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CT Scans
Anyone else have items like this show up on their scans? Is it pretty normal? 4 mm low-attenuation focus in the medial left lobe adjacent to the falciform ligament most likely benign such as focal fat. 3 mm low-attenuation lesion in left hepatic dome (3:13), also most likely benign.
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Still NED but---
Had my Kidney US last week and saw URO today. Same small sub cm cyst in other kidney wh1ch they have been watching for years. Officially NED for almost 17 years. But PSA is higher and retest in 90 days. Then maybe Prostate biopssy. Trying to get discharged from URO. icemantoo
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Curative Surgery
I am a bit confused by the verbiage my doctor uses. He uses the term curative quite a bit and he said that following the pathology report there is an 87% chance of the surgery being curative (I had a radical nephrectomy). Does that mean there is an 87% chance I will not have mets down the road? What about secondary…
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5 Years NED & Discharged!
Hi All. Not quite sure how I feel about the discharged bit @ 5 years. But, apparently I have been very lucky. I am fit, healthy and oficially a survivor of PT3a Kidney Cancer. I feel humble and very blessed. I was looked after with love, respect and care by everyone of my medical team. I hope this gives you hope in your…
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Port or intravenously
I am beginning inumatherpy infusions for my renal cancer. The kidney has been removed but tumors were found in my lungs as well. I love to use my hot tub. Its so cold outside. My oncologist says no with a port. My infusions are once every two weeks. Anyone hear of being allowed to us the hot tub with a port?
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The results are in
So my biopsy was positive for RCC Meeting today with Radiation oncology to set up SRBT. The plan is to zap those two spots and bring me back to NED. I will re scan May 13th. In the meantime I'll just be plugging along one foot in front of the other... I hope this finds you all well and happy! Sending out love Cin
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Problems with largest incision after Partial Nephrectomy (Laproscopic)
Hi, I'm new here and am currently in my 2nd week of recovery after having had a partial nephrectomy. The surgery was performed on February 11th, and I must say, this was by far THE MOST EXCRUCIATING PAIN I have EVER been in. The pain was so awful that I actually thought that I might be dying. The doctors insisted that this…
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Glad to Find this Group!
Hi all, im 51 and was diagnosed last month with a 2.5cm renal mass, likely RCC. Scheduled for robotic partial the week after next. I feel very lucky that t was found early, during a routine scan I get for unrelated reasons. I was reading through this forum and was quite touched by the amazing support you give one another,…
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Question.
How bad is Furhman grade 4 and does that even matter 2 years after neph?
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Seeking advice
I am new to this forum. I have been reading quite a number of discussions on this forum and found them very informative and helpful. I am a not so old guy (61 years old) with pretty good health generally. However, last Dec, I was found to have a small renal tumor in my left kidney (about 1.6 cm) which was highly likely to…
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Rebirth Day
My birthday was two days ago. My re-birthday is today - the one year anniversary since my nephrectomy. There were some complications (a clipped artery), and a four-day stint in ICU. I have extra scars (from the laproscopic start and the opening me up to fix my artery finish). There's what I call my 'navel shelf'...which a…
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Exercise Post Surgery
I am about 2.5 months post surgery and have been feeling great. I am wanting to begin working out and exercising again as I just had a baby before my surgery. I recently tried to do some abdominal exercises and noticed that my incisions are actually hurting from the inside. Is this normal? And if so, should I not be…
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I hate it
I hate when we lose people from here. It's funny how we are really just a bunch of strangers with an odd common thread. But, it's funny what a weird feeling it gives me when we lose someone. Fox yes, but others as well. It's never easy. I know we will lose more, this is not a winning game. I suspect one day it will be me.…
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FLY, FLY, FLY
Fox and I were cyber friends and connected immediately; I know how hard he fought and how much he appreciated the years of life that he survived following a dreadful prognosis. There was no treatment he didn’t try and never did he complain about his situation; he didn’t ask why because he knew that the answer was why not.…
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Confused about post Surgery Follow-ups
