If I don’t get luck w these 2 places Google search had Downwinders as place to contact but also couple law firms in my area : Morgan and Morgan and Stephen Stephen this is Florida! Law firms take 2% for me it would be worth it but I will wait to hear back from the first 2 !
just wanted to let you know! RECA is not place to get help !!! I hope you all advocate for compensation

I’m looking into what can I do to minimize recurrence risks other than eating healthy etc. and found this article suggesting that one should attack these specific types of cancer cells to ensure non-recurrence. Anyone care to comment? Do you know about this topic or do you follow a preventive regime that you can share for guidance purposes? I already do (or work on) the basics to prevent a recurrence: sleep, stress, nutrition, activity, env. exposure etc. and think of establishing a specific extra nutritional plan based on this article.

Thanks

"Cancer stem cells can migrate and nest in distant sites of the body and remain quiescent (dormant) for months, years, or even decades until the right stimuli come along and awaken them. Conventional therapy can shrink tumors; however, it will not prevent tumor recurrence. Sooner or later, lingering cancer stem cells can form new and often more aggressive tumors from a small number of cells (as few as 100). In other words, being “tumor-free” is not the same as being “cancer-free.” Eradicating tumors is not enough. Cancer stem cells must also be eradicated to achieve long-term survival."

https://www.thomashealthblog.com/?p=12068

Recurred in 2008, surgery again, then 6 rounds gemcitabene.

Recurred in 2011, surgery again, then 6 rounds gemcitabene.

NED since finishing chemo in 2012. Still have never dared say survivor. Prefer grateful veteran. I am 71. Was not expected to reach 60.

Signed Not Done Yet

Lower inflammation in all ways and significantly increase anti-inflammatory foods. Clean the air in your homes with plants. Stay clear of toxic environments. Never ever eat fried food. Eliminate sugar - you don’t need it at all. Do not eat seed and vegetable oils and don’t cook your food in olive oil - use something with a higher burn temperature - possibly 🥑 oil or tallow. Try to incorporate all nutrients in your diet including bone marrow monthly and lower the stress on your body including with what you put in it. Your body can consume a lot but doesn’t mean it should. If you feel pain anywhere, see a doctor and treat it immediately - don’t cover up pain with treating the symptoms only.

Your body is your vessel and you should treat it with kindness. Give it breaks - do a water or a juice-only fast. If you wouldn’t put water in your gas tank, think the samewise about your body - put only good stuff in it to run effectively, to feel good and to help your immune system naturally fight off cancer and all other illnesses. If you give yourself some french fries then eat an apple, your immune system still has to go to work on the inflammation from the french fries. You may need your immune system to focus on some other area and what you’re doing takes away from that and creates another problem. Help your immune system in all ways including getting a full nights rest. If you know you are putting in all the good things, focus on the target problem area. Look up suppressive foods for the cells in that area and lookup healing foods for that area. If your cancer has gotten too serious, still do this in combination with treatment.

My mother gave me this lecture once about getting "another chance" at life or some such drivel, but I don't see it that way. I see it as loss. No one seems to understand this. Yes, I'm alive (and I appreciate that now), and yes I got second chances to be alive, but one of the main reasons I wanted life is gone and the one way I had that I held onto to enjoy my life is now gone as well. I feel that things are being yanked away in order for me to survive and well, it's not fair.  I know I'm still alive and there are so many who aren't or won't be - and I hate to sound ungrateful at that. I probably sound like a whiny brat, but I am reaching out because my entire life is stagnant. It is on hold and all I'm doing is getting fatter and more depressed. I weight over 330 pounds right now. I went for weight loss surgery but was denied due to high risk (borderline personality disorder and bipolar put you on the fast track to "NO"). I am planning to see someone for medical weight loss but I have no hope in it. I can't seem to turn away from food and it really likes me, too.

