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Head and Neck Cancer

Archives for September 2012

GOING BACK TO WORK TOMORROW!
After 16 weeks off, 3 rounds of chemo, 35 radiation treatments, and 27 lbs lighter I go back to work tomorrow. In one way I am looking forward to it, seems like that will make me feel more "normal". On the other hand, a little anxious as to how I will do. I purchase and receive all the medications for a hospital so can be…
Andy
My husband died last Friday. He died peacefully surrounded by his loved ones. He was beyond courageous in the face of his metastatic cancer at the age of 58. I will continue to draw strength and courage from him. Robin
free tube feeding
I have the following supplies that I would like to donate to someone on tube feeding: Abbott Vital AF 1.2cal vanilla - 2 cases that are in date (Go to Abbott website to read about this product. It is very costly and was recommended for my husband, Andy from a friend who has worked for Abbott for 30 years.) Abbott 1000 ml…
Lazar Nerve Stimulation
Hi everyone, as most of you know the Vagus never in my face and neck has been damaged from having radiation twice to the same area. A few months back I lost the ability to swallow and my Voice got to where no one could understand what I was saying, I love preaching so this was very bad for me. Why because my tongue was…
NEUPOGEN
Have you got this injections too? Just wanna know who had it how it affected them as they have their chemo treatments. Thanks!
Grandbaby arrives !
Hey everyone ! Emily arrived at 1:30 this afternoon, and is beautiful ! 7lbs 6ozs and a head full of hair ! Posted a picture under my expressions....tried to here, but didn't work. I cried and smiled all at the same time. It's moments like this that make all the fight worth the effort ! My daughter did wonderful...and…
Chemo Rd. One starts Monday
Hello all my brave warriors! As you all, most know...my cancer has spread and Metastasized all over my body. After getting a few other opinions I will be doing what intimately was suggested by my new doctors at University of Chicago Medicive. I will be doing four rounds of this chemo cocktail that's a bit different than…
Was my doctor inept?
On the 17th of September I went for my annual CT scan of neck and chest. In the afternoon at my Oncologist appoint ment he said that the scan showed no change, was all clear except for the nodule that showed up in May. He said he was absolutely certain all was ok and he would see me next September. The next day there was a…
Precancerous lesions from follow up Bx???
Need some input! SCC in 2006,left side of neck, radiation only...lots of pain and a PT scan that said I had recurrence....bx comes back negative....new SCC on right side of neck, chemo and rads....finished in April of this year....now 5 months later...pain big time and lumps on throat....PET comes back with a hot…
Not a happy camper!
I have been going back and forth for the last few weeks on how to post this. thank you Deb for keeping in touch. I thought there was something wrong with my new glasses, then I realized that it wasn't the glasses--I am having double vision. I was able to see an opthamologist (his office was quick to dx diabetes--my…
I'M TUBELESS!!!
yahoo! much to my dismay, i did not have the tube with the balloon at the end. when he yanked that mother out - WHEW!!! what a rush!!! then after a minute or two it didnt even hurt anymore :o ) hope everyone is well and has a good weekend!!!
Ensure not setting well
David is having alot of problems with the tube feedings. First he was very nauseated and now it just always sounds like a thunderstorm erupting in his tummy. He says he feels terrible. He is supposed to have 6 cans a day, but the most he has tolerated is 3. Any recommendations.
Results today
Today is the day! I get the results from my first post trt PET/CT, my stomach is turning at a crazy speed, hardly slept at all last night. Boy is there some weird shows on tv in the wee hours! Have a great day everyone. Billie
biopsy results in the a.m.
Hey everyone, I have been saying I'm sick of feeling sick for months. Still very weak, nauseated and dizzy. Trying very hard to get calories to stay in me....but stomache wants to get rid of it as soon as I try. I get those results on the scope tomorrow...good or bad I'm hoping they can pin point why I feel like this. They…
Decision about treatment
We met with radiation oncologist and oncologist today. Basically we had some good news. We are being put in a study to do less radiation because he had surgically proven negative nodes on the left side, which means he will have radiation to the right side only. He will still need chemo though. Of course the dr explained…
What a week
I just had to share what an interesting week I have had. I am so thankful that dad's appointment went so great, because I could not handle something else. Over the weekend the crazy neighbor next door came after me claiming that I mashed his ditch down in his driveway. This is the second time he has been after me. I now…
