I've been in those shoes. I've sat in that chair, heard those words from a doctor, and felt like the whole world just dropped from under me. It hits different when it's real — and trust me, I know exactly what that feels like. But here's the thing — you don't have to walk this road alone. I've come out on the other side, cancer-free, and if my story, my experience, or even just a conversation can help lighten your load — that's exactly where I want to be.

Whether you need guidance on understanding your diagnosis, questions about treatment, emotional support, or just someone who gets it — slide into my DMs. No judgment. No hesitation. Just human support from someone who's been through the trenches and made it out.

I'm no doctor, but I'm a survivor — and sometimes that's exactly the kind of voice you need in your corner. Don't hesitate. Just reach out. 📩 Message me directly — my inbox is always open.

Nonspecific physiologic activity seen in the tonsils / base of 
tongue. Subcentimeter left thyroid nodule is again noted without 
associated FDG activity.



Imaging of the visualized portion of the head and neck is 
unremarkable and shows no discrete abnormal FDG activity to suggest 
FDG-avid malignant process. 



CHEST: 



Pulmonary nodules less than 10 mm in maximum dimension are often 
below PET resolution.



No bulky or FDG avid adenopathy. The trachea and mainstem bronchi are 
patent. Bibasilar subsegmental atelectasis. No sizable pleural 
effusion.



Biapical pleural thickening. No FDG avid pulmonary nodules or masses.



ABDOMEN/PELVIS:



Nonspecific heterogeneous uptake throughout the liver and spleen. 
Physiologic radiotracer activity is present within the 
gastrointestinal and urinary tracts.



Beam hardening artifact partially limits evaluation. Renal cortical 
cysts are again noted. Small amount of pelvic ascites. Colonic 
diverticulosis.



Interval marked decrease in size in the previously noted 
hypermetabolic left pelvic mass seen on PET/CT of March 2018. 
Persistent ill-defined soft tissue density adjacent to the sigmoid 
colon demonstrates focal FDG activity measuring SUV max 6.0.



Nonspecific periincisional FDG activity along the midline anterior 
abdominal wall has increased since the prior study measuring SUV max 
3.4.



Multiple mesenteric soft tissue masses are seen to better advantage 
on the contrast enhanced CT abdomen/pelvis of 6/8/2018. Reference 
soft tissue nodule within the left upper quadrant measures up to 23 
mm and demonstrates peripheral FDG activity measuring SUV max 2.6. 
Multiple additional soft tissue nodules are identified with low-level 
FDG activity. Reference right para-aortic 31 mm soft tissue mass 
measures SUV max 2.0.



BONE: 



Review of bone window imaging, in conjunction with PET imaging, shows 
no evidence of FDG-avid osseous metastasis. 



IMPRESSION:



1. Since prior PET/CT of March 2018, interval marked decrease in size 
in the previously noted hypermetabolic left pelvic mass. Persistent 
ill-defined soft tissue density adjacent to the sigmoid colon 
demonstrates focal FDG activity measuring SUV max 6.0.



2. Multiple mesenteric soft tissue masses are seen to better 
advantage on the contrast enhanced CT abdomen/pelvis of 6/8/2018. 
Reference soft tissue nodule within the left upper quadrant measures 
up to 23 mm and demonstrates peripheral FDG activity measuring SUV 
max 2.6. Multiple additional mesenteric are identified with low-level 
FDG activity as referenced above.



3. Small amount of pelvic ascites.



4. Nonspecific periincisional FDG activity along the midline anterior 
abdominal wall has increased since the prior study measuring SUV max 
3.4.

If you have any insights or recommendations, we would deeply appreciate your guidance. Thank you so much for your time and expertise—your help would mean the world to us.

