn how to walk again-for physical therapy, but that did not go well-she was still refusing to eat, was in constant pain, and finally another episode of her heartrate escalating had her moved to another hosptial shortly before christmas. &nbsp;We found out what cancer it was at that point, and then her bag malfuctioned, so she needed to have it redone. &nbsp;When she recovered from that, she was sent to another rehab to again try to build up her strength again...but at that point, it was the beginning of the end. &nbsp;Over Christmas I watched her slowly detoriate...this woman, my mother, who surivied an abusive childhood and a abusive husband, who left him and had been my rock for nearly all my life...</p>
<p>She spent Thanksgiving, her birthday, Christmas and the New Year in this limbo. &nbsp;When it became very clear that she was weakening, she agreed to hospice, and I signed the papers. &nbsp;Five days later, I got a call from the hospice nurse telling me that my mother's condition was starting to detoriate. &nbsp;On the following day, Janurary 11th, she died.</p>
<p>I have been struggling since. &nbsp;It hurts all over. &nbsp;My mother and I...I can't explain our relationship in words. &nbsp;The bond we had from what we went through. &nbsp;How strong she was-she had a will of iron. &nbsp;And we had no warning-she'd been sick off and on that year, but where we worked we had stomach viruses and the like going among the coworkers, you know? &nbsp;No history of cancer in her family. &nbsp;I was her nurse and caretaker from when it happened-god, it's only been four months total-two for the whole mess and it'll be two months from her death come March 11-and...</p>
<p>The little things hurt, being an adult hurts. &nbsp;There are memories of her all over the city where I live, and she was my only family. &nbsp;It's hard finaically without her working-we lived together, and yesterday I was in a car accident. &nbsp;I came home and cried over the stress and cried because I wanted my mommy.</p>
<p>I've spoken to a therapist once or twice, I haven't...gone to hospice yet becuase it's too painful. &nbsp; I don't know how I can explain it-how me talking it out over and over... My friends have been very supportive but they all more or less live out of state, so it's been online. &nbsp;I've let myself cry. &nbsp;scream. &nbsp;Howl. &nbsp;I want nothing more sometimes to just lie down and not get up but I make myself get up and keep moving...</p>
<p>It just hurts so so much...I miss her hugs. &nbsp;I miss talking to her. &nbsp;We talked every day, even when i was in college. &nbsp;I have a hole in my heart and how do you go on? &nbsp;How can you summon up the strength to have hope for yourself? &nbsp;I poured everything I had into her when she was ill...and look what happened...I tried to be the best daughter and the best nurse that I could but...</p>
<p>They say the pain never goes away but I just...when can you&nbsp;<em>breathe</em>? &nbsp;When does the fog finally lift?</p>]]>
        </description>
    </item>
    <item>
        <title>Private Message Spam</title>
        <link>https://csn.cancer.org/discussion/307917/private-message-spam</link>
        <pubDate>Wed, 08 Feb 2017 17:29:39 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>CSN_Anne</dc:creator>
        <guid isPermaLink="false">307917@/discussions</guid>
        <description><![CDATA[<p>Hello everyone,</p>
<p>Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1 please do respond to it or share any of your information.</p>
<p>Jegac1 has now been blocked from the CSN site.</p>
<p>Again, I am sorry for the inconvenience. Please continue to report any email spammers or questionable behavior you see.</p>
<p>Best regards,</p>
<p>&nbsp;</p>
<p>Anne</p>
<p>CSN Support Team</p>]]>
        </description>
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    <item>
        <title>Lost my husband 6 weeks ago at 31.  Left to raise our 3 year old son on my own.</title>
        <link>https://csn.cancer.org/discussion/174798/lost-my-husband-6-weeks-ago-at-31-left-to-raise-our-3-year-old-son-on-my-own</link>
        <pubDate>Mon, 31 Aug 2009 19:33:16 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>kmo1009</dc:creator>
        <guid isPermaLink="false">174798@/discussions</guid>
        <description><![CDATA[Heartbroken. Six weeks ago I lost my husband after a 9 month battle with a rare form of cancer (neuroendocrine tumor).  He was the love of my life and my best friend.  He was the best person I knew.  At only 31 I can't imagine the rest of my life without him.  Our 3 year old son will never TRULY know who his daddy is.  It just breaks my heart.