Tongue Cancer - Post operation clarification
My friend underwent surgery on Sep 5 and now 4 weeks completed. She looks normal. Today she found small reddish spot on the stitched area of the tongue. Looks like small lump. Is it harmful? Please advice Regards Dalapathy
What a ride
Ok I have decided God has a good sense of humor. Between the stress of my job, fear of losing my home and the biggie Cancer, I thought I had hit all the stressors. Well this morning I woke up to find out I am pregnant. Yes PREGNANT. It is a huge blessing, but another thing that I have little control over and now David is…
Results of PET/CT Scan
We got the results of my husband's PET/CT Scan yesterday. Needless to say we are somewhat pleased with the results. Mad at the oncologist because I don't feel he really looked at the results nor the lab work that was done before seeing us. There was some fluid in the lower right lung and first thing they wanted to do was…
More questions than answers.... Can you folks help?
I am new here and why I waited so long is beyond me. Some history: My mother is 61 and was diagnosed with stage 4 neck and throat cancer in January of 2011. She has always been healthy and never drank or smoked(unlike me). She refused treatment as she and my dad have always believed in natural remadies for everything. The…
Saw the Oncologist today....and am scheduled for a PET scan
on November 27th....gawd that is a long time away! Onc checked me all over, said my salivary glands are very inflamed, but thinks the further way from chemo I get, they will get better (I'm telling you guys, these glands make me look like a squirrel packing nuts away in my cheeks and throat for winter). Onc won't pull my…
Finished my treatments today, buy my ear still hurts
May 30,2012 I had tonsil cancer removed by robot. I also had a radical neck dissection. I had chemo and radiation, which I finished today, but my ear is hurting. Could it be from the treatments?
Woohoo he's home
Finally I got David home at 5:00 pm EST. When we pulled up there were two supply cars from two different suppliers with the exact same order. It was funny because one of the men said it's up to the costumer and the other was obviously stressed out to say the least. I finally picked the one that the hospital told me to…
Pet scan results not so good, it may be time to fight again
I have been very hesitant to post this because i hate bad news. But here goes i got my 3 month pets results on monday they showed no signs of cancer in my throat (original dx with tonsil stage iv with lympnodes). They did however find a spot on my lung about the size of a dime i have a biopsy scheduled for next thursday.…
3_6months
After going thru 6 chemos and 7 weeks of chemo /radiation my wife's tumor came back with a vengeance.Rads only ended 6 weks ago. Told today that it is almost totally inoperable for an eighty yrold. Gave us 3 to 6 mths. Trying to find a clinical study and waiting on Oncologist to get back to us. We've been pretty healthy up…
Day 2 of Induction, the fun continues
Good morning folks, here begins day two of the Induction journal. Crashed into bed about 9:30 last night and didn't stir until an emergency trip to the commode at about 2 am. When I say emergency I mean it. For the first time since I was drunk on Jack Daniels in College I didn't make it to the commode in time. Second time…
Coughing
Some background: My wife has Stg4 Myoepithelial Carcinoma. Original tumor removed from her parotid gland along with rads in 2007. Hundreds of small mets in both lungs and one large met in the liver discovered in 2009. Progression of the disease has been slow but persistent. She has recently developed a persistent dry…
Which drug with chemo
My husvand will be starting chemo and radiation early next week. We see the drs again tomorrow and he will be fitted for mask. Due to his surgery at BOT, . his swallowing is not 100 percent yet...Probably about 75 percent at this point. I know that cisplatin can increase swallowing problems when combined with the…
Chemo pushed a week
Saw my oncologist today, and was supposed to start chemo after the appt. I had formulated a few questions, updated her on the staph infection around the g tube, and IV port. She told me that I should wait and do both chemo and radiation on the first of October, and let the staph infection heal. I was psyched up for chemo,…
Survivors
My mom is having a PET scan on October 16 to make sure all of the cancer is gone after 35 rounds of radiation and 2 rounds of chemo, whoch ended back in late July. I want to know how many neck cancer survivors are here and have things gotten back to normal in your lives? Did you have to make any adjustments? Were you able…

Head and Neck Cancer

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