-
Cancelled Cruise
Well I know that there are worse things... I know that. But... I'm 67 and for our 25th anniversary we booked a mediterranean cruise. We thought we would chance it even though my blood counts are low. I didn't tell my oncologist because I just knew he would advise against it. I'm not currently on chemo but I've had this…
-
Chemotherapy and MS
Hello my dears, I wanted to write down how my dad is with stage IV colon cancer and multiple sclerosis. Probably 28th of Feb the chemotherapy with FOLFOX will start. He will get every 2 weeks 48hours of infusion. After 2 months they will check again. The liver metastases have a diameter around 7 and 14mm. Even though my…
-
SBRT Side Effects?
Hello, I've been through my three SBRT treatments for a metastisis in the upper left lobe of my lung and definitely am feeling the fatigue. Does anyone else have experience with this? Know how long it lasts? What the window is for it to get worse or other side effects to appear? I've read online it can last months and that…
-
Hand and foot syndrome
Hi all While on Xeloda, I developed terrible hand and foot syndrome. I could barely walk. i belong to Stage 4 colon cancer group on Facebook. I saw this today: https://www.ncbi.nlm.nih.gov/m/pubmed/29095653/ I wish I had known this. I want to share for anyone on Xeloda now. Cheers k
-
Ct scan showed mass in liver
So I'm really scared about the fact that my rectal cancer has spread to my liver can I get some stories from long time survivors with the same thing it would really help
-
Lymphocytes
Good morning! Does anyone have any ideas on how to raise lymphocyte levels?
-
Colon cancer recurrence into spleen
Has anyone had experience with colon cancer recurring into the spleen? 6 months ago my scans and blood work were fine. In January my CEA was elevated snd the found 2 tumors on my spleen. My liver is okay as of now, thank goodness. I just had a splenectomy and am waiting on the pathology report. Everyone so far keeps saying…
-
Microsatellite Instability in Colorectal Cancer
My husband (Stage II) was found to have Microsatellite Instability, a genetic defect. Colon cancer patients with Microsatellite Instability have a slightly better prognosis than colorectal tumors without MSI and do not have the same response to chemotherapeutics. This is relatively new information and means that genetic…
-
Erbutix rash
My erbutix rash was so bad that I couldn't sleep at all. I put cream on but that didn't help. Then I just took the hottest shower I could and after about 20 minutes the pain went away. Anyone else use hot water to stop rash pain?
-
End of OXA
With three FOLFOX treatments left, tonight was the last Oxaliplatin I'll receive (hopefully, unless one bugger returns). I told my doc I didn't want to have it anymore and she agreed (various reasons, persistent numbess even though not very debilitating and the years of life I have left, a lot!) I make my living by typing…
-
Dad has Stage IV colon cancer and MS
Hello guys, My dad, 55, was diagnosed with colon cancer stage IV recently. It was all a huge shock for us. His mom had a malignant polyp removed when she was 53. His grandfather also had colon cancer and was living until the end of his life with a plastic bag. Even with this background we did not expect it. My dad was…
-
No scan, bloodwork only.
Ok, I'm going for my second appointment since my surgery on Friday. I thought I was going to get another CT scan, as when I first starting seeing this oncologist he told me I would get a CT scan every 4 months for the first year. I assumed that they would schedule the scan a few days before the appointment, so that the doc…
-
There's always something new around the corner
There's always something new around the corner. I post this not as a current, valid alternative to chemo, but to give us all hope that there is something new around the corner: Electrochemotherapy is a promising anti-cancer approach that potentiates the cytotoxic effect of drugs by application of external electric field…
-
meandmine
Hope your doing OK. We would love to hear from you.Our thoughts and prayers are with you. If you need to talk we're here!
