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Head and Neck Cancer

Archives for March 2019

Another positive story
SCC, right tonsil and lymph node, large 3cm+, stage IVb, 35 radiation doses and seven Cisplatin infusions stopped after five doses. Friday (yesterday) I went through a PET scan again. This is the one closest to two and a half years after diagnosis for me. I was all clear. No metastasis anywhere to be seen. NED But I'm not…
Buccal mucosal cancer -moving forward question
Hello. I recently had surgery March 12, 2019 (radial artery graft from my left forearm to my right cheek after removal of the tumor), skin graft left thigh to left wrist and right neck dissection. I was in the hospital 8 days with 3 days in the ICU. Had a feeding tube in the hosptial, but was gone before I went home. Just…
MILLIENIUM PHYSICIANS
I WAS JUST DIAGNOSED WITH SQUAMOUS CELL 4A ON LEFT SIDE OF NECK. HAVE DONE CAT, PET, 2 BIOPSIES. MUCH TO MY SURPRISE MD ANDERSON DOES NOT TAKE MEDICARE COMPLETE. MY QUESTION IS HAS ANYONE GONE TO MILLIENIUM AND THEIR OPINION OF IT? IF ANYONE IS FROM NORTH HOUSTON DID YHOU GO TO THE WOODLANDS BRANCH AND WHO WS YOUR DOCTOR?…
Lymphedema changes?
BOT cancer, stage 1 (under the new staging), surgery 12/17, modified radical neck dissection/they took a total of 57 nodes, all followed by 30 rads... and many complications. Including lymphedema, which has been an issue since about five weeks post-operation. For the past year, though, it's been almost exclusively on the…
Ug... tops on teeth need to be added again- Tooth Guard Question
Well, I finally did what I've been putting-off. Post-Rads, have had tops added to 12 teeth in the past 7 years, with a couple of them twice. Now I need 5 more @ $200/tooth. Can literally see the inside of one tooth w/small bloodline between said and outer tooth. And the one- looks like a little drilling will needed to be…
Cancer is Tough-Treatment is Rough
And we can not get out and do the things we like to do-we feel too lousy. But if you are used to going to church and can't get there a substitute is available. It is "The Christian Worship Hour" and it is an hour long gathering set up just like a church service. The pastor is Harold Salem who is now 97 years old and they…
voice box cancer
Hi my name is Gerry I'm recovering from cancer of the Larynx\ voice box i have had 25 treatments of radiation finished four months ago. I'm now suffering from side effects coughing at night and excessive mucas in the throat constant spitting.. Is there anyone on here that has had the same cancer and has had radiation…
Tooth Extraction-Needed rather Suddenly
Some of my tooth trouble along the way is due to aging and not necessarily from my treatments. I can't really say how much is caused by each. But actually, for the most part, my teeth are holding up pretty well with the increased maintenance I am doing. I can't complain. On Saturday my one molar on the left side second…
Just diagnosed Squamous Cell Cancer on right tonsil and right lymph node(s)
Help! 48 year old, married father of 3. Otherwise healthy and fit. Driving myself crazy. Very scared. Just diagnosed with squamous on right tonsil and a 3cm x 2cm mass in neck. Pet scan isn’t until next week. Terrified. Ive had very minor symptoms that I just thought related to getting older. I’ll be 49 in June. I have…
CT scan results
Had neck dissection in sept. 2018 then TORS surgery the following week followed by 33 IMRT'S stage 2 with node involvement. CT scan of the head neck and chest on 3-5-19 came back all clear. Had a scope in office every thing looked great. It felt so good too get that report and hoping to have many more just like that.…
Candida - Fungus - Dysplasia
Hi, Everyone - In October I posted under this topic, but it was a casualty of the site's techno snafu. So, to recap, in 2016 my husband underwent hemiglossectomy for Stage 1 SCC HPV+ BOT cancer. This followed years of monitoring a patch of leukoplakia which would come and go. Surgery was the sole treatment, and it went…
Thank You
All, I was convinced I had tongue cancer. ENT today pretty much told me I was silly but long lasting lesion on side of tongue, I figured my tobacco habits had caught up with me. I’ve been following along reading through all of your posts and discussions for about a week and am truly amazed at the positive attitudes, sense…
Getting ready for IMRT/help
Hello. I am new here and have been searching everywhere for advice. I was diagnosed almost 2 years ago w vocal chord cancer. Pre-cancer and T-1. Had several surgeries and lots of follow ups. During November 18 follow up vocals looked pretty good but they found spot on supraglottis. Had that removed and it’s also pre/T-1.…