How do you move on after a loss like this?  How do you survive the pain and the sadness?  I've been seeing a therapist since early this year and she tells me the only real way to get through is to just dive right in.  I feel like there have to be tricks to do this.  I've never felt so alone in my entire life.  A year ago we were enjoying our family vacation on Cape Cod and know my son and I are alone.  I just can't fathom it.]]>
        </description>
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    <item>
        <title>Cancer and Nutrition</title>
        <link>https://csn.cancer.org/discussion/302808/cancer-and-nutrition</link>
        <pubDate>Wed, 08 Jun 2016 19:43:11 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>richy_nathaniel</dc:creator>
        <guid isPermaLink="false">302808@/discussions</guid>
        <description><![CDATA[<p><span>The National Cancer Institute estimates that at least 35% of all cancers have a nutritional connection. When lifestyle factors such as smoking and exercise are included the associated risk becomes much stronger and may be as high as 85%. <br /></span></p>
<p><span>Which foods are less important for health?</span></p>
<p>If we emphasize those that are supportive to our health then we will find ourselves eating less of the foods that contain "empty" nutrients. These foods may provide pleasure so we need to keep them in our diet at low levels only. Such foods include desserts, cakes, candies and many items made with saturated animal fats. I prefer to think of the 80:20 rule when selecting foods. 80% of the time we should choose healthful foods from the plant kingdom such as those listed above, and 20% of the time we can choose foods that provide pleasure and may not be quite as healthful.</p>
<p>&nbsp;</p>
<p>Why id Dietary fiber important in cancer oreventio?</p>
<p>&nbsp;</p>
<p>Dietary fiber is the indigestible part of foods of plant origin (it doesn't occur in any foods that come from animals, e.g. butter, meat, eggs, fish). Fiber provides bulk to our diet and helps to maintain a healthy colon. It does this in several ways; first, it stimulates muscle contractions and hence reduces colon transit time (minimizes constipation). Secondly, it dilutes any potentially hazardous or carcinogenic substances and also reduces the amount of time these substances would be in contact with the colon wall. Thirdly, it provides an environment that is conducive to "friendly" bacteria or acidophilus. These are supportive to us as they partially digest some of the fiber and provide us with nutrients and they also maintain a healthy acidic level in the colon. All of these factors are synergistic and hence eating dietary fiber throughout the day provides the best environment in our colon that is reflected in our overall health. Cholesterol and steroid hormones that are similarly structured including the sex hormones, estrogen and testosterone as well as vitamin D and cortisol are regulated in part by secretion into the digestive tract via the bile and reabsorption. Dietary fiber plays an indirect part in regulating the reabsorption as the bacteria acts on some of these bile acids and assists in their excretion.</p>
<p>Most Americans eat about 10 grams of dietary fiber each day but this is about half of what is ideal. The suggested range is 25-35 grams spread over the day. This is best accomplished by eating fiber rich foods at each meal such as whole grain cereals, breads, pastas, beans, leafy vegetables, fruits, nuts and seeds.</p>
<p>&nbsp;</p>
<p>Is food cooked at high temlperatures unhealthy?</p>
<p>&nbsp;</p>
<p><span>Frying or charbroiling meat or fish may cause carcinogens on the surface by the action of the heat. Smoking or nitrite curing meats may also form carcinogens. These carcinogens may not be harmful when consumed in small quantities and particularly when we eat them with fruits and vegetables that contain protective botanical factors. It is wise to use lower heat methods for most of our cooking methods such as steaming, braising, poaching, stewing or microwaving. Marinades help to make cooked meats safer.</span></p>]]>
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        <title>My Mom is Mentally Ill and My Dad is Dying</title>
        <link>https://csn.cancer.org/discussion/302287/my-mom-is-mentally-ill-and-my-dad-is-dying</link>
        <pubDate>Thu, 19 May 2016 00:55:17 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>gumbogirl</dc:creator>
        <guid isPermaLink="false">302287@/discussions</guid>
        <description><![CDATA[<p>Hello everyone. This is my first post here. My father has endured a battle with cancer and is now near the end. He is home on hospice care.&nbsp;</p>
<p>He has been at home nearly a week and yet, up until yesterday, my mother thought he still had a chance of "improving". My mother has a long history of mental illness and, in my opinion, is overmedicated. She seems in denial about his hospice care. This woman administered a plethora of meds to him, along with taking her laundry list of meds for herself for the past year. Now, however, she seems almost disinterested in learning what meds to give him when. I know that this is a very broad question, but has anyone here had to deal with a surviving parent with mental problems? I am not necessarily looking for answers. Just hoping for some kind of support.&nbsp;</p>