I do therapy and psychiatry, so please don't suggest that. I know I can lose the weight with the medical supervision (they cut your calories to like 800 daily), but then will I be able to keep it off after the process is complete? I feel that some part of me, the part of me that died in 2011 and then the other part in 2015, would need to come alive or something in order for me to succeed. But I don't know how to make those parts of me alive. I don't know how to combat the depression, I have tried the whole "just making myself get up and do it" routine. I am able to bathe, dress, and do some light chores because of that very reason, but I don't feel I have enough strength for the rest. Is anyone out there hearing me and does anyone understand?

Wondering if any survivor has registered positive outcomes from the use of black seed oil. There's numerous research suggesting it's use in killing cancer cells.

Happy to learn from your experience.

However... 10 years later I am crippled with PTSD and Depression from my cancer experience. If I could walk you through my "phases" after I was cured, I would say I spent the first 1-to-3 years in a serious fog from chemo-brain and probably shock, completely unanchored and lost. I didn't have any heavy emotions (probably due to nerve damage) and began to get back to my life, albeit slow. The next few years I felt somewhat clearer, with a few cognitive issues, but wasn't sure how to drive this "new car" with just 2 gears, when I had previously been driving one with 5 gears. Trust me, I didn't need to go back to my speedster life. I just didn't know how to be, in this new body and mind. I slept a lot. Took a ton of naps. 

Then, around year 6-7 of remission, I began to feel definitively depressed, and began to have PTSD episodes. Not flashbacks. In fact, my cancer was the furthest thing from my mind. I would be on the bus or subway to my oncology follow-ups and I would start fights with people. Many fights. On the way back too. I'd also become belligerent or sleep for days on end around the time of year that my symptoms started. Like my body knew what season it was for me: cancer season. I started therapy, and it became clear that I was manifesting severe PTSD from my cancer year. I tried CBT, EMDR, and now am working with an LCSW who does Core Energetics. But this year my depression and PTSD became unbearable so I reluctantly went to a Psychiatrist and started PTSD/MDD Medication. I'm glad I did, because the meds work, in the sense that I no longer have episodes. 

But... I cannot move forward in my life. I am stuck. Have been for 10 years. I haven't been able to go to any in-person survivor groups, because the ones that I researched are all people just out of treatment, and I can't handle seeing them (it triggers me). 

The summary of what I feel is this: For 10 years I have been waiting for this to be over because it doesn't feel like it's over. It's as if my brain had to contort into such a twisted state just in order to survive the terror that was my cancer year. And even though I know it's over, and I am 100% certain it will never come back, my body does not know that, and my brain has never been able to un-contort out of this twisted, defensive state. I have read "The Body Keeps The Score", and other books. I have reached out to the Lymphoma organizations, to no avail. Anyone here feel the same? I am generally a calm, laid-back person, but after 10 years of survivorship, I am at my wit's end. The therapy, the meds are not enough. When will this feel like it's over?

I am curious if my situation is rare or common with the multiple diagnosis in one individual.

Any info or comments is appreciated 

 thank you

First, sorry for my English, English is only my second language.

I want to share with you our experience with breast cancer (and I truly hope it helps with most cancers). More than ever, after this experience, I know that cancer (like most disease), is the result of an imbalance in personal or family life, either at a nutritional/physical condition level or at the mental/emotional/spiritual level (or combined).

When the diagnosis of 3rd stage breast cancer came, it was a shock. But we never lost our hope. On the contrary, the whole family truly believed it's curable.

Then, in conjunction with chemotherapy and radiotherapy, we started the research. Traditionally convinced of natural remedies (we are the product of nature, and we thrive best in clean, rich natural conditions), we came up with the following daily routine:

