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Let's do a roll call!
It's been awhile since we've done a roll call and we have a lot of new ladies. Name or Nickname: Type of Cancer: Grade & Stage: Date of Diagnosis: Treatment: Where Treated: Outcome: Anything Else: I'll go first! Name or Nickname: Eldri Type of Cancer: UPSC Grade & Stage: Stage II (oncologist's best guess), Grade 3 Date of…
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Her2 New Treatment for Serous Carcinoma
Good Afternoon Ladies: I wanted to share this information with you about new treatment plan for serous carcinoma. This treatment is used in breast cancer. I just had my 3rd 3 month checkup and the PA shared this with me. I don't know how many of you undergoing treatment can have this as another option. I copied a link…
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Uterine carcinosarcoma
Oh boy ...the initial doagnosis prior to the complete hysterectomy in 5/30 was tough enough ...but... yesterday was a whole new kind of experience.. I had a pet/ct scan, and got the results back in a couple of hours. There are 3 tiny spots, and she said they are not visual with a cat scan yet. They still recommend the 6…
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Stage 3A Endometrial Serous Carcinoma
Hi, its my first time posting here. My mom was diagnosed with stage 3A Endometrial Serous Carcinoma 2 months ago and has already had a total hysterectomy, and now recovering from lymph node removal surgery. Doctor said people with this same cancer have a 50% survival rate, meaning out of 10 women, in 5 years 5 of them will…
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1 year NED
On June 20th I celebrated 1 year NED! My birthday is the 30th and I am so thankful to have it every year now. I go every 3 months for exams and blood work, and have had no problems at all. I am so thankful and so blessed! I just want to encourage others that get diagnosed to know, there is hope! (just a brief synopsis..I…
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South Jersey; Philadelphia area
Hello ladies, has anyone been treated at Cooper MD Anderson Cancer Center in Camden, NJ?
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Having my hysterectomy on Tuesday
it has now been over two months since I was diagnosed. After tests on my pancreas and colon (long story) which all proved to be benign, i am now ready for the surgery. I was so scared at first, now, I have left this in the hands of God or fate. I am no longer afraid and will take this one step at a time. Tuesday it is. one…
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Grade question and other concerns
Hi everybody, first post for me but I have been reading a lot of your stories, concerns and hope. I am 60 and post-menopausal. I was diagnosed after an hysteroscopy and D&C with Endometroid endometrial adenocarcinoma, grade 2. The lining of my endometrium was 5 mm and I had never had heavy bleeding, just discharge,…
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Looking For New Gyn/Onc For UPSC - Need Suggestions
Hello all - I have been checking this board since I was first diagnosed with stage III UPSC in March 2017. I have found this board to be such a help in every sense of the word - thank you everyone! This will be my first post as I am looking for a new gyn/onc. Had Robotic total hysterectomy + BSO, 6 rounds carbo/taxol and…
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Post surgery update, no pathology yet
I had the radical hysterectomy plus other tissues, as well as rebuilding of left abdominal wall, on june 14th. The surgeon was unable to locate left ovary, tube, lymph nodes as my entire left abdominal cavity s rock hard and atrophied. The more he tried, the more it bled requiring blood transfusions. I have a central…
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Fatique
Been dealing with this recurrent uterine cancer since Dec. 2015. I have had 3 differenct treatments plus now on a management chemo treatment. I am trying to keep the postivie focus and attitude. I have pushed and pushed not to let all this get to me but today it did. The fatique and fact that I can only be on my feet 20…
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The Sword of Damocles
I am waiting (since 22 May) for a biopsy on another tiny bump because the doctors are hoping the pelvic radiation will have killed the cancer but want to be sure. As a retired teacher of literature, I am reminded of the story of Damocles, who thought if he was powerful and rich, life would be easy. Much to his surprise,…
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distinguishing secondary from primary cancer?
My Mom had multiple nodules in her lungs right from the outset of her endometrial cancer. At first they thought they weren't related, but they grew and become more numerous, although they were always too small to biopsy. after tworounds of chemo and radiation for her original uterine cancer she decided to try a third much…
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Harmony09/Stacey: How are you doing?
Hi Stacey, I was struck several days ago by two of your posts that revealed the physical discomfort you were in and the stress you are dealing with. I noticed you responded recently to another lady on a different topic so I think you are visiting this site. I just wanted to reach out and express my hope that your…
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Should I be worried?
