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www.BMSAnti-PD-1DrugResearchStudies.com
Not sure how helpful or informative this may be to others interested in the BMS Anti-PD-1 Drug Research Studies, but I received this today from Hopkins. I haven't had a chance to explore it yet, but wanted to give others the chance to take a look. _____________________________________ There is a new website for patients…
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Candy Corn!!!
What do baby ghosts wear on Halloween? White Pillowcases. Do zombies eat popcorn with their fingers? No, they eat the fingers separately. Where do fashionable ghosts shop for sheets? [This one is so bad that it's actually quite good!] Bootiques. What do you call someone who puts poison in a person's corn flakes? A cereal…
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hubby with collecting duct carcinoma starting on VOTRIENT
hey everyone... my husband is starting on Votrient as of today after being diagnozed with collecting duct carcinoma which mets to his lungs...the kidney and tumor were removed and now the mets are left to fight off...just wanted to ask anyone whos on votrient if they are haveing any side effects? how bad are they? and how…
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Symptoms to watch for between scans?
Hi gang, sorry to just drop by when I have a question. I have been enjoying the last 5 months being in the 98% (as icemantoo says) who will not have any more issues after my RCC partial nephrectomy. I had my surgery in May 2012 and my first CT scan is scheduled for December. I had the MAG3 scan a couple weeks ago and my…
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New here and surgery is Nov 6th :-) !!
Partial neprectomy, 2.2 by 2.3 cm's on right kidney. Male 48, live around Houston Texas and having the surgery at MD Anderson (pretty blessed :-). They will watch a few very small things on my lungs.... Just riding a little rollercoaster right now....
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Is this a break or not
Short history since I haven't posted in awhile. My husband had esophageal cancer and then a year later found a mass on each of his kidneys. The doctor said, at the time, it was likely cancer and likely a re-occurrence of the EC cancer, but what is in one will be in the other. They did a partial on the larger of the two…
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GI symptoms with Votrient
I am 62 and was diagnosed with stage 4 clear cell in 3/2012, had my kidney removed 4/2012 and 5/2012 lung biopsy with showed lung mets. I have been on Votrient 800mg since June. I was seen at Sloan Kettering and they recommended either that or Sutent...and I am being treated in Binghamton NY. I have had a fair number of…
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Off topic to all of our friends in Frankenstorm's Path - Stay safe!
John and I usually are the first to discount big news stories of weather predictions, but this one hosts lots of frightening elements. Take the recommended precautions and stay safe. Take care of yourself and all your loved ones, including the four-legged variety! Prayers are with you all.
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Off target, but - an encouraging story
I myself am Stage 4 RCC but this story is about my mom, in her 80s, who was diagnosed in the past summer with a nasty melanoma. She had it removed but the MDs thought it had spread and were dropping hints that her goose was just about cooked. She was very upset and pessimistic and fatalistic. Except she just got back her…
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Others on here tell me what this means, if you know???
I found this on the scan report from my husbands recent visit. It wasn't discussed with us, hopefully because there is nothing to it or maybe because the doctor just had the prelimary report. I am going to call them Monday to see what they say but wanted to see if any of you have seen this before,if so what does it mean? I…
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Those with METS to lungs
quickie question: Did you have symptoms that warrented a CT scan of lungs or was the mets found routinely? AND what was seen? I am 9 weeks post OP left partial for RCC clear stage 1 grade 2. I never had any surveillance done to r/o mets but this week got pretty sick and was in the hospital...turns out I have Pneumonia and…
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Newly diagnosed
Hi...I've been a lurker here for a couple months but was hesitant to post since I didn't have a definite diagnosis yet. A little background first: My name is Amanda, I'm 32, married and mom to two crazy boys, ages 14 and 5. I've always taken pride that I am (was) extremely healthy. I eat good, try to stay active...you…
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MDX-1106 16th infusion
Holy Cow! Had my sixteenth infusion yesterday. Awesome, awesome awesome. My oncologist is very sweet and caring. She gives me hugs at each visit. So, I decided that I was not only going to hug her back, I decided to kiss her on the forehead during my thank you. Damn, she beat me to it. After the hug she kissed my cheek. I…
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SORCE Sorafenib V's Placebo Trial
I have recently commenced the SORCE clinical trial to test Sorafenib V's placebo in non-met RCC patients to prevent recurrence. Following radical nephrectomy I was categorised as high risk for recurrence and was offered placement in the 3 year SORCE clinical trial. I have read some interesting views on trial participation,…
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Newly diagnosed
Hi, my name is Jan. My husband has been diagnosed with mRCC . He had a left radical nephrectomy on 9/24 and He has mets to his lungs - evidently it is all over his lungs with one nodule in the lining of the lung. He's been doing great since and even went back to work full time last week - only two weeks after surgery. He's…
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Back in town...
