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A rememberance of our own members who passed in 2016
I must admit that this is a shorter list than last year, and I am thankful for that. Of course, with the nature of our forum, there are sadly many members who post, and when they pass, we do not get notified. We will remember those as well. 2016 ReadyorNot2016’s Dad - March Lilacbrroller - Spring Jen2012’s husband - April…
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Coping everyday
I was diagnosed early November had the surgery November 30th had a port put in for chemo December 23rd. Chemo should start jan,9th, but I don't have my insurance debuctible payment. I am blessed because I made it off the table, I try to keep a smile on my face for the most part but, sometimes it's hard. I know I'm not…
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Oncologists
I'm no longer seeing the oncologist who I was seeing at the time of my blood clot, the pulmonary embolism- that almost killed me. I'm sure most of you know the story. The one who dismissed it and told me to take aspirins for the blood clots I'd been having. I didn't want to see her anymore because of her not taking that…
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New to CSN - Stage 4 Colon Cancer
Hello, my name is Scott. Over the past several days, I have been trying to research information about upcoming chemo treatments and side effects relating to the Avastin/Irinotecan/Xeloda regiment. The research journey has taken me everywhere and eventually to the CSN discussion board where I have found solace in the…
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So...
I attended my wife's six month routine check up. We were assigned a new oncologist due to our previous one moving on. Anyways, blood work looked good. WE got to talking to him and he indicated that NCCN guidelines have changed. In regards to being a cancer survivor... People are considered a survivor at the time of…
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Window Sticker for my Car Ideas
It used to bug me when people drove around with cancer stickers on their vehicle. Like the ribbons, there was a lot of that. I felt like they were wallowing in it when they should just move on if they'd survived. I know, what a horrible thing to think. I thought you had it and then you either survived or you didn't and if…
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Low platelets, uterine bleeding, chemo damage
This will be tmi for some. I'm posting the topic to see if other women have experienced the same and to warn / inform others who might find themselves in this situation ... I stopped taking chemo ( Xeloda) on 11/13/16 Because I was sick of the side effects (headache, gum / tooth pain, fatigue, skin sensitivity) and needed…
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This Can't Be Happening Again!
Hello All, It has been some time since I posted. You all are never far from my thoughts. I am asking for your prayers, good vibes, and positive thoughts for my son, Robert. As some of you "oldies"(but goodies, might I add) may remember, I lost my husband, Ron to H&N and Lung Cancer back in May 2013 and just one year after…
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My husband has stage 4 colon cancer
On December 5 I took my husband to Vanderbuilt hospital ER with sever pains in his stomic area. He had seen a hemotoligist on Decemebr 2 due to our PCP's suggestion. My husbands hemoglobins were ar 6.4 and we were told to go to the ER. The ER did a CT Scan and admitted him right away. The next morning the floor doctor came…
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We're All Tough!
I was watching a new show tonight with my daughter. It involves people who are trying to get through similar training to what soldiers go through. It's really hard and I'm really impressed with how tough these people are. Then it struck me. If they were told they'd have to go through some of the things we here on the board…
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Partner has stage 4 rectal cancer with one small met to sacrum
Last February my partner was declared NED after over a year of treatment for what we though was a stage 3 rectal tumour. A couple of months ago a PET scan revealed a small tumour in the sacrum that apparetly was just visible in the original scans lest year but was somehow missed. Bloodwork still shows no evidence of…
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New to board - stage IV colon cancer diagnosis
Hello everyone, I was diagnosed with stage IV colon cancer in Feb 2015 (I had just completed treatment for breast cancer in 2014, having undergone left breast mastectomy in 2014) I was having some abdominal pain but nothing too severe. My oncologist noted that one of my lab reports (Alk Phos) was elevated and after CT scan…
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Jeopardy contestant Cindy Stowell dies of CRC
The winning contestant on Jeopardy these past few weeks, has passed away from Colrectal Cancer. I think she will be a good reminder to people of what the face of Cancer looks like. And I mean, you don't have to look like you're dying. She was so very young. Oh, how I hate this disease. Any disease actaully. All of her…
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cbd oil update
so i recived my oil on monday 12/19/16 and i have to take 5 millagrams twice a day then up it to 10 miilgrams twice a day it is now wed and i had 4 treatments the oil has 1% thc so there is no getting high on this oil the only thing that i have noticed is having more engery and i am able to do more then sit around the…
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The emotional moment
Well, I hit one of the major points in my life. Had surgery to remove tumor out of my intestine November 4, 2011. Diagnosis on the tumor came back as cancer, visited Oncologist to find out I was stage IV. Started my journey December 19 2011 meeting the staff on the Cancer Clinic and discussing how the next few months would…
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After the APR...