<p>&nbsp;</p>
<p>Thanks</p>]]>
        </description>
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    <item>
        <title>Need your help everyone, please share logistics and sites if you are aware of any…</title>
        <link>https://csn.cancer.org/discussion/302314/need-your-help-everyone-please-share-logistics-and-sites-if-you-are-aware-of-any</link>
        <pubDate>Thu, 19 May 2016 20:48:14 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>Ghazal</dc:creator>
        <guid isPermaLink="false">302314@/discussions</guid>
        <description><![CDATA[<p>&nbsp;Dear Everone,&nbsp;</p>
<p>Just like many of you, cancer has touched my family in the past by taking my uncle and now it wants to steal my angelic mother from me. I am here to ask you to please help me to find the necessary logestics such as loding and funds to transfer my very kind and full-of-life mother, who everyone loves and who has done right by everyone in her life, so she continues to live among us and touch our hearts.&nbsp;She has no one to care for except me, and I have no one except her, in my life.&nbsp;</p>
<p>I have set up a gofundme.com page for her but many don't even share it, I gather people assume everyone is trying to rip them off!</p>
<p>I have always helped others in need and never asked for anything personal in my life but now that I am in server need it I feel completely alone and left alone to care for an incredibly sick mum.&nbsp;&nbsp;</p>
<p>If you know how to use social media and bring it to the attention of those who are willing to help a cancer stricken family, I would be truly delighted to hear from you. I am at the end of my rope with financial difficulties and while there are no shortage of&nbsp;people in this world who donate for good causes, no one seem to paying attention to mine, so I am more than anything asking for people who are willing to circulate her page and making sure she gets the attention.&nbsp;</p>
<p>I am in UAE right now but haven’t seen anything of this country except the road from my lodging to the hospital.</p>
<p>The hotel people have been kind and even though it is about 100 dollars, they have held up on throwing my out of their hotel.</p>
<p>Any help that I can get myself and my mother out of here will be greatly appreciated.&nbsp;</p>
<p>&lt;Content Removed by Support Team&gt;</p>
<p>&nbsp;</p>
<p>Thank you very kindly,&nbsp;</p>
<p>&nbsp;</p>
<p>Ghazal&nbsp;</p>]]>
        </description>
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    <item>
        <title>Fundraising ideas?</title>
        <link>https://csn.cancer.org/discussion/246178/fundraising-ideas</link>
        <pubDate>Thu, 06 Sep 2012 01:44:49 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>Kari2012</dc:creator>
        <guid isPermaLink="false">246178@/discussions</guid>
        <description><![CDATA[My father was recently diagnosed with cancer. This is the fourth time in the last 10 years he's been diagnosed. He's had three types of cancer (lymphoma, melonoma, and liposarcoma, and the last one came back. He's been so brave throughout all his treatments, but he's starting to lose hope. He was laid off after the first time he had cancer, and was unemployed the second time. He was starting to look for jobs again the third time he was diagnosed, and before the fourth he was taking classes to do some seasonal temp work. Now he's collecting all of his insurance and bank records for my brother, mother, and I. It's heartbreaking to watch, and I want to show him that there's always hope left. My father used to be an amazing scientist. He used to do life-saving research, including viral and cancer research. Nobody deserves to have cancer 4 times. 

The cancer has been difficult on my family, as with any family. Financially, the cost of treatment with limited medical assistance (due to unemployment) has been devistating. With the recent access I have been granted to my family's financial records, I now know that my father has very little money left for retirement. Certainly not enough on which to retire, and probably little more than to pay for another round of cancer treatment. My mother still works, and helps to care for my father's elderly mother, whose own husband passed away from stomach cancer in 2007.

Emotionally, this is even harder. My father is the fifth direct generation to get cancer. He watched his own father die of it while he was in remission. He cared for me while, as a child, I was diagnosed and treated for fibrosarcoma at the Mayo Clinic. 

I am scared, and sad, and I want to do something. I thought that perhaps if I did some fundraising, I might help them at least pay for some of the medical expenses that they will incure.

So I am looking for ideas. I have never done a fundraiser and I don't know what it entails, or even how to start. Any help would be appreciated. I work full-time, so I have limited time, but I am willing to put in hours every week to organize something. 