Hello everyone. My goodness you are an active little bunch. I dropped off the forum for 8 weeks and have returned to what I can only describe as some funny, knowledgeable, inspiring and intellectual conversations about life with cancer. It's going to take me a week to get through them all :) So I decided I may as well get…
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Happy Birthday Tex - #70!!!!!!!!!!!!!!!!!!!!******************************!!!!!!!!!!!!!!!!
TW, The occasion of hearing Happy Birthday for the 70th time is reason for celebration all by itself. And while we were waiting for you to pick up on Fox’s hint about taking us all to Bermuda, that’s not going to happen is it? So we all decided to go to Plan B and celebrate this wonderful occasion from our second home, the…
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THANK YOU
THANK YOU ALL FOR THE KIND WORDS,I HAVE AN APPT WITH MY ONCOL- OCT 25, VERY NERVOUS ON WHAT HE WILL SAY,I AM ALL OF A SUDDEN EATING ALOT MORE AND BAIRLY MAINTAINING MY WIEGHT,THATS WHAT HAPPEND WHEN THIS NIGHTMARE STARTED,THANKYOU, LARMAN
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Affinitor Side Effects/Does It Work?
After 5 1/2 months on Votrient my husband had his second scans on Friday. They showed the spots on his lungs that had decreased in size with the first scans were double the size they originally started and there were new spots. They are going to try affinitor starting this week, does anyone have any information on what to…
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It has been 18 months
It has been 18 months since I had a radical nephrectomy. I have still been struggling with awful lower back and pain at removal site. Some clothes just are too much to stand some days. I exercise daily and a chiropractor helps sometimes. Sitting, standing, or lying down for too long makes moving excruciating. I get so…
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Radical nephrectomy
Hello, everyone. This is my first post here. I am from the UK. I had a radical right nephrectomy over a week ago to remove a Kidney carcinoma. It was a large tumour, but the surgeon got it all out laproscopically. Waiting for the histology results to know how malignant it was and what might happen next. Surgeon said there…
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What happens when a trial ends?
Ok. This is probably a really stupid question - so glad this board is anonymous - but what happens if you are in a trial that is working for you and it ends? Are you just out of luck? I'm in a trial with two already FDA-approved drugs. But I guess the way this works is that their combination as a viable treatment has not…
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Anyone in PDL or MDX or BMS trials at Sloans in NYC?
Hello, i am looking for anyone currently in a trial there for this drug. I am hard pressed to find any information and having trouble getting an appt. to get in. Can anyone share any details with me? Thanking you in advance. Angela
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8 weeks post OP
HI !!! I have a ton of questions ! I am a 40 yr old female 8 weeks post op for Left partial RCC T1G2 clear cell no sarcamoid feature tumor. What do you suggest be a normal follow up schedule for imaging. My urologist suggests ultrasound at 6 mo then CT scan yearly for 5 years with ultrasound every 6mo. I dont want to start…
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Trial in Nashville MPDL3280A (PDL)
It's been a long 3 days. I arrived home about 2 hours ago and I cannot tell you how good it is to be here! I want to share my experience with you, but I don't want to get too detailed and bore anyone. Suffice it to say that the scans that were taken on Tuesday showed no NEW growth anywhere, and the spots that they already…
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???? is it necessary to see an oncologist.
Hi, Can someone answer my question or direct me in the right direction. Should I be seeing an oncologist? I am 37 years old female. I had kidney cancer in 2004 which resulted in the removal of my left kidney. Although the cancer was malignant, it was contained in the kidney so no chemotherapy or radiation. I see my doctors…
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Previous scans
The scans that I had two weeks ago from my mdx 1106 / sutent trial finally received the % of shrinkage. The overall shrinkage of my tumors was 12 % over the first 6 weeks. It took over 2 weeks to get the results. Such a blessing!!
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I'm New Here - Awaiting Surgery on Nov. 16
Hello all, I just signed up for this site recently. I'm 51 years old, and was diagnosed about a month ago with Stage 1 RCC in my left kidney, with a 3.5cm tumor, and have been scheduled for surgery on Nov. 16th. My urologist said waiting a couple of months for surgery would be ok as the cancer appears to be slow-growing. I…
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Finally got a date
Well I have finally got a date to evict 'Roger the lodger'. Operation booked for 12 November, so, hopefully I will soon be on the road to a full recovery. my thanks go out to you people on here who have helped and still are helping get me through this Mick
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rcc stage4
On july 2nd of this year I had a 19cm tumer that consumed my left kidney, they took out kidney, also they took some limbfnoads that came back neg, also gallbladder,also had stem growing up my aorda to my heart,just had my 90 day and I now have spots on my left lung and my kidney, things not looking to good this sucks, more…