• a large glass/mug of root vegetables juice. This is essential, it's unbelievable in healing effects and not expensive. Usually in the morning, as breakfast or with a plain toasted slice of whole wheat bread, or with dry whole cereal and seeds bread/crackers (I don't know their exact name, they are thin, crunchy, and they usually come in plastic transparent packages like biscuits). Look for all natural, no or very little added salt/sugar, organic/bio are always the best choice. To make the juice, we bought a slow masticating juicer—that's very important, because it doesn't destroy the nutrients when pressing. The list of root vegetables (again, organic/bio are the best, whenever possible, for they have none or very low content in chemicals) for the juice (do not forget to wash them well, with cold water, and only peel the portions showing too much dirt or anything, otherwise leave them unpeeled when cutting into pieces for the juicer, because there's plenty of nutrients in the peel as well):
• beetroot (the root of a medium sized red beet)
• carrots (together, the beetroot and carrots are the basis of the juice)
• celery root (the size of a normal bread slice per juice; there's not much juice coming out of it, but it's powerful)
• ginger (a small piece, enough for you to feel the spice in the juice; if you can bear more, don't hesitate—it is also very powerful in healing properties)
• whenever one of the above ingredients is missing, especially when the beetroot or carrots are missing, you can substitute with other roots: parsnip, turnip, and even green leaves. But try to hold to the carrots + beetroot recipe. Fruits can be added to the juice, but they are not as strong in their healing properties, and they provide too much sugar when squeezed (sugar must actually be avoided during cancer, except from raw fruits (not juice)).
• drink it fresh, don't leave it for later (if you must, keep it covered in the fridge)
• DO NOT add sugar or salt
• sometimes, instead of a juice you may prefer to make a salad of all these (again, look to shred/grate the roots yourself, without heat), which is just fine—you just need to eat a lot of it. With extra-virgin olive oil, some walnuts and seeds, it's another cocktail to boost your body resources and immunity. You can also have both, a vegetable juice and a salad at different times in the day.

• B12 might be necessary (every now and then), on the period when the diet is low on animal products. But no B6 and no Calcium.

• nuts, seeds and grains must be stored protected from mold and fungus. If you suspect any of it, get new ones.

This diet helped both to regenerate from the side-effects of chemo and radio, and to provide the body with the best instruments to heal itself, improve its immunoresponse etc. It's like soaking your system in all the nutrients and natural cleaning agents that eventually reach all the corners of your body, not letting it fall back into fatigue, lack of resources and toxin accumulations. And that puts all your immunity back into the pilot seat, while the cancer cells are slowly deprived of their chemical and biological friends.

Exercise: 10-20 minutes of stationary bike (or treadmill), depending on the fatigue caused by chemo, on slow pace. Even when really low, still tried to go outside for some walk (though not always successful, but it's important to try).

Psychologically/emotionally: it is very important to remove stress as much as possible. Sleep. Try to get some personal comfort, and to focus on yourself, in terms of resting, tranquility and peace of mind. Your boss is not important anymore, traffic is not important anymore, nothing that used to bother you is important anymore. Stay close to your close ones, give up quarreling, make peace with anyone (or step aside/keep the distance when not possible) and kindly ask for support whenever needed. Forgiveness and love are the keys. Let other things go. Pray to God (it's not His fault for our sickness). Surround yourself with good and beautiful, be it books, paintings, music, ambient sounds or movies. Simple meditation sessions help too. You need inner balance and detoxifying your heart/mind as much as your body.

With each new medical control, the tumor got smaller and smaller, beyond expectations. And, after approx. 5 months of chemo, though the doctor didn't initially think that would be possible, the breast was saved (only a regular surgery). The tests showed no more cancer (but still followed radio, as recommended).

Of course, this is only one's experience. Consider what you think it may do you well, and do not follow any of the above advices if you feel they don't bring you any good (or adapt in any way you may think appropiate to your case).

God bless you and help us all.

I run out of short term disability on July 1st but will not be done with chemo for a few months after that.  My insurance company sent a letter telling that long term disability takes awhile to approve, etc......  and is based on being totally unable to ever do my job again (seems a bit much, what if I get better?).

The letter encouraged me to apply for Social Security Disability, however I was told that I can't apply for SSD while I am employed.  So now, I am totally confused.

Has anyone out there been through this?  Can you shed some light on this tunnel so I can make sure it isn't a train coming at me?

I was wondering if any of you long times survivors were unlucky enough to catch the Coronavirus and how you coped with it?