-
Well, Made It 5 Years. Hopefully Another Treatment Crops Up- Keep On Moving
It is 5 years since I was released from the hospital since my first surgery. Then had chemo. Then a lung met. Then another surgery. Then it came back again. Failed Immunotherapy trial. Then radiation and chemo. Chemo stopped working. Did not qualify for another trial. No real chemo options of value - will go on one well I…
-
Cea level 7162
I was just diagnosed with rectal cancer last week from colonoscop. haven't seen surgeon or encoloogist yet. My cea level was 7162 I haven't been staged yet or had ct scan. Does a level that high mean it has already spread.
-
The shrink backed off......
I did start to look for a therapist about a year ago. I had 2 very dissapointing encounters with 2 guys. My oncologist told me that we don t have anyone in the area who specifically trained to work with people who have cancer. I found the 3rd one who seems ok. It happened after I returned from MD Anderson with a clear case…
-
Postive Margin with no cancer maybe ?
So after my dad's surgery for stage 3 rectum cancer his pathlogy tests showed cancer in the margin of the tumor they took out . So doctor sent us to University of Michigan to get another surgery to get the cancer off my dad's prostate . But now the university is recommending we wait 3 months to do another MRI before they…
-
A life expectancy is given by MD Anderson
The MD Anderson fave me a life expectancy because I asked for that. It doesn't look nice. A story of a relatively young healthy adult who had 3 colonoscopies with 2 different docs and a scan that missed the first liver met over a year prior to diagnoses. Sure, they are not God and when mire information arrives tgey can…
-
Happy Birthday SophDan/Barry
I hope your day is wonderful in every way; and that life continues to bless you with birthdays. Tru
-
newbie here
I was diagnosed with stage 4 colon cancer that spread to liver and lungs in August. My initial CEA was 247. Of course I was devastated, my doctor ordered a liver biopsy just to confirm what CT scan showed (2 inch tumors on both sides). For two weeks without really knowing anything I was numb, and one Sunday I remained on…
-
LARS
I heard the term LARS used a lot on this board, but never really fully understood what it meant. Here is an article with a "consensus definition" of the term: https://onlinelibrary.wiley.com/doi/full/10.1111/ans.15421 To meet the definition of LARS a patient must have had an anterior resection (sphincter‐preserving rectal…
-
ALPSS for liver mets.
Trying to get information about ALPSS prosedure for liver mets ?? I did search on forum but didnt finf anything. Did someone have this prosedure??
-
Liver mets bs lung mets
Does anyone know why lung mets respond less quickly to chemo than liver mets do?
-
to late
I had wrote under the heading (to many test) after being sent to the surgeon in may,he has sent me for test after test. still needed to go to a urogist for his test and had at least 2 more test for gyncolist. I have stage 4 colon cancer invading female parts with tumor there,plus tear between the two areas. I ask for a pet…
-
drugs
Some oncologists are not doctors but chemodrugs traiders.
-
From Butt.....................
Typing from my mobile....I got diagnosed in Fall 2017. They put me in chemo and a few other things were done. In May 2018 I had a liver resection I started to push myself with walking because I really wanted to go back home for 3 weeks in July to see my family and friends. One doc suggested a mop up chemo and instead of my…
-
Restarting chemo
Restarting chemo on February 12th. 5fu, avastian,and this time they will add irinotecan. 3 months than we will go for liver resection again. Trying to work on some problem lesions. Getting c.t. scan Monday morning. Blood work is very good and cea is remaining low at 2.0. May liver biopsy came back negative but the surgeon…
-
Tumor fevers or the Plague
Oh my stars this has been such a crazy time! I fell ill and went down hard. I ended up in the hospital twice the first time was only for 2 days but the let me go despite my protests for a specialist. The very next day my vitals tanked and I my O2 sats were in the low 80's. I spent 10 more days in the hospital being treated…
-
Husband has colon cancer, starts chemo soon: I need support
Dear friends, My husband has just been diagnosed with a highly metastic form of colon cancer. I have all the details, if that helps. I am used to getting information and support from similar forums for my own health issues. So I am hoping I can find the same thing here. His prognosis is not good, and I'm still trying to…