Hi everyone, it has been a while for me since I visited this forum. You folks are great though! I appreciated the feedback and support as I was here before the surgery...writing and worrying and asking questions. i lost track of my password and everything, and I just sorta faded out of existence. That is just how it is for…
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It's one of those hard days
The night before, my wife went to sleep on the bathroom floor, because the headaches and nausea pinned her down. I threw a blanket on her and checked on her every ten minutes until I passed out. When I woke a call came from the local ER, she didn't want to wake me, but I raced there and four hours later the x-ray showed a…
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another cea question
so i have had stage 4 cancer for 3 1/2 years and it dont want to go away or in remission been throught all the fun stuff but my cea always is around 0.4 thats in the normal range i keep growing tumors in my groin so somthing is going on...im on my 3rd chemo and i know im spelling this wrong but its erbatux and it gives you…
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How to deal with Rectal seepage 18 years after completion of Chemo-Radiation-Surgery
Developed rectal seepage - Most of the time it is slight - However it becomes painful chapping - Need tricks on how to handle it - Neither my Gastro Doc or Surgery Doc know how to handle it - Told it is caused by scar tissue from radiation and that this develops at 15 to 20 years post treatment - I am 18 years since…
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Missing my brother
He smiled through every chemo. Every time we went for his infusion, he brought chocolate chip cookies to the girls. He always smiled at them and never complained, even when he was uncomfortable. This was my brother, a sweet, dear, kind man who I miss so much. I always thin of all of you and keep you in my prayers. I keep…
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Heartburn meds and Xeloda/capecitabine
you might want to run this by your onc/regular doc: www.medicalxpress.com/print401108457.html
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CEA
Please anyone. I just had a bunch of blood work done I am 59 years old. I have lost 40 lbs over the last 8 to 10 months. My Liver, Kidney,Panceas,tyroid all within normal limits. I do not have hepatisis or Non Hopkins lymomia. I have a ct scan with contrast results nothig. I am wiaitng for authorization for my coloscopy…
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Stage IV - 5 Years NED
I have not been active on the board for quite sometime, but return to offer hope to those individuals who are knee-deep in this battle. I am now 5-years out NED since the end of treatments. I was diagnosed December 2010 as Stage IV at 46 years old with rectal cancer, with metastases to my lungs (3 tiny spots less than I…
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CEA BLOOD TEST
Hi Everyone, I would really appreciate if ANYONE can answer this post. This is my first time posting. I am 59 and have lost 40 lobs in 10 months. I now weigh 95 lbs. My thyroid, kidney, bladder, liver, (cant remember them all) blood tests within normal range with the exception of the CEA which is 14. My neighbor had a CEA…
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Mucinous adenocarcinoma with signet ring cell
hello I've recently been dx with the above. Surgeon has said it's confined to pelvic area, originating in my rectum. I've got crohns disease and have had a recto-vaginal fistula for years. I'm expecting to undergo ileostomy, hysterectomy and possible vaginectomy very soon. Anybody out there had/have this and can share…
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Today is my lifeiversary!
Two years ago today I had the pulmonary embolism that should have taken my life in an instant if it weren't for the intervention of some fabulous EMTs and emergency staff once I got to the hospital. Seven cardiac arrests is what I now understand to be true from what I've been told. One here at home, five in the ambulance,…
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Immune Therapy Article
Interesting article, sorry I don't know how to post to just click on it... http://www.philly.com/philly/health/cancer/In-a-first-immune-therapy-tames-mutation-in-colon-and-pancreatic-cancers.html
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hi everyone
been gone a while. yesterday finally got my port out, had it since apr 2014. it's good, just wish my wife was here to celebrate it with me. she passed last dec of cancer. hope everyone has a good xmas
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hello everyone
i haven't been on in a while, just to let you know finally got my port taken out yesterday. i've had it since april 2014. it sure seems good. just wish my wife was around to help me celebrate she passed last dec 21st of cancer. everyone have a good xmas
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FORTY SEVEN!!!!!!!!!!!!
I'm only 4 years ned but 5 years diagnosed and so to all I say THANK YOU! Thank you for getting me through the absolute hardest part of my life. When I got diagnosed, I promised I would celebrate 47 with a party if I made it and here I am! The terminology was so confusing, the fear was outrageous, the anxiety was beyond…