So I know things can be handled differently dependent on your treatment center and your individual doctor. I am being treated at Memorial Sloan Kettering and I have a urological cancer surgeon caring for me. In our meeting post-surgery he suggested we would put together a scan schedule for 5 years, a combination of…
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Need advice... Doctor recommend yearly scan
I am 40 year old DX in May 2018 with a tumor4.6 cm, well contained, no spread, stage 1b tumor, grade 4. Partial nephrectomy, Clear cell with Sarcomatoid and Necrosis features. I am currently see Dr.Randall at UCSD- Koman Family Outpatient Pavilion. August 2018, my 3 month post surgery CT scan is NED. Today I went to see my…
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Message about Fox
Hello everybody. I've written this message several times then deleted it each time trying to find the right words.....trying to wrap my head around it.....trying to hold back my emotions. I simply can't do it, so I pass on the words from his wife. "I am not sure that I am posting this in the right place but wanted to…
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New here saying hi
Hello, New here and wanted to say hello. My story is in my "About Me" page under the expressions tab, shorter version is this: 12/2016 discovered cyst on left kidney 30x22x23 cm, 01/2017 hand assisted laproscopic radical nephrectomy Pathology shows positive for HLRCC and tumor is of the Tubulocystic variety. Cancer free…
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NED
I just visited my oncologist and he told me that there no evidence of disease (NED) I will visit him again in 6 months... Feeling very relieved.
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I am anxioous
I had partial neprektomi mei 2017 rcc 3,6 cm on right kidney,first control 3 month atter surgeon was NED( september 2017). Second control ( february 2018), 9 month after sorgeon (ct scan thorax and abdoment) was NED, but discovered 3 lung nodul, as one 5 mm was benign, 3 mm beinigm too, and one again 2 mm tiny nodul as…
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Roll call
since the crash, things are real confusing. If you’re still here, type here or something.
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Question about possible mets
Hey Guys, I was diagnosed with RCC back in November and the pathology report and imaging suggests it was contained and did not spread. Back in November I also had a CT then a follow MRI of my brain as I was having some symptoms that concerned me. The CT found "concern for subcentimeter right frontal and right cerebellar…
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Travel
So I had a trip booked for 2/15 to go to Puerto Rico with my family to visit friends that we haven’t see. Since the hurricane. Little did I know when I booked that I’d be having a partial nephrectomy on 1/15. I stand to lose a good amount of money if I cancel, which was what I intended to do until my doc reassured me that…
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Travel
So I had a trip booked for 2/15 to go to Puerto Rico with my family to visit friends that we haven’t see. Since the hurricane. Little did I know when I booked that I’d be having a partial nephrectomy on 1/15. I stand to lose a good amount of money if I cancel, which was what I intended to do until my doc reassured me that…
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Still fighting
Sorry for not posting for a bit. I’m still fighting back against this beast. I’ve stayed out of the hospital so that is good. I’m still on Cabo - been on the higher dose (60 mg) for about a month. The SEs are unpleasant but I’ve been toughing it out. Had scans today and I have a date with my onc at 8am tomorrow. Not sure…
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Been a while..
Sorry to see so much lost content! I know it's been a while since I posted... Last scans show 3 spots in my lungs. Two in right, one in left. Onc scheduled repeat scans and one "spot" resolved itself?? They, however, want to biopsy the one in the left lung. I have been spending a lot of my time on smart patients but I…
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EGFR
Hey all, I was just wondering what yours (and what's considered normal) EGFR and Creatinine levels following a radical nephrectomy? Thank you!
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Hardo781 aka Donna
Hello, noticed that hardo781 (Donna) wasn't around for a long time, since summer. Hope she is doing allright... A.
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Home
Just got back from the hospital. Robotic, small tumor and surrounding area successfully removed. Had to stay an extra day because of severe pain. I had no idea they would make six incisions - feels like I swallowed and elephant and its twin is sitting on top of me. My left side of my abdomen is super swollen too. Thank you…
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Drain issue
im two weeks and three days post partial nephrectomy and I’m still draining a lot of fluid, anywhere from 40-65ml and based on tests of the fluid I am leaking urine. It seems like a long time after surgery and a little internet research tells me this shouldn’t be happening. My surgeon said it could be “weeks” but will…