3 year NED
Just completed ENT visit. Visual scoping shows NED from original March 2016 diagnosis of Stage IVA (old staging) tonsil cancer with spread into soft palate, base of tongue and nearby lymph node. Stiff neck from time to time and thick saliva are the constant reminders of surgery, radiation and Cisplatin. Having plenty of…
oral cancer
Hello, just had to share a sucess story of OPDIVO...It seems unreal. I was dx aug 2017- stage 4 base of tonge with mets to lypmp. completed 35 doses of high radation tx. and 3 doses of cisplatin. Only to find out the 3 mth scan there was further local re- occurence of the oral cancer. Met with ENT for surgical options, was…
Teeth
Recent post got post-Rad damage to teeth and dealing with opened, so thought I'd contribute. 1) Was told 1-1/2 years after last Rad by the U. of Iowa that flouride tx., daily, should be started before tx, thru tx and continue to end of life. Came as a shock to my Rad Dr., who didn't have a clue. Head Dentist @ U. of Iowa…
Next CT Scan is Tuesday.
Leaving tomorrow morning for Charlotte. CT scan Tuesday, ENT checkup Wednesday and Med Onc checkup Thursday. Wish I wouldn’t be scared but I guess that’s a normal ok feeling. Wish me luck for an unremarkable scan. Thanks to everyone for being here. I don’t post much but I follow everyone’s success. Thanks!
Surgery Only choice
HI All, I have been reading these forums and noted so many people having radiation and/or chemo, but my situation so far has been just surgery. Two of them. For HPV positive, SCC of the tonsil with one node involved. I was diagnosed in November 2018 after a bilateral tonsillectomy due to growth of one tonsil. In January,…
I need help- freaking out
I am sorry and I know I should calm down, but I really can’t. My husband was diagnosed with stage 1 HPV- tongue cancer in October 2015. He had surgery, chemo and rads. Was given the all clear in February 2016. Has been given the all clear (head and chest CTs) since then. He recovered amazingly well and his next appt is…
Phlegm is a killer
Hi there, everyone. I am seeking some advice (home remedies/treatments/prescriptions/anything) for the dastardrly phlegm. I post about my dad a lot on here and his fight (his name is Calvin, btw) We got a CT scan back last week and it was... not good. One of his mediastinal lymph nodes is now measuring about 2 inches and…
Swollen neck
So I have a big fear of something being wrong. I have two young children so I feel I worry more because of that. Anyways, on my way to work last week, I noticed my right side neck was swollen. It looks and feels quite a bit swollen. I did make an appointment with the doctor but I can’t see her till may. The swelling feels…
Can never eat or drink orally again
Hello, I received forty doses of radiation for my stage 4 Squamous Cell Carcinoma of the inner tonsel, right half of the tongue, right perotid gland, right corotid artery, and 32 lymphnodes. In addition to wekly does of Erbitux during my initial tretments for my cancer, that was quite an aggressive case at the time. I then…
Radiation damage to bones of jaw
Hi all, I was diagnosed and treated for right tonsil SCC p16 positive in 2016. Now my jaw bones started dying which is called osteonecrosis. As a result my two teeth became loose and my bone and whole cheek get infected. Now I am on antibiotics, and also precribed with Vitamin E, pentoxiphyline, clondronate and…
Pleural Effusion...anyone?
Anyone have this and what was it caused by,? We went in for mapping, did ct, found fluid around lungs. Drained 2200 mls... waiting for test results. Looking to see if anyone else experienced this
CLOSED ROLL CALL 2019 - FIRST UPDATE MARCH 3, 2019 CLOSED
PLEASE READ ROLL CALL 2019 First UPDATE March 3, 2019 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. ROLL CALL Guidelines: A…
Ringing the Bell!
Hi everyone, This is Chris50, now 53 as of February 18. I wanted to check in to say I received the best news two weeks before my 53rd birthday—2 and almost 1/2 years NED Pet scan for HPV P16+ head and neck cancer (one tonsil tumor plus 1-3 lymph node involvement). I experienced a great deal of anxiety leading up to the PET…
damages from radiation
Where I am from they pass out Cancer/Radiation/Chemo like it's candy. the doctors etc. have no clue what they are doing. They are neither experience or trained in the issues and damages that occur from radiation. You get NO correct diagnosis, No appropriate treatment or anything documented correctly. I have been to every…

Head and Neck Cancer

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