Thanks in advance for your ideas.]]>
        </description>
    </item>
    <item>
        <title>Discussion Board and Chat Spam</title>
        <link>https://csn.cancer.org/discussion/290809/discussion-board-and-chat-spam</link>
        <pubDate>Fri, 26 Dec 2014 17:31:45 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>CSN_LauraE</dc:creator>
        <guid isPermaLink="false">290809@/discussions</guid>
        <description><![CDATA[<p>Hello everyone,</p>
<p>Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you received a message about a cure for cancer, please do not respond or share any of your information.&nbsp;</p>
<p>This user has been blocked.</p>
<p>Going forward, please continue to report any spammers or questionable behaviors to us.&nbsp;</p>
<p>Sincerely,</p>
<p>Laura E</p>
<p>CSN Support Team</p>
<p>&nbsp;</p>]]>
        </description>
    </item>
    <item>
        <title>12-14 months....children ages 5, 8, 22, 23, 31</title>
        <link>https://csn.cancer.org/discussion/289171/12-14-months-children-ages-5-8-22-23-31</link>
        <pubDate>Mon, 03 Nov 2014 21:21:48 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>skrammymom5</dc:creator>
        <guid isPermaLink="false">289171@/discussions</guid>
        <description><![CDATA[<p>While my husband of 10 years is still battling, we have entered pallitave care and have been told 12-14 months if we choose chemo to "buy us a little time".&nbsp; I have been unable to find in cancer resources any support groups of survivors of spouse who are young with young children.&nbsp;&nbsp;My husband is 57 and I am 48.&nbsp; I'm swimming in the loving care of my 31 year-old step son, the confusion of my 23 year-old son in the Air Force, my 22 year-old daughter who wants him to live long enough to dance with her at her wedding, our 8 year-old who actually understands what is going on and prays that daddy receives a miracle and our 5 year-old who doesn't talk about what is going on but snuggles with me like he wants to crawl inside me.&nbsp; With everything that we are planning - hospice, funeral arrangements, filing life insurance, locating retirement benefits and retirement 401(k)s etc., are there any young mothers out there that have any advice.&nbsp; I'm struggling with being human for my children and being robotic with all the necessary arrangements that need to take place in preparing for the next 12-14 months.&nbsp; I love him so much and he has always taken care of everything.....everyone tells me they admire how strong I'm being, but on the inside I think I have brick walls built high to handle everything.&nbsp; Is there a mother out there who can relate and provide any insight?&nbsp; If Mayo had not told him "C" was back and pissed off, he wouldn't know as he still feels good.&nbsp; How long do we move along day-to-day to the outside world like our life is no different than any other life.&nbsp; I realize we are all born with an expiration date, but some insight with ongoing life without the husband Christ gave to me is very difficult.&nbsp; Peace~</p>]]>
        </description>
    </item>
    <item>
        <title>2 Years</title>
        <link>https://csn.cancer.org/discussion/271278/2-years</link>
        <pubDate>Wed, 16 Apr 2014 19:32:32 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>mr steve</dc:creator>
        <guid isPermaLink="false">271278@/discussions</guid>
        <description><![CDATA[<p>It's been 2 years since I lost my wife to cancer. I still get angry sometimes, well alot of times when I hear about a new advancement or even when someone beats it. Does any one else feel this way?</p>]]>
        </description>
    </item>
    <item>
        <title>PTSD</title>
        <link>https://csn.cancer.org/discussion/240193/ptsd</link>
        <pubDate>Sun, 13 May 2012 16:32:35 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>sue5749</dc:creator>
        <guid isPermaLink="false">240193@/discussions</guid>
        <description><![CDATA[HI,   I WAS JUST WANTING TO KNOW IF ANYONE ON THIS SITE EVER THOUGHT THAT THEY MIGHT HAVE PTSD?   MY HUSBAND DIED ALMOST 4 MONTHS AGO FROM THROAT CANCER AND I FIND MYSELF HAVING A VERY HARD TIME WITH THIS.  SO FAR AS NOT TURNING ON MY PHONE AND THINKING SOMETHING REALLY BAD IS GOING TO HAPPEN.    I EVEN TOLD MY DAUGHTER A MONTH AGO THAT I FELT SOMETHING REALLY BAD IS GOING TO HAPPEN????    ALSO I HAVE HAD A SORE THROAT NOW FOR A FEW DAYS???   I DON'T KNOW FOR SURE I THOUGHT THAT WAS FOR SOMEONE LIKE WHAT HAPPENED FROM GUYS COMING BACK FROM THE WAR???   WHOW THIS IS SOMETHING FOR ME TO CHECK INTO/     MAYBE SOMEONE OUT THERE MIGHT THINK ABOUT IT?    SUE]]>
        </description>
    </item>
    <item>
        <title>pancreatic cancer</title>
        <link>https://csn.cancer.org/discussion/264508/pancreatic-cancer</link>
        <pubDate>Sun, 17 Nov 2013 00:46:41 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>johnson1968</dc:creator>