I had vaginal ultrasound at my gynecologist to check on my uterine fibroids. I didn't get to see doctor only teaching assistant. But she informed me my really large fibroid had gotten bigger and I had multiple new smaller ones and was to come back in 2 months for my pap and check up. Very next morning I received phone call…
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I know too much!
I had surgery a radical hysterectomy with bilateral salpingectomy on June 7th. The surgery went great! I'm recovering well, actually, better than I thought I would be. I don't see my gyn/onc until June 22nd however I have had access to my pathology report since June 8th. I am a nurse so I understand what my pathology…
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Newly Diagnosed
Hi everyone. My name is Judy and I was diagnosed yesterday with uterine cancer. I am pretty much in shock. In 2013 I was diagnosed with anal cancer and underwent the standard treatment for that. I found the forum on anal cancer invaluable so I imagine this one will be helpful as well. I am currently in "waiting" mode. My…
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Treatment when you are over 65.
I hope this message posts; my first attempt was blocked because it appeared to censors to be Spam. I'd be interested in hearing from senior citizen sisters who've gone through treatment covered by either Medicare or Medicare Advantage plans. I turn 65 early in 2019 and can make my application for benefits in November 2018.…
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I'm done!
I'm done with chemo and radiation! It began to feel like I'd never finish sometimes. I still need a ct scan and then have radioactive iodine or surgery to get rid of the hot nodule that is causing subclinical hyperthyroidism. But at least I'm done with chemo and radiation!! Now I'm back to running and gardening again. Has…
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Lynparza
Has anyone taken Lynparza for recurrent cancer with BRCA mutation sequence missing?
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CRISPR gene editing
* Twitter * Facebook * LinkedIn * Email * Doximity E diting cells’ genomes with CRISPR-Cas9 might increase the risk that the altered cells, intended to treat disease, will trigger cancer, two studies published on Monday warn — a potential game-changer for the companies developing CRISPR-based therapies. In the studies,…
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Eye issues.
Has anyone had eye issues related to treatment? Ie glaucoma?
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Love yourself first.
With so many new, and not as many old people on this board, I am writing to say live life, be as happy as you can, and allow yourself to be sad, but not despondent. With the latest celebrity suicides in the news, some people in my community are lamenting over the loss of these people. I understand depression is real,…
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Scared and Unsure
I really need to figure out how to proceed. I have Stage IV Grade 3 with serous and clear cell adenocarcinoma. It was in my uterus, cervix, vagina, and wrapped around my bladder with muscle invasion. I just finished frontline treatment....6 carbo/taxol with full abdominal radiation and 3 brachy treatments. When I was first…
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Need Suggestions
Hey ladies! I'm struggling with 2 things. I will address them both,, so let's get the easiest one out of the way. First, my tumor was not estrogen or progesterone dependant, and I am currently using the Estrodial patch. When I forgot to change it in a timely manner, the hot flashes were annoying but the mood swings were…
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VAIN or wide excision
Anyone here that has had a VAIN or wide excision for small lesion on vaginal wall? Not sure will need as we are waiting until July to do the biopsy as too soon after rads and hoping it will be benign. But, would like to know all I can before going in to find out if needed. Thanks all!
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Port Removed today - initially inserted in Nov. 2016
Hi Ladies: Just an update on my cancer port. I had it removed today in a short procedure at my hospital (Crozer) in Delaware County, PA. The procedure lasted about 15 minutes to a half an hour. It ws medically glued in from the removal of the port. My blood level has remained normal since May of 2017, but my oncologist…
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Sometimes you have a really good day
Warriors have all kinds of days and experience all kinds of emotions. We have met through the speeding electrons flying through space in this marvelous thing called the world wide web. We make our way through this cancer journey because of eachother and we all are so grateful to know we are not alone. I had the a happy day…
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Cheese Update
So new renal stent has also become intolerable. Nothing cuts the pain including medical marijuana. I’ve resorted to ice packs to the crotch. I’m seeing a urologist at Johns Hopkins on Thursday for a second opinion and I see my regular urologist on June 18. There’s got to be another solution.
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New chemo study - immunotherapy & breast cancer
http://www.tampabay.com/many-breast-cancer-patients-can-skip-chemo-big-study-finds-ap_business9f30770a3a3d42538cd3f14672cd6529 I just saw this article on using less chemo and more targeted therapy to treat breast cancer. Hopefully, it will apply to uterine cancer at some point. I sure hope so!! Love, Eldri