My name is Alyssa. I am 30 years old. I am new here, and honestly wish I had known about this website earlier. It would have been a great extra support system. I am currently struggling emotionally and physically as a recent cancer survivor of Stage III Undifferentiated Pleomorphic Sarcoma. The large tumor that was found in my left thigh was originally thought to be a hematoma. When they went to try and drain it, nothing came out. It was then ordered by the doctor to get an MRI on the leg to further investigate. It was then found out what this mass was; cancer. I feel like they were taking the situation lightly at first because of my age. They felt it couldn’t possibly be cancer. Most of my year was spent going through chemo and radiation. Year from hell, especially the chemo! I got really nauseous from it, and vomited pretty severely. I had my tumor removal surgery on May 28th of this year. A lot of the muscle had to be taken out of my leg along with the tumor. I had to learn how to walk again. After the surgery, my leg still wasn’t recovering well. It hurt pretty severely. I got the red flags of a post-operative infection. Called the ambulance because I could not even get up from the chair. They did confirm staphylococcus. They put me on IV antibiotics. I also had to have an I&D operation done. Tried to learn to walk again. They give me the bad news a few days later to state they did not get all of the infection. They will have to do ANOTHER surgery. After an additional two weeks being in the hospital, I was finally discharged home on IV antibiotics through my chemo port. I had to go through a month of being on those IV antibiotics. So, when I tell you this has been the year from hell, I wasn’t lying! I am slowly trying to adjust to “normal” life. Back in school for my Business Management degree. I mentioned earlier that I am struggling emotionally and physically. Physically, cancer has drained me. I still feel nauseous as times and vomit. I went to the doctor and she said it may be the ozempic I am on. She didn’t seem to confident though, honestly. Emotionally, is for obvious reasons. I have tried to be as strong as I could going through it, but I feel like the fear of recurrence is overtaking me. I am trying to keep myself distracted, but in the meantime, I can’t face this alone. If I can be of help to anyone who has gone through this terrible “journey”, I am here. I also appreciate any stories, or even tips to cope!

I am new here and have been accompanying a relative (mainly for logistical support for him and his wife since treatment is at a location away from both of our homes) as he is going through radio therapy treatment for angiosarcoma, and I have a question about "What is a gray?".

From searching, I found that:

"Definition One gray is equal to one joule of energy absorbed per kilogram of matter"

but I am unclear about what they mean by "per kilogram of matter".

Is that referring to the weight of the patient?

Or, something else, and if so, what?

Thanks,

Jim

I registered on this forum because in France there is no on Sarcomas

My wife (36 old) was diagnosed in September 2022 with a grade 2 synovial sarcoma, she has a 9cm tumor in her calf

The protocol is Chimio > Radiotherapy > Operation

I wanted to know if other people have gone through this cancer, so I can share

Thank you

I’m 29 and had several liposarcoma masses removed earlier this year. They were de-differentiated (though some were well-differentiated), and were surgically removed before we knew it was cancer.

At my 6 month scan, I just found out I have a recurrence. I am heading towards chemo or radiation before another surgery.

Everything I have read on the internet signals that I have bad prognostic factors - recurrence, retroperitoneal primary site, de-differentiation, multi-focality. I feel like this can’t be good. But I’d still like to hear some stories of people who have lived full lives with this disease, so I can feel like I have something to fight for.

I just finished grad school, and have met my potential life partner. I don’t want to leave yet. I just need to hear some hope.

Reading your lines, i felt enouraged to lift my eyes once again towards the sky and pray for a miracle for my lovely aunt who suffers from this desease. We re in Romania and there is no sarcoma center here, doctors follow the international protocol, however nothing seems to work in her case. She has undergone 5 surgeries in only 1 and a half year, looks like next week will be the last one..one last try. Every 3 months, CT shows recurrences. Already had 3 lines of chimiotherapy, unsuccessfully. Tumors continue to grow on her interstines, liver, rectum, bladder.

I experience the worst period of my life since we re very close and my advisor in everything. She s only 54 years old and doctors are outdated, giving her no chance of survival.

Please, if possible, advise me what else she could try, where to go.. we don t know anymore…already spent so much money just to be told that there is nothing left to be done. Thank you so much. Blessings to you all.

After surgical removal of tumor 6x5x5cm (high grade) on right thigh with all clear margins from the lab report, necessary to go for radiation/chemo or.. Please suggest if anyone of you have gone through similar issue..

Can someone give me the information on surgeons that are crazy enough to do the surgery? Some doctors won't even try and I'm seeing ppl with tumors larger than a football having them removed. I need real surgeons' names, California preferably but I will go anywhere.