        <guid isPermaLink="false">264508@/discussions</guid>
        <description><![CDATA[<p>&nbsp; &nbsp; Hi! &nbsp;My name is Becky and my dad has pancreatic cancer. &nbsp;He was originally diagnosed in the spring of 2008. &nbsp;He had the whipple procedure, chemo and radiation. &nbsp;He was blessed enough to beat the cancer until now. He went last week for his yearly cat scan and blood work and was told by his cancer doctor that there wad a small spot on what is left of his pancreas. &nbsp;The blood work came out clean and so she thought the spot was benign, but told him to see the surgeon. &nbsp;He is going next week to Cleveland to see his surgeon that did his last surgery. &nbsp;I am so scared that it is back. &nbsp;I guess I am looking for advice or similar situations. &nbsp;I love my dad so much and I know he is a fighter.</p>
<p>&nbsp;</p>]]>
        </description>
    </item>
    <item>
        <title>Melanoma, Grief and Feeling Lost</title>
        <link>https://csn.cancer.org/discussion/262808/melanoma-grief-and-feeling-lost</link>
        <pubDate>Sat, 14 Sep 2013 09:46:46 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>whitneyc1980</dc:creator>
        <guid isPermaLink="false">262808@/discussions</guid>
        <description><![CDATA[<p>I don't even know where to start. This is my first post and with so much that I have been holding onto, it's hard to know where to start letting go. My dad was diagnosed with stage 4 metastatic melanoma on may 27th. He died on August 19th. He had been experiencing back pain, it became unbearable and resulted in a trip to the ER. His T8 and T9 were cracked and "eaten away" as one of the doctors put it. Six months ago he was carrying my 4 year old son around like a sack of potatoes and doing yard work. it was discovered he had metastasis to his brain, lungs, spleen, liver and bones. He became paralyzed. The doctors were just as horrified as we were, several of them cried. &nbsp;He came home after a surgery and 15 days of whole brain radiation... And died in my arms 3 weeks later. He had just turned 60. There is so much I want to talk about. My mom thinks I have ptsd. I think she may be right. I think about the moment he died all the time. I knew in that moment that he was okay and he was comfortable and present and not afraid. All my logical senses tell me I did everything right. But I can't ge the sound oft his last breaths to leave me. I can't help but wonder ifs he really heard me telling him I loved him. I feel like I am underwater and I have no idea which way is up. My dad was my best friend. I was his care giver 24-7 for the last 2 weeks of his life and I feel so grateful that I got to do that. But I am deeply disturbed by this experience, particulRly the ferocity of the melanoma and the speed at which it irreversibly scarred my family- and I don't know if I am even dealing with it. I feel numb and angry and apathetic at the same time and I have to remind myself every day that he is gone. I feel lost. Thank you for reading.</p>]]>
        </description>
    </item>
    <item>
        <title>worst wedding day</title>
        <link>https://csn.cancer.org/discussion/262497/worst-wedding-day</link>
        <pubDate>Thu, 05 Sep 2013 05:45:42 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>theocean</dc:creator>
        <guid isPermaLink="false">262497@/discussions</guid>
        <description><![CDATA[<p>I lost my fiancé Sunday September 1, the day before our wedding day. On the Wednesday I was advised to start my leave for 6 weeks to take care of him. Due to a recent hospital stay we had postponed our wedding from the beginning of August to September since he went into the hospital the day before we went to get our marriage license and we needed to wait for him to be more mobile to get it. My fiancé had been diagnosed with cancer years before we met but was in remission when we met and started dating. Shortly after, we were informed &nbsp;the cancer had spread to his lungs. He had surgery but it was unsuccessful. In February we had the best trip of our lives and decided to move in together. In June, a week before we were going on another trip he started falling. &nbsp;We learned he did have 3 brain tumors and 10 minor lesions. He did some radiation quickly and we still went on the trip...so glad we did, while on the trip we decided to get married. When we got back he went into more radiation, while it had improved his lung it didn't help his brain. He got fitted for a mask and was waiting to start concentrated treatment on his head, and he bought me an engagement ring, things were looking up. We picked up our wedding bands and we're planning to get our marriage license on the Monday. Unfortunately Sunday he experienced pain for the first time, after an ambulance ride and hours of doctors being confused they found a fracture in his spine and a tumor pushing on it. He ended up in the hospital for a month, first treatment on his back and then his head. Once they finally managed his pain and he was walking around they let him come home. &nbsp;On the way out we were told the cancer spread to his liver during the month and the tumor was now around his spine and would break it. He came home though and I was taking care of him. After he was home one week and the place was set up and he was feeling good we got our marriage license, that meant one week till the wedding. Then he fell, we was walking fine and hit the ground but he could still walk with my help. We changed to wedding venue to our house since we knew he wouldn't be able to walk by by the wedding and his nurse ordered a wheel chair for the wedding. Wednesday we had his nurse and doctor came by he told them how much he wished they would tell him how long he has. They told him &nbsp;I should take my 6 weeks from work now and just move forward with the wedding Monday. Thursday when I woke up he was out of it, his breathing was bad and he wasn't alert. By dinner he wouldn't wake up, eventually he expressed his pain, wet himself and his spine burst. I I called his family. Friday morning we put him in the hospice. By Friday morning he was no longer talking. Sunday afternoon he passed away in my arms at the age of 33. I'm only 29. On what should have been hour wedding day I sat at the funeral home making plans to cremate him. I wish we would have had our wedding Tuesday when he was alert, I now have to live with our missed opportunity. &nbsp;I love him so much.&nbsp;</p>]]>
        </description>
    </item>
    <item>
        <title>&quot;why aren&#39;t you over her yet, why do you still get upset? its been 3 months&quot;....HELP</title>
        <link>https://csn.cancer.org/discussion/179148/why-arent-you-over-her-yet-why-do-you-still-get-upset-its-been-3-months-help</link>
        <pubDate>Thu, 05 Nov 2009 14:00:46 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>membermeg</dc:creator>
        <guid isPermaLink="false">179148@/discussions</guid>
        <description><![CDATA[I am new to this website and hope to gain friends and strength. 

The subject of this discussion is one that I have been experiencing in my workplace. I am going to write my story when I get a chance, but right now I need to vent. People who have not been through what we have been through have no idea or concept of the word "grief"

"Grief" to us a real emotion, an emotion that is with us at every second of every day. I work in the health field and am 27 years old. I lost my mom 3 months ago and am grieving every day. It is like a rollar coaster and when people tell me they are "sick of the drama" referring to me having to cry or take a walk bc I miss my mother, I get very angry. When you lose someone sooo close to you, it takes years to work through. 

My co-workers get upset if I get "an extra" break bc I am crying and need to take a walk and call my dad. They don't think it is fair. ARE YOU KIDDING ME? I get attitude if I am not my happy, bubbly self. I get attitudes if I need to step out bc it HIT me like a ton of bricks. They don't understand and they dont care. I am just so sick of it.......HELP]]>
        </description>
    </item>
    <item>
        <title>FIRST CHRISTMAS AND BIRTHDAY WITHOUT MY MOM</title>
        <link>https://csn.cancer.org/discussion/252097/first-christmas-and-birthday-without-my-mom</link>
        <pubDate>Thu, 27 Dec 2012 11:20:04 +0000</pubDate>
        <category>Surviving Caregivers</category>
        <dc:creator>lms1616</dc:creator>
        <guid isPermaLink="false">252097@/discussions</guid>
        <description><![CDATA[<p>So, this is the first Christmas I have ever had without my mom. To top it off, my mom's birthday is on the 26th. It felt so unnatural having those 2 days go by without her. I had the worst dreams about her the evening of Christmas Eve. She stood in front of me, but when I went to talk to her she left the house, so I woke up screaming her name and please dont go, all night long. I feel so numb, it has been 6 months since she has passed and it hasn't gotten any easier. I'm 34 years old and both of my parents are gone. My kids are never going to have all of those wonderful memories that I have. I know I can keep their memory alive by talking about them, and I do, but it's still not the same. I look back and remember all of those sleepless nights and long days or nights&nbsp;in &nbsp;the hospital......funny thing is that I wish I had those back. Not that I want her to be sick, but I would give anything to just have a talk with her again. I miss her so desperately, there is no love like a mothers love.&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;